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Saturday's update on daughterSaturday, December 17, 2011
I came back to Silver City last night because there are a few things I have to take care of here. I'm going back to Las Cruces early tomorrow morning. Yesterday they took one of the chest tubes out of her and she still has one in. Hopefully it will come out today or tomorrow. She is making some progress and was moving around in the room in ICU a little better. Her breathing is not as shallow either which is a good thing. Pain is a little better controlled now. Her doctor told us yesterday morning that once the other tube comes out they will watch her for another day after that then hopefully she can come home. But yesterday afternoon the nurse said they got the culture results of the pus they took out of her lung area and it is a strain that is extremely resistant to even the strongest antibiotics. They said this should not affect her so much because they cleaned it all out but she could be a carrier of this. They have been giving her very strong antibiotics with an IV since the surgery (actually since before surgery since she first went into the hospital last Saturday). But I'm not sure if it's the same antibiotic. She has to continue for about a week on the iv so they are not sure if that will affect her discharge date. She had the surgery late Tuesday and so Monday should be 7 days so maybe it won't affect it much. They will also send her home with oral antibiotics but the first week or something has to be the IV antibiotics. We didn't get to talk to the doctor after that so we don't know for sure. But they now have her on precautions to prevent carrying the bacteria out of her room so anyone going into her room has to put on a gown. ![]()
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LKWQUILTER
12/17/2011 9:14PM
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That is good news Linda Kay. Will continue to pray for all of you and your client's family. I am like some others--children I met/knew when I was younger did not have long lives at all. I met a young boy when I was in high school and remember mama telling me they did not expect him to live past his teens. He died a few years ago and I think he was almost 50 and his long life was considered a miracle by his family.
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LYNDALOVES2HIKE
12/17/2011 12:35PM
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PS - it almost 'hurts' to look at the picture of her 'zipper' - yikes!!
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LYNDALOVES2HIKE
12/17/2011 12:35PM
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I'm so glad your daughter is getting better - when my dad had some antibiotic-resistant bacteria, they had him on an IV 'cocktail' with a mix of Vancomycin and some other powerful drugs - I'm surprised they will want to release her from ICU without at least a day or two in a regular ward but every hospital does things differently and the ideas change all the time. My mom stayed in the hospital for 2 weeks after giving birth - my sister had a 'drive-thru' visit and took her son home from the delivery room. Sorry about your patient and don't mean to sound like I'm minimizing the loss but I think most people with Down Syndrome die before age 60 - my friend gave birth to a son with it and they told her 50-60 yrs is average. That's so different than it used to be - I had a friend who was what they called a "Mongoloid" when I was very young and she died when she was 9 yrs old from a heart defect. I think they used to consider those children 'lucky' if they made it to teenage - again, how times have changed! I'm so glad because for some reason, I've always been drawn to Down Syndrome children and young adults - never go tthe chance to know any who were older than mid-20s - and I suppose it's because of my friend when I was around 4-5 yrs old. I wonder if there is any way to 'skype' between your grandkids and their mother while she's there - I do understand the need to keep children out of ICU - one doctor I know calls kids 'little germ factories,' not in a derogatory way but intended as precautionary for people who have especially weak immune systems. Report Inappropriate Comment |


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NOSTOPPINMENOW
12/17/2011 12:17PM
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I hope your daughter's condition improves everyday so that she can be home soon. I'm sorry to hear that some of your clients have passed recently, but I guess that kind of comes with the territory and has to be expected. You are such a strong and sweet person doing the work you do. I'm sure your clients think of you as an angel. It's also pretty amazing that with everything going on you're still thinking about and taking care of your heath. GOOD FOR YOU! Keep it up! Have a Blessed weekend! Comment edited on: 12/17/2011 12:20:23 PM Report Inappropriate Comment |


LIVE2RUN4LIFE
12/17/2011 12:15PM
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STRINGI719
12/17/2011 11:42AM
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You are such an inspiration to stay so strong and focused throughout all of this, and to be so consistent about still getting your exercise in, too. I hope you are able to get out and get a great run in today, I know how much it helps you feel better! Take care - all my love and prayers are with you both. Report Inappropriate Comment |


LKEITHO
12/17/2011 11:10AM
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Glad to hear your daughter is doing better, but sorry to hear about the death of your case management client. I hope your daughter is home soon!
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I'm getting ready to go back up to the hospital in a few minutes this morning. Steph is making slow but steady improvement. The nurse was hopeful that maybe the dr would take out the chest drainage tubes today since there is not much coming out anymore. That would help a lot. Yesterday they changed the dressing while I was there and I saw the incision. She has a 23 cm (over 9.1 inches) long with 6 stitches and 23 staples in it. Plus the other 2 little holes where the drainage tubes go in below the actual incision. They had her on jello and broth day before yesterday and yesterday morning. She kept asking for real food. The nurse talked to the dr and at first he was hesitant because she wasn't eating the broth but the nurse pointed out that the broth is not appealing at all. She would eat the jello. He finally agreed and for lunch she was able to have a regular diet and she ate half a turkey sandwich and some pudding and a few french fries which she had been craving. Dinner she ate a lot. Hopefully getting real food in her will also help her regain her strength. They took the bladder catheter out early yesterday morning. Every tube that comes out makes it just a little more comfortable.
I'm doing okay but I really have to go back to Silver City this evening and I really don't want to go. But I need to go help a little with her kids, get more clean clothes, and a few other things. I'll probably come back here on Sunday unless something changes. I hate so bad to leave her and I know she's going to hate for me to go but I'll see how she's doing today. It's hard to be torn between her needs and needs at home. There was some drama going on between my other daughter and her husband this week too. Nothing new about that. But it adds to the stress because she has Steph's 2 older kids.
I just want so much for things to get back to normal. I haven't even done much Christmas shopping yet and it's coming so fast. It just doesn't feel like it. But I'll get it done. Right now I'm at the hospital all day, come back to the room about 6:30 or 7, and fall asleep watching tv in an hour or two because it's so exhausting to be at the hospital. I see progress but I also see so much pain and we all know how hard it is to see loved ones in pain, especially your kids even when they are 28 years old.
Thanks again so much for all your support, prayers, comments, etc. I appreciate it so very much!


DESERTDREAMERS
12/17/2011 8:04AM
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LKWQUILTER
12/17/2011 6:40AM
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Will continue to pray Linda Kay. ((HUGS))
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KNITTOBETHIN
12/16/2011 11:18PM
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I'm so sorry, I got bogged down here abd had no idea all this was going on. Steph is certainly in my prayers as are you tonight. Wish I could something to lighten your load besides pray for your strength and a sucessful recovery for her. Take care of yourself... Report Inappropriate Comment |


-WISPY-
12/16/2011 5:22PM
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Still right here with you my friend. What a worry with trouble going on at home as well. I know you will do whatever seems the best thing to you and it will all turn out alright. Your daughters are so blessed to have you Linda. I admire you greatly. Love Wispy. Report Inappropriate Comment |


TRILLIUM22
12/16/2011 12:11PM
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Hang in there. Think of you, your daughter and your family. Report Inappropriate Comment |


LIVE2RUN4LIFE
12/16/2011 12:09PM
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STRINGI719
12/16/2011 10:58AM
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So happy to hear that she's getting a little better every day. Kids and I are mostly free Saturday if you need anything, and hubby is off on Sunday and Monday, so I can get away if you could use some help or some company. Take care, and don't hesitate to ask if there's something I can do to help out! Report Inappropriate Comment |


LYNDALOVES2HIKE
12/16/2011 10:09AM
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That's good news for a change, that Steph is making good progress - I had a medical crisis many years ago that had tubes going everywhere on me [although not into my lungs - yikes] - but I did have a catheter, drainage tubes, 3 IVs and a bunch of stitches and staples - my belly looked like a zipper, haha! But my point is that I know how uncomfortable it is to have stuff sticking in you all the time and how great it feels every time they pull something out, even though it's all relative. I should probably say 'feel less bad' rather than 'feels great,' unfortunately! I know it's difficult for you to leave but you need a break and so does everyone else - are her kids old enough to visit their mom in the hospital? I suspect the very best "Christmas Present" for everyone will be getting Steph home - I wouldn't worry much about anything else. Wish I was close enough to help you out - in the meantime, sending you more prayers and virtual hugs! Report Inappropriate Comment |


MARKSTIPANOVSKY
12/16/2011 9:07AM
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Thanks for sharing - good luck with staying focused and reaching your goals... Will say a little prayer for you and your family... Report Inappropriate Comment |

