Saturday, December 28, 2013
Yesterday afternoon Brianna's eyes were locked to the right and unresponsive to light. She had no reflex reactions. The signs were all incredibly bad. We were beginning to discuss what to do if the EEG showed that she was in a persistent vegetative state, a situation no family, and most certainly no parent of a 6-year-old, should have to face.
Then yesterday evening Brianna opened her eyes and started voices. She was still really sleepy, but when she could open her eyes she was looking around and didn't look "hollow." When her mom said "I love you," B puckered up and made little kisses!
They tested B's urine and said the seizure meds that they used the first night are still in her system and that is what's keeping her so sleepy. They didn't look at that initially because it should have worn off long ago, but if any family is going to have a weird reaction to drugs, it's my sister's.
It should keep wearing off. She hasn't spoken yet, but she is responsive to light, voices and movement, and is moving her limbs and even grasping things.
I am weak with relief, and convinced that the massive, international prayer chain that has gone out from here, from Facebook, doubling and redoubling as friends of friends asked their friends to pray, has brought us a Christmas miracle.
Thank you all, each and every one, for your prayers.
Friday, December 27, 2013
This is Brianna, dressed for her Christmas concert on December 16. She was so excited for the concert; just look at that grin.
Now she is lying in a hospital bed, still intubated, still unresponsive. She is scheduled for an EEG today, but my doctor friends here have warned me that, because of her last of reflex responses and other symptoms, there is a possibility that she may be brain dead.
Miracles do happen, and children do sometimes have unexpected reactions. But I am barely able to breathe, waiting to hear the results. I have tried to gently brace my sister and niece for the possibility, but I really there is no point is stealing hope.
And perhaps she will be fine. Perhaps it will all be fine. I just keep praying.
Thursday, December 26, 2013
Brianna spent all of Christmas day intubated and unconscious. They attempted to bring her up out of the sedation in the afternoon, but she didn't wake up. They resedated her for the night so that her mom--who is still recovering from her recent hospital stay--could get some sleep. They are starting to try and wake her up again today. This day is when we find out if she's going to be okay.
Wednesday, December 25, 2013
My 6-year-old grand-niece was life-flighted to the hospital last night with sudden seizures. As of this morning, she is still intubated and sedated, and they don't have any answers as to what's going on. My niece, who herself spent three days in the hospital last week with some terrible rash all over her lower body and chest pains, has been there all night. Her husband and their two little boys are doing Christmas together, but I know their hearts can't be in it.
My poor sister has endured both her daughter and grand-daughter being hospitalized in the last week, our stepdad, to whom she was closest among us, dying, and caring for Mom, who has to be taken on a 130 mile round trip three days a week for dialysis. It's been a hard year for me, but an even harder one for her.
Friday, December 20, 2013
No one can resist this sweet little face:
And no one can resist *this* sweet little face:
And yet, the two of them are resisting each other mightily. The black dog is my Shasta. The curly little mop is MIL Pat's dog Koshi. And so far their interactions have consisted primarily of growling at each other with the occasional barking and snapping bout.
We were really hoping they were going to be good little buddies for each other. But they are like two boxers in their corners, Shasta curled up next to me, Koshi curled up with Pat. They ignore each other until one of us gets up. Then there is posturing and raised hackles. They are, however, so little, that the two of us and DH can only giggle at their antics.
But if we take them for a walk? They're just fine. Shasta is a good walker, game for 5 miles without tiring in the least. Koshi isn't used to that kind of exercise, so I can't take them for a long enough walk to wear them both out. But they do great as long as they are on the leashes.
I'm hoping that by next week they might consider playing with each other. Dumb dogs!
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