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Venn diagrams I'd rather avoid

Wednesday, July 09, 2014

I went water jogging yesterday. I'm water jogging because my back injury prohibits many other activities that will get my heartrate high, including running, biking, the elliptical machine, and, oh, pretty much everything except walking and water jogging. (Even lap swimming is something that I'm limited in doing, though I'm working my way back up on that one.)

Anyway, so there I was, in the deep end of the pool, my head out of the water, inching slowly forward while my arms and legs pumped wildly beneath the surface, and I started thinking about the many similarities between chronic pain and grief.

Chronic pain and grief both slow you down. It's been just over a month since Rebecca died. The sharp edge of disbelief has dulled a little. The pain is not quite as fiery. At times, I don't think about it for a few minutes. But everything is suffused with sadness. Even when I'm not actively thinking about it, my brain is still muddy, my movements still slower and more cautious. Getting anything accomplished feels Herculean.

Chronic pain and grief both come slamming in on you without warning. I can be walking down the road or climbing the stairs or just twisting the wrong way and, BAM! I'm in pain. Bad pain. Pain that stops you in your tracks. Which kind of pain, you ask? Either. Both. They both sneak up on you like that.

Chronic pain and grief may be temporarily diminished, but they never go completely away. It's always right below the surface, twinging occasionally to remind you. People saying things like "I'm glad you're getting over that" is frustrating because they don't want to have to explain yet again that there is no getting over it, just better times than others.

You *can* rally for a while and spend energy to push chronic pain or grief away, but it will return, often with a vengeance. This is one of the things that people least understand about both chronic pain sufferers and the grieving. People will see them engaged in activities, talking and laughing, doing something physical, and assume that this is the magic moment when they are "cured" of their pain or grief. They are not. They are "deficit spending" their energy, and will have to pay back that debt in the days to come. So don't get impatient if you see them out and looking well one day, and then hear that they disappeared back into themselves for a week. They are doing their best, and sometimes they have to protect themselves from getting too stressed out.

Chronic pain and grief sufferers don't know when it's going to be worst, and can't always be sure about what is going to trigger their pain. Walking 4 miles one day didn't feel bad at all. Walking 3 miles a few days later was like having my left leg on fire. I can't tell you what was different about those two days. The same with grief. Some days memories will feel warm and comforting, other days they will trigger anguish. They can't tell you what was different between Tuesday and Friday.

Chronic pain and grief sufferers often feel lonely and frustrated. They have to say "no" to so many things, and then know that they are going on without them. People eventually forget to invite them, even though they would still come when they were able. They feel stupid about complaining about this, because they can't guarantee that they will be up to accepting the next invitation.

Chronic pain and grief may both diminish with time, but that time is not a week or a month or even a year. And both will always be there, ready to resurface with fresh agony. My dad's been dead for 18 years, and every once in a while his death completely flattens me. Still.

So if you are spending time with someone suffering from chronic pain or grief, don't say to them, "I'm glad you've gotten over that" or "I'm glad you're better." Say, "I'm glad you were able to participate today" or "I'm happy to see you." Enjoy what they are able to give, and don't put expectations on them for the future.

  
  Member Comments About This Blog Post:

OPTIMIST1948 7/11/2014 9:39AM

    Thank you for the insight...however terribly they were acquired.

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HILLSLUG98239 7/9/2014 7:04PM

    I rarely use the phrase "get over it." You're right: it implies that something is past and done. What you're doing, both emotionally and physically, is healing. Your choice is to heal, or to give up. Healing is hard work, but for most of us, it beats the alternative.

After the death of my first husband, I was saved by a support group called Friends and Families of Violent Crime Victims. Anytime a new person attended a meeting, they were told "We're very sorry you're here, but we've very glad you found us." It recognized both the terrible circumstances that brought the person to such a support group, but also recognized how deeply a grieving person needs to connect with someone who can understand their pain.

I admire your strength. It's not easy to persevere through the pain, but you are doing it.

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NATPLUMMER 7/9/2014 12:11PM

    emoticon

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One out of three...

Sunday, June 29, 2014

And here is the tale of my… I was going to say failure, but maybe I should make myself feel better by saying wisdom. I drove an hour and a quarter to the triathlon site. Looking at the lake, I realized that the swim was very long and it reminded me of the fact that I've been doing all of five laps in the pool. I've been walking in the water, but not swimming and I was honestly scared. I've been walking in the water and not swimming more than five laps because the doctor said I needed to build up to swimming laps extensively. I haven't done that. I was afraid that if I got in that water I would hurt myself. Even as I stood there making that decision, I felt like a big chicken. But I have to think about my health. So I put back on my shoes and walked the 5k. Even by the end of just that, my left thigh felt like it was on fire.

I didn't achieve the goal I went there for. But I did achieve the goal of not letting my Wonder Woman syndrome cause me to hurt myself worse.

  
  Member Comments About This Blog Post:

OPTIMIST1948 7/6/2014 10:38PM

    There is nothing wrong with looking at your goals and saying "this might take a little longer than expected." That's not failure - that's an acknowledgement of your injuries and being unwilling to kill yourself by drowning.

And if you died, that would suck, 'cause I would miss you.

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NATPLUMMER 6/29/2014 4:35PM

    emoticon emoticon

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MARILYNROBERT 6/29/2014 11:58AM

    You made the right decision. I didn't realize you hadn't been swimming very far. Even when I was training with a master swim coach, swimming in open water scared me and I wasn't injured. You did good! emoticon

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WALLINMW 6/29/2014 11:19AM

  Yay

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"Two outta three ain't bad"

Saturday, June 28, 2014

Tomorrow is my second scheduled triathlon (out of four) of the year. I contacted the organizers and explained my inability to bike but my desire to participate as much as I could. They were wonderfully gracious. So I'm getting up at 5:30 a.m. to drive to and hour and a half to Milton State Park near Ravenna, Ohio, in order to swim in a cold lake, walk a 5k pretty much by myself, and get my t-shirt. Because this back thing is NOT defeating me!

  
  Member Comments About This Blog Post:

WILSHAR7 6/29/2014 12:43AM

    More power to you!!! You go girl!!!

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MARILYNROBERT 6/28/2014 6:22PM

    That's a fantastic idea. Have fun and I'll be cheering you on from here emoticon emoticon

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NATPLUMMER 6/28/2014 6:17PM

    I'm glad you'll be able to participate. Have fun!

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The beat(ing) goes on....

Thursday, June 26, 2014

Steroid shots: insurance coverage denied.

I have already called the insurance company, been shunted off to their contractor, and been told that as my examination did not show neurological deterioration, treatment for pain is denied. They have sent a letter with instructions for what my doctor should do next. I asked them to fax me a copy so that maybe the doctor can send in the needed information or line up a "peer-to-peer" phone call with the insurance company. Upon reading the letter faxed to me, the reason for denial is that, "Review of your medical record indicates that your symptoms are not consistent with radiculopathy (nerve related pain that seems to radiate from the spine)." Um, that's exactly what I'm experiencing? I'm hoping that the doctor is able to update them on this fact quickly.

But in the meantime, the chances of me getting treatment next week are rapidly diminishing. And I am working really hard on the "not curling up in a ball and crying or having a temper tantrum" part of my day.

  
  Member Comments About This Blog Post:

WILSHAR7 6/26/2014 6:54PM

    I hope everything works out after the Dr. explains things.

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JANETRIS 6/26/2014 6:22PM

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NATPLUMMER 6/26/2014 2:27PM

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SCARLETTHEATHER 6/26/2014 2:11PM

    Insurance companies are so difficult to work with sometimes! Just don't give up!

emoticon

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LJOYCE55 6/26/2014 1:37PM

  I think temper tantrums are fine as long as they take place only in your mind.

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So disheartened

Wednesday, June 25, 2014

The pain management doctor told me that I needed a steroid shot to the back, and that I was not allowed to ride my bike until he had reevaluated me at least two weeks after that shot. He only does the shots on Wednesdays. I hadn't heard from him in over a week, so I called. My insurance company still has not preauthorized the treatment. That means AT LEAST one more week before I can get it done, AT LEAST three more weeks before I can begin biking again. Which means, as a practical matter, I won't be doing any serious biking until AT LEAST August.

I am already at the edge of my coping rope. I am still deep in grief, exhausted, in pain, and barely able to handle my work load. I just want to curl up in a ball and cry.

I am so tired of my own whining. I wish I could write positive things. Today, my great accomplishment was finally unpacking our suitcases and getting the laundry started. That, and cleaning up my kitchen. Now I feel like I deserve to go to bed.

  
  Member Comments About This Blog Post:

MARILYNROBERT 6/25/2014 7:05PM

    You do deserve to go to bed. You and your family have been through a lot and you are having to deal with the maddening slowness of medical bureaucracy. Sleep and rest can be a very good thing for you. emoticon

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SCARLETTHEATHER 6/25/2014 2:31PM

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I'm sorry, that is rough. Can you contact your doctor and ask him to recommend some activity that it's safe for you to do until you can get back to biking?

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NATPLUMMER 6/25/2014 1:43PM

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