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A nice, quiet Saturday

Saturday, November 21, 2009

After 5 days in a row of radiation, and having a couple of other things which required me to be up at a certain time in the morning, I was very glad today for the chance to sleep in, and for the fact that I had nowhere I had to go today. Normally, I have the tv on in the background on Saturdays, usually tuned to HGTV, while I am doing my usual Saturday things around the house or my computer stuff. But today, I didn't turn the tv on til after 5pm. Today, I just enjoyed the solitude of the peace and quiet.

Had a flare up of my IBS late last night, and again mid morning, but since noon today I have been feeling a little better, probably the best I have felt all week. Hip and back pain aren't quite so bad today either. I'm just tired today more than anything. The fatigue kind of seems to come in waves. I've been pacing myself today, and when I'm feeling extra tired, that's when I take the time to just sit for a little while.

The weather was very nice again today, sunny and in the 50's. I took advantage of that and got my bird feeders refilled outside.

Changed the sheets and blanket on the bed; it will feel good to crawl in between clean fresh sheets tonight. Also got caught up on the laundry. I wanted to cook some chicken in my crock pot, but I forgot to get the chicken out of the freezer last night. I did that this morning though, so I can do it tomorrow. I also cooked a pot of rice in my rice cooker. Rice is always something I can eat when I can eat anything else when I'm having tummy troubles. I used my rice cooker a lot while I was on chemo.

  
  Member Comments About This Blog Post:

PHEBESS 11/22/2009 9:45AM

    I too have IBS issues - have you tried yogurt? It seems to help calm my stomach - something about the healthy bacteria, or something.

Feel better!!!!!!!

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HOPE2BE 11/22/2009 9:38AM

    I see you're having a positive attitude about your radiation. Its good you are resting and taking breaks in between your other jobs. Nice clean sheets are good to sleep on. Rice is really good and I love it. Nothing wrong with it. I'm glad you can eat it.

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SAPNA. 11/22/2009 9:14AM

    I like rice for my IBS as well. It does seem to be a good food for this complaint. I am a vegetarian so dont eat meat or chicken or fish. I have to be so careful with the veggies. I can only have a very little at a time or I get in real trouble. The nice weather probably helped you to feel better. I am glad you were able to get a rest. Hope you had a good night enjoying the nice clean sheets.
Myrna.

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LIFE_IS_SO_GOOD 11/21/2009 8:48PM

    Glad to hear you relaxed today. You have had such a stressful past few weeks so anything you can do to be good to yourself is great! emoticon

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HOLLYSNOWWOMAN 11/21/2009 8:38PM

    I'm glad you got some rest today in addition to your housecleaning but just take it easy.

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COOKIE502 11/21/2009 8:29PM

    You sure are going through a lot, but have such a good attitude about it all. Hopefully, it helps you a little to write what you're feeling on your blogs, and know that a lot of people out there are reading them and sending good wishes your way. emoticon

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Radiation day 8; So glad it's finally Friday!

Friday, November 20, 2009



I think the fatigue from the radiation is really starting to hit me. I was too tired last night to do my usual bedtime reading, only got through a couple of pages of my book before I gave up on it for the night. Watched a little tv til midnight before turning out the light. I didn't get up til after 9am, and I still felt exhausted. And my IBS is still flaring up first thing in the morning, took 3 Immodium this morning.

Since there are a lot of things I can't eat now with my digestive troubles lately, I'm having a hard time getting enough servings of fruits and vegetables. I can tolerate bananas and potatoes, so I've been eating those, but a little more variety would be nice. On my next shopping trip, I'm going to stock up on applesauce, and get some frozen fruit and plain yogurt also to make some smoothies. I also plan on cooking some chicken breasts with some broth and mild seasonings in my crock pot this weekend; chicken is another food that is easy to tolerate for me.


No more cooking with some of my favorite ingredients for awhile, like beans, salsa, and tomatoes. But I will give my stomach and digestive system plenty of time to heal before I start adding those things back into my diet.

And as tired as I was this morning, I realized that doing my usual Monday morning grocery shopping is going to be pushing it a little too hard. My dad has been driving me to my radiation treatments, so I think on Monday, on the way back home in the afternoon, I'll ask him to stop at the store and I can pick up what I need for the week then. It will also be nice to have someone to help me carry my bags in; I have 4 steps to walk up to get to my door, and going up and down those just a few times isn't easy on my hip right now.

I've been doing ok keeping up with the housework. I decided that until I am feeling better, I'm going to concentrate most of my housecleaning to the rooms that people other than myself actually see; my kitchen, living room, and guest bathroom. The rest will just get a lick and a promise.

My mom is recovering from surgery she had her foot, she's doing well, but because of the pain pills she has to take, she's not driving right now. My dad took her to Rite Aid this morning, and since I needed a few things too, they picked me up on the way. I think the radiation is starting to help, because the hip pain wasn't nearly as bad as it usually is after walking around a store for that long. My dad had to return something to Menards, and by then, it was lunch time, so we went to Bob Evans. I ordered a plain baked potato and steamed broccoli from the side dish section of the menu, I thought that would be easier on my stomach than a full entree.

The pain in my upper back has really bothered me today; I'll be anxious to get that bone scan done and find out if it's that lesion on my spine causing problems. The radiation oncologist said he'd order it next month, so I won't have too long to wait, as this month is almost over. I'm also feeling the pain radiating to my ribs on the right side too.

I'm glad the weekend is finally here though; I'll have a two day break from the radiation, and hopefully I can get some extra sleep too.

  
  Member Comments About This Blog Post:

PHEBESS 11/21/2009 4:49PM

    Just sending you healthy feel better wishes and hugs.

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SAPNA. 11/21/2009 1:45PM

    get yourself a basket on wheels so you dont have to carry your shopping. That will be a great help to you. The apple sauce and yogurt is a very good idea. I think it will ease your symptoms a little. I hope you feel better very soon.
Myrna.

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HOPE2BE 11/21/2009 8:06AM

    Oh Shari I will pray more for you. Have you tried sweet potatoes? That would be really healthy and like another type of potato. Maybe try some cauliflower. It could be cooked. Can you handle cheese or melted cheese? I wish I could help you too but only have prayers to give you. emoticon emoticon emoticonhere's hoping it doesn't last too much longer.

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SWIMLOVER 11/21/2009 12:35AM

  Shari, I will continue praying for you. Radiation does make one tired at least it did me. Please don't worry about cleaning your house. If people visit you, they visit because of you and not your house. Have fun with your cats!
GOD BLESS!
Louise

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LIFE_IS_SO_GOOD 11/20/2009 10:31PM

    I'm so glad that you have your parents to help you out some. Even though you are incredibly strong it's nice to have someone to lean on and help out. I understand how those 4 steps can just wear you down.

Regarding cleaning --- I hope that you know that your guests don't expect you to do anything. People want to know how you are, not the house! Easier said than done ... I know!

Get some rest this weekend! And play with the cats!
emoticon

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AVALONAPPLE 11/20/2009 9:57PM

    I am thinking of you and your Mom. Have a good and restful weekend emoticon
Jennifer

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1GR8FULGAL 11/20/2009 7:50PM

    Dear Lord,
I pray to you right now for Shari. We know, Lord, that You understand her exact situation even better than she does herself. I ask You for peace, strength, comfort, and pain relief. Lord, please be with her; let her know You are walking right beside her; remind her of the Footprints poem as You both walk side-by-side through this challenge.
Lord, we are grateful that she has her parents to help her and we ask for comfort and healing as her mom recovers, too. I come to You in hopes that Shari can keep all of this in perspective and take the very best care of herself possible, Father. May she never feel bad for resting or reaching out for what she needs or letting some housework slide.
Father God, I ask for You to pour out Your countless blessings on Shari and her family and friends as they so bravely face these battles. We know You never leave or forsake us. I pray in Jesus' holy name, Amen

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HOLLYSNOWWOMAN 11/20/2009 5:28PM

    Oh hon, I wish I could be there to help you. I had to pay someone to come and clean my house and do my laundry for me for over 2 yrs and when I could no longer afford this...Oh well. I did put the dishes in the dishwasher and did prepacked meals but I survived and you will to. Don't let it bother you. You are still in my prayers. emoticon

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Radiation, Day 7; halfway done! Thank you Spark Friends!

Thursday, November 19, 2009



I would like to say thank you to everyone who has left me the supportive and caring comments on my blog, Spark page, and on my teams. It's makes it easier for me to get through each day during this rough patch I'm in now, to know there's a place I can come and talk; it gives me encouragement and also hope that things will get better. I thank you for the prayers too. I'm very thankful for all my Spark friends, you are a big part of what keeps me going! emoticon

Still dealing with my IBS flare ups in the morning, but got it under control with a couple of Imodium today. I wish I could have slept in today, but my mom and I had a meeting at the nursing about my aunt. They have what they call "Care Conference" meetings with the residents families every 90 days, and the residents are welcome to attend if they are able. My aunt hasn't been able to attend the last few, or today's. She is is 89, and unfortunately, her health has declined a lot this year. Pretty much all that can be done for her is to keep her comfortable. Her memory is going too, since her last TIAs, or mini strokes. Most of the time when we see her, she doesn't recognize us, but I think deep down somewhere, she does know when we are there, and that she can feel our love. My mom would have been fine with me not going today, but I know those visits aren't easy on my mom, seeing her sister like that, so I didn't want her to go alone.

I didn't eat much before we went, I didn't want to have to worry about having to run to the bathroom while I was there. I ended up with some pretty bad heartburn instead. I have acid reflux problems, and if I don't eat enough or go too long between meals, that aggravates it just as much as overeating does. But once I got home, I took some liquid Maalox and had my lunch, and my stomach started feeling better then.

Hip pain wasn't too bad today, but my upper back has been pretty painful most of the day, in the area where the lesion is on my spine. When I went to radiation today, I asked the nurse if the appointment for my bone scan had been set up, and I was told the doctor wants to wait and have me do that next month. Which is probably just as well, if I do need radiation on my spine, it would be better to wait til I'm done with the hip, and hopefully, I'd be able to wait til after the holidays too. Anyway, I've treatment #7 today, 7 more to go, which means I'm officially half way done! emoticon

Speaking of the holidays; I won't be all done with my Christmas shopping before Thanksgiving like I normally am, but that's ok. I've bought a few things throughout the year, made a few gifts, and the rest I was planning to buy online anyway, since it's hard for me to do a lot of standing and walking with the hip. If I'm shopping online, I'm not out in the weather or fighting the crowds, so I don't feel so rushed to get it done.

  
  Member Comments About This Blog Post:

VALI_T 11/20/2009 7:10PM

    I think that not getting your Christmas shopping finished before Thanksgiving is understandable given what you've been going through.

I'm so sad for what your mother and you are going through with your aunt and I think that you're a real trooper for going with your mom for that meeting about your aunt's situation. I'm sure that it wasn't easy for you, either physically or emotionally, but I'm equally sure that your mom really needed to have you there with her.

emoticon on being halfway through the radiation. I'll be praying that things go well for you and that you don't have to do any more of this.

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MARLOU4 11/20/2009 7:28AM

    Your positive attitude is amazing! I love knowing that you can 'suck it up ' and not let anything stop you from doing the things you want to do.

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ZEE1960 11/20/2009 3:59AM

    God speed your recovery

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SAPNA. 11/20/2009 3:44AM

    May God bless you and comfort you and keep you strong always.
Myrna.

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SUEJENN 11/19/2009 11:23PM

    I can feel the power when I read your blog! You are so strong and have such a positive outlook. I envy your ability to manage your life around your needs. No whining, just do it.
It makes me think "Suck it up, Sue. You have work to do, do it!" You are such a positive model! Go girl!

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CARTOONB 11/19/2009 11:06PM

    Celebration!! You are amazingly strong and an inspiration to me.

Not done with your Christmas shopping, tho? Huh...I haven't even started. But, I do enjoy the day after Thanksgiving shopping!

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1GR8FULGAL 11/19/2009 9:46PM

    WOW Shari, I think you must be made of steel, or something!! You are so strong and you just keep going & going (hhmm, maybe Energizer bunny?)

I admire your strength and courage. To see how kind and caring you are every day, even though you are walking through all that you are facing - you are one walking miracle, girlfriend!! emoticon
You take good care and I'll check back with you soon. Pls know that the t & p of so many others are with you 24/7. Hugs, Nance

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KIRSTY1306 11/19/2009 9:18PM

    You amaze me, you know how fantastic I think you are. I cant believe how selfless you are even though you have so many health concerns yourself, your family are extremely lucky to have you
Keep smiling gorgeous
Kirb xx

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AVALONAPPLE 11/19/2009 7:27PM

    I am so pleased to read that you are half way through your series of treatments. My thoughts often wander to you during the day and every one is for wellness and healing. emoticon
Jennifer

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LIFE_IS_SO_GOOD 11/19/2009 6:38PM

    I'm so glad you are halfway through --- that's got to be a relief! You have so much courage and grace. I think of you daily and wish you the best! emoticon

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Migraine this morning, and radiation day 6, and doctor today

Wednesday, November 18, 2009

I woke up at 5am with a migraine. I took an Imitrex, and got my cold pack pillow thing out of the freezer, and went back to bed. It took about an hour, but it finally went away. But when I have one of those headaches, even after it goes away, I still feel very fatigued and wiped out for the rest of the day. Today was one of those days.

I also had another attack of the IBS this morning, but not as bad as the previous two I had since Sunday, and this time I only had to take 2 Imodium instead of 3.

So, today was one of those days where I just had to kind of drag myself through it. I felt very fortunate though that I did my grocery shopping yesterday, there's no way I would have tried it today.

I had my radiation appointment this afternoon; I was glad to be able to take my time getting ready for it today. Today was #6, which means 8 more to go. Today was also my "doctor day"; all patients at the radiation center have to see the doctor once each week. I have a lesion on my spine, about mid back, that showed up in the bone scan I had in June. At that time, I wasn't feeling any pain in that area, so after discussing it with my oncologist, it was decided that due to the side effects of having radiation to that area, that I didn't need it at that time since it wasn't causing pain. But lately, I've been having pain in that area, and last week, it starting increasing a bit more in frequency and intensity, so I thought it was time to say something about it. So I brought it up to the radiation oncologist today since I won't be seeing my regular oncologist til next month. Anyway, he said a bone scan would be needed to see if the lesion is getting worse, and if it is, they will need to do radiation.

If it hasn't changed, I won't need it. The pain from it is for the most part mild, something I can live with, it's just the idea that it could be getting worse that is bothering me the most. I should be finding out tomorrow when I'll be getting the bone scan done. But I feel a little better about it now that I have asked the doctor about it.

I knew that just because my radiation this time around was a shorter course, and low dose, it still didn't mean it would be a "walk in the park", but I wasn't expecting it take as much out of me as it has these past few days. But I will get through it, I'll keep on taking it one day at a time, hour by hour if I have too.

  
  Member Comments About This Blog Post:

KIRSTY1306 11/18/2009 11:10PM

    I read your blog , and all I got from it was ..." Oh my goodness, this woman is a fighter, she is amazing" . And you really are. You must be going through so much , and I can understand why you are so drained. I have a condition that affects me daily and I take 20+ tabelts daily, I get the migraines from the meds and the fatigue and the sickness, so I totally understand where you are coming from. Its no walk in the park for you and you should be proud of yourself for getting through each appiontment , each day , each month. You seem like such a string lady.
If you ever need to talk , you know where I am, feel free to add me as a friend.
Kirb xxx

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LIFE_IS_SO_GOOD 11/18/2009 9:53PM

    You continue to amaze me --- with all the 'stuff' you go through and your attitude. I know how hard it can be and you have such grace. Hopefully tomorrow will be an easier day! God Bless! emoticon

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ASYOUWISH91 11/18/2009 9:43PM

    Hi there. Sorry you're feeling unwell and tired today. I hope tomorrow is a better day for you. I'm glad you talked to the doctor about your back. It's better to watch it closely and do something, if necessary, before it gets really bad. Take care.

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1GR8FULGAL 11/18/2009 8:36PM

    I'm sorry to hear you are not feeling well. (It's ironic; we share some of the same conditions.) You are such an amazing person; you are very strong and carry/project a wonderful attitude!! I'm glad I thought to give you that bear today and that you liked it. May he keep you company and remind you that you are in the t & p of others. May each passing hour bring an increase in your feeling better and more comfortable.
Hugs, Nancy

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CHATERJOY 11/18/2009 7:51PM

    I really think you are amazing...hang in there!


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Tuesday, November 17/ Radiation day 5

Tuesday, November 17, 2009

I think the fatigue from the radiation is starting to hit me. I have been sleeping a little deeper sleep at night, which is a good thing, but it's still hard to roll out of bed in the morning. But I know that side effect is temporary, and I was expecting it. Just didn't think it would be quite this soon, after just 4 treatments.

My IBS flared up again this morning too; not as bad as it was Sunday, but it still took 3 Imodium before it stopped. I'm thinking now maybe it is from the radiation. But as long as I can keep it under control with the Imodium, I'll be fine. And hopefully, I'll only have to deal with it in the mornings and not all day.

I wasn't sure at first if I was going to be able to go for my groceries like I had planned, but I decided to get myself showered and dressed anyway, and then see how I felt. I was feeling better by then, so I left the house a little after 10am.

I went to Fashion Bug first, I had a $5 rebate coupon that was expiring this week, and another coupon for $10 off of a $25 purchase. I still ended up spending $60 there, so I think the store got the better end of that deal, lol! But I was happy to find this pair of winter boots, which I used the $10 coupon on: www.fashionbug.com/shoes/boots/andy-
boots/13833c5116p45972/index.pro#produ
ctTabs
I got the tan ones. They are so cute and comfy! And they fit well. I have a hard time sometimes finding footwear that is comfortable, because my feet are kind of narrow. Most winter boots are too wide for me, even though they are supposed to be regular width, and my feet slide around inside them, even with thick socks on. These are a bit narrower though, and I think I can walk around in these and be comfortable.

I also bought a baby doll style cardigan with 3/4 sleeves, a cami, and some dark brown suede flats that were on sale. My hip was starting to get sore by the time I got done in there, and I probably should have gone home and waited til tomorrow to do my grocery shopping, but when I thought about the struggle I had to get out of bed this morning, and wake up, I decided I'd rather get it done today and sleep in tomorrow. So I went to Meijer next and got my groceries for the week. Fortunately, I had a relatively short list this time.

I was hurting by the time I got home. I took one of my pain pills right away. They make me sleepy, but since my dad has been driving me to my radiation treatments, that's ok. If I would have had to drive, I would have waited.

It was chilly out today, but sunny and dry, so I took my new boots outside on the porch and sprayed them with some waterproofing spray made for suede and leather. That way when I want to wear them, they will be ready to go.

By the time my dad picked me up for my radiation treatment, the pain pill was starting to work.

The radiation is sponsoring an art exhibit that runs through the end of the month, artwork made by cancer patients and survivors. They started setting up the pictures today. I got to see some of them. Some were hopeful, some were sad, but they were all beautiful works of art. I have 9 more treatments to go, and knowing I have this beautiful art to look at makes that prospect a lot more pleasant.

So, it's now near my dinner time. I am feeling sleepy from the pain pill, but I know tomorrow I can sleep in a little longer if I need too. I know from past experience to pace myself with my daily activities, and if I need a little extra sleep each day until I get through this, that's ok too.

  
  Member Comments About This Blog Post:

SUEJENN 11/18/2009 3:06PM

    Popped in to see how you were doing. You are good to yourself, taking the time to rest instead of pushing it and paying for it later. Hope things go well with the rest of the radiation treatments. Your positive attitude shines through!

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CARTOONB 11/17/2009 11:04PM

    Cute shoes! Hope the radiation does it's job.

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HOPE2BE 11/17/2009 9:58PM

    that's great that you have such supportive parents. I know I always have had the support of my parents and its really helped. It sounds like you're getting things accomplished even though its small things. Sleep is the best thing for you.

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1GR8FULGAL 11/17/2009 6:55PM

    Hi, I stopped in to check on you and see how you are doing/feeling. It sounds like kind of mixed. Well, just know Sparkers are here for you and I am thinking of you often and always wishing you all the best. You are incredibly strong! Take good care -it sounds like you are. I'm very grateful it sounds like your parents are supportive- that's great. N.

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