Friday, August 19, 2011
I went to bed early last night; a little before 9:30am; slept pretty well, and was up a little after 6am.
I did pretty well yesterday, only took 1 pain pill in the morning and didn't take any more the rest of the day, or last night. But this morning my hip and knee were really hurting. I did not want to have to take a pain pill so early in the day, so I waited; I hoped it would get better as I was moving around. I even a tried a soak in the tub after breakfast, but I couldn't stay in the tub too long because I got too warm. Tried sitting in the recliner with the heating pad, that didn't really help either. Finally I took a pain pill around 10:30am and went back to bed to try to take a nap.
I stayed in bed for half an hour, but never fell asleep. But in that time the pain pill started working a little bit. However, it hasn't been working as well today as it usually does, and it's made me very tired. I've spent most of the day in the recliner, because it feels better on my bad leg to have my feet up. I'm having a very hard time not feeling discouraged and sorry for myself today.
I've been working on my Knifty Knitter loom and I finished another hat, that is about the only thing I have accomplished today. Just going to make a few quick visits to my Spark teams and then I'll go back to my recliner and do some reading before it's time for dinner.
I'm hoping tomorrow is a better day with the pain and with my attitude!
Thursday, August 18, 2011
I don't have as much energy today as I had yesterday, but I am not trying to fight against it today, I'm just going with the flow. I know part of it is from chemo. I'm also feeling like my sinuses are draining down into my throat, not enough to make it feel sore, just kind of "icky"; I'm sure that's from my allergies, and probably contributing to my fatigue also. I know that I can't push myself too hard this week because I want to be well on Sunday for my cousin's pizza and ice cream party.
I'm just kind of puttering around the house today, sitting down when I feel the need too. I've also worked on a chemo hat today and I'll go back to that when I'm watching tv later on tonight. I did do 40 minutes of my yoga DVD; it made my legs kind of tired but I think it was still good for me.
I think it will be an early bedtime for me tonight, after doing a little reading.
Wednesday, August 17, 2011
If you a regular reader of my blog, you know one of my hobbies is making chemo hats and caps to donate. Last night I had an idea to create a Facebook page for others that might like to do the same thing. To tell you what this page about, I will copy and paste what I have posted on the info page for group. The name of the group is Made With Love Hats for Hair Loss.
"I enjoy making hats and head coverings for those who have lost their hair because of cancer treatments and other medical conditions.
I thought that others would too, so I started this group so that we could care tips, ideas and. resources for patterns and materials. Feel free to share photos of your creations to!
One reason I do this is that I have cancer myself. It started with stage II breast cancer in 2003; I lost all my hair to chemo then. I was shocked at the prices online stores and catalogs were charging for head coverings for cancer patients, up to $30 for something as simple as a square scarf! So I went to Walmart, bought a bunch of fabric for $1 to $2 per yard, and made my own scarves.
My cancer returned in 2007, in the form of bone mets, I am now stage IV. I had to quit working in 2008. I wanted something constructive to do with my time though. I am on chemo again, (this one is not causing me to lose my hair though), because of my fatigue and other side effects, I am not able to get out and do volunteer work, but I can make hats! I crochet, sew and make them on my Knifty Knitter loom, and donate them to the Susan P. Wheatlake Cancer Resource Center in our town.
I am on a fixed income, so I look for free patterns online, watch for sales on yarn, look for inexpensive but pretty fabrics, and occasionally, friends will donate materials.
Another reason I do this is that I remember how devastating it felt for me to lose my hair; it's one of my most vivid memories of my first experience with cancer in 2003. And I know that many women who have lost hair, like me, can't afford to pay a lot for something to cover their heads, and even if they have the ability to make their own, they may not have the time or energy, so I do this for them. I can't cure cancer, but maybe I can make going through the loss of hair a little bit easier to bear if they have something pretty to wear on their heads.
Please feel free to invite anyone you know to this group that you think would want to help.
Note: This is not a site for selling hats, it's just to help those who make them to donate with resources and ideas."
I made another hat on my Knifty Knitter loom last night; this time I added a brim to it. I really like how it turned out. I have found with the brim, the hats fit better and are less "floppy". This one will be added to the collection of hats I am donating.
I just had chemo again yesterday. You might wonder how I can make the hats when I am dealing with the side effects, and the pain issues. Actually, making the hats is something I find relaxing, and it often helps me to take my mind off my problems when I have something other than myself to focus on. I have also found that it's pretty hard to feel sorry for myself if I am busy doing something to help someone else.
By the way, the Hopscotch Bear I had from Biggby's didn't prevent my post chemo heartburn this time; I woke up around 2:30am with my GERD acting up. I guess the first time I thought it worked was just a fluke. But I might make a stop at Bigby's on the way home a regular treat for after chemo. I plan to try some other varieties of beverages; I picked up a couple cards that had items that are 287 calories or less and also 201 calories or less.
Here is the link for the Made With Love Hats for Hair Loss page. I hope I don't get into trouble with the "Spark Police" for posting it, as it's not a page that is selling anything.
Tuesday, August 16, 2011
No leg cramps last night or this morning, but I woke up about 2 hours before I needed to be up, and it was hard to get back to sleep. I was slow to get moving this morning, but by the time I had to leave for chemo (my appointment was for 11:30am) I was feeling a little better.
After chemo, I had to go to the pain clinic and get a refill for my pain pill prescription. I don't why they changed it, but they don't call them in any more, you have to go out there and get the prescription from them, and take it to the pharmacy yourself. So I had about a 15 minute wait in Rite Aid waiting for it to be filled. After that, I went to Biggbys to get a Hopscotch Bear before going home.
Had my soak in the tub shortly after getting home and then got into pajamas. Hip is feeling better but the shoulder is still really hurting today. Tomorrow we have another cold front coming, so I am expecting I'll probably be hurting tomorrow too. But at least I can stay home, I have nowhere I have to go, and I don't have to be in any hurry to start my day.
I finished a couple of hats on my Nifty Knitter loom last night. This one that I made out of chenille yarn is a little too loose fitting to work for a chemo cap, so I am just going to keep this one for myself. Next time I will add a brim to make it a little thicker so it will fit better.
This is another one I made with textured yarn, that I am adding to my collection of other hats I made that I will be donating.
Monday, August 15, 2011
I was so exhausted last night, I went to bed at 8pm. I slept well, except for waking up twice during the night with painful cramps in my left (the side with the sciatica and bad hip) leg. I'm not sure why the cramps were so bad last night; I was well hydrated; I drank a lot more water than usual yesterday in an attempt to give myself some energy, and I've been taking my magnesium supplement twice a day. I think it's just one more side effect of my chemo. Anyway, the pain from the cramps is lingering on; my hip and knee really hurt today, so I think the sciatic nerve was in the area where I had the cramping.
I was up at 6am. I took my time getting ready to go out and do my grocery shopping. I wasn't as tired, but I was moving slow this morning. I finally got out the door a little before 8am. Had to throw on a hoodie jacket this morning, it was only 50°F; not complaining though! It was refreshing for a change. It did warm up as the day went on, it's 79°F right now.
It was kind of tough getting through the store. I would have used one of the electric carts but the baskets weren't big enough to hold everything I needed today. At least I was able to check out quickly; I just had to wait for the lady ahead of me to pay for her stuff as I got into line.
I got home a little before 9am. I was going to try to tough it out without a pain pill, because I didn't want to spend today feeling as tired as I did yesterday, but at 9:30am, I gave in and took it, I was hurting so much. I sat down in my recliner and watched tv for a couple of hours, and worked on a chemo hat, ( I am making one on my round Knifty Knitter loom). It finally got the pain under control enough where I felt like I could at least enjoy the rest of the day, and while it did make me a little more tired, I am still not as fatigued as I was yesterday. I have been trying to stay off my feet as much as I can today; no workout today, I need to be as rested as I can be for my chemo tomorrow. I am hoping that when the muscles that were cramping start to feel better that my all over pain level will be better too.
I am already planning on a soak in the tub when I get home from chemo tomorrow; I bought some Baby Magic Lavender and Chamomile baby bath that I am going to try out. I heard a lot of good things about how adults like the Johnson's & Johnsons Lavender baby bath for themselves, but the Baby Magic brand was cheaper so I bought that one instead.
I am really hoping that I will be feeling much better next weekend than this past one. One of my cousins is visiting from Massachusetts, she comes to Michigan once a year to see everyone, and the cousin she is staying with is having some of the extended family come over on Sunday for a pizza and ice cream party. I will also be seeing one of my second cousin's and her family, who I haven't seen in years. I can eat pizza with my gastroparesis, as long as it's just 2-3 slices and I stick to just cheese for a topping. I don't eat pizza very often though, so that will be a treat too.
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