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True story...day 34 of blogville

Sunday, April 20, 2014

HAPPY EASTER emoticon emoticon

I am focusing my intention to strive for a life as a healthy transplant recipient. One who follows all the great advice given @ discharge and remaining vigilant when it comes to eating the foods suggested. Thus, I will aim for maintaining a comfortable (for me) weight. emoticon

Today, I thought thru a walking regimen and put the SMART goals on paper. emoticon

Week one will consist of 3-4 walks for 10 minutes each. emoticon

Working up to 3-4 20 minute walks as I improve with my energy and stamina. Take it slow and easy and follow the plan!

The neighbors brought over an Easter basket emoticon with a smattering of chocolates and those cute marshmallow chicks--a pink one...

I had absolutely no desire to indulge cuz they are NOT on my list the dietician gave me emoticon emoticon I guess my husband will have to eat them!

Day one of the walking program and I have completed 3 of the 10 minute walks. I plan on doing one after dinner as well cuz it is sooooo beautiful out!

Zenjoy all and many happy moments are wished for you this moment
Sandra

  
  Member Comments About This Blog Post:

RDEE22 4/21/2014 7:58PM

    Good luck with your plan. You are wise to stay focused on all the things you have to do for a complete recovery. emoticon



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ALEXSGIRL1 4/21/2014 5:28AM

    so very happy you are doing so well . hugs

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ARTJAC 4/20/2014 11:36PM

    emoticon emoticon emoticon

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1CRAZYDOG 4/20/2014 6:55PM

    Hope it was an awesome Easter!

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True story...day 33 of blogville

Friday, April 18, 2014

What a relief! On Thursday, the transplant team pulled out the foley catheter. Rose, the nurse commented:
"You'll probably wish you still had this in when you start running to the bathroom every 1/2 hour!"

NOOOOOO I WON'T AND THAT'S A FACT. I've been smiling, smiling ever since!!!!! emoticon emoticon emoticon emoticon emoticon

Then later that day around 3:30 Dr. Conti, the surgeon, pulled out the j.p. drain that was hanging out my side....thlurp and it was out! "I love you!" was my immediate reaction.

emoticon emoticon double emoticon

Life is good!
Zenjoy!

  
  Member Comments About This Blog Post:

WAY2GOCAT 4/19/2014 11:57AM

    Oh, the pain! So happy you're done with it ! Blessings and emoticon

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BLUESKY104 4/18/2014 10:44PM

    emoticon Sis emoticon how utterly emoticon this whole thing is!!! Love you - looking forward to live chatting with you when you are up to it emoticon

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1CRAZYDOG 4/18/2014 9:11PM

    That is fabulous! You are a rock star. Keep on making such good progress.

Happy Easter to you and many blessings!



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RDEE22 4/18/2014 8:42PM

    Lovely to hear of your progress. Now for the next stage of your life. emoticon

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ALEXSGIRL1 4/18/2014 5:56PM

    so happy you are making great progress hugs

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EVIE4NOW 4/18/2014 3:27PM

  Always loved it when I've had a catheter removed. Refused it once because i still had to many iv's going in and knew it would be a mess. Told them, when you pull the iv's you can pull the catheter. Was only 2 or 3 more days and was done with everything.

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True story...day 32 of blogville

Thursday, April 17, 2014


“There is no cure for end stage renal disease. There are some very good treatment options though.” This was my first lesson upon being diagnosed in November of 1992.
My kidneys failed in 1994 with my first treatment option being peritoneal dialysis. Followed by an incredible gift of a kidney from my brother Brian. Kidney transplantation--second treatment option.
Life continued with Bartholemew, as Brian’s kidney fondly became known. It was 11 years, 11 months and 11 days later that Barholmew retired from working for me. I returned a second time to peritoneal dialysis.
After sustaining a rip in my peritoneal cavity while sledding, I needed a third option. This time it was home hemo dialysis. Five days a week encompassing a 5 hour time block.
Visiting my sister Catherine the first weekend in April of this year, I shared a memoir writing exercise about my diagnosis of end stage renal disease. I signed up for the class, which was offered by the Berne Public Library. The class drew about 10 people and we all had stories to share.
Catherine read the last line of my story: “Sandra, we have a kidney for you. You need to be at the hospital within an hour”.
“So, that means you shouldn’t really travel very far from home”?
“Oh, that. I doubt very much I’ll be getting a call for at least a year“.
Returning home I fell back into my regular East Berne routine. Check on and visit my Mom. Walk Puddles, our 125 pound chocolate lab. Check with my brother Brian on the status of happenings at our family sawmill business.
Monday morning, April 7, I started to set up for treatment. My husband Jim took the car for an errand. My machine was singing and ready for plug in. The phone rang. I didn’t recognize the number, AMC blah blah blah. I let the device handle it.

I got my bowl of cheerios and blueberries set in my treatment area. The last move was to wash my arm and blood cleansing would commence. But the phone was beeping from that message. My mind chatter started: “I better listen to that. It might be important”.

Click. “You have one message: This is Jennifer from the transplant office. Could you please call me when you get this message”.
Beep. “End of messages”.

Mind chatter again: “Oh, they must be calling to make sure I send in my monthly blood sample”.

I dialed the number. “Hello. This is Sandra Kisselback returning your call”
“Hi Sandra. This is Jennifer from the transplant office. We may have a kidney for you. How long will it take you to get to the hospital”?

They did indeed have a kidney for me and I was transplanted for a second time on April 8, 2014 at 6:30 a.m.
I am so grateful for all the many supporters who have been a part of this 22 year history of kidney failure. My husband Jim, my Mom and Dad-Rudy and Sheila Stempel, brother Brian, sister Catherine and my other 3 siblings, all the health care teams as I lived with each new treatment option, cousins, nieces and nephews, friends, neighbors and medical technology . Much gratitude to you all. And Valerie, my neighbor, You answered my call when I realized my wheels were missing--she drove me to Brian who transported me to Albany Med. Thank you. Most of all, thank you to that anonymous donor, whoever you are. Your life recently ended, but a piece of you lives on in me. The new kidney’s name is Lucinda. Hopefully we will have a long and healthy life together. One day at a time. “There is no cure for kidney disease, but there are treatment options”. Life is good.
Sincerely,
Sandra L. Stempel-Kisselback







  
  Member Comments About This Blog Post:

ARTJAC 4/20/2014 11:42PM

    emoticon journey emoticon emoticon emoticon

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1CRAZYDOG 4/17/2014 6:09PM

    What a miracle! HUGS and prayers for you and Lucinda.

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CATLADY52 4/17/2014 2:43PM

    emoticon emoticon emoticon In other words, I'm very happy for you! emoticon

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RDEE22 4/17/2014 7:12AM

    What a journey Sandra. All the best to you and Lucinda, may you have a long and happy life together. What a support group emoticon

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PHEBESS 4/17/2014 5:42AM

    May you and Lucinda have a long and happy life together!

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ALEXSGIRL1 4/17/2014 5:16AM

    wow I hope you and Lucinda have many long years together . You are remarkable I hope you continue your zenful days and find happiness and sunshine in most of them. Hugs

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HAPPY-DESTINY 4/17/2014 2:53AM

    May you and 'Lucinda' have a Wonderful journey called Life together!

I added you as a Friend . . because I want to be a part of that Journey with you!


Impossible is Nothing!

http://www.youtube.
com/watch?v=itlmK9jIMC8

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WAY2GOCAT 4/17/2014 1:49AM

    I was diagnosed with kidney disease five years ago, stage 3. 46 years old., not very good. I wasa told by the specialist that it aws incurable and would only get worse. Lo and behold, my kidney function has INPROVED, and I'm now in stage 2, 51 years old, Thanks to a good God. To God be all the glory. I'm so happy for you for taking the high road and living with this. My husbands cousin refused dialysis and died a month later. To me, he commited suicide. Do every thing in your power to live one more day. Blessings and hugs to you! emoticon

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ZRIE014 4/17/2014 1:15AM

  just remember that this is the first day of the rest of your life. make the most of it.

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i choose...day 31..

Sunday, April 13, 2014

True story:
5 days post transplant i am on day two of solid food. Walking an hour a day up and down the hallway ( in 15 - 20 min. time blocks), reading, studying my med grid, journaling, zenjoying each moment.

This morning Dr. Conti came in the room: " Do you feel you would like to go home tomorrow?"
(Monday, April 14)
Big smile and a yes let's .
emoticon

CHOICEVILLE CAFE: emoticon

I choose...taking it slow & easy and zenjoying life emoticon

I choose...saying "I love you" more often emoticon

I choose...reaching a closer connection to my heart's callings emoticon

Zenjoy those moments and remember the gratitudes of life emoticon
Love to you all
Sandra emoticon

  
  Member Comments About This Blog Post:

1BOSSMOMMY 4/14/2014 10:14PM

    emoticon
Absolutely Zenterrific news!!!

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RDEE22 4/14/2014 8:24AM

    Wow great news. emoticon

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1HAPPYSPIRIT 4/13/2014 11:21PM

    emoticon

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1CRAZYDOG 4/13/2014 9:38PM

    emoticon emoticon

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WENDYJM4 4/13/2014 8:31PM

    zenfanastic news. emoticon

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MAW_OH 4/13/2014 7:55PM

    So glad you are doing so well! Keep up the good work emoticon

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THEEXERCISER 4/13/2014 5:03PM

    emoticon emoticon

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KKLENNERT809 4/13/2014 3:46PM

    Sending thoughts of health and happiness your way!

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ALEXSGIRL1 4/13/2014 2:11PM

    glad you are doing so well you are so zenfully awesome hugs

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WAY2GOCAT 4/13/2014 12:23PM

    Good news!

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i choose...day 30..

Friday, April 11, 2014

True story:
The hospital came to get me at 6:00a.m. to get started for the kidney transplant operation. My last look at the clock before I was put under said 6:24 a.m.
Was back in my room by 2:45 with a stapled belly, jp drain on my side, central line w/3 ports in my chest and a foley catheter.
THis is the 3rd full day since transplant and all is going well. I was on the wait list exactly 1 month and 12 days after doing dialysis for 7 years, 7 months and 7 days.

What an amazing experience all told

my choices today emoticon

I choose... read, relax and be patient with my healing
emoticon emoticon emoticon

i choose...feeling deep gratitude and celebration for this gift emoticon emoticon

i choose...to journal my experience emoticon

Zenjoy all there is to zenjoy every moment off the day
Love to you all
Sandra emoticon

  
  Member Comments About This Blog Post:

ALEXSGIRL1 4/12/2014 10:35AM

    I am so happy for you glad all is going well I love your I choose list and how you are having a zenfilled life such a great message hugs

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WAY2GOCAT 4/12/2014 4:37AM

    In dialysis 7 years? My husband's cousin refused dialysis and died. Good for you for choosing life and hanging in there!

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WAY2GOCAT 4/12/2014 4:35AM

    I was in a blackout for a week following my abdominal surgery on demerol. Glad to msee you 3 days post op! How blessed you are!

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1CRAZYDOG 4/11/2014 9:30PM

    Blessings for a continued uneventful recuperation! So happy to hear you're doing so well!

HUGS

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KRISTA987 4/11/2014 8:38PM

    Great to hear you're doing better! Take care in your recovery

emoticon

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WENDYJM4 4/11/2014 8:14PM

    emoticon good luck emoticon

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CATLADY52 4/11/2014 5:51PM

    emoticon Don't chase the doctors just yet. emoticon

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1BOSSMOMMY 4/11/2014 12:29PM

    So glad to hear the operation went well and you are on your way to a healthy recovery. I have had a major stomach operation and I understand what you are feeling and going through. I did a good long stint of uncontrollable crying the second day after my operation. Partly I think it was from pent-up fears about the surgery outcome but also relief that it was over and I could begin to heal and live a fuller lifestyle again. With your new kidney you will feel so much more energy that you might be tempted to overdo the first month. I used to have days where I felt so full of energy and so good that I would overdo my activities and then end up throwing up from the stress reaction of my stomach. It took me three months to heal enough that I could put in a full active day without suffering later. Use the next few months to catch up on reading, take leisurely short walks and enjoy your new healthier body. Pamper yourself, and make out a list of goals you would like to achieve now that you have the health to to after them. Life will become much more involved now that you are able to participate fully so go ahead and make the most of your life and enjoy it more now.

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PROPMAN1 4/11/2014 11:39AM

  emoticon emoticon Good Luck!!!

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