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Found out yesterday why I have been so tired

Wednesday, March 16, 2011

Before I can get my chemo, they check my CBC, and send it over to the lab. I have to wait til they get the results back before they can start the chemo. This time, it came back that my hemoglobin was quite low; not low enough to need a transfusion, but enough to increase my fatigue. Now I know why I have been so extremely tired the last few days. They also called the lab and had them check my B12 and iron, but I don't have those results yet.

Had a "sick to my stomach" feeling for a few hours last night after the chemo, and around 6:30am this morning, but my biggest problem today is still the arm/shoulder and the sciatica pain. I slept in til 10am today; with my low blood counts, I decided that with the fatigue, I am going to sleep as long as I need to sleep and not feel guilty about it. One of the reasons I quit working was because of the fatigue from my treatments, so I have not reason not to take advantage of that and rest when I need to.

It's 50F and sunny today! Just had to get out for a walk. My hip was feeling stronger today, but I used my cane anyway, just to be on the safe side. I haven't used it since I had the radiation to my hip for the 2nd time towards the end of 2009, and even then, I didn't really use it enough to get use to it. I had to walk slower with it, it took me 14 minutes to walk the same distance I normally walk in 10. I did not take my MP3 player this time. I wanted to concentrate on using the cane the correct way, and anyway, it was nice just to listen to the birds today. It was also nice to wear sneakers out instead of my winter boots!

  
  Member Comments About This Blog Post:

PMCFARM 3/17/2011 10:56PM

  Shari, something to think about (and ask your physical therapist
about) I have read several articles about using 2 canes to improve your balance & prevent increased stress on the opposite joint. Similar to pole walking.
MarilynC.

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VALLEYSGIRL 3/17/2011 4:07PM

    Sorry to hear you are feeling so tired but at least you know why. Also glad to hear you will rest as much as you need to, listening to your body is good.
Getting out in the sun is always good. They keep promising us sun here but only a faint glimmer so far.
Take care emoticon

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AURWHE 3/17/2011 7:20AM

  Shari,
I just wanted to share something about Navelbine that I've gone through in case it is helpful to you. When I first started on it in Feb 2010 it seemed to drop my hemoglobin down more than it does now. My hbg was down below 10 a few times and it made me feel tired too. Anymore my hbg is doing much better. Yesterday it was 11.2. It seems like my hgb has slowly gotten better as I've been on Navelbine longer. I hope that the same thing will happen to you. Have a good day. I am thinking of you.
Rhonda

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1STATEOFDENIAL 3/16/2011 11:57PM

    Glad you were able to get out for a walk, even though you used the cane. Sometimes it helps you feel better knowing it is there 'just in case'. Getting out in some warmer fresh air should help all of us feel a little better after this long, wet winter.

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TULIPVIC 3/16/2011 9:48PM

    Glad I found your blog. You will be in my prayers. emoticon
You are a champion!

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LILYBELLE8 3/16/2011 8:54PM

    Oh - what I'm jealous of is wearing the sneakers and not the winter boots! You sound like a real "trooper" to me, and I'm so glad I stumbled onto your blog - you inspire me!

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ELLFIN3 3/16/2011 8:49PM

    I know just what you mean! I walked outside last and tonight! It was wonderful! Well at least you know why the tired feeling! What can they do for that? I hope the weather is good again tomorrow! Enjoy your evening!!! emoticon emoticon emoticon

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GIRANIMAL 3/16/2011 6:18PM

    Oh, isn't it wonderful that spring seems to have finally sprung? I'm glad you got out to enjoy it! I hope you get your pep back soon. Good for you for sleeping in when your body is saying it needs it!

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CMRAND54 3/16/2011 6:11PM

    I'm so glad you got out for a walk. It's been a long winter and a temperature of 50 sounds really good.

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NURSNANA 3/16/2011 5:34PM

    Hey Shari, Glad you could get out for a nice walk today! : )

Have a nice evening my friend.

~hugs~
Nancy

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ANOTHERTAG 3/16/2011 5:18PM

    When i walk outside i don't use an ipod..i want to enjoy nature as much as can. When i use the treadmill the ipod does make the time go faster.

I do hope you are feeling better soon.

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ROSES4UN4ME 3/16/2011 5:16PM

    THAT CHEMO can really make you sick from what i hear.....hope those days will soon be over take care and be careful when you walk


HAPPY SPARKING
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WENDYSPARKS 3/16/2011 5:06PM

    Glad you got to go outside for a nice walk today. I praying for you to feel better.

Wendy

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In pain today

Tuesday, March 15, 2011

Doing my Sparking a little early today; I have chemo at 2:30pm and don't plan to be on the computer after I get home. By that time, it will be time for dinner, then I will get into my pjs and spend the evening in front of the tv with my heating pad, and plan to work on my cross stitch too. I missed being able to work on that last night, but I was so tired, I knew if I did try it, I'd probably end up making mistakes in it.

I got some good sleep last night, and my GP symptoms are a lot better, but still having a lot of pain with the arm and shoulder, and my hip and knee on the sciatica side. I tried to do my Leslie Sansone Power Mile workout this morning but had to stop after 10 minutes. I took a second pain pill about a half hour ago, hoping it will kick in and start working so that it's not hard for me to sit through my treatment. It's making me a little sleepy, but that's ok; I have someone driving me to my appointment.

I have been on the Keppra for the nerve pain for a week now; I can't see that it is helping at all, but since it doesn't have any bad side effects, I am going to at least finish up my 30 day prescription.

  
  Member Comments About This Blog Post:

ORACLE2010 3/16/2011 12:46PM

    Hey Sweetie.....Here's to hoping that you feel better soon! Just hang in there girl like I know you have been. You're stronger then this and it's hard to keep a tough chick down! :)

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1STATEOFDENIAL 3/15/2011 11:59PM

    Did the doctor say how long it would take for the Keppra to work? Some medications don't do much for the first few days or weeks. Hopefully it will give you some relief by the end of the 30 day supply!

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CMRAND54 3/15/2011 8:44PM

    You need some hugs today.


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NURSNANA 3/15/2011 5:00PM

    Hey Shari,
So sorry to hear you have had so much pain today. I hope your chemo treatment goes well and the pain pill keeps you comfortable. I just finished steam mopping my kitchen floor! I seem to always think about you when I use my new steam mop. haha! It sure does a great job, my floor is nice and clean now! The weather here has been dreary with rain off and on since yesterday.
Praying for you,
Nancy
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ELLFIN3 3/15/2011 4:19PM

    I was so hoping that the new medicine would help with the pain! I hope the chemo go OK today! Enjoy your evening with the Kitties and the cross stitch! emoticon emoticon emoticon

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Blah Monday

Monday, March 14, 2011

Not feeling so good today, hip and leg are still hurting from the sciatica, and my gastroparesis has flared up, so I am having some stomach pain today. Feeling sleepy from my pain pill too. Sure wish I felt better today; it's almost 40F, it would be a great day for a walk; I don't mind walking when I am tired, but my leg on the sciatica side is feeling a little weak today.

I got out for my groceries this morning, thankfully it was a quick trip because I didn't need very much this week; I was back home by 10am.

I did a short workout with the stability ball.

My chemo isn't until 2:30pm tomorrow, and it's supposed to be a little warmer, almost 50F. I am hoping I will be feeling strong enough to go for a walk before my treatment.

  
  Member Comments About This Blog Post:

BECKY3128 3/15/2011 8:32AM

    Hope today is a better day! emoticon

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PAT3ONTHEBACK 3/15/2011 12:11AM

    I feel your sciatica--but that is just one of your symptoms. Hang in there! emoticon

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CMRAND54 3/14/2011 8:01PM

    emoticon

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ELLFIN3 3/14/2011 7:36PM

    Sorry you had a crummy day! I hope tomorrow will be better! Maybe a walk outside will help! Enjoy your evening!!! emoticon emoticon

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SALLYKWITT 3/14/2011 5:15PM

    Keep on plugging, honey.

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ANTEEKER 3/14/2011 4:20PM

    Hi Shari, Yesterday I had a Blahh Day.. Now you. Whats Up With That?
Hope you get to feeling better. I guess our blah days help us appreciate our good days.

Stay Warm.
Michelle emoticon

Comment edited on: 3/14/2011 4:21:38 PM

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2 more projects finished

Sunday, March 13, 2011

I finished my needlepoint project last night; it's not perfect, but it was my first try at doing this kind of needlework. I had a little trouble getting the cat's eyes and mouth to look right, the instructions were not very clear on that. I still need to get a frame for it; once I get it in a frame it won't look so wrinkled.



Tonight I plan on starting a counted cross stitch picture, something I have done before. Last night I sorted and organized all the floss colors in the kit; anyone that has ever done a cross stitch from a kit before knows that that can be a job in itself, lol!

I sewed my other pair of pajama pants today. My next project will be a new top for spring. I already cut the pattern out for that a few weeks ago.

Did not do a workout today; feeling kind of sore all over, I think I may have overdid it with my activity yesterday. Sometimes it's hard to pace myself when I am having a good day, there are so many things I want to do that I keep going even after I shouldn't. Really feeling bone pain in both my hips today too; when I sit, it feels like I am sitting right on the bones. In fact, I had to get a pillow to sit on for the chair I was sitting on to use the sewing machine. I'm sure the pain is coming from the bone mets.

Trying to decide what day I want to do my grocery shopping. I usually go on Monday, because my chemo is on Tuesday, usually in the morning, but this week my chemo is at 2:30pm, so I I have my choice this week of either tomorrow morning or Tuesday morning. I guess I will just get my shopping list and coupons ready and decide how I feel when I get up in the morning.

  
  Member Comments About This Blog Post:

ULTREYA3211 3/15/2011 5:42PM

    Loved the projects. You always give me motivation.

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AURORA.BELLA 3/14/2011 11:58PM

    Cute! I love the colors on the flowers!

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PMCFARM 3/14/2011 11:51PM

  What a beautiful job you did on your needlework picture, you are so talented. Thanks for showing us! emoticon
MarilynC.

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1COUNTRY_GAL 3/14/2011 10:57AM

    Your needlepoint is emoticonYou have a talent for this Shari,this came out so well and cute,I am envious and hope someday to start making more things like this.I am sorry for your pain and may it pass.Thank you for sharing your works of art,a real pleasure to see. emoticonDiana

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LOLAINSC 3/14/2011 10:49AM

    Aaaaw, how sweet, everything looks even better after they are blocked.

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AMYBINTN 3/14/2011 12:27AM

    I love your kitty! I'm thinking of you and hope your pain is better tomorrow.
emoticon emoticon emoticon amy

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LESSOFME113 3/13/2011 10:42PM

    emoticon emoticon emoticon emoticon emoticon
emoticon emoticon emoticon emoticon emoticon

My dear friend,

Your needle work creation is really fantastic; and I just want to say I fully support you in not being too hard on yourself ~ for your critical eye may not allow you to take in the true beauty of your hard work! I used to do cross stitch myself when I wasn't living w/ my family & I miss it a lot; so happy sorting from me to you! I hope you have another good day soon....I'm holding you in the light dear friend of mine! You're delightful!

Namaste,
Ashley

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Comment edited on: 3/13/2011 10:43:45 PM

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BEST_LIFE_NOW 3/13/2011 10:03PM

  Nice job! I wish I had a little talent in this area!

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NURSNANA 3/13/2011 8:22PM

    Great job Shari on the needlepoint!! It looks so pretty! : )

Have a good evening!
Nancy

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SUMMERSMILES1 3/13/2011 7:47PM

    emoticon kitty

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TERI99 3/13/2011 7:33PM

    I love your needlepoint; it's hard to believe it is your first effort. It looks great!



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ELLFIN3 3/13/2011 6:42PM

    Really like you needle point cat picture! Looks like you did an excellent job!!! You sure stay busy!!!! Enjoy our evening!! I would like to see a picture of your PJ pants!!! emoticon emoticon

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SALLYKWITT 3/13/2011 6:21PM

    You did a great job on the kitty cat needlepoint!

I am jealous that you can sew things that you can actually wear.

Hugs,

Sally

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1STATEOFDENIAL 3/13/2011 6:10PM

    That is so adorable! Good job!

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PUDLECRAZY 3/13/2011 6:00PM

    Your needle point project is delightful! What will your cross stitch project be? I am trying to figure out if my eyes are still good enough to make an itsy bitsy cross stitch to hang in my fairy house. Like you, I love needlework projects, but I haven't done any in a while - just knitting and building.

I can't wait to see your cross stitch!

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0309COOKIE 3/13/2011 5:23PM

    Your needlepoint work is beautiful. I have always wanted to try it, but was always intimidated by it. I do cross stitch and I know what you mean about the getting started process, lol.

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CMRAND54 3/13/2011 5:07PM

    Your cross stitch is really cute!

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CHARMIAN2 3/13/2011 4:27PM

  The cat looks very good!! As a cross stitcher I DO understand sorting and organizing the floss. I have a very large project to do but everytime I pull it out the sorting is more than I want to face=there are over 100 different colors. I love the pic but not sure what possessed me to plan to do it!!Best of luck to you!!

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Tried another new workout and getting projects done

Saturday, March 12, 2011

I'm not sure I have the energy to "spring forward" this weekend, I might just crawl instead, LOL!

Actually, I'm not doing that bad today. Usual aches and pains, but the pain pill I took is working for me today.

I tried out another of my new workout DVDs, Walk Out with Jane Fonda; it's 2 low impact indoor walking routines. I did the level 1 which is 20 minutes, followed by some stretching for which you need a chair and towel. I really enjoyed it, even though a couple of times I could not keep up with the steps, I just marched in place then. I could not do the side lunges with my hip pain, and I had to limit my arm movements because of my shoulder pain, but it was still a good workout. It's a nice change of pace from my usual Leslie Sansone workouts.

I finished the pair of pajama pants I started sewing last weekend; they are a pink, brown and white plaid and I got a pink tee shirt to wear with them. I also cut out the pattern for another pair, the fabric for those is a tiny blue flower print on a white and cream color background. I plan to start sewing those tomorrow.

I am close to being done with my needlepoint! Probably will finish it tonight. If I do, I will take a picture of it and post it in my blog tomorrow.

It's in the upper 30's here today, with a very chilly windy. It's been alternating between rain and snow, but no hazardous weather.


  
  Member Comments About This Blog Post:

MOMMA_BEAR_69 3/14/2011 3:19AM

    So glad to see that you had a wonderful day. You manage to keep on going in spite of your pain. AWESOME!!!

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KAT7457 3/14/2011 2:27AM

    Shari, do you use a elastic for your waistband? do you use any flannel type material?? i want to start makign my own i have a sewing machine that is brand new hardly used. next month i want to start making them and also for the grandkids for a xmas gift.
i have to start early next month i will have #9 granddaughter due on april 9th. so i have to do 9 pj's plus how many i need.
I just use a white tshirt to wear for the tops i use the mens tshirt fit better.
have a super day tomorrow. xx

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SOULOFADANCER 3/12/2011 10:22PM

    I love crafty people
Sounds like great projects
I love pj's!!
Great for you on the new DVD too!

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SALLYKWITT 3/12/2011 10:06PM

    Doesn't Jane Fonda look great? Her videos are on the On Demand system on my cable.

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SPARKENISTA 3/12/2011 10:04PM

    It sounds like you are extremely productive. This is great! In graduate school I discovered a pain management technique and only later learned it had a name. It is called "sensory gating". It means that the human mind cannot fully concentrate on two things simultaneously (multi-tasking had not even been invented yet).

So, if you are concentrating on your sewing, your exercise, etc. you cannot also concentrate fully on the pain. It becomes background noise. So, you have discovered my technique as well. Keep up the good work!

Can't wait to see your needlepoint!

Best,

Me
rry/Sparkenista

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SUMMERSMILES1 3/12/2011 9:18PM

    I look forward to seeing your needlepoint. Your pj pants sound nice, I like pink!

Praying for you and your pain. Hopefully, tomorrow will be a warmer day and less pain for you.

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CMRAND54 3/12/2011 8:25PM

    I'm so glad you had a good day. You get so much done in spite of your aches and pains.

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ELLFIN3 3/12/2011 8:16PM

    I am glad you had such a productive day! I wish the weather there would start to warm!!! Stay safe and warm!!! Enjoy your evening!!!!! emoticon emoticon

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NURSNANA 3/12/2011 6:14PM

    Hey Shari! I will crawl forward with you tomorrow!! : ) I do love Daylights Saving time, and I am looking forward to the extra hour of daylight! !Can't wait to see your finished needlepoint!! I haven't done any needlepoint in many years, it is fun to do! Your pajama pants sound cute! You sure got them done quickly! Sounds like you had a great work out today! I didn't do much exercise today, because I had Physical Therapy yesterday in the late afternoon, and my muscles, joints are very sore today. We have had a warm and lovely day today here in central VA. It felt like spring! Our Daffodil's are blooming and look so pretty!

~hugs~
Nancy

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SERENEMOM71 3/12/2011 4:10PM

  I don't "spring" forward either! I just really wish they would leave the time where nature intended it to be! That would make me happy! emoticon I'm glad that you are having a good day! I have slept in and have been lazy today which is OK as I had a tough week. I'm so impressed that you exercise and get so much done! Have a wonderful weekend! emoticon emoticon emoticon emoticon

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AMYBINTN 3/12/2011 3:39PM

    Hi! I'd love to see your needlepoint! Is there no end to what you can do? You are so crafty--I'm impressed! The walk out DVD with Jane Fonda sounds good--there is a store going out of business near me, and I think I'll go see what DVDs I might be able to pick up for a good deal. I am also apprehensive about springing forward--I'm not a morning person and am "punctuality challenged" anyway so my strategy is to go to bed super early Sunday night. Hopefully it will all go OK! Take care!
emoticon emoticon amy

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