JEANINNEWCASTLE   58,655
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What Went - Monday

Monday, July 21, 2014

I only got 3 hours of sleep last night because my 12 year old daughter was up crying in the night scared of her big babysitting gig that started this morning. Once I got her settled the second time around 1:30 am, I was too wound up to sleep. I got up at 6:30 and took dd to babysitting at 7:15. I was a mousie in the corner and worked on my next Bible camp lesson while dd took care of the kids. The little boy was literally bouncing off the walls (not figuratively!). I'm glad I was there even though dd handled it just fine. I then left and went to my doctor's appointment. We've been having apocalyptic traffic predictions because one of the main bridges across the lake is down to one lane for construction. So I planned an hour for a 20 min. trip. It only took 20 minutes because the road was almost deserted! I hate to think of what the alternative routes might have been like (We've got the 4th worst traffic in the nation so you know it was bad somewhere.)

Anyway. . . . my doctor's appointment was ok. I told him all about the pain and fatigue which specifics like how many steps I'm taking and how many minutes I can do a task and how long it takes me to recover. He said "have you ever heard of fibromyalgia?" Um. . . yes. . . . I've avoided telling him that I have that diagnosis up until now because so many doctors will use that as an excuse for not treating any symptoms you have. He said "there isn't much to do for fibro" - I have 20 years of proof for that. Then he said a common treatment is SSRI's. I told him that I didn't want anti-depressants. He said that he didn't think anti-depressants were a good choice for me either. Then why did he mention it?! But I digress. . . We are having some improvement with the PT exercises and diet so I'll just keep with that.

He said that I've lost weight (3 pounds - I knew that), that my cholesterol is looking great now (it wasn't 3 months ago - and this is without any meds for it), that my bloodsugar numbers are improving - but at a cost - no more grains:( and that my liver numbers are getting even worse. I badgered him into looking at my adrenal function. I don't want the fatigue to just be labeled "fibro" without looking at other possibilities as well. He started to just shrug off the bad liver numbers until I reminded him (it was right there in the chart) that we've been "waiting to see" for over a year now and it is getting worse not better. So later this week I will do labs on both the cortisol and the liver function.

I went back to help dd with a trip to the park. Little Guy is very impulsive and not a good candidate for a walk on real roads. Now they are riding bikes and I sent my 17 year old son over to provide safety patrol. In the house dd does great but I am taking the "better safe than sorry" tack for trips outside.

I had to go over one last time. Little Guy bit his tongue and as tongues do, it bled quite a bit. I went over because dd had a touch of hysteria to her voice on the phone. It was easier to just drive the one minute there to help calm things down. In fact, by the time I got there, everything was all better! Little Gal was just fine the whole day - she isn't the livewire that her brother is.

  
  Member Comments About This Blog Post:

COMPCHIC52 7/21/2014 11:15PM

    busy day for you . hope labs turn out fine

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FRAN0426 7/21/2014 10:43PM

    Good luck with the labs needing to be done. Sounds like a busy day for both you and your daughter.

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FIT_MOMMY_OF2 7/21/2014 8:48PM

    Whew, busy day! You made it!

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ALIHIKES 7/21/2014 8:01PM

    Busy day for you! I hope the doctor has some suggestions. (I'm seeing my doctor tomorrow, follow up because leg pain is not better)
Hugs from
Alison

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YVETTEB57 7/21/2014 7:44PM

    Sounds like you've had your hands full! emoticon

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What Went - Sunday

Sunday, July 20, 2014

1. I made it to church. I wrestled with getting dressed this morning. I tried to get my pantyhose on this morning (yes, I'm an old fogie who still wears it - partly because my legs look pretty bad due to edema and other issues) but I could not put them on. My daughter tried to help me but by the time we got them on, I realized that there was a humongous hole in them! So I ended up going bare legged but I absolutely cannot wear my leather church shoes without anything on my feet. I tried some footie things but they kept popping off my feet repeatedly so that wasn't going to work. So I ended up wearing black ankle socks, my leather shoes, my pasty white legs and then a white/teal dress. I'm sure it would have set off Tacky Meters but oh well, I tried and this is what worked. That, and by that time I had to get out the door or we'd be late for church.

2. Church was good. I taught the teens during Junior church and we had a nice discussion. We studied about Nicodemus today.

3. I took lunch stuff with us but it was a pretty eclectic selection. We ended up just stopping at Burger King. I got a chicken wrap but it was still too many carbs and made my sugar go up too high. I didn't get a salad because raw veggies make me have digestive issues and it isn't fun.

4. I was feeling fairly good after church so I almost decided to go with the family to a baptism they were going to. I'm glad that at the last minute I decided that it would be too much. My energy crashed in the afternoon and I slept for two and a half hours. Now I'm exhausted and can barely keep my head up. I'm glad that I'm going to the doctor tomorrow. This is one of the issues we will discuss, though the cynic in me (born from having chronic illness for over twenty years) wonders if it's worth mentioning since they don't seem to be able to really do anything about it.

  
  Member Comments About This Blog Post:

JENNEINAZ 7/21/2014 10:23AM

  Good job on knowing when t0 say enough. I am glad you got to church and enjoyed your time there.

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COMPCHIC52 7/21/2014 2:21AM

    My husband cant eat raw veggies they have to be cooked but he has diverticulitis. also he has a lot of scare tissue that interferes on the digestive System so to keep him from going and getting his stomach pumped he does not eat anything with seed. nuts or raw had veggies and some hard fruits. He has had a few Blockage in his days.
so glade you had a good time at church sounds like you had a blast getting ready too. I would say find you some shoes you can wear with socks or barefoot and just go with no stockings . its the in thing to do. my mom wear Birkenstocks to church with socks or if she is wearing long pants or dress she wears knee high stockings. save the hassle and stress you know. emoticon

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PUZZLEPOPPLES 7/20/2014 10:38PM

  Good luck at the doctor. Glad you made it to church. God doesn't care about the tacky meter! :)

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THEEXERCISER 7/20/2014 10:34PM

    Good luck at the doctors.

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What Went- Saturday

Saturday, July 19, 2014

1. Today was a fatigue and pain day. I sort of expected that to happen after getting so tired yesterday. But it's never fun to have that sort of prediction come through.

2. Today was also Reptile Rally at Petco. I took my 12 year old to it. The website said that there would be someone there showing their reptiles as well as some games etc. for the kids. There was. . . . nothing. So I asked an employee if they were having the event. He called the manager and she came out and showed us some of the reptiles. She said that the event people just didn't show. My daughter did get to hold a snake though - a ball python. Now she wants a snake. I said, no.

3. While we were out we saw one of my favorite people from the Y. She told me with tears that she's not working there any more. I didn't ask what happened because she was already so distressed and she wasn't volunteering more information, but I'm so sad to hear that she won't be there. She was always so sunny and so competent. She was the person who knew what was going on even when others didn't.

4. I read a stupid mystery. LOL. It really was stupid but I read the whole book anyway. I needed to read something stupid and escapist.

5. Dd and I did not go to her 5k training this morning. She was so tired. I did wake her up in time but when my energizer bunny said that she didn't want to go and turned over and went back to sleep, I let her. She also has a couple of blisters on her toes so I think it's probably best that she didn't run anyway. This meant that Rocky and I didn't walk the trail but we'll survive. The two of us were tired out too!

6. The kids have helped me to get a pot roast in the crockpot. My husband can eat some when he gets off of swing shift and then we'll have tons more to eat tomorrow. They also helped me with a bit of laundry and to organize a bit more of the pantry. I need to go to the store right now to get a few things for tomorrow's lunch.

  
  Member Comments About This Blog Post:

JENNEINAZ 7/20/2014 6:01PM

  Eek! A snake! I think you did very well to do all the things you did.

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1MORNINGWALKER 7/20/2014 1:04AM

    You really do so much even though you are in pain. I agree with no snakes, my sons always wanted everything emoticon
Have a nice Sunday, hope you feel better emoticon

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FRAN0426 7/20/2014 12:01AM

    Jean I think you were an energizer today with all you accomplished even with the pain and fatigue. Hope you fell better tomorrow.

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What Went - Friday

Saturday, July 19, 2014

1. I got all the medical bills paid. This was a torturous activity that went on for hours. I have a lot of bills that are monster bills that include up to 15 different procedures and visits, all with their own insurance EOBs to match up. I suppose it would be faster if I didn't do all that but I've found more than one mistake so I meticulously go through all of them and keep records. The good news is that I happened to have the money to pay them. The bad news is that the money was actually for something else but hopefully God will provide the money for the something else before it comes due. These bills were starting to elicit snippy letters and I couldn't put them off any more.

2. My daughter came back from her sleepover. She had a lovely time. You can really tell that she's been out in the sun - she's so dark now! I missed her a lot but she didn't miss us. Just one more of those "letting go" things that is normal at this age.

3. I was just getting ready to take Rocky for his walk when my daughter got home. She chose to come with us. (I take this to mean that she really did miss me after all.) This was too ambitious but I decided to walk to our tiny city's downtown to go to the library, pharmacy and Starbucks so that I could get errands done at the same time. One way was the equivalent of my normal walk with Rocky. I thought though that stopping at Starbucks for an unsweetened Passion iced tea would revive me and that I would be fine on the way back. I really wasn't. I was so tired. I was walking at a crawl. My daughter and Rocky went ahead and waited for me at the park because even walking slowly they couldn't walk as slowly as I was. It really was too much for me but what could I do? I had to get home and it wasn't like I could just call my driver! I have 7439 steps today.

4. It was kind of nice to just have my son home for a couple of days. We did a few more things together. This morning we went to the grocery store (exciting!) and he got ingredients for a gourmet Italian sandwich. He thrilled the bakery ladies by asking their advice on the best bread to get. I told him that they wouldn't get all giggly if I was the one asking! His sandwich really was good - he had about five different thinly sliced meats, provolone, tomato and some dressing on it. My sandwiches are slapped together affairs!

5. Is it a good or bad thing that by the time you walk down to the pharmacy counter the technician has your medication all ready for you? They don't even have to ask my name! (Yesterday my favorite medical building parking attendant greeted me from across the parking lot too.)

  
  Member Comments About This Blog Post:

COMPCHIC52 7/19/2014 1:46AM

    all in all a good day emoticon

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JENNEINAZ 7/19/2014 12:29AM

  It is great that you had the money for the bills. We had set aside money for my older son's braces this year. It turns out he doesn't need them. The younger son does. Sigh. Anyway we had the money.

I am glad you are having a good time with the kids and are enjoying them. You did great on the walk even if you went really slow. You still got he job done.

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What Went Well - Thursday

Thursday, July 17, 2014

1. I had my fasting labs - an A1C and cholesterol. We'll see if they've changed any from the last time I had them done pre-medication.

2. My daughter and I went out afterward for breakfast at IHOP. I had pancakes along with my eggs and bacon which are NOT on my diabetic breakfast plan. So maybe this is not a "what went well" item but from my tummy's perspective they went down very well indeed. I did not eat all the pancakes - just about one.

3. The cat's bathroom is finally all painted after 4 years. There's a long story here about how the cat even has his own bathroom and why it took so long. Ds finished painting for me yesterday as part of his "work release program" for paying off his library fines!

4. The kids helped me to clear off one more pantry shelf. I put stuff up on the top shelf too - cookbooks and other things that I don't use all the time. As part of our cleaning, we discovered marshmallow Peeps that we had bought for science experiments and never used. The kids are having a hilarious time torturing Peeps. We've had a guillotine, a rack etc. I'm a bit disturbed that they are so good at it. . . .

  
  Member Comments About This Blog Post:

COMPCHIC52 7/18/2014 2:14PM

    my cats have there own room too it is wonderful for the cats to go in there own area. it is about 5 by 5 room for them. good times with your daughter its all good make up for it at lunch or dinner. emoticon

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COASTAL6 7/18/2014 1:45PM

    My cats have there own bathroom too!
emoticon
emoticon

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1MORNINGWALKER 7/18/2014 9:53AM

    Have a great day, sounds like you were having fun, Hope the cat is happy emoticon

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DAIZYSTARLITE 7/17/2014 7:56PM

    emoticon

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