Sunday, December 30, 2012
This is my first blog so please be gentle.
I am taking to the waves of the internet for answers and relief for this problem that supposedly affects so many women yet is so unknown. I have just returned from my second visit to the ER with my third bout of ovarian cysts bursting. Next week, I am going to yet another doctor for more help with my fibroid tumors for which I have finally accepted I need surgery to alleviate some of the pain.
Here is my issue:
I know I have these problems. It is clear from my ultrasounds. What is not clear is what in the world am I supposed to do about these problems. For the women reading this who share my pain, are you as frustrated with the lack of substantial, reliable information out there? All I find when I do my own research is stats about how many women suffer from these issues, which range anywhere from 10-50%. Really? How are we supposed to know how to take care of this issue if we can't even rely on the statistics about how many women are affected? I find different "natural remedies", "homeopathic" plans, and a plethora of sites that really just try to sell you a book after a long list of how helpful their treatment is. The only thing these selling sites have in common is they remain extremely vague about their treatments which they all claim to be the only treatment that works. I just want help.
I have been told to change my diet; eat soy, don't eat soy, cut out white bread and sugar, cut out wheat, no dairy, no coffee, only green tea, no caffeine. I have been told I have fibroids because some man bruised my female ego; or, there is no medical reason I have fibroids. Doctors have said that surgery will alleviate my pain and discomfort but the tumors could grow back, there is a 50/50 chance, or they will definitely grow back. Not to mention, there is just as much circular information regarding the cysts that continue to grow in my ovaries. I just want answers.
Now, here is what I want to tell the doctors:
I hurt. All the time.
I want to have kids.
Tell me why I have tumors and cysts, where they come from and why.
Tell me how we can stop them, get rid of them, and make me better.
Tell me what I can do to aid the process
And please, please, just give it to me straight. No more guesses, no more circles of information, just the straight truth.
I'm thinking I can't be the only one out here who wants help, answers, or relief.
This is a call for us all to get together. Let's all share, in one place, what helps and what doesn't. Let's help each other end the frustration and begin the healing.