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Still fatigued, but doing better today

Saturday, August 20, 2011

Feeling a little bit better today, but still taking it easy. I've been managing the pain issues today with just half a pain pill so far, and only taking a half the dose helps with the fatigue too. I've been making use of my TENS unit for my hip, and I used ice on the shoulder pain. Still spent much of the day relaxing in my recliner with my feet up; watching tv and working on my hats, or reading. I also took a nap again this afternoon.

I've had a little bit of a sinus headache all day, but nothing too bad so far. We've had some rain today, with a couple of thunderstorms. I am just trying to care of myself today so that I will feel good for my cousin's party tomorrow.

I took a picture this morning of some of the hats I recently made using my Knifty Knitter.


For those wondering what a Knifty Knitter is, I also took a picture of the one I make the hats on. The thing with the purple handle is the tool I use to work the yarn on it.

  
  Member Comments About This Blog Post:

OPALMOON 8/22/2011 8:16AM

    Hi Shari,

Sorry to hear of your ongoing problems. I hope the TENS unit helps - I have one that sometimes take the edge off my back pain, sometimes not. Love the latest hats you have completed, they look great!

Take care of yourself, blessings and hugs, Nattacia



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CIRANDELLA 8/21/2011 1:52PM

    I'm sorry to hear you've had a difficult time lately, Shari... it's frustrating when pain meds cause so much sleepiness, isn't it? Grrr.... I hope the TENS unit will help, though. Despite all that - and it's a LOT of all that to have to deal with! - your hats are gorgeous! I love the colors...and that Knifty Knitter's design is so amazingly simple! Have a restful afternoon.. emoticon

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BETHGILLIGAN 8/21/2011 8:34AM

    Glad you are taking care of yourself! Hoping you are feeling good for the party!!

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ELLFIN3 8/20/2011 8:45PM

    Love the hats! I hope you have a fantastic day tomorrow! Love Ya!!! emoticon Susan

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ADAGIO_CON_BRIO 8/20/2011 8:34PM

    I love those hats! And what brilliant color choices! I hope that you are feeling a lot better and that you have a great time at the party tomorrow.

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WENDYSPARKS 8/20/2011 4:59PM

    My grandmother was good at knitting.

Wendy emoticon

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1STATEOFDENIAL 8/20/2011 4:28PM

    I've seen those nifty knitters before but never figured out how to use them.

Hopefully you feel much better tomorrow and can really enjoy the day.

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NURSNANA 8/20/2011 4:26PM

    The Knifty Knitter sounds great, thanks for the picture! The hats look so pretty! Glad you are taking it easy today, and the pain is a bit better. I will be thinking of you tomorrow, and praying you get to go to the party. Look forward to hearing all about it too! Have a relaxing evening. ~hugs~ Nancy



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Not a good day

Friday, August 19, 2011

I went to bed early last night; a little before 9:30am; slept pretty well, and was up a little after 6am.

I did pretty well yesterday, only took 1 pain pill in the morning and didn't take any more the rest of the day, or last night. But this morning my hip and knee were really hurting. I did not want to have to take a pain pill so early in the day, so I waited; I hoped it would get better as I was moving around. I even a tried a soak in the tub after breakfast, but I couldn't stay in the tub too long because I got too warm. Tried sitting in the recliner with the heating pad, that didn't really help either. Finally I took a pain pill around 10:30am and went back to bed to try to take a nap.

I stayed in bed for half an hour, but never fell asleep. But in that time the pain pill started working a little bit. However, it hasn't been working as well today as it usually does, and it's made me very tired. I've spent most of the day in the recliner, because it feels better on my bad leg to have my feet up. I'm having a very hard time not feeling discouraged and sorry for myself today.

I've been working on my Knifty Knitter loom and I finished another hat, that is about the only thing I have accomplished today. Just going to make a few quick visits to my Spark teams and then I'll go back to my recliner and do some reading before it's time for dinner.

I'm hoping tomorrow is a better day with the pain and with my attitude!

  
  Member Comments About This Blog Post:

SUEJENN 8/20/2011 1:11AM

    Take gentle care, Shari.

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1STATEOFDENIAL 8/19/2011 9:25PM

    Hang in there - it has been bad before and things got better, so I believe it will get better again.

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OUTDOORGIRL69 8/19/2011 9:07PM

    Lots of emoticon my friend. Prayers are there for you.

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CELLOPLAYER1 8/19/2011 8:41PM

    emoticon

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BGBEAR624 8/19/2011 7:21PM

    So sorry you're down today :( Sending you lots of positive vibes for a better tomorrow!!

emoticon emoticon emoticon

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TUFFYBIRD 8/19/2011 7:11PM

    I hope tomorrow is better!!

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KERRYG155 8/19/2011 6:39PM

    Hope the pain gets under control soon. I know it does wipe all the energy from your body. Praying a good night's sleep takes care of the problem. emoticon

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PATRICIA441 8/19/2011 5:37PM

  You wouldn't be normal if you didn't feel bad about your situation. You did all you knew how to do and still felt uncomfortable. The TENS unit might be a good thought. Pray tomorrow is better for you. Sending healing hugs. Pat

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NURSNANA 8/19/2011 5:31PM

    Shari, So sorry you are in so much pain today. Have you tried the TENS unit? Sounds like you may need a stronger pain medication for days when you have increased pain. Has the pain doctor ever talked to you about pain patches? They can be very effective. Pain can make you feel discouraged some days. I am still praying you will be able to get to the party this weekend! Let's hope that tomorrow is a much better day for you. Take it easy my friend. Wish I lived closer to you! I could bring over a GP friendly dinner and help out with anything you might need! ((((((((((~hugs~))))))))))

emoticon emoticon
Nancy
emoticon

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ELLFIN3 8/19/2011 5:00PM

    I am sorry!! It is not fair!!! I hope tomorrow is a better day! You can feel sorry for yourself-it is allowed!!! Here is to a lot better day tomorrow!!! emoticon Love YA!!! Susan

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BETHGILLIGAN 8/19/2011 4:16PM

    I am so sorry to hear you had a rough day! I'm glad that you took it easy, though. I will pray tomorrow is a better one for you.

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WENDYSPARKS 8/19/2011 4:15PM

    Hope you feel better soon and tomorrow is a better day.

Wendy emoticon

Comment edited on: 8/19/2011 4:16:10 PM

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Just going with the flow today

Thursday, August 18, 2011

I don't have as much energy today as I had yesterday, but I am not trying to fight against it today, I'm just going with the flow. I know part of it is from chemo. I'm also feeling like my sinuses are draining down into my throat, not enough to make it feel sore, just kind of "icky"; I'm sure that's from my allergies, and probably contributing to my fatigue also. I know that I can't push myself too hard this week because I want to be well on Sunday for my cousin's pizza and ice cream party.

I'm just kind of puttering around the house today, sitting down when I feel the need too. I've also worked on a chemo hat today and I'll go back to that when I'm watching tv later on tonight. I did do 40 minutes of my yoga DVD; it made my legs kind of tired but I think it was still good for me.

I think it will be an early bedtime for me tonight, after doing a little reading.

  
  Member Comments About This Blog Post:

NURSNANA 8/18/2011 10:16PM

    Hey Shari, Glad to hear you are taking it easy. I am praying you will get to go to the party this weekend!! It is wonderful that you took the time to start the Facebook page on making caps and hats for anyone going through hair loss. What a great idea! I wish I could do it too. My arthritis has flared up in my hands, and it is difficult to do things like that right now. I will be checking in on the Facebook page and cheering the others on!! It is such a good cause! Take good care my friend. ~hugs~ Nancy

Comment edited on: 8/18/2011 10:19:53 PM

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OUTDOORGIRL69 8/18/2011 8:43PM

    I'll be praying for you to feel better

emoticon

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BETHGILLIGAN 8/18/2011 6:03PM

    sounds like an early night would be a good thing!! Rest! Hopefully, you'll have more energy tomorrow!

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1STATEOFDENIAL 8/18/2011 4:22PM

    I think it's a good idea to not push yourself into anything this week. It will be great for you to see your family this weekend - don't want to have to cut it short due to not feeling well!

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ELLFIN3 8/18/2011 4:12PM

    A pizza and ice cream party sounds great! Rest up so you will feel like going! Enjoy your TV and hat making!!! Love YA!! emoticon Susan

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SMIDGON 8/18/2011 4:10PM

    You have a lot of spunk, girl.

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An idea I had today for my chemo hats

Wednesday, August 17, 2011

If you a regular reader of my blog, you know one of my hobbies is making chemo hats and caps to donate. Last night I had an idea to create a Facebook page for others that might like to do the same thing. To tell you what this page about, I will copy and paste what I have posted on the info page for group. The name of the group is Made With Love Hats for Hair Loss.


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"I enjoy making hats and head coverings for those who have lost their hair because of cancer treatments and other medical conditions.
I thought that others would too, so I started this group so that we could care tips, ideas and. resources for patterns and materials. Feel free to share photos of your creations to!

One reason I do this is that I have cancer myself. It started with stage II breast cancer in 2003; I lost all my hair to chemo then. I was shocked at the prices online stores and catalogs were charging for head coverings for cancer patients, up to $30 for something as simple as a square scarf! So I went to Walmart, bought a bunch of fabric for $1 to $2 per yard, and made my own scarves.

My cancer returned in 2007, in the form of bone mets, I am now stage IV. I had to quit working in 2008. I wanted something constructive to do with my time though. I am on chemo again, (this one is not causing me to lose my hair though), because of my fatigue and other side effects, I am not able to get out and do volunteer work, but I can make hats! I crochet, sew and make them on my Knifty Knitter loom, and donate them to the Susan P. Wheatlake Cancer Resource Center in our town.

I am on a fixed income, so I look for free patterns online, watch for sales on yarn, look for inexpensive but pretty fabrics, and occasionally, friends will donate materials.

Another reason I do this is that I remember how devastating it felt for me to lose my hair; it's one of my most vivid memories of my first experience with cancer in 2003. And I know that many women who have lost hair, like me, can't afford to pay a lot for something to cover their heads, and even if they have the ability to make their own, they may not have the time or energy, so I do this for them. I can't cure cancer, but maybe I can make going through the loss of hair a little bit easier to bear if they have something pretty to wear on their heads.

Please feel free to invite anyone you know to this group that you think would want to help.

Note: This is not a site for selling hats, it's just to help those who make them to donate with resources and ideas."
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I made another hat on my Knifty Knitter loom last night; this time I added a brim to it. I really like how it turned out. I have found with the brim, the hats fit better and are less "floppy". This one will be added to the collection of hats I am donating.



I just had chemo again yesterday. You might wonder how I can make the hats when I am dealing with the side effects, and the pain issues. Actually, making the hats is something I find relaxing, and it often helps me to take my mind off my problems when I have something other than myself to focus on. I have also found that it's pretty hard to feel sorry for myself if I am busy doing something to help someone else.

By the way, the Hopscotch Bear I had from Biggby's didn't prevent my post chemo heartburn this time; I woke up around 2:30am with my GERD acting up. I guess the first time I thought it worked was just a fluke. But I might make a stop at Bigby's on the way home a regular treat for after chemo. I plan to try some other varieties of beverages; I picked up a couple cards that had items that are 287 calories or less and also 201 calories or less.

Here is the link for the Made With Love Hats for Hair Loss page. I hope I don't get into trouble with the "Spark Police" for posting it, as it's not a page that is selling anything.


www.facebook.com/?ref=home#!/pages/M
ade-With-Love-Hats-for-Hair-Loss/25881
0374143359

  
  Member Comments About This Blog Post:

BEST_LIFE_NOW 8/18/2011 10:25PM

  Great idea on the FB page. I remember being really touched by all the thoughtful people who made hats when I lost my hair ... it was winter and bitterly cold. I got lots of them. I wore them 24/7 because my head was always cold. I appreciate all of you who took the time to make them! You're angels!

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PIMPINELLAN50 8/18/2011 3:31PM

    Hey Shari;
Your Knitted Chemo Hats all look very soft,pretty and comfortable to wear.
Great idea with a FB Page for others to join, with the same talent/interests as yourself!
On a differnt topic...is "The Neighbour Cat" still coming around?
Have a great evening!
Marianne. emoticon

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CATLADY52 8/18/2011 11:30AM

    I think it is great that you have a fb page for sharing ideas, suggestions and patterns. Sorry about the Hopscotch Bear not working the second time, but at least you have a nice stop after the chemo. emoticon

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SKYEFYR 8/18/2011 10:42AM

  That last hat you pictured is beautiful. I went out to facebook and liked your page. I hope it's a great success!

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PUDLECRAZY 8/17/2011 6:41PM

    Great idea! Thanks for posting the link.

emoticon

Chris

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LINDAJ0621 8/17/2011 5:36PM

    I know your hats are very appreciated by the chemo patients! Good for you!
emoticon

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ELLFIN3 8/17/2011 4:58PM

    Love the idea of the hat site! I was going great guns on hats and then I started reading the book The Help. I need to finish the one I have started for my cousin, then start on more winter ones to donate.
I had so hoped that the Hopscotch Bear would be just what you needed after chemo. Oh well keep trying!
Have a fabulous evening! LOVE YA!!
emoticon Susan

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1STATEOFDENIAL 8/17/2011 4:45PM

    I think that creating page on fb is a great idea to share tips and ideas for the hats. Getting more people interested and involved will help spread the joy in helping others.

Too bad the Hopscotch Bear didn't do the trick this time. It might have been a fluke, or it could work part of the time, so I agree with getting that, or something similar, after chemo. Even if it doesn't help with the GERD every time, at least it helps the soul by giving you something good to enjoy.

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Chemo day again

Tuesday, August 16, 2011

No leg cramps last night or this morning, but I woke up about 2 hours before I needed to be up, and it was hard to get back to sleep. I was slow to get moving this morning, but by the time I had to leave for chemo (my appointment was for 11:30am) I was feeling a little better.

After chemo, I had to go to the pain clinic and get a refill for my pain pill prescription. I don't why they changed it, but they don't call them in any more, you have to go out there and get the prescription from them, and take it to the pharmacy yourself. So I had about a 15 minute wait in Rite Aid waiting for it to be filled. After that, I went to Biggbys to get a Hopscotch Bear before going home.

Had my soak in the tub shortly after getting home and then got into pajamas. Hip is feeling better but the shoulder is still really hurting today. Tomorrow we have another cold front coming, so I am expecting I'll probably be hurting tomorrow too. But at least I can stay home, I have nowhere I have to go, and I don't have to be in any hurry to start my day.

I finished a couple of hats on my Nifty Knitter loom last night. This one that I made out of chenille yarn is a little too loose fitting to work for a chemo cap, so I am just going to keep this one for myself. Next time I will add a brim to make it a little thicker so it will fit better.


This is another one I made with textured yarn, that I am adding to my collection of other hats I made that I will be donating.

  
  Member Comments About This Blog Post:

BEST_LIFE_NOW 8/17/2011 7:48AM

 
Did the hopscotch bear make you feel better this week? I hope so! emoticon

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CIRANDELLA 8/16/2011 10:42PM

    That Hopscotch Bear sounds like a wonderful, soothing, and delicious reward after your chemo treatment, plus all the pain you've had lately - great choice! And those chemo caps are really pretty...you're so creative! Rest up and take it easy tomorrow...because you can, and because it will feel good! Sending you lots of gentle emoticon

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BUNNONE 8/16/2011 9:48PM

    I love the hats. How long does it take to make one? Sounds like a nifty tool you have to make them on. emoticon

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ELLFIN3 8/16/2011 9:34PM

    I like the hats! I hope the Hopscotch Bear help like it did last week! Love YA!!! emoticon Susan

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NURSNANA 8/16/2011 7:36PM

    Hey Shari, The chemo hats are so pretty! I especially love the blue one, it will keep you warm this winter. Hope you enjoyed your Hopscotch Bear, and also that it keeps the heartburn away tonight. Have a relaxing evening my friend, and a restful night.

~hugs~
Nancy
emoticon emoticon emoticon

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CATHYHASSPARK 8/16/2011 4:45PM

    You take care of yourself , glad you are resting at home, my prayers go out to you ! Those hats are beautiful!

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