Monday, May 23, 2011
Yesterday was another flare day. Had a yuck feeling to my body all day and got more tendon swelling. Also had waves of fever. I would tear off my clothes and that didn't even feel like enough - I wanted to rip off my skin. Then an hour later I'd be chilled. My face has broken out also, so that I look like I'm back being a teen. Not sure if that is because of the prednisone or a side symptom of inflammation in my body.
We still don't know what we are fighting. For the purposes of paperwork it is getting labeled severe serum negative rheumatoid arthritis. Just for the record, I don't think it is. Yet this protocol of high dose prednisone and the methotrexate will hit in the region of many things that it had been narrowed down to....so here starts the first day of methotrexate.
I got up a six and took thyroid meds, rested for awhile then took one pill of the methotrexate with some yogurt. I waited an hour -- everything seemed find so I just got through taking the other two.
So far, I actually felt sicker yesterday than today. My only problem is that I've mixed myself up taking so much that I'm not sure how many prednisones I took. I know I took one... I'm pretty sure I need to take two more. Lesson for me to lay them out, so this doesn't happen in the future. Twelve pills in a morning is a record for me and I can tell I've just never had to test my brain buffer on this.
On of the keys to doing well with this is drinking a lot of fluid...so three glasses of water are also on board.
Crossing my fingers that this is all worth it. I'm looking forward to physical therapy at 10am. My doctor is adding feet and ankles - besides working with the arms. My ankles are always to stiff in the morning that it will be wonderful to have some attention their direction.
I also got up and curled my hair. Most likely I won't lose all my hair - "thinning" is the wording that is thrown out as a minor side effect, but I figure while I've got my locks looking like they do now I should make something of them. My husband talked to me about the hair thing last night, and somehow getting back to work is so much more important to me than the status of my hair that I feel complete OK with whatever happens.
My hubby also got me a stuffed dog that you place in the microwave that gives off a gentle heat - so comforting and real relief for my hands. I'm back to take a quick nap before the rest of the day. I will do an end of day summary later.
8pm update. Other than a few flutters in my gut - I did not spend the day being sick. I am rejoicing at the end of the day - for what should have been a terrible day, not only on balance did I do well, but I also am seeing improvement. I believe the high dos prednisone has taken down the swelling in my arms and ankles. Today PT expanded my care to ankles and feet. I was really surprised that when they measured my range of motion that the right foot was significantly less than the rest. May be there is a reason that the walking stick is so helpful!
Also it is significantly easier to type again.
Thanks for all the prayers and well wishes, the investment paid off today. Got to love a God that listens to your friends ;-)