Thursday, May 19, 2011
What is known: I have progressive severe inflammatory tenosynovitis.
Causes: Unknown, but have ruled out parasite, bacterial. I do have a IgM positive to Coxsackie B Types 3 and 4 - probably has made things worst, but not causal. At this point in time the grand sweep of "AutoImmune" is being give (could cover sarcoidosis, severe rheumatoid arthristis, seronegative spondylosis, eosinophilic fascitis....), still possible but less likely a viral reaction or even a lymphoma sort of process.
Problem: has spread to my whole body and in words of doc today "worst inflammation" she has ever seen. She had deep concerns I'm doing permanent damage to my body,
Direction: Tomorrow morning I'm starting on infusion high dose prednisone-like meds followed by methotrexate a chem agent.
Result: It will turn off my immune system - so I need to eat only cooked food, stay away from other people etc. It will cause GI normal chemo reaction and I may lose hair. However there is a huge equation of hope here.
I may not be happy about going through two weeks of hell, but sometimes you must jump on the maverick to tame him. I'm jumping on and this will be mastered. I've always been best in my "doing mode". I finally have a direction.
Tomorrow is day one of fourteen. Whatever the evil spirit is that has come to live in my temple is going to get a solid Spring cleaning.
Didn't we all wonder how long this could drag on? Not much longer! Healing or bust! This cowboy is going to come riding into the western front on the grandest stallion yet.