Tuesday, January 10, 2012
I wrote most of this a year ago for a friend seeking encouragement with firbo. I was diagnosed January 2000. At that point I was in severe pain ALL the time and in bed much of the time. Soon after first diagnosis, one of the doctors for other issues said to me: " I don't treat fibro, but if you have it,
then study it daily,
choose a course of treatment
aggressively care for your own health needs
and move forward"
I still study it weekly looking for encouragements, confirmations and things to add or eleminate from my efforts to maintain health. The following is just a tiny portion of what I am doing today, 12 years into this disease. I agree with much of the theories of Dr St. Amand and protcul for treatment with Guaifenesen. Get on the internet and read, read, read; order books through the local library; then talk, laugh, cry with others who have this disease but keep the pity parties to a minimum.
I space my supplements and meds out in four doses through the day:
6 am 12 noon 6 pm 12 midnoc
Fish oil 1200mg x4 doses
Centrum Silver ½ 6am 6pm
Vit C 500 x4 doses
½MagMalate 825 x4doses
Calcuim 333mg 4 doses
½ B Comp 50 12 noon 12 midn
Yogart or Kefir 12 noon and midn Adding another probiotic with it
Vit D 2000 12 noon 12midn
Guaifenesin ... if on Dr. St.Amand portocul in divided doses
Other supplements for family Hx of heart disease and Parkinson's
Minimum pint of water, tea, clear liquid per 6 hours -space it over the day -not all at once! Caffeine one and ONLY one serving in the mornings
Get sleep or at least time in the bed with lots of pillows and support to body. I do much better with head of bed elevated slightly and air humidified --- most of my pain is in control if rest and energy expenditures are maintained at gentle even paces. I sleep 2-3 hours, then up to potty + yogart and midnight meds; Sleep 3-4 hours Up to potty and stretches... might go back to bed for another couple hours or be up for correspondence, study and meditation/prayer Then nap 40 minutes to two hours during mid-day.
Surround self with warmth and softness - pillows and blankets go with me everywhere! Especially traveling, support arms with pillows and move often - never sit more than an hour in one position, get out and walk, stretch, move gently.
Set limits – Only you know your body's limits on any given day. Yes, there will be days when you feel you must push beyond those limitations to meet family or work obligations. But at what price? You must decide. Learn to say "today I can only do this much…don’t push me beyond that or I suffer for three days”
Organize/Plan – Pacing yourself is very important. You will have days with limited energy reserves. Organization and planning reduces mental stressors. But do not become compulsive with planning ...Think PREVENTATIVE Care
Set priorities – What are YOUR priorities? Not everyone else's!
Educate yourself – Make a commitment right now to ongoing education about your condition. As one who has Fibromyalgia and/or Chronic Fatigue, you should commit to becoming an expert on the condition. Visit a different website each week. Read or re-read a new book each Month.
Eat healthy …and make extra and save a serving for another day and save yourself a lot of work! I must avoid much sugar and this year am learning general low carb eating.
6/2010 The Three Ts to heal and persevere through a chronic illness are TEARS , TALK and TIME. These 3T's help me cope with life with Fibro.
1/2011 Removal of gluten from diet has been shown to reduce inflammation and alleviate aches and pains, and this symptom-reducing quality is a possible help for fibromyalgia patients. The changes to your diet won't be painless, but the relief to your physical pain just might be worth it.
You will notice, not a single perscription med here - I have in the past but gradually got off all them - but my Dr has the list of supplements and approves it - we talk about different aspects of the meds and results on routine basis and "tweek dosages" . My only pain med is advil or aleve in flare ups --and if I need it and I know it is a flare, I just take them routinely every 4 hours round the clock times 3 days to stop the pain cycle - Only other thing that is real significant is the horrendous leg cramps, I take a naturopth quinine tablet and also drink 4 oz tonic water in warm gator aid or orange juice if available and always keep my feet and legs warm. 1 notice a definite increase in cramps with beef, sugar in diet, if dehydrated or have just overdone that day.
I pray that this summary will be of help and encouragement to others with this diagnosis or find yourself the support person to one suffering from fiybromyalgia.
Friday, December 30, 2011
J.O.Y.S = JESUS OTHERS YOU SIMPLIFY
JESUS = devotional plan for the year :
1.Read the New Testament through in my Serenity Bible NKJV in the mornings and parallell that with my new worship NIV Bible in the evenings.
2.I want to clear my devotional reading shelves in the library - keeping the meaningful ones, gifting or dicarding those I no longer treasure.
3.I want my "Huddle" comments to be scripture or lines from songs
4.Strive to improve my prayer life, Abide in Jesus and He abide in me.
OTHERS = Study, share and move into my call to Grief Ministry
1.Comfort others as I have been comforted, through the stages of prepatory grief, planning and giving care, loss and greiving stages.
YOU = Oh, that is me.
1. Maintain Gluten Free life style with 5 fruits and veggies per day... increase # of Veggies to 5 per day and keep 3 fruits.
2. Learn and live low carb lifestyle for weight loss and improve health away from pre-diabetic symptoms and family Hx
2a. Find one new Gluten free-Low Carb - Vegan recipe each week - try it and record it and share with a Spark team by Friday of each week.
3. Daily use of pedometer and gradually increase # of steps with deliberate walking or treadmilling starting 5min per day x 4 days per week
4 Find and maintain good range of motion stretches for Fybromyalgia
SIMPLIFY = declutter mind, home and life
1.Streamline book-keeping ... without the home daycare business I have had for 28 years, this should come easier ... but still have the farm/truck-garden paperwork
2.Get brutal in getting rid of stuff from our home - treasure what I keep and get rid of other through gifting, selling or garbage.
2a. Clear, clean, organize ONE shelf or drawer per day x 4days per week
3.Make choices about what I do in life and where I go and with whom -
3a. Learn to say NO to too much or negative things and
3b. Say YES to things that are positives for me and my family!
4.Continue Frugality study and implementation of those principles.
Thursday, August 04, 2011
August 1 was my half year anniversary - pleased with 15 pounds gone and no threat of it reaturning!! Maybe I lost the yoyo that has hounded me all my life. Going gluten free the first of the year has also helped eliminate some temptations and has definitely improved general health and decreased the pain levels of fybromyalgia.
HAve had grief with losses of dear ones this month - and have not done the usual emotional eating -
Continuing goals of accountability and use of pedometer - have never entered a true exercise program...someday - just keeping track of steps taken and trying to get in a few more to meet goals is a big help to me. Calorie counting and portion control with food scale are also big helps and requirements for me. And the encouragement of others here is wonderful!
I will "Keep on Keepin' on" God bless you every one!
Thursday, June 23, 2011
I see other blogs that say Day #_ _ and I am always curious ..."Day of what"
Well this is day #143 since I returned to Spark people on February 1, 2011 and have found treasures of people, support, tracking tools and wealth of information and opportunities to encourage others.
I continue to learn daily and feel healthier although I have only lost 8 pounds in that amount of time, I know I am a bolder witness for my Lord, Jesus Christ; I am healthier in spirit and in body; and I am happier for various reasons.
1-Daughter has moved to within 120 miles of us after being 1200miles away for 7 years
2-I have been gluten free since Jan 1 [hmmm that would be day # 174 GF!!] with improvement in fibromyalgia symptoms and have a kitchen that is GF so daughter feels content and safe to enter, cook and eat her strict wheat and gluten free diet without fear of cross contamination and reactions.
3. -Decision made and confirmed to take two month vacation from my day care business that has held me captive for 28 years! I plan to resume when school starts this fall but this will be a practice run for retirement come next spring!!!
4. -At the same time, I am feeling physically "better" - can't really give a specific, i just feel healthier all over -still get over tired, still have part-timers memory gaps and foggy brain but something is improving.
5. -I highly value my pedometer that shows me i am taking more steps and challenging me to walk more each day!
NOW - Y'all figure out a Day # for yourself and write some reasons you have to celebrate!!
God bless you EVERY ONE of YOU!
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