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Talked to a dietitian today

Tuesday, December 21, 2010

Marta, the dietitian, came over to the clinic to see me today while I was getting my chemo. She was so nice, and easy to talk to. We talked about my diet for the gastroparesis. She asked about the meals and snacks I was eating now, and she thought I was making good choices, but I should add a serving or two of a supplement like Carnation Instant Breakfast once or twice per day. She says I am at a good weight now but that I shouldn't lose any more. She had notes from my gastro doctor, and he didn't say anything in those notes about limiting the food to just 6 ounces at a time, like he told me when I was first diagnosed with the GP, so she felt that I could try increasing that a little bit and see how I feel. I still have to stick to eating 6-8 mini meals per day, but they don't all necessarily have to be the "humming bird size" portions I have been eating. Since I am taking the ethromycin 4 times a day, the medication should keep the food "moving along".

I also asked her about feeling so hungry at night before bedtime, and waking up feeling hungry at 4 or 5am, and that my doctor told me not to eat within 3 hours of bedtime. She suggested asking him at my next appointment, if I could eat a little closer to bedtime, like 2 hours, now that I am on the medication 4 times per day. He did not say I couldn't drink during that time, so she told me to try drinking something like the Carnation Instant Breakfast before going to bed.

I feel like the GP is much more manageable now that I have talked with her. I guess I've been doing most of the things right with my diet, I just needed some reassurance. She also left me with some information to take home and read. While my diet is still limited, I feel now that I have some ideas to vary it just enough so that I do not get bored with it.

I also saw one of my high school teachers in the waiting room before my appointment; she was there with her sister. She was one of my favorite teachers, and she is also a cancer survivor. It was great to see her and talk to her, and she gave me a hug too.


  
  Member Comments About This Blog Post:

ISLANDRITER 12/22/2010 9:20PM

    I am so glad for your reassurance today with the dietican. I know that getting both her input and seeing your favorite teacher were encouragments. Blessing Shari for Christmas and the new year! Mary

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OPALMOON 12/22/2010 9:39AM

    Hi Shari, it's great to hear that you had a positive outcome from your visit with the dietician - it sounds like you have some ideas to help you keep going forward. Hopefully with her strategies and your medication you will be able to deal with the GP effectively in the long as well as short term.

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BKWHITE3 12/21/2010 10:53PM

    Glad you were able to see the dietitian and that she was able to give you some ideas.

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MOMMA_BEAR_69 12/21/2010 10:53PM

    So glad that you saw the dietitian and received positive reinforcement. Continuing prayers for you...

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CMRAND54 12/21/2010 8:10PM

    I'm glad you got to see the dietician. It sounds like you got some good information and reassurance.

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CELLOPLAYER1 12/21/2010 7:49PM

    Glad you got the information and reinforcemnt you needed.

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ANDREWS_MOM 12/21/2010 4:38PM

    Glad you saw a nutritionist. Her advice was close to what my gastro dr's had said.
6+ mini meals a day.
Although I'm having the exact opposite problem- most of the time no appetite at all & alot of days struggle to get 800 calories in.
I bought Ensure this week to try.
My dr's said drink as much as humanly possible because liquid will help keep things moving & not to eat w/in 1 hour of lying down/sleeping.
Did they give you the "gastroparesis" diet papers of what to eat/avoid/tips, etc?
If not, let me know & i can scan them in and send them to you if you want - they're from Geisinger (where i go to the dr's).
There's a list of stuff we're supposed to avoid so not to form solid masses & blockages. It's stilla bit confusing to me but i'm working on it.

we'll get there! :)

Googling about the condition i was suprised to see how many people actually have this.

Good luck my friend!
hugs
amy

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ELLFIN3 12/21/2010 4:23PM

    I am glad you were able to get the reassurance you needed on your diet! Now you have somethings to try! Have a wonderful afternoon and evening!!! emoticon emoticon

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SPIRITSEEKER2 12/21/2010 4:19PM

    good day and great diatition !! hang in there , I hope the drink helps at night.

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LOVES_ANIMALS 12/21/2010 3:51PM

    Sounds like a good day.

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CIVIAV 12/21/2010 3:35PM

    So happy that you had some positive reinforcement and a nice visit.

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Monday, December 20

Monday, December 20, 2010

Well, yesterday was somewhat of a "Roseanne Rosannadanna" day for me, remember that Gilda Radner character from Saturday Night Live? I finally got my stomach pain under control when my sciatica pain kicked in. Had to take my pain pills a couple of times yesterday which made me feel kind of sleepy and dopey all the rest of the day. Like Roseanne Roseanna Danna says, "It's always something!" Except for the laundry, didn't really get much done. I did squeeze in a short and gentle workout with the stability ball.

I went to bed before 10pm last night, and still had a hard time getting out of bed at 7:30am. But I had plans to meet a friend for breakfast so I made myself get up. Once I got up and got moving I felt ok. We met at Big Boy; I chose the most GP (gastroparesis) breakfast I could find on the menu; eggs, toast, hash browns, and choice of meat; I chose the ham. I am only supposed to be eating 6 oz. at a time, which is hard when you are eating out and it's all on your plate, but I just ate the eggs, 1 piece of toast, half of the ham, and about 1/3 of the potatoes, and brought the rest home with me. It was hard not to keep eating til my plate was empty, but I felt good about my self control; for me, it's not about the calories anymore, it's if I fill my stomach too full, I have pain.

I went for my groceries after that, the store was busy! I guess everyone is stocking up for their Christmas celebrations this weekend. I'm glad I went today and didn't wait til later in the week. Unless I need to fill a prescription, I won't need to go into a store until after Christmas.

Neighbor Cat was back this morning too; still can't get her to go into the little house, but she poked her head in again today. After I came home from the store I put some cat treats outside of it, and in a little trail going inside of it. Maybe that way she will decide to go in on her own.

It got up to 28F today, sunny and no wind, so I got out for a 15 minute walk. My hip was hurting by the time I got back home and I had to take a pain pill, but it was good to get out and get some fresh air.

  
  Member Comments About This Blog Post:

THEQUEENBEE333 12/21/2010 11:38AM

    Hope your tummy is feeling better. Take care of you! Happy Holidays!

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OPALMOON 12/21/2010 9:39AM

    You are doing so well Shari, despite the many restrictions you need to face. I hope you can have a refreshing sleep and be pain-free tomorrow!

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AMYBINTN 12/20/2010 11:19PM

    I'll be so glad when that kitty goes in her house! Do you think she waits until you're asleep and then stays in there? Cats are sneaky like that. I'm glad you have felt like getting out walking and meeting friends. emoticon emoticon emoticon amy

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BKWHITE3 12/20/2010 9:58PM

    Glad you are keeping busy. Also glad that you don't push your self too much.

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ELLFIN3 12/20/2010 8:43PM

    You are so busy!!! You say yesterday all you did was laundry that in my book is a lot!!! Rest Well tonight!!!!!!
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CELLOPLAYER1 12/20/2010 7:40PM

    Sounds like you are keeping busy.

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LOVES_ANIMALS 12/20/2010 7:11PM

    Hope for a better day tomorrow!!

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CMRAND54 12/20/2010 6:31PM

    Your self control is wonderful. A painful stomach is a powerful motivator, I know. I'm glad you got a short walk in, even though it sounds really cold.

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CIVIAV 12/20/2010 5:15PM

    Roseanna Rosannadanna is an inspiration to me as well as giving me a laugh. Gilda was such a positive cancer patient. You too MOM2ACAT are as well. I appreciate the reminders to be gentle with myself.

Have a great week and a wonderful Christmas.

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ORACLE2010 12/20/2010 3:26PM

    Love reading your blogs! I wish I was as far ahead in the Christmas game as you are mom! I still have some shopping yet, and a bunch of wrapping, but at least the decorations are done, the tree is up and lit, and the house is cleaned and laundry done. Merry Christmas to you!

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Sunday, December 19

Sunday, December 19, 2010

I had some trouble sleeping last night; woke up around 2:45am with some stomach pain from my gastoparesis. It's just part of living with the condition, it's treatable, but that doesn't mean I won't have my bad days with it from time to time. I think a lot of it is not having my diet quite figured out. I know pretty much now what I can and can't eat, it's just putting it all together for a meal plan that is hard, but that is what the dietitian will help me with on Tuesday.

Still having some pain today, so I am having to be extra careful with what I eat.

Today I am catching up on the laundry; it's not a chore I mind doing. My house is all on one floor so it's not like I am running up and down stairs to do it, so it's something I can do even on one of my not so good days.

I am hoping to be feeling better later in the afternoon so I can either get out for a walk or do a gentle workout with the stability ball and weights.

  
  Member Comments About This Blog Post:

ANDREWS_MOM 12/20/2010 9:49AM

    Know exactly how you feel my friend!
Are you on any meds for the gastroparesis?
I was just put back on Reglan (i know about the possible side eefects, but have been on before & haven't had any problems)- it's been a huge help! only prob is i have global motilitity disorder too, so if it's not one it's the other.
I hope you start feeling better soon!
Know that you are not alone & are thought of often!
Hugs
Amy

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OPALMOON 12/20/2010 7:12AM

    Take care of yourself Shari, and please don't do more than feel comfortable for you. I hope you get a more restful night's sleep!

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ELLFIN3 12/19/2010 7:46PM

    I am still doing laundry! I think the clothes are breeding and there are more and more of them!!! Sorry you had a bad night! I hope you sleep better tonight! Enjoy your evening and have a Marvelous Monday!!!!! emoticon
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BKWHITE3 12/19/2010 7:10PM

    Hope you felt better.

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LOVES_ANIMALS 12/19/2010 6:41PM

    emoticon

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SPIRITSEEKER2 12/19/2010 5:36PM

    I hope you feel better. Sorry you hurt.. Hugs

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DCOREY33 12/19/2010 5:11PM

    ***HUGS*** I know we all have bad days, but hugs always help.

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CMRAND54 12/19/2010 2:56PM

    I hope you're able to get a walk in if the weather cooperates. My laundry is done, and my house is (reasonably) clean, so I'm in good shape.

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PASTAFARIAN 12/19/2010 12:16PM

    emoticon

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PLAYBLUES22 12/19/2010 12:16PM

    sweetie hope you get to feel better

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Saturday, December 18

Saturday, December 18, 2010

I got everything done today that was one my "to do" list, something that hasn't happened in a while; usually I poop out before I can get it all done. Got most of my cleaning done today, so tomorrow will be laundry day. It feels good to have things caught up. I will just have to do a little touching up now on Friday.

Cold and snowy here today; sure looks like Christmas outside!

  
  Member Comments About This Blog Post:

CIVIAV 12/19/2010 11:11AM

    Glad you are feeling much better, the house is clean and Sunday can be enjoyed!

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1COUNTRY_GAL 12/19/2010 4:28AM

    emoticon emoticon emoticon emoticon

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DCOREY33 12/19/2010 1:13AM

    I'm impressed :o) Good to hear your feeling better...

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BUTEAFULL 12/19/2010 1:08AM

    I didn't do a thing today but play on the computer so you get my kudos

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OPALMOON 12/19/2010 12:18AM

    Wow! you are doing so well to get everything done Shari, good for you!!

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BKWHITE3 12/18/2010 10:18PM

    emoticon that you were able to get your to-do-list all done.

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ELLFIN3 12/18/2010 8:06PM

    WooHoo for you! I am so glad you are feeling this good!!!!!
I have one more load of glass wear to put up! I have laundry tomorrow also!! Have fabulous evening and a great Sunday!!! emoticon emoticon emoticon

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CMRAND54 12/18/2010 7:14PM

    emoticon

I got a lot done these past two days, too. My daughter is arriving from California tomorrow, so I had to get her room cleaned, the bed made, etc. Her old room is where my cats like to hang out, so it needed some clean up.

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OUTDOORGIRL69 12/18/2010 6:59PM

    I am really glad that you were able to get everything done. Doesn't it give you a good feeling.

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JANEDOE12345 12/18/2010 4:56PM

    Good for you! Now come clean my house next!


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LOVES_ANIMALS 12/18/2010 4:33PM

    Wonderful!

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SPIRITSEEKER2 12/18/2010 4:28PM

    emoticon

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JAMBABY0 12/18/2010 4:25PM

    Good job, keep up the good work!

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One week til Christmas Eve!

Friday, December 17, 2010

Some of you may remember me posting about one of my best friends last month, who had an abnormal mammogram, and had a biopsy done last week. Well, I found out yesterday from her some good news; the lump turned out to be benign! I am so relieved for her; it's been about a month of waiting for her to find this out from start to finish. I'm so glad she won't have that worry to think about over Christmas also. She will need to get a mammogram every 6 months now, but she said she is ok with that.

I can't believe that next Friday it will be Christmas Eve! I am starting to feel excited about Christmas now, despite the work I have left to do. I am right on schedule though; going to do some major cleaning this weekend and during the week prep the food. My mom is doing most of the food there isn't a lot for me to have to do for that. I have chemo on Tuesday, but I have planned around that too, so I can still take my time to rest up from that and still get my stuff done.

Today I did a short workout with the stability ball and weights. It was just a little too cold for me for walk outside today, and my stomach is hurting a little; still getting use to taking my gastroparesis meds 4 times per day instead of 2. This weekend, my housecleaning will be my exercise.

  
  Member Comments About This Blog Post:

LOVES_ANIMALS 12/18/2010 2:47PM

    Such good news!!

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OPALMOON 12/18/2010 7:47AM

    Shari, I am very relieved for you and your friend that she received some welcome good news - great that there is nothing like that to be worrying about over Christmas. You seem to be so wonderfully organised - good for you! Housework is definitely a form of exercise - it has been my main source for a little while lately...
Take care and keep warm

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BKWHITE3 12/17/2010 10:50PM

    Great news about your friend.

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CMRAND54 12/17/2010 8:15PM

    That is good news for your friend! I think housework is definitely exercise. Have fun.

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OUTDOORGIRL69 12/17/2010 7:57PM

    Praise God for your friend.
I also can't believe that Christmas is next Sat.

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ELLFIN3 12/17/2010 7:35PM

    I am glad your friend got good news! I am also glad you are
feeling better and are doing some fitness! Try not to over do this weekend! Enjoy! I am getting excited to for Christmas!!! emoticon emoticon

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CELLOPLAYER1 12/17/2010 6:31PM

    Have a great weekend. I will be cleaning here right along with you! My family is coming for a visit on the 27th so I have a few extra days to get ready.

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TUFFYBIRD 12/17/2010 6:22PM

    You're sounding so much better these days Shari. That's good to hear. And I'm relieved for your friend as well.

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1COUNTRY_GAL 12/17/2010 4:38PM

    emoticonWhew,something you and your friend can take off her worry list.Oh that is so sweet that you get excited about Christmas coming,I do too! I feel like a kid again,me and my dh don't normally exchange to much for gifts to save on expenses,but I still look forward to Christmas anyway,it's the meaning that I look forward to! I admire you Shari for keeping up with your fitness and being to devoted to your program and your housecleaning and your new eating plan.You are the emoticon emoticon emoticonDiana emoticon emoticon emoticon

Comment edited on: 12/17/2010 4:44:19 PM

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KAT7457 12/17/2010 4:01PM

    glad your got good news.have a great weekend Shari :)

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ANOTHERTAG 12/17/2010 3:51PM

    Good news for your friend.....

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