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No answers to ongoing pain- can't take much more

Tuesday, September 18, 2012

So the pain continues. Saw my own doctor again and he sent me back to the ENT doctor. I saw him this morning and he said he couldn't help me and to go back to my family doctor again. I can't take much more of this pain and of the doctors telling me I have them stumped. I just want the pain to stop. I don't care that my head looks like a pumpkin (swollen), I only care about the pain going away.

  
  Member Comments About This Blog Post:

HEATHER1969 9/20/2012 12:46AM

    OMG I can not believe you are still hurting so much!

That is just nuts! Maybe try a whole new circle of doctors... UGH!

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GAYLLYNNE 9/19/2012 6:44AM

    I agree!!! Go to another DR. If it's in your lower face, try an oral surgeon. Hang in there and DON'T give up!!! Keeping you in my thoughts!

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UMBILICAL 9/18/2012 9:21PM

  2nd and 3rd opinion sounds next

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Update on Lymph nodes and pain

Thursday, August 30, 2012

So I saw the DR on Tuesday. He reviewed all the CT Scans and ultrasounds and biopsy results. The biopsy showed reactive cells which mean they know something is going on. Both the scans showed NUMEROUS swollen nodes. So he decided, for now, that we would try to treat the symptom - the pain. I am now taking an anti inflammatory pill. So far no change. The pain is getting worse every day. He wouldn't give me anymore T3s, which is understandable. Yesterday was excruiating. I don't think I am conveying to the doctors how much pain I am in. The good newsis that I have another appointment in less than 2 weeks. So basically no answers.

My weight was down though so that is a positive note.

  
  Member Comments About This Blog Post:

SSDCQUINCY 9/5/2012 8:26AM

    Sorry for your pain, and way to go on your weight loss. Hang in there and emoticon I know emoticon

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FREECAL1 9/3/2012 1:01AM

  Hang in there! Sorry you're experiencing so much pain. Hopefully they'll get to the bottom of this. emoticon

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DETERMINEDJANET 8/31/2012 2:21PM

    So sorry that you aren't getting answers and are in such pain. Hugs!!!

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Please Help - Swollen Nodes and Pain

Friday, August 24, 2012

I am so frustrated. In November, my lymph nodes in my neck started to swell and I started to feel pain in my ears. I have had 3 CT Scans and 3 Ultrasounds and a needle biopsy done. The pain is horrible. The last two days I had to take tylenol 3s. So this morning I had an appointment with the ENT (ear nose and throat) doctor and he informed me that there is nothing wrong. Then why am I in pain? I got home and made an appointment with the family doctor for next week. Am I going to be in pain for the rest of my life? My face is puffed out all the time and there is pressure on my ears. I can't take much more of it. Does anyone have any idea what I can do?

  
  Member Comments About This Blog Post:

SIMPLYME59 8/29/2012 6:39PM

  Hi ladies, thanks for the input. am waiting on blood test result, biopsy results, cat scratch results etc... Had all the tests above ran already. I am a BC survivor 1 1/2 years now and my white blood cell count is normal. I am leaning more towards bad infection.. will keep you posted.

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POORGIRL_DIET 8/29/2012 10:56AM

    This may not be related to this. I had swelling in my neck and a terrible piercing pain in my ears after several tests and doctors telling me there was nothing wrong with me I thought I was going mental. It turned out that I was suffering from gum disease, once that was sorted everything was fine. Hope you feel better soon

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SIMPLYME59 8/28/2012 1:38PM

  When I read your blog I was shocked because I am experiencing the same exact thing now since July 28,2012. 3 ER trips because of swelling in throat, after 2 ct scans, an ultra sound, a chest xray, blood work- including cat scratch,, a biopsy and scoping of throat, I know nothing. swelling in neck goes up and down. Just when I think it is going away, it swells up like a tangerine. very painful and very frustrated. I have an appt with my dr on Friday for results of biopsy.... wish me luck and much luck to you to.

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SSDCQUINCY 8/28/2012 10:02AM

    Good luck!! I hope you feel some relief soon. I have suggestions other than what was given above. Good luck and hang in there. emoticon

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QUILTINGB52 8/26/2012 12:54AM

    Your lymph nodes are a major part of your circulatory system. Are there are other parts of your body that are swollen?

I only ask - because I have Lymphedema and know that swollen lymph glands can affect different areas of the body.

The doctor that diagnosed me was a Vascular Surgeon...he just walked into the room and said, "You have Lymphedema" and thes rest (as they say)....is history.....

The difficult part was finding a doctor that knew how to treat it...unless they graduated in the 50's - nobody knows what it is. Sad, but true.....

Good luck to finding an answer....

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GAYLLYNNE 8/26/2012 12:40AM

    I would also check with a dentist. This could be an infection in your mouth or gums. I wish you luck in finding out what's going on. Don't give up or stop until you do!

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DETERMINEDJANET 8/25/2012 10:28PM

    Maybe suggest a blood test to make sure your body isn't trying to fight off an infection.

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BLUE42DOWN 8/25/2012 1:47AM

    Hopefully the family doctor can come up with some other ideas. Unfortunately, I wouldn't even know what to suggest medically (and a doctor with your full medical history is a much better source of advice in that direction).

On the plus side, a doctor not being able to tell what is wrong after CT scans and a biopsy can be good news in one regard. The common issues, such as cancers, are usually pretty obvious.

Since the lymph nodes are directly tied to the body fighting infections, it could be just about anything the body considers an "enemy" causing them to swell. (My DDa got a badly swollen lymph node in her neck - to the point of being almost solid-feeling - when she was little. One of the doctors thought the infection may have originated from a cat scratch, but I thought it might have been from an ear piercing that got infected, the back of which had scraped her neck while she was sleeping.)

What might be worth looking into while you're waiting for a more helpful answer is adding foods (and perhaps nutrition supplements) that help your body's immune system. That includes antioxidant-rich fruits and vegetables and foods containing Omega-3s.

Comment edited on: 8/25/2012 1:48:10 AM

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CHANGINGSAM 8/24/2012 2:38PM

    I'm not sure as I am not a doctor, but you are doing the right thing by setting up appointments. Hang in there. emoticon

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Lymph Node Swelling ?????

Wednesday, February 01, 2012

I have been away a long time. Way too long. My life has been hectic lately. We moved into town in the summer. It was my husbands idea and we ended up having a huge fight over it because I didn't want to move. In the end it was the right decision. The kids like it here so much more and it is much better for them. They are all doing well at their new school and making friends. My Inlaws blame me for the move. Hubby has told them time and again that it was his wish not mine, but they don't believe him. They think I forced him into moving from a home he had for 28 years ( more than half his life). FIL finds fault with everything about our new house. Its hard for my husband. FIL has taken a dislike to our youngest son who is only 8. He hates all of them but to Adam he is just mean. He calls him names and makes faces at him. He refuses to serve him dessert when we visit and things like that. In other words things haven't changed on the inlaw front.

About a year ago I started not feeling well. It seemed like every day I got weaker and weaker. My legs were getting weak and it got to the point where I had to have help to dress. I went to the DR (several times) and they ran blood tests. Everything came back fine so they decided it was just depression and added Prozac to my Wellbutrin. My legs are slowly getting stronger but my body is not. In November my face started to swell and it is still swollen. I went to the DR again and they ran blood tests again. Everything came back fine so they dismissed it as a virus or something like that even though I haven't been suffering from the flu or even a cold. I kept going back and eventually they put me on penicillen which did nothing at all. Finally they send me to get my neck ultrasounded. I did that yesterday. The woman doing the scan found SEVERAL enlarged lymph nodes in my neck, one of which she discribed as huge. I was only aware of two of them before the appointment. She showed the pictures to the radiologist and he told her that they would have to get me in for a CTScan. I left feeling worried but pretty good since finally something was getting done. So here I sit waiting for my DR to phone me. I have an appointment on Monday, but I thought for sure I would have gotten a call back about this by now. I know its probably nothing but the waiting it killing me. I am so tired of not feeling well. It will probably sound wrong, but I want them to find something wrong so they can start to fix it.

My weight is up as usual and my activity level is the lowest it has ever been in my life. I need to turn my whole life around. On a positive note I have a wonderful husband and three wonderful (but noisy) sons.

  
  Member Comments About This Blog Post:

TKAYSMILES 2/3/2012 1:47PM

    another thing..your gall bladder last year...all goes with a bad thyroid too!!! It's all pointing that way. Don't let them tell you things are normal...get your blood work results yourself and go over them. there are also optimal ranges that are not indicated in the lab ranges!!! Good luck!

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JENNY712 2/2/2012 11:16PM

    Dear Friend, I am sorry for what you have been going through. It is hard not knowing what is wrong but in a limbo of pain and questions. I agree that it is good they have found something that may lead to the answers. I am praying for you, your family, and the medical staff and doctors that God will give wisdom and divine intervention in your behalf. May the Lord wrap you in His tender love of compassion and care and fill you to overflowing with peace, love, and joy. Love and prayers Jenny

Bible passages for those hard times:
Proverbs 3:5-6
5 Trust in the LORD with all thine heart; and lean not unto thine own understanding. 6 In all thy ways acknowledge him, and he shall direct thy paths.
K.J.V. in public domain
Psalms 91:1 He that dwelleth in the secret place of the most High shall abide under the shadow of the Almighty. 2 I will say of the LORD, He is my refuge and my fortress: my God; in him will I trust. K.J.V. in public domain

Comment edited on: 5/24/2012 3:21:32 PM

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DETERMINEDJANET 2/2/2012 9:59PM

    I was thinking thyroid as a possibility as well. Hope you hear back soon!

Hugs on the whole IL situation. Ugh!

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TKAYSMILES 2/2/2012 1:13PM

    It's your thyroid I would almost bet. and if they say things are normal...get a copy of the test results and do research. The ranges for certain tests are wrong. for example the new range since 2002 for thyroid disfunction is .3-3. however labs still use a scale up to 5 which means a lot of people that are hypothyroid are not diagnosed. and most of the time we end up on antidepressants because dr.s don't really look into anything they just look at what the lab finds. I found out I have had thyroid problems probably for 30 years not diagnosed due to these bad scales. the swollen lymph nodes also would indicate thyroid too. They might be on your thyroid itself. it would fit a lot of your sypmtoms. do some reading and see if you think so!! i've been away for 6 months dealing with the same stuff. unfortunately all the medication I took made me almost worse. but that is not usual. good luck!

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Its been a very emotional day - death in the family

Wednesday, September 14, 2011

Its not been a good day. One of my cousins passed away in her sleep last night. They are doing an autopsy to find out why, but they suspect her heart. About 8 months ago she was diagnosed with cervical cancer. Usually, with that kind of cancer they operate and remove the cancerous area and then do chemo or radiation. They couldn't do surgery though because she was 400 pounds and they didn't think her heart could handle it. So she had chemo and radiation and things were starting to look better. She was only 48. She has four children. The youngest is only 4. Its so sad. I feel especially bad for my aunt and uncle. They had 6 kids but not there are only two surviving. I can't imagine that much heart ache. The two that have survived are handicapped. One of them can never live alone and was supposed to go live with his sister when his parents passed away. I just don't know what they will do about him now. He's about 55 and a very nice man, but just not able to look after himself because he is mentally challenged.

Today was my day to see the doctor again. I've had a pretty rough couple of weeks since the last appointment. He thinks my fatigue and aches etc are due to worsening depression. He started me on prozac two weeks ago and now we are waiting and hoping it will work for me. I'm not usually a crier, but today I sat in his office and cried. I was so embarrassed, but I guess that is what they are there for. We went over all the things I should be doing to get myself in a better frame of mind and I am already doing it all. He says I am doing everything right. I get out for fresh air every day. I walk every day - 20 mins to 1.5 hours. I eat fairly well. I fit things into my day that I enjoy like reading and genealogy. I don't get alot of sleep but I never have. I am lucky if I get 5 hours. I used to get really frustrated about not sleeping but about ten years ago I changed my thinking about it. I spend 8 hours in bed RESTING. I tell myself its okay if I'm not sleeping because at least I am still resting.

I haven't even thought about dinner today. Its been too emotional of a day today. Maybe my hubby can cook for once. The kids will complain though. I love him dearly and all but his cooking is HORRIBLE.

  
  Member Comments About This Blog Post:

NATASHA_D1 9/19/2011 11:22AM

    I am very sorry for your loss, death is never easy. It is a rough road sometimes but you have a great support network here and in your family, the only thing that I can remind you is a day at at time. Bless you and your family.

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FERGSGIRL2 9/17/2011 7:02PM

    so sorry for your loss. You and your family are in my thoughts and prayers. I have a cousin who is seriously ill also, and I realize that stress or death does not wait until we are "ready" to deal with it. Allow yourself to grieve and time to heal.

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DETERMINEDJANET 9/16/2011 9:36PM

    emoticon

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TIABITS 9/15/2011 9:46PM

    Sorry for your loss Lori. Take care of yourself...sounds like you are going thru a rough patch but remember things will turn out fine, they usually do.

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FREECAL1 9/15/2011 10:22AM

  So sorry that you have lost your cousin! Hopefully you will get better yourself.

emoticon

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DOROTHYBERO 9/15/2011 8:51AM

    So sorry for your loss and your frustration. Hang in there!! emoticon

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GAYLLYNNE 9/15/2011 8:51AM

    I am so sorry for your loss. My dad passed away a few months back and the Dr. put me on Prozac. It wasn't the right meds for me though but for some people it's great. Just be careful of the side effects. No wonder you were crying, you have a lot of grief in your life right now. I can't image what it would be like if I lost one of of my cousins. We are all so close. Sending some cyber hugs, hope they help.

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REBECCAMA 9/15/2011 7:51AM

  Sorry for your loss.

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GLRGIRL 9/15/2011 5:05AM

    My heart goes out to you and your family. Such sad news. Allow yourself time to grieve.

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BARCLE 9/15/2011 3:16AM

    emoticon and condolences

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WALKFIT 9/14/2011 11:44PM

    emoticon

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HEATHER1969 9/14/2011 10:21PM

    So sorry for your loss... (((BIG HUGE HUGS))))

I sure hope you start back on the upswing of your life soon....Im sending you happy good thoughts. emoticon emoticon

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STLOUISWOMAN 9/14/2011 9:27PM

    I am so sorry for your loss. My son passed away last week & it has been difficult. I do pray that you will find peace in this difficult situation. Iím also sorry to hear that you are suffering depression. That can be terribly debilitating at times. Hopefully, you & your doctor will find the right treatment to get you past this. Crying today, in view of your loss is completely understandable. You need that time to grieve your loss.

Sandy

emoticon

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CYNEDRA 9/14/2011 7:21PM

    Please accept my condolences on the loss your cousin. And good luck getting your health back in order. I know that depression can leave you fatigued.

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