Monday, April 26, 2010
Had another bad night last night; couldn't sleep because of the pain, and even when the pain pill started working a little, the frustration of not being able to sleep kept me awake. I finally took a Benadryl to make myself sleepy, but that took a long time to work too, and when I got up today, it still hadn't felt like the side effects had worn out. Note to self: never again a pain pill and a Benadryl in the same evening!
I had my alarm set for 8:30am to get up and go grocery shopping, but I kept hitting the snooze alarm til 9am. That's something I haven't done in a long while. Most days I don't even set the alarm unless I have a morning appointment the next day, and on the days I don't set the alarm, I am usually up between 8-9am.
I wasn't sure at first if I was up to shopping today, but I decided to get ready to go anyway; I still had my afternoon appointment with DHS, so I had to get dressed and do my hair today anyway. By the time I got myself together, I decided I was feeling good enough, even though not great, so I proceeded with my shopping plans anyway. I like to do my grocery shopping in the morning, and if i didn't go today, my next chance to go wouldn't have been til Friday.
My hip was hurting before I left home, but the pain level has been pretty manageable today, even with walking around in the store. If not for the fatigue today, I would consider this to be one of my "good days".
Had an interesting email today from an ill-informed, but well meaning friend. She sent me this whole thing about how asparagus cures cancer. I know she felt she was trying to help, but stuff like that really irritates me. I mean really, if that were a cure for cancer, wouldn't most cancers be curable by now? And geez, here I have been living with cancer for 7 years now, and all I would have had to do was eat asparagus! I actually love asparagus, and eat a lot of it when it's in season, but it's sure not something I would want to eat every day.
I also had my Spark blog spammed today; the same message in the comment box on several of my entries, trying to redirect me to another weight loss website. And I could tell by the tone of the comment that who ever posted it never actually read my entries or my Spark Page, because the comments didn't apply to my situation at all. I deleted some of the comments, but haven't gotten to all of them. I went to the message boards to try to find out to report this person, and I learned that someone already did, that at least a few other members were spammed the same way.
But I have to say, I have been with Spark for almost 4 years now, and it's the first time that has happened to me. I hope it does not happen again, I would not want to have to set my page to private, but I will if I have too. I don't want to shut people out though; I blog a lot about my cancer and its treatment, and living with chronic pain, and I like to think by talking about those issues, maybe I'm helping someone else out with the same issues. And some of my best Spark Friends have been those who have happened upon my page somewhat randomly.
I had my appointment with DHS today; as I had thought, I didn't qualify for Medicaid, (but I was no longer worried about that since learning I was approved for BCBS on Saturday), but I do qualify for help with food benefits, which will help me a lot. And I may also be eligible for some help paying my insurance premiums. I have a case worker who is very friendly and easy to talk too, and really knows her stuff. I had been worried for a few months about what I was going to do when my COBRA ran out, and how I was going to pay for my cancer treatments, but now I feel a big load has been lifted off my shoulders. Things are falling into place for me, and even turning out to better than I had originally hoped for. Prayers have been answered!
I am hoping to get a good night of sleep tonight. Spending the day with my mom tomorrow. I have lab work at 11:45am, which is a good thing, as tired as I am, it's not a bad thing to have my blood counts checked. Now that I am doing chemo, lab work will be a weekly thing again.
My mom is having surgery on her foot Thursday, and needs to go get one of those knee scooters to use after surgery, which she will do while I am having my lab work done. Then we will have some time to kill before our 2pm appointments for hair cuts; we'll have lunch somewhere and maybe do some shopping. Then in the evening, she is coming with my to my Look Good Feel Better session, when I'll be getting my wig.
Sunday, April 25, 2010
It's been windy and rainy today; not good weather for my pain, and I've been feeling it. But at least I slept pretty well last night. By 11:15pm, I was watching the local news in bed and nodded off when the weather was on, so I turned out the light and went to sleep. I was up a little before 8am this morning.
It was a good stay for staying in, just having a quiet Sunday. After breakfast, I did a "good enough" cleaning in my kitchen and living room. Then I did some reading. It's nice to read during the day at home. I normally do most of my reading in bed near bedtime, or in doctors waiting rooms or during my treatments. There is something that feels peaceful and serene about reading in a quiet house during the day, just sound of the wind and the rain outside.
I watched a couple of old movies on TCM and did some sewing. I finally got that second pair of pajama pants sewn together, and made another chemo hat. I want to make some more of the hats, but I will need to get some more fabric first; maybe I will shop for that later in the week.
I waited til almost 3pm to take a pain pill, I wanted to finish up my sewing first without feeling sleepy. Still waiting for it to kick in and start working.
I spent the rest of the afternoon reading my Sunday paper, and I got my grocery list put together for tomorrow. One thing I am enjoying with getting off the bland diet is trying new recipes again. I have a few recipes I want to try and I put the ingredients I was missing on my list. I might be overly optimistic about how much cooking I will feel like doing this week, but most of the recipes have ingredients that will keep til next week if I don't use them this week.
I have a busy week this week, so I am thankful to at least have 2 weeks of no chemo. Tomorrow morning I will get my groceries, and Monday is my meeting with the agency about getting some help paying my medical bills and maybe some other expenses. I'm thankful about getting my approval from BCBS yesterday; now I won't have to apply for the Medicaid which I probably wouldn't have qualified for anyway. I'm not so anxious about this meeting now; I'll be thankful for any help I can get of course, but even if I come away with nothing, I will be ok. I won't be any worse off than I am now.
Tuesday is my haircut in the afternoon, and the "Look Good Feel Better" session in the evening. Wednesday I am meeting friends for lunch, and depending on how I feel by then, I might go to Walmart shopping for fabric after that. Thursday my mom is having surgery on her right foot; she had surgery a few months ago to remove some bone spurs, and is still having problems, so it will have to be redone.
Saturday, April 24, 2010
I had a hard time sleeping again last night; partly from the sciatica pain, and partly because I had been sleeping a lot during the day yesterday too. But I am feeling better today; I was even up before 8am, which is early for me. Hopefully that will mean I can go to sleep earlier tonight. Back is hurting today, but I think that is the effects of the weather, it's chilly and rainy here today.
Good news came in the mail today; I got my new insurance card from BCBS of Michigan! I feel a big weight has been lifted off my shoulders now; now I won't have to worry about a gap in my coverage when my Cobra runs out in about 2 weeks. I still need to get the pre existing waiting period waived, but that shouldn't be a problem; just waiting on the certificate of health insurance coverage from my current company right now which I will need to send in to BCBS. I still need to find dental insurance, but I don't think that will be as hard to obtain as health insurance.
I just finished up a short workout with my 1 and 2 pound weights. I wish I could do more, but I am not discouraged. I ended up with only 60 fitness minutes for the week, but 7 years ago, when I was on chemo, I never tried to exercise at all. So the fact that I am least getting short sessions about 3 times a week this time around is an improvement. I am still hoping to resume my short walks soon also, which will help to add some minutes.
Friday, April 23, 2010
I had a very hard time sleeping last night; the sciatica pain was pretty bad.
This morning I woke up with a migraine and nausea.
I took my Compezine, and an Imitrex. Gradually started feeling better this afternoon, but those two meds make me very sleepy too, so I spent most of the day either on the couch or in the recliner, napping or watching tv.
Kind of wondering if part of made me not feel good, with the stomach anyway, was the Neulasta shot I had on Wednesday. I don't understand how I could feel pretty ok two days after chemo, just to get sick on the third day after.
So, nothing got accomplished today. I'm even too tired to visit and huddle with my teams today.
Thursday, April 22, 2010
I had my lumbar MRI last night; it went ok; it really helped taking the Xanax first. The worst part was that my knee starting to ache during the test. It will be about a month before I see my doctor at the pain clinic who ordered it, but I asked for a copy of the report to be mailed to me, and I should have it in a few days.
It was time to cut the grass for the first time this year, so my dad came over to help me get the mower started. I usually have a little trouble getting it going when I try to use it the first time after it's been stored away all winter. This time, my dad had to do quite a bit of work (and some swearing at it, lol!) to it, and it also needed a new spark plug. He finally got it going for me though, and I mowed the yard. I live in a mobile home park, so my yard is very small, takes me about 20-25 minutes. If I had a bigger yard, I would probably not attempt to do it myself with my health the way it is now. I also wore one of those disposable face masks to try to keep the pollen out.
I am feeling sore now, especially my back; just took a pain pill. I don't think it was the mowing that hurt me. I think it was the time spent sitting on either the steps or my deck storage box waiting for my dad to fix the mower. I also walked around and pulled a few weeds here and there, and I admit, I wasn't being careful about how I was using my back.
While I was out sitting on my steps, I noticed this bumblebee just hanging out. I watched him a little while; he was moving, but very slowly; I thought perhaps he was injured, but eventually, after I took these pictures, he flew away.
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