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feeling higher dose

Wednesday, December 07, 2011

Slept most of the day, after doing pt and cycling, to ward off nausea i'm guessing caused by higher remicade dose 700mg.

trying to talk myself into eating....logged but not eaten.

the day i make my weight loss/health goals i will not be bragging this is the way to do it.

  Member Comments About This Blog Post:

SAL1512 12/9/2011 10:04PM


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PAG2809 12/9/2011 10:24AM

    One bite at a time... emoticon

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SWEETSOUNDS11 12/7/2011 9:26PM

    Hugs. I just had my own battle with medications giving me an upset tummy. I feel your pain. I hope you feel better soon.

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Tuesday, December 06, 2011

Restarted remicade yesterday. mnot yet mtx,but should...i'm waiting for more bruising to go away.

  Member Comments About This Blog Post:

SAL1512 12/7/2011 7:29PM


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PAG2809 12/6/2011 6:44PM

    Glad to hear from you! emoticon

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Learning to live with one arm

Sunday, November 27, 2011

1. Give yourself more time
2. Accept help
3. Use other body parts (teeth for the toothpaste cap), hip for lifting things from the frig - nice deep knee bends), clean feet to hold open a book, sit down and use two knees to hold jar while twisting open with good hand.
4. Reorganize to make easier - put a roll of toilet paper on a small table by ypur good hand, use small baskets with handles, add pieces of tape to the key board to give non-sight freeback of key keys, use a wet paper towels to frame a field to chop in
5. give up contacts and love your glasses
6. give up uaing scissors and knifes, sewing roller cutters rule, as do pizza cutters in the kitchen.
7. the rest of the body is not broken - use it! Get out and go for a walk, hitch a ride with someome going somewhere.

I've stopped taking pain meds not because of lack of pain but because of all the near off balance is amazing how much an arm efffects getting up and down and bending over.
Going for my first PT assessment appt tomorrow. Looking at bus schedule to up my independence.

Bruises on rest of my bod are starting to fade. Trying to make peace with being a rebel and not restarting MTX this week (dr said two weeks post surgery). I want to see the bruises gone first. Its my body, right?

  Member Comments About This Blog Post:

PAG2809 11/27/2011 8:25PM

    Yes! Its your body, your life, etc! emoticon

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Stitches out

Saturday, November 26, 2011

Wednedday the stitches came out and the soft cast off. That all when much better than taking off the tape...which tore my skin.

Got the turkey in the oven and everyone over....I just did what i could. I got my first shower which made the day and my daughter did my hair. My father was doing better than he has in the last three years -- up and talking. My mother was looking lovely, my aunt - who i'd not seen forever came, the "kids" where so grown up it was a wonderful day. My sister in law lead clean up and when everyone respectfully left at an early hour there was no clean up. I wore the clothes my dear friend adjusted with velcro....perfect.

Part of perffect was letting go. I skipped choir practice the night before and 9 am Thanksgiving services. I didn't stress that there was not a salad. I accepted help and did things on the fly....the table was noy set when everyone arrived I let them help themselves to plates, glasses and napkins.

Today I took a long walk with my husband and tomorrrow will figure out the fate of the leftovers.

Learning to be more patient with one hand typing. Lrarning the value of a hip for lifting. Living in denial that I can't drive and just taking what comes my way.

My arm is a mess. The hand is swollen so i cant close it. No position is great at bed -- pain pills where invented for a reason. I find some thing so easy with one arm and others amazingly hard and frustrating. Yet Im shaking my head at how this really seem like more of the same of the last year. I'll be honest it has been a wicked year, still I'm stronger for the battle and rather proud of my lastest scar.

I've been continuing on my will take more than eight pins in my arm to keep me down. I even did some one handed pruning. I'm insane but painting walls is just around the corner,
To heck with spell check, nothing like documenting typing progress.

  Member Comments About This Blog Post:

BARBGEO 11/27/2011 9:37AM



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SAL1512 11/26/2011 11:54PM

    You are a real trooper! Nothing gets you down!

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PSCHEP 11/26/2011 7:40PM

    I admire your spirit. God bless you as you continue to heal.

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PAG2809 11/26/2011 10:42AM

    I would definitely count this all as huge successes! Glad to "hear" your cheerful attitude and that you had a good day with the family. emoticon

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Monday, November 21, 2011

I want a shower so badly/ the sling is reallu startingruises are showing up everywhere to bug my neck...b

give up typing impossible

  Member Comments About This Blog Post:

BARBGEO 11/23/2011 2:27PM

    ugh!!! Can you get a plastic sleeve for your arm? I got one online and it was very nice!!! It had a nice tight waterproof fit on the ends so I was able to shower fairly simply.
Sending you good wishes for the Thanksgiving and beyond!!!

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SAL1512 11/21/2011 10:13PM

    I am afraid that falling was the easy part. And as a good friend of mine told me after a bike accident, the really hard part was bouncing off the pavement! And yes, she is still a friend because she made me a cup of tea and made me laugh! I hope you have someone like that close by to make that cup of tea!!!

Sally emoticon

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CHRIMSONFYRE 11/21/2011 3:50PM

    you can do it! Just keep staying positive!

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MARYSABEAN 11/21/2011 3:24PM

  Hang in there. You'll make it.

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