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JULIETTECAKE's Recent Blog Entries

Surgery Cancelled

Thursday, June 28, 2012

Just a quick update on my daughter. Shortly after beginning prep for surgery my 15-year daughter's blood pressure elevated. It was high enough that surgery was immediately stopped. The surgeon came to let us know what was happening. As soon as he stepped out of the OR my daughter had a seziure. Shortly, after she continued to have 3 additional seizures. They kept her heavily sedated to prevent additional seizures. She was given 8.5 times the reccomended dosage of one of her meds. It was a pharmacist error.

They have gradually stepped down her meds and this evening she is awake and alert. She has not had any additional seizures and seems to be doing well. She is not happy that the surgery did not take place as she was looking forward to an end of her back pain. I just want to scoop her up in my arms and take her home.

  Member Comments About This Blog Post:

AMYTRIPP 7/2/2012 8:20AM

    Thanks for the update, Julie. I'm so glad Cassie is home and well.

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JULIETTECAKE 6/30/2012 12:01PM

    Cassie went home from the hospital yesterday afternoon. She is doing well, just a little weak. We will need to continue to monitor her for the possibility of seizures for a little while. She will also need another EEG at a neurologists in3-4 weeks.

At this point, I am not ready to consider rescheduling her surgery. For sure, not until the risk of seizures is past. So, not for another month will I begin to think about it. The hospital will be paying all medical expenses. They are also going to institute some sort of double check. We had her surgery scheduled during summer, to give her ample recovery time, and to limit the impact on school.

Also, my husband and I have used vacation to cover this, and intended to remain at home to care for her as long as she was on pain meds. So, not sure how to reschedule to minimize impact on everyone.

Comment edited on: 6/30/2012 12:01:24 PM

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CAKEMAKERMOM 6/29/2012 12:00PM


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LGAR519 6/29/2012 9:46AM

    Do they know why her blood pressure went up? Has she had high blood pressure beore? Did the wrong medication dosage cause the elevated blood pressure or was it given after the seizures? I'm sorry your Daughter has to continue with the pain while this is hashed out. Now that I re-read the blog, it sounds like the medication caused the hypertension and resulting seizures. Carelessness is not an option for a pharmacist. Unfortunately, it happens.

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RICOCHETBEAR 6/29/2012 9:40AM

    I will continue my prayers for you and your family. I also added your family to the prayer chain at my church.

pharmicist's error? Well, I hope that phamicist was fired! That could have been a fatal error and is not acceptable in my books.

Have you a rescheduled surgery date?

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AMYTRIPP 6/29/2012 9:07AM

    Oh my goodness! That is so scary! A pharmicist's error? That's just.... beyond what I can even imagine happening to my child.

I'm so glad everything will be okay. Have they rescheduled the surgery, or do they have to wait a while to make sure she's recuperated?

Scopping her up: I would feel the same.

Sending lots of hugs and love your way.

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SUSANS706 6/29/2012 7:23AM

    So sorry, prayers continued for you and your family.

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FRAN0426 6/29/2012 12:32AM

    Hw unfortunate this happened to your daughter, but glad to hear she is doing better tonight. Hopefully they can reschedule her surgery soon.

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SALEX52 6/28/2012 11:38PM

    so sorry to her of the issues you are facing.

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Bad Day Yesterday

Sunday, June 24, 2012

Yesterday started out a beautiful, sunny Saturday morning. We decided to go down to the new Menard's for the things for the new garden. We were going straight through an intersection when an eighteen-year old making a left turn failed to yield and hit the front passenger side.

Everyone is fine. Our only car, isn't. I would estimate it will probably be in the body shop for about a week. We are insured, so insurance will take care of most of the damages.

The timing couldn't possibly be much worse. It occurred after all car rental places have shut down for the weekend. We will need to take a taxi, to the car rental place on Monday. We will be late to work on an already short week. I know this is probably silly, but I don't want to drive a rental, to the hospital each day. I don't want the hassle of dealing with all of this while my daughter has surgery on Thursday. I certainly, don't want to take her home in the rental car.

Okay, as I read above, I realize I am tired and whiny. So, time to count my blessings. Big one, I am glad no one was hurt. The car CAN be repaired. My daughter wasn't in the car. My son, was but he's OK. We didn't feel like cooking dinner, so my new healthy body, biked itself up to the restaurant. In fact, we went on a nice long bike ride.

  Member Comments About This Blog Post:

AMYTRIPP 6/25/2012 6:22AM

    I'm so glad no one was injured. I know it's a lot to deal with on top of your daughter's surgery, but just take one day at a time and you'll get through all this. And don't worry about being whiny, I think after all that, you deserve a little whine (wine??)

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FRAN0426 6/24/2012 11:54PM

    Glad you all are ok after the accident. Best wishes for a speddy recovery for your daughter after her surgery this coming Thursday. I think your daughter will be glad to get home, she won't care what car gets her home.

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RICOCHETBEAR 6/24/2012 11:25PM

    To repeat what everyone said, thank goodness none of you were hurt.
Your daughter won't care what car takes her to and from the hospital. She will care that all of you will be there for her rather than her having to attend a funeral or the hospital to visit any of you.

There are silver linings in everything, we just have to think about it for a bit. For instance, maybe this happened to take your mind a little away from your daughters surgery as that will be and extremely emotional time for you.
Cars can be repaired or replaced but none of you can be replaced

thank god for your blessings emoticon

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LGAR519 6/24/2012 2:20PM

    So sorry to hear about your wreck. Thank God, nobody was hurt. Your Daughter will be so glad her surgery is over and that she is coming home, she won't care what car she is in. Glad you got in a bike ride .

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SUSANS706 6/24/2012 1:41PM

    So glad everyone was fine, and amazed that you all could bike after going through that trauma. Cars can be fixed, but it is inconvenient. Hang in there, praying for strength for you to get through this week.

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MI-ELLKAYBEE 6/24/2012 12:48PM

    God blessed you with protection! When my car was being repaired from damage a few weeks ago, I had a rental car that seemed to refuse to burn gas - after 6 days, I filled it with only 2 gallons (mine would have taken 8+) so it saved me money (and the insurance covered my repairs and the rental, too.) You kind of never know where there may be a little silver lining. Prayers for your daughter!

Comment edited on: 6/24/2012 12:49:03 PM

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CAKEMAKERMOM 6/24/2012 12:41PM

    I'm glad you are ok. Life throws curve balls at the worst times. You will get through it.

I hope the young person made it through ok too and will learn to pay attention when driving.

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So tired this last week...

Friday, June 22, 2012

It's been some time since I posted a blog. I have tried, but was so tired I couldn't string words together. I had so much fun on my anniversary, but we stayed up late and my body woke me at my usual time. For someone struggling with insomnia and etc. this is a bad thing. I have been catching myself eating to stay awake. So, I have been at the upper end or over my calories several times. This is why I was so surprised to be down a pound this week. Well, I guess it just means that what I am doing, and all the good choices I do make, do make a difference. Sometimes, you wonder when you hit a plateau.

This Thursday, June 28th, my daughter has surgery. So, eating at the low end of my calorie range and exercising as much as I can would be very helpful. Not sure, how I am going to manage eating at the hospital. I will take that one step at a time. I do have the SP app on my phone, so that should help.

I know my focus will be on my daughter. But, my new healthy lifestyle needs to be part of each and every day. If, it is a lifestyle and not a diet, there is no quitting, it should just be how I live. I have to remember, that I have more control than I can sometimes imagine.

  Member Comments About This Blog Post:

AMYTRIPP 6/25/2012 6:24AM

    I'm sending best wishes to your daughter on her surgery.

I'm glad you had a great anniversary!

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RICOCHETBEAR 6/23/2012 12:16AM

    I have been thinking about the upcoming surgery for your daughter andwondering how you will fare through it. Sometimes it s really hard to stay on track through the stressof it because there aare not always the good choices around when you want to eat.

I will be saying prayers for a fst recovering for your daughter and for strength of family love to help you all get through this times.

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DEB7881 6/22/2012 8:42PM

    A pound is a pound and everyone is great to lose!! You are right this is a lifestyle change and we do have to look at it that way, hard to remember sometimes. I found that I get so wrapped up in staying in the middle of my weight range that I think my body is in a rut. When I go to the top end of the range or even over, I lose weight when I've been on a plateau or just not losing very fast. . .go figure. So I think going over once it awhile is not a bad thing, but probably a good thing in that it seems to confuse the body and we lose weight! I'm sure you've noticed this too.

I hope the surgery goes very well for your daughter, I will add your family to my prayers.


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LGAR519 6/22/2012 8:27PM

    Hope you had a great Anniversary. I will pray for your Daughter and her Surgeon. Congrats on losing a pound.

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June Goals

Tuesday, June 05, 2012

My June goal is very simple, I want to get as close to weighing 135 pounds as I can by the end of the month. That is a 10 pounds loss, to reach by the end of June. So, more realistically, if I could just break into the 130's I would be happy. Maybe, 139 pounds? That definitely sounds good. It makes me feel good to achieve some of the goals that I set, that I wasn't even sure I could achieve.

The reason 135 pounds was my original target weight, is that at that point I will no longer be over weight according to my BMI.

Now, if my BP will cooperate and realize that it is a healthy weight for my heart, we're good. But seriously, I will probably battle high blood pressure the rest of my life. All, I can do is give 100% each day. Sometimes when life is busy, it may not be 100% to exercise, but it will be 100% to a well-balanced life.

  Member Comments About This Blog Post:

AMYTRIPP 6/8/2012 10:41AM

    Nice! You're getting so close - it must feel wonderful!

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LGAR519 6/6/2012 9:49AM

    I wish you luck in reaching your goal!

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RICOCHETBEAR 6/6/2012 9:31AM

    It all sounds good Julie. All you can do though, is the best you can. Sometimes our goal weight is not where we think they should be emoticon

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Blood Pressure Readings

Sunday, June 03, 2012

I thought about the visit with the cardiologist for about a week. I understand why he didn't want to reduce the dosage, from his perspective the safest thing to do was to maintain the status quo. After all, reducing or eliminating the med could cause harm.

From my perspective, as a 40 something person, I am just too young to be dizzy on a daily basis. I find it unacceptable to be at a high risk for falls. Also, it's hard to exercise when you don't have energy.

So, I have been checking my blood pressure on a daily basis. As long as it stays at or below 120/80, I will continue taking 1/2 a blood pressure pill. I have also been taking potassium and magnesium supplements. I track it on my food tracker to make sure I get the correct amount.

So far, I have had only 1 day where I needed to take a full pill. Gradually, over the last week my BP has been dropping. Tonight, I measured it and it is getting close to what it was when I was taking a full pill. My pulse was high, so my body must be fighting to raise my BP.

My best blood pressure readings are on days that I do any form of exercise. It could just be a long walk. So, going forward I may need to exercise daily to keep my BP normal. Since, I really enjoy long walks, this definitely works for me. When winter returns, I will have to get friendly with my Zumba video. Probably, will need to buy a few more exercise videos to keep me interested and challenged.

  Member Comments About This Blog Post:

AMYTRIPP 6/8/2012 10:40AM

    You know your body better than anyone else, so I'm glad you're being so proactive with your health. I hope everything works out well for you.

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ROCHELLE62 6/6/2012 8:23PM

    I know that these meds are necessary and life sustaining for many. I took pills for 16 days and just hated them. I finally decided that my BP was not high enough for me to be willing to take them and I hated feeling like I had crazy legs. I also know that my bp drops drastically when I have heart palpitations adn was concerned that when it drops that low, meds would make that worse. I check it regularly and need to be more serious about my progress but I feel that you are capable of acting in your own best interest. Since I declined them, I have had an uncle who nearly bled out as a result of his BP meds and a friend who went into kidney failure over his. There are always horror stories that don't reflect normal usage, but it has been a reminder to me that no pill is risk free and the best steps involve developing healthy lifestyles.

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LGAR519 6/6/2012 9:48AM

    I don't want to discourage you but I'd like you to know that everyone is different. My husband lost 125 pounds after weight loss surgery. He came off his medicine. I lost 93 pounds and am still on 3 pills a day. My readings didn't change. I've had hypertension since my early 30's and it runs in my skinny family. Be very careful messing with your pills!

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RABBLERRABBIT 6/5/2012 11:37PM

    There are great apps for recording your heart rate and BP, by the way. You can add additional information (like your activity). Great job on being your own advocate!

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RICOCHETBEAR 6/4/2012 11:27AM

    Yes keep a record of your readings and dates of the readings. That is asa I did when I was reducing my meds. Doctors believe in numbers and facts, so these are the ones you can give to him.

I am glad that this is working for you. It feels great when we can decrease meds, you never know, you may eventually get yourself right off that pill.
Keep up all these good things you are doing for yourself!


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CAKEMAKERMOM 6/3/2012 11:05PM

    I hope you figure it out. Keep tracking that blood pressure so you can tell the doctor that you really don't need all the meds. Keep up those walks!

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