Friday, March 09, 2012
Seems like it's just one thing after another lately...
I was logging the lab results and came across one I hadn't really paid attention to. No wonder my endocrinologist was asking me when I was next due to see my nephrologist!... My GFR (filtration rate) actually improved, it went up by two points--HURRAY! BUT...
I'm spilling more protein. Basically it means that though my kidneys are filtering better, they are also letting through some protein by-products that aren't supposed to be there. It's one of the first things they look for when they suspect kidney damage... normal is under 30 mg/g, up to 300 is considered "micro-protenuria", and anything over that is "macro-protenuria". Mine is 676. (correction, that should read six seventy NINE...lol) That's more than 20 times the normal... and when I called my nephrologist's office, they are looking for a time slot to get me in NEXT WEEK. Normally it takes about six weeks to get an appointment... and I'm not due until August... hm. Kind of spooky, that.
But I'm not going to sweat it, y'know. Yeah, I think you all know me pretty well by now! LOL I'm pretty calm, I have a lot of plans and ways to cope, and I'll do what I have to. No big deal.
I'm sitting here laughing at my two indoor kitties right at the moment (my favorite coping mechanism, next to SP! LOL) Along with a new iron and ironing board bought today, I brought my groceries home from the outlet (Sam's Club), in a small topless three sided box--the perfect size for just one cat-- which is now upside down on my living room floor, with two adult cats acting like babies, diving into it and onto one another. Quite a "floor show" ! Oh, goodness, it just flipped over, box, cats and all!Didn't slow them down much...
Life is GOOD!
Crocuses aren't out yet... oh well.
... but someone had cyclamens on sale this afternoon in front of a store near my doctor's office, and it made me smile...
Tuesday, March 06, 2012
Mary, the problem is, I can't tolerate or am allergic to EVERYTHING! ALL of the statins, ALL of the fenofibrates, even Niaspan... Lovaza (a modified fish oil derivative) is the only thing I could even take, and it only helps a little bit. This last one is supposed to bind with the fats so they don't get absorbed--And my guess is that when my body wasn't getting it in the food, it MANUFACTURED what it wanted! LOL It's a hereditary thing, and though I've never been tested for the gene, my dad and two thirds of his siblings...and my two brothers... well.
Not SUPPOSED to have eggs on one diet, another allows me two... a week. Kidney diet says "go for it!" LOL Can't have it all ways...
I do track my saturated fats on SP, and am consistently under, with an occasional "oops" on total fats--but usually in the mono- and poly fats and never trans- or saturated fats... it's a tough one, y'know? The diabetic thing is all about carbs, and I can't do those in any great quantities, my endo doesn't want to increase the insulin because I'm taking so much now and he's leary about crashes... So... I'm waiting to hear from that diabetes center, Should be interesting to see what they have to say! LOL
Today was all about tweaking the re-do and putting a few of the items on there into practice. I still haven't done my workout (I promise I will, as soon as I finish the dishes! LOL)... but...
... one of the items on my list was dealing with correspondence. I spent most of the day making and answering phone calls...
First was the pharmacy, the insurance denied my Humalog again--that's INSULIN, folks, and they don't want to pay for it?? Crazy. So then I got a call from the rheumatologist, to remind me of my Thursday appointment, and I mentioned the problem with my shoulders, and was told to start the prednisone again, at least until we can talk on Thursday. I do tend to lose weight on the stuff... odd, but there I am. LOL It gets ME when I go OFF the stuff. Hm. More issues... LOL
Of course, I had to call the endo I saw yesterday to let him know, so the nurse can call me back with any adjustments to my insulin to cover the prednisone spikes...and ask if they'd heard back about the paperwork they sent to the insurance regarding that insulin snafu... and to talk to the insurance(S) about it--and there was this letter from Medicaid to deal with... and it all took HOURS longer than I expected--and I'm still waiting for call-backs on some of it.
And of course, stroganov was on the menu. A time stealer if ever there was one. (I know, excuse #257... lol) I make a version without the butter, no salt, and you only add the sour cream to the individual servings, so if you don't want it you just don't add it... it's a LITTLE high in protein, if you're not careful with the ladle *giggle* but Yummy... and I had a lot of fun with the wine, the cork broke and ended up down inside the bottle, bobbing around and blocking the neck every time I tried to pour it--AFTER sending a bubble of wine over the neck of the bottle, my hand, my shirt... What a MESS! I eventually had to change the shirt... LOL And I'll have to wipe down my entire kitchen when I'm done here... but I measured my portion (2/3 c) and no seconds, and had a lovely cup and a half of salad (lettuce, baby tomato, an olive) with raspberry vinaigrette on the side... and I'm full.
And I have the hiccups! LOL
Exercise, next: I will, of course, have to stay with the neuropathy therapy four times a week... Pretty much takes care of any strength training needs. As for changing up my cardio... let me see... I walk pretty much every day, and I'll keep doing that even on the bad days. (Fibro sucks, folks! But you learn to deal with it...) I'm going to look around for some free music and I'm going to DANCE again. I can boogy any ol' time, the radio provides SOME decent stuff, but Richard Simmons is right about oldies being great for cardio... and I do mean OLDIES LOL... I think I mentioned a while back that I used to do exhibition ballroom... well, that takes a partner, but there's no reason why I can't waltz around the house without one, y'know... Strauss, maybe?...I wonder if I can find a waltz length tutu at the thrift store... *giggle*
And I'll look for a hula hoop, while I'm at it... and New Age offers some great stuff for moving meditations... A friend called today too, and told me my old Tai Chi instructor has a website now... Should keep me out of trouble, y'think?
Just me, over-booking again... I think I need to put breathing on the list as one of my goals...
Like I said... La di da di da...
Thank you, Mary,and all the rest of you, my VERY dear friends, for the votes of confidence! It means SO much... just look at how you inspire me!...
Tuesday, March 06, 2012
Saw my endocrinologist yesterday. All that business with the new lipid medication? My cholesterol was UP SIXTY-FIVE POINTS! 300! Yikes. My Tri's were right up there too. He had the saddest look on his face. "We have tried everything. Your continued survival is dependent now on your losing weight."
But I've been trying to do just that all along. It's time to rethink SOMETHING...
He said he doesn't know how I'll manage, with all thats on my chart (don't I know it! LOL) and asked if I thought another consultation with a dietician would help... that maybe they could help me at the Franciscan Diabetes Center could assist me in integrating the differing protocols into something that will allow me to lose. He also suggested finding some more... interesting, possibly non-traditional... venues for activity. He suggested looking at getting under 200 as a starting goal... I was there before I had that surgery two years ago. I've had... let's see... three? different surgeries since then, plus a number of other issues that slowed my down. Goofy stuff, y'know. So it looks like I, like Einstein, choose sanity. I'm going to change things around, shake some things up, and get some DIFFERENT RESULTS! LOL
I've already re-done the redo I did a bit ago (it wasn't working anyway! LOL) and I'm not going to have as much time online any more... but don't worry, I've got it worked out to spend SOME time here, every day. I NEED SP, and I'm not about to let go of what it has given me in terms of knowledge, tools and friendly support!
Besides, real life is what SparkPeople is all about! Learniing, using the tools, building a support system to assist in really LIVING, right? So, here I go... I.M. ALIVE! LOL
La di da di da...
Tuesday, March 06, 2012
This is for Dennis, and for his loving wife Jo, and for my dear friend Helen and her hubby Ken... thank you for sharing the journey... I know you'll miss Den like crazy.
"How do you gauge a life?
How do you measure its worth?
By the people whose lives you touch
In the time you have on earth,
And when the time is spent,
What do you have to show?
All the family and friends around you,
Loving you as you go.
How do you gauge a life,
When you come to the end of your day?
By the trials and tribulations
Where you’ve triumphed on your way.
And what do you take along
At the setting of your sun?
It’s about the love and laughter,
When all is said and done.
If life were all we had,
There’d be reason to be sad,
But life is just the start of something more.
And if we listen well,
There’s a way that we can tell,
A whisper that is absolutely sure.
How do you gauge a life
When it never really ends?
When goodbye is just for now,
For family and friends?
The sun that sets today
Is the same that shines again
When we meet to share new journeys…
Remembering you ‘til then.
Remembering you ‘til then."
Copyright 2003 by Kathleen Braley
This is actually the lyrics to a song, written for and dedicated to my mother, shortly after my brother Ken died (b. May 1, 1959, d. October 6, 2003) mere months before she died too… my nieces read it as a poem at their grandmother's funeral...
Doris E. Stevens, b. June 5, 1930 d. June 15, 2004
I know there aren't any words to assuage your grief, dear ones, saying goodbye is never easy-- but you have some glorious memories that, given time, will offer solace--and you have that whisper that says you will meet again...
...And all your friends here on SP are sending you love...
Thursday, March 01, 2012
First, I may need to apologize... because I can't remember whether I already posted this one! LOL But then, I can't remember what I had for lunch today either...
"Army of Words
I can if I wish
Raise an army of words,
And make them march
Precisely across a page
To my own
Or someone else’s drumming,
And thereby win battles
But I would rather
Let them dance."
Copyright 2007 by Kathleen A Braley
Something I CAN remember... David Jones. It was such a shock today to find out that he had died yesterday. He was one of my childhood idols... but unlike most of my friends, who were drooling over him, wanting a date... I was drooling over the adventures and the music! Yes, I was a day-dreamer, I had visions of being a rock star--and not even necessarily a feminine one, being a bit of a tomboy!-- living a bohemian life and performing in front of adoring crowds LOL (did I mention I like the limelight? LOL) I may have wished I were a boy at times, but mostly because they were allowed to do things that girls in the 50's and 60's weren't encouraged to do--in spite of Riveter Rosie! LOL It was okay for boys to wear glasses and be good at everything academic. Girls had only to be ornamental and good at keeping house and taking care of kids... and if you didn't have all that... well.
Picture one skinny little pointy-chinned girl in blue glitter cat's eye glasses, and a home perm that burnt her hair into straw, with her one lowest S.A.T. score a 95--and that was in social studies! Everything else, including spatial ability that was supposed to be exclusively male territory in those days, above that... and one or two off the scale.
...there's so much more to us, right, ladies? LOL
I was, however, rather surprised in my first year of college to be invited to join Mensa. I opted out... didn't FEEL right, somehow. Too seperatist or something...
Of course, kids would have been nice, but 22 yrs and no birthcontrol whatsoever... oh well. When I got a hankering, I'd borrow one or more... and send them home at day's end! LOL
Don't know who'll take care of me in my dotage, but I suppose there'll be someone around somewhere... and I have SP too! LOL
I have more FUN on here... and I get to poke fun at myself, too! LOL
I still haven't heard anything about the lab reports on my colonoscopy tissue samples, so I'm sending myself a reminder to call them tomorrow... I did have labs done for my endo last Monday, and I'm not going to enjoy that particular visit next week. I've seen the blood sugar results ANd my weight going haywire ever since my last visit! Things do seem to be leveling out, but it's too late to make much difference now. Hopefully with that one med gone I can get back on track with my results. I'm a real stickler for details, y'know? It drives me nuts when I work so hard and have it all fall apart like that! But I have everything I need now, and I since I did it once, I KNOW I can do it again--and again and again! LOL And on that note, I'm going in search of an ice pack for my shoulders.
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