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Its been over 200 days

Wednesday, November 26, 2014

since I've been here.
I've seen a lot of doctors, I've been on "rehab" (a german thing. they send you in a specialized clinic to get you back to work. Its 3-6 weeks with a lot of treatments like sport, group therapy, informations). It was nice, but it did not helped me as much as I expected. I found a view very very nice friends.
And I still do not know exactly why my lymphs are so big ... its a big maybe.
So I'm still under control of my doctors.
There are good times when I'm able to do some sport and work.
And there are bad times when its nearly impossible to climb up in the first floor where I live.
What I have to learn:
be patient with myself.
be kind with myself.
there will be days where I'm not able to run or to do some sport (oh my goodness. I've been to the gym and I really really thought I have to call the ambulance!)
But there are days where I CAN do it.

and the thing with losing weight. I had an appointment with the specialist while rehab. She was very pleased with the way I eat. But she has no clue why I do not lose weight. chrr .....

  
  Member Comments About This Blog Post:

EX-PRESSO 11/27/2014 5:39AM

    Thanks Brandi! :)


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BRANDI1809 11/27/2014 5:39AM

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2 weeks on and still waiting

Thursday, May 01, 2014

I'm a bit disappointed. My GP still do not have the results of my biopsy, so I phoned the hospital yesterday. They will send out the result - without the letter from the doctor - so I can pick it up on Monday. Horray.

I felt pretty weak for more that 1 week after the surgery.
But now I'm back on track. I eat most of the time vegan (I still have some problems with my gastroenterological system) and started running again.
Today I ran/walked while it was raining for 4 k - 40 Minutes. It was phantastic to feel the raindrops on my body. I looked like a piglet after, but hey, we've got a shower ;)

So have a nice day and keep on :)

  


Back from hospital

Thursday, April 17, 2014

So I had my bronchoscopy and biopsy yesterday.
My throat and my lungs still hurts.

I will have to wait till next week to get the histological result.

There are a view results I have to talk about with my doctors. One even seems an explanation why its so hard for me to lose weight.

Now I prepare everything for the easter break. We will spend it as a family in a very very very small village in the middle of nowhere ;)

  
  Member Comments About This Blog Post:

BRANDI1809 4/18/2014 12:48PM

    Hope the results are in your favour. Enjoy your family time.

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USMAWIFE 4/17/2014 9:44PM

    good luck to you. I could not loose weight forever until a great doctor discovered I had hasimoto's thryoid which then lead to a few other disoveries gland wise..

hope they can figure yours out soon

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JTREMBATH 4/17/2014 7:05PM

    Hope all is well.

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SNS1968 4/17/2014 7:33AM

    I wish you the best.

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Take care of yourself

Friday, April 11, 2014

Beginning of March I had an MRI scan of my neck.
I was in a hurry and so I simply wanted to grab the cd and the results and run to my next appointment.
But the specialist asked me to follow him to his office.
They found out that there is something wrong with my lymphatic gland around my lung.

I had two other scans which proofed that I've got a lymphadenopathy.
Since this was diagnosed I've had a lot of appointments with specialists.
Happily it doesn't seem to be cancer.

Next week I will have a bronchoscopy and biopsy of the lung and the lymphatic glands to find out what's going on.


But the good thing is: after an appointment with a cardiologist and an exercise echocardiography I now know I'm still pretty fit and better than the average. Yeah. Even If I was too tired to do sport since November.
Unfortunately they found out that I still have some fluid in my heart from an pericarditis. Yuck.

So loosing weight wasn't first in my list.
But I managed to eat proper.
I'm eating more and more vegan and my body feels good with that.
Today I've tried to walk/run. It was wonderful. The sun shine and the cross country running/walking was calming me down.

  
  Member Comments About This Blog Post:

BRANDI1809 4/11/2014 5:13AM

    Glad to hear that things are looking up for you after such an anxious time.

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Food I miss

Tuesday, February 04, 2014

No, I do not talk about food I eliminate due calorie reasons.
I talk about food I miss because my body react after consuming.

I miss nuts. Hazelnuts. And macadamia nuts. I got a massiv allergic reaction and need cortison. I ve been ten the first time a allergic reaction totally hit me. Fresh hazel nuts. I nearly ended up in hospital.

I miss diary products. I miss really good swiss or french cheese. One of my food phantasies is a slice of wholemeal bread with garlic and topped with melted goats cheese. Or a dessert with quark and fruits. When I was a child my mum often made quark with banana for dessert. Oh yes, I miss it.

I miss things made with yeast. A french bread.

I miss a glass of wine (histamin) or sparkling wine.

But at most I miss to be carefree with food.
Its ok at home, but on the go or with friends it can be hard.

  
  Member Comments About This Blog Post:

PATRICIA441 2/4/2014 7:05AM

  I miss ice cream and pancakes. No, I am not allergic to them my hips are! Oh I can have a half a cup serving but come on what is the point plus it would set me off to eat the whole carton! Life isn't always fair in the eating department but so be it!

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BRANDI1809 2/4/2014 6:17AM

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