EVWINGS   100,447
SparkPoints
100,000 or more SparkPoints
 
 
EVWINGS's Recent Blog Entries

All good things must end someday, or do they?

Sunday, August 07, 2011

My little 3 day break from treatment has really done me a lot of good. Just as a rest from running daily can help bring your body back to continuing without injury, this break is helping me. On Thursday when I ended my radiation treatments for the week and chemo would be a thing I needn't think about for a week, I wasn't sure I'd make that week. Friday was a sort of I can't be heard, so why talk? I can barely swallow, why eat? No one cares, why try to leave the house? What a pity party I was having with an audience of one - me.
By Friday evening I was starting to do a lot better. I had relaxed and did what I could for the best of my time. By yesterday, I actually wanted to leave the house and ate more than the entire week before. Today is promising to be a fairly good day so I must be cautious not to over-do and undo all the good. In an all together different way, I have learned some good lessons of why our physical, mental, and lifestyles all work together to bring us better health.

A lot of this weekend I have spent some time reading and re-reading articles with wealths of information not even realizing how much I was retraining about a variety of subjects. Our bodies, our minds, our souls all need to reach out when necessary, to give back when able, and do our best for the moment, even if that isn't a lot.

Today I noticed the radiation necklace is getting much small especially around the area that has broken down the most. I have been able to do 10 minutes each of stretching and leg lifts. The sores in my mouth are healing and with the morphine I am taking, I am able to eat more of my daily meals rather than have them through the tube. My hair is my hair and will do as it pleases whenever it wishes. Maybe that is where my tad of stubbornness that Bob talks about comes from, I don't know for sure, but I think so. My bruising is still there, but even they seem to be fading. And I am maintaining the weight they want for me.

This next week is a long one, but I'm seeing hope for life - and a good one at that - at the end of the treatment. I have had so many appointments to track that get changed sometimes hour to hour. during this treatment. I needed some positive goals to set to have to look forward to when it all ends. Now I am setting some small ones around the time I finish.

Monday the 8th: Be at clinic for 8:15AM appointment for new Xrays to shrink the area to be radiated and new program starts. Last day unless something radical happens? 23 August 2011!! YEAH!!!

Tuesday the 9th: Blood stick for tests on those pesky red cells, etc.

Wednesday the 10th: 4-6 hour blood infusion. May never have to have another this round.

Thursday the 11th: Chemo. This may be the last or at least next to last.

Friday the 12: Our 11th anniversary!!!!! I can see us having many more ahead.

Saturday the 13th: Only 7 more treatment days left. During these last days, I can plan adding a solid here or a solid there. Finding a way to increase by 5 more minutes leg lifts, and stretching. I can look at a scale without fear of not keeping weight on to beat the pants off THIS particular cancer.

It will most likely take a month or better to get back to where I need to be, but I know I can do it. My friends and family praying and sending good thoughts and helping me be lifted when I haven't been able to on my own helped teach me this. Setting those little goals and rewards Spark reminds us of so often will be such a pleasure once more. And all the absorbing I have been doing is a miracle for me.

How can you be so sure you are actually absorbing the good and knowing the bad by look? Aha!! I CAN answer that. I took a quiz on Type 11 diabetes that Bob has under control with medicine, diet, and exercise. I haven't been much good for him on that front since the beginning of 2011 and guess what? - I scored really, really high. In fact if I hadn't misread one, I would have had them all correct!! It all has to do with the little goals - read 1-2 articles on Spark a day.

All of this excites me, because instead of just planning, once I'm through with all of this, a few who have shown interest can start the true planning stages for the OH/FL reunion we have dreamed of having. My class efforts can start once more to be assured I can reach my life goal of ministering to others who have or may be suffering.

I've been down so low this round, I wasn't sure I'd make it to the wellness side, but I know now I'm going to do just that. Heck, I AM doing it!! And to think, it all started once upon a time I was able to quit smoking, but traded that addiction with one of surfing the net. The I saw a little "spark" that let me know if I gave an effort, I could help myself lead a lot better lifestyle and trade a sedate style of the easy way out and reward myself instead with giving myself truly good options that are healthy. The wonder I never knew I was missing until I clicked "Join for free".



Albert the Gatormobile





emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon

  
  Member Comments About This Blog Post:

LINDA! 8/10/2011 10:32PM

    Still praying for you. I know this has been a rough week for you!! emoticon

Report Inappropriate Comment
PMFISH 8/10/2011 7:43PM

    emoticon Way to go Girl! I promise there is life after cancer!! You sound so much better!! Great news! We never know what GOD has in store for us, but I suspect there are things you still need to complete in this lifetime.

Prayers and good energy always heading your way!!

Pat

Report Inappropriate Comment
YELLOWMOM 8/9/2011 7:53PM

    emoticon

Report Inappropriate Comment
YELLOWMOM 8/9/2011 7:52PM

    emoticon emoticon emoticon the new you!

Report Inappropriate Comment
YELLOWMOM 8/9/2011 7:52PM

    emoticon emoticon emoticon the new you!

Report Inappropriate Comment
YELLOWMOM 8/9/2011 7:51PM

    emoticon emoticon emoticon the new you!

Report Inappropriate Comment
TERJEGOLD 8/9/2011 1:29PM

    Yippee! You sound so great today! I love reading your blogs as it just reminds me how strong people cal be. Thank goodness for fantastic caregivers and chemo nurses. huh? I am certain I owe my life to them.

Keep up the great healing work. You have incredible plans in your future, plans you don't even know yet, but fantastic things are bound to come from you. I can't wait to see what they are.

Report Inappropriate Comment
JUSTJUSTY 8/9/2011 12:34AM

    emoticonYou are so strong!

Report Inappropriate Comment
MOM2ACAT 8/8/2011 3:59PM

    emoticon

Report Inappropriate Comment
GRAMMAP1 8/8/2011 12:08AM

    You are amazing. As humans it is so hard to face the reality of your illness. I am so glad you had a few days off and it gave you some hope. We are praying, the Doctors are treating, and your attitude just compliments the whole process. And your Hubby is so supportive in keeping us up dated. God bless you both and...HAPPY ANNIVERSARY. emoticon emoticon emoticon emoticon emoticon

Report Inappropriate Comment
PANSYLADY2 8/7/2011 10:48PM

    Evie, good to see you blogging today. You are so amazing and I can see God shining through you! Will be praying for you, gal!

Report Inappropriate Comment
1BEACHWALKER 8/7/2011 10:27PM

    It is great to hear from you and to hear how positive you are! Hang in there- you will be out and about in no time! Happy 11th anniversary! Take care. emoticon

Report Inappropriate Comment
JKURJACK1944 8/7/2011 6:52PM

    Ev, You are a very positive lady. No negativity about you. So very happy to read your blog today with all the positive outlook for your life. You will have time to spend with Bob and help him as he has helped you. That's what relationships are all about and you have a very good one. Praying for you on the next round of treatment and hoping that it is not as bad as this last round. God bless you and Bob.

Report Inappropriate Comment
CELLOPLAYER1 8/7/2011 5:46PM

    It is great to hear from you.

Report Inappropriate Comment
COACHPENNY 8/7/2011 10:54AM

    YIPEEEEEEEEEEEEEEE! emoticon emoticon emoticon emoticon emoticon emoticon

Report Inappropriate Comment
PUDLECRAZY 8/7/2011 10:45AM

    I am so happy to hear from YOU!!! I am grateful to Bob for keeping us updated, but it brought tears to my eyes to hear from you personally. You have been going through soooo much and I know it has been very tough. It appears that then end of your grueling treatments is in sight, as is the road to recovery and a full and happy life. The next round sounds hard - I know the accumulative effects get more and more intense, but that is how the treatments do their job. Good luck with the next round and stay strong and stubborn. In my experience, strong and stubborn gets the job done.

LOVE hearing from you.



Report Inappropriate Comment
JULIEANNCAN 8/7/2011 10:33AM

    I'm so happy that you are so close to the end of active treatment! You have so much to look forward to and you have wonderful goals that really do help! I love your attitude and wish you all the best now and always. It is very difficult to keep a positive attitude all the time during treatment, so kudos to you. Thinking of you and wishing you all the best! emoticon emoticon emoticon

Report Inappropriate Comment
IDLETYME 8/7/2011 9:58AM

    That's a very positive blog - and should be. Everything looks like it is on the right track. We are all so proud of you and appreciate you taking us on your journey to a healthy Ev!!! Know you are in our thoughts and prayers!

emoticon emoticon emoticon


Report Inappropriate Comment


Times are changing, the good, the bad, and the ugly

Thursday, August 04, 2011

I have a few minutes of lucidity that seems to be relatively pain free. My chemo session was about 1/2 hour longer today as some potassium and magnesium are low once more. *sigh* That wasn't too bad, but I missed the call for the nurse who will be assisting Bob about the antibiotic. We did smarten a tad and took the pain medicine with us and Bob was able to administer to us right in the chemo room. Barring no more problems, there is only one and possibly 2 more chemo treatments.

This week they have shorten the distance for the shrinking area of radiation. We keep the area moist, but it is still breaking down and peeling.The burned tissue is coming off like black dandruff., leaving the new skin white. Talk about funny looking, red, white, with black dots!! I'm lounging around the house in a black running bra and long white sport pants. I do believe I'm making a new fashion statement. And add how I've been loosing my hair in a pattern, I can barely stop laughing hardly laughing!!! I hope that makes sense, as I wasn't repeating!!



Now isn't this cute? To me it looks like a designer took a shaver and made an original design!!

This week our Olds died. We had a small service and then Bob went car shopping. We found a dark blue Avalanche. The dealer threw in some orange pin striping and we now have a 2006 Gatormobile. To me it is the best of having a car and a truck. Bob took some pictures today and I'm sure you'll be seeing it soon. It has under 50K miles, and the payments are only slightly more than the Olds had been.

Now for the ugly. Along with the morphine, things are being set up for at least one blood transfusion because of low red cell counts. The supplements don't seem to be doing the trick.

And now I'm leaving. I think perhaps I have over done once again.

Ev

Really good news - my temp has been going up and down for the past week, but never under 99.6 Today it went down to 99.1 YEA!!!!!!!!!!!

Love, peace, and faith.
Ev

  
  Member Comments About This Blog Post:

PMCFARM 8/6/2011 10:59PM

  emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon you hav earned every one and more!!

Report Inappropriate Comment
1BEACHWALKER 8/6/2011 2:08AM

    emoticon

Report Inappropriate Comment
JUSTJUSTY 8/5/2011 7:32PM

    emoticonYou are such a trooper! Hang in there my friend. emoticon

Report Inappropriate Comment
MOM2ACAT 8/5/2011 4:31PM

    emoticon

Report Inappropriate Comment
PMFISH 8/5/2011 2:10PM

    Great news the chemo treatments are ending! emoticon Ev hope you can find some nutrition that helps your body start building itself back. Chemo and radiation are tough acts to follow. Herbalife helped me when I was going through treatments similar to yours. But when I had my mitral valve replaced in my heart, it did not help. Finally after trying everything on the market, I found Vemma liquid vitamins and that seemed to get me back on my feet. I am now trying to wean myself off of them, because of the expense, but it was well worth it at the time.

Prayers and good energy still coming your way. Keep up the good work kiddo, I know it can be tough, but there is life after breast cancer!!!

God Bless,

Pat

Report Inappropriate Comment
LINDAJ0621 8/5/2011 1:30PM

    emoticon emoticon

Report Inappropriate Comment
HOPE2BE 8/5/2011 10:43AM

    Ev so glad you're feeling a little better. I've been praying everyday for you and in my challenge room I asked we say prayers for people on the team especially you. I know it changes things. Hope emoticon emoticon emoticon

Report Inappropriate Comment
IDLETYME 8/5/2011 8:11AM

    With the positive attitude you and Bob both have, how could you not succeed! And, with all of your Spark friends sending special thoughts and prayers daily, it will work! emoticon emoticon

Report Inappropriate Comment
COACHPENNY 8/5/2011 2:26AM

    Attitude is is everything, Ev! You missed your calling as a motivational speaker/writer.....maybe later, huh?

Hugs and more!

Penny

Report Inappropriate Comment
BRAVEONE92 8/4/2011 11:08PM

    Even though you have been through so much pain,
I really admire your great attitude. You are an
inspiration to all of us, who have had breast cancer.
Praying for God's blessings on you.

Report Inappropriate Comment
GATORLADY02347 8/4/2011 10:19PM

    I love how positive you are. You go through so much every day, and you truly give me strength to do what I need to do on a daily basis. I am praying for you, God Bless You, and please keep on resting up :)

Report Inappropriate Comment
YELLOWMOM 8/4/2011 8:10PM

    Ev, I love your attitude! You are so upbeat in spite of everything! Many people pay big bucks for designer hairstyles. Prayers and blessings to you and Bob. Go Gatormobile! Rene' (yellowmom) emoticon

Report Inappropriate Comment
CELLOPLAYER1 8/4/2011 7:28PM

    Ev, Take care I have been thinking about you!

Report Inappropriate Comment
JKURJACK1944 8/4/2011 7:21PM

    Evie, Glad you were able to blog. Your designer hair loss is chique. Get some rest. I am praying for you.

Report Inappropriate Comment
GATOR12 8/4/2011 7:17PM

    Ev, I'm so encouraged by you and in spite of all the pain and struggles you go through daily; you have such a positive upbeat attitude. I send blessings to both you and Bob. You inspire me to be the most positive person I can be! Gentle hugs! Brenda

Report Inappropriate Comment


Ev's condition

Thursday, July 28, 2011

Ev had to be taken to the hospital Tuesday via ambulance. Several things were found wrong.

#1 she lost her sight again for a minute this time.

#2 her temp was 101 and radiation doctor dr said get her there ASAP

#4 she has an infection of some sort and had to have antibiotics via IV

#5 her potassium was at 2.4 and the er doctor told me if I hadn't taken her in and attempted her schedule for Wednesday, by Chemo, she may not have had enough to live. Result, Potassium via IV

6. her magnesium was borderline - again she received it IV

7. Her iron is low, but as of today it is borderline enough she still doesn't meet the parameters for the shots. The chemo doctor was her to have supplements as this is falling each week and since she has so few treatments of chemo left (I think he said 4) he'd like to get her past this.

When she saw the chemo doc today, he still feels the loss of sight and ear problems are tied to migraines caused from the anti nausea drug of the chemo treatment itself. They are changing her to a new drug and cutting the dose in half. It will still be in the same family as the other, and she might still get the migraines, just not so bad nor as long.

Our family doctor would only agree to have her released if she had the antibiotics. So he is arranging to have a home health nurse in to help us. Her radiation doctor insisted she not miss any treatments and convinced me to sign her out and get her to radiation ASAP. Thank goodness they are across the street from the hospital. I was so torn listening to both of the doctors and not knowing what I should do. Ev had such a bad experience in the ER and not getting to her room for 12 hours, having nothing to eat, not even her tube food from 9AM Tues to 3AM Weds. and all she got then was a Yoplay fat free yogurt. She was in pain most of the time before she got to the floor. She had no rinse for the sores in her mouth so now they are worse than ever. She had no cream for her skin for over 24 hours and it is now breaking down. They have told us she is becoming allergic to the adhesive on paper tape now, too. One place around her feeding tube started to bleed. What did they do? covered it with more tape. She finally got some food in her tube when I brought it along with her pump from home and feed her myself. Then on of the CNA tried to change the settings and I had to stop him. Then I moved my chair in front of our machine so no one else could get to it, but me.

Our family doctor came to see her and we explained her horrible night in the ER after I left to come home around 9:30PM. He is the chief of staff and he is going to be checking on it. I'll have to let Ev tell you about it when she is up to it. They only got her to a room when she asked her own ER nurse to take the IV stuff out of her port and help her call me. The nurse told her something like, "I really want you to stay because you'll only end up back here. I was proud when Ev told her, "No I won't. I'll be at Shands or Flagler, even Jacksonville, but I'll never be back to this hospital ever again." She had arrived there sometime between 2:30 PM and 3:00 PM and was to the point she gave them her maiden name and her address where she grew up in Ohio. She told them when her mother got there she could help. When I got there she first thought I was her brother, then she knew me but insisted we lived in OH and we were visiting her mother here in FL. I told her that her mother was in OH, and we were here in FL. As most of you know, her mother died in 1998. Because of all this our family doctor isn't so sure it wasn't a stroke. He had a sonogram done on her carotid arteries, but we don't have those results, yet. She was so sore and weak, they had to administer her daily meds by mashing them small enough to fit into her feeding tube.

Several good things did come from all of this. The chemo doctor was able to adjust her chemicals to help her, one of the nurses ended up becoming a friend, and they gave her an entire tube of the cream she needs to help with her "radiation necklace". The charge nurse on her floor felt to bad about her situation she gave her a yellow carnation vase.

I believe I have caught you up to where she is now - being feed while napping.

If Ev isn't able to post and has some more changes, I'll post again to let you know.

Thank you again to all those who love her and keep her in faith.

Bob




emoticon emoticon emoticon emoticon

  
  Member Comments About This Blog Post:

RETIREDEDUGATOR 8/1/2011 6:44PM

    Thank you for posting for Ev; thinking of both of you & praying for her & your comfort. emoticon

Report Inappropriate Comment
PMFISH 7/30/2011 11:01AM

    Prayer and good energy coming to you and Ev. Your post brought back memories of some experiences I had taking care of my Mom. I know how physically and emotionally draining this is on both of you. Hope you have someone to help support you while you are taking such good care of Ev.

Prayers do work and you know there are a lot coming from people here. I always ask other people to add the ones on my list to theirs. Hang it there!

Report Inappropriate Comment
1BEACHWALKER 7/30/2011 1:16AM

    Hang in there Bob. Thanks for the latest update. I will keep you & Ev in my prayers. emoticon

Report Inappropriate Comment
CELLOPLAYER1 7/29/2011 9:31PM

    Thanks for keeping us posted on Ev's condition. I will keep you both inmy prayers.

Report Inappropriate Comment
MOM2ACAT 7/29/2011 5:18PM

    Thank you for keeping us updated Bob.
Sending prayers and emoticon to both of you.

Report Inappropriate Comment
PUFFPASTRY 7/29/2011 2:04PM

    Thinking of you both. Lots of hugs and good energy, and hopes for fewer dramas and stressors and annoyances!!! emoticon

Report Inappropriate Comment
TBID227 7/29/2011 10:41AM

    Thanks for the update. Keeping you all in my thoughts and prayers.

Report Inappropriate Comment
JKURJACK1944 7/29/2011 9:43AM

    Bob, Thank you for keeping us updated. So sorry that Ev has had so many problems with her Chemo. The ER did not help either. I hope her doctor can make sure it never happens again, but, as Ev said, she won't be back there. What a strong and positive person she is. My prayers are with you and EV.

Report Inappropriate Comment
SHARON6612 7/29/2011 12:04AM

    What a wonderful person you are, Bob. It's hard taking care of a loved one who is dealing with such hardship and you do it with grace and dignity. Ev has a strong and beautiful spirit and I feel it shining through your description of her horrendous ordeal in the ER.

I continue to keep you both in my thoughts and prayers. Thank you for the update.

Report Inappropriate Comment
TERJEGOLD 7/28/2011 11:15PM

    Bob, bless you for being Ev's advocate. In times such as now, you are probably saving her life by being able to speak for her, advocate for what you know she needs and protect her from overworked and non-understanding medical personnel.

Please tell Ev she is in my thoughts and prayers. She is so close to the end. We love her! And I now feel like I love you for taking such great care of her for us.

Report Inappropriate Comment
SOFEDUPP 7/28/2011 10:30PM

    You will both be in my prayers.

Report Inappropriate Comment
GRAMMAP1 7/28/2011 10:08PM

    Thank you Bob for posting this. We know better how to pray for her. I am so sorry she had such a bad experience in ER. Ours in Oh. seems to operate at snails pace too. We are keeping you both in our prayer. Dh and I often pray together. emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon

Report Inappropriate Comment
IDLETYME 7/28/2011 9:14PM

    Prayers continue to come to you both! emoticon emoticon

Report Inappropriate Comment
DSBRIDE 7/28/2011 9:00PM

    Our thoughts and prayer are with Ev. Let her know that her friends are behind her and wishing her better days, ;)

Report Inappropriate Comment
GATOR12 7/28/2011 8:58PM

    Prayers going up Bob!! Poor Ev has been through so much and such a terrible experience at hsp ER. As a nurse myself I am so dismayed but I know it happens.

Report Inappropriate Comment
COACHPENNY 7/28/2011 8:38PM

    emoticon We are here with continued prayers.

Report Inappropriate Comment


Sunday is Sunday

Sunday, July 24, 2011

Well, I'm feeling a little better today. I seem to have a little more energy so thought I'd check in.

It amazes me how I can still manage to follow a lot of SP plan even doing radiation and chemo. Although it is difficult to swallow, I manage to get a lot of water down and some yogurt and some fruit with it. At least every other day I seem to be able to get some exercise if only 10 - 20 minutes. I'm even happy with 5 minutes, as long as I'm moving. The thing is, the center wants me to gain if I can. And I so want to reach my first goal or at the very least lose the one last pound to 200!!!! Oh well. The food I get to "eat" has over abundance of fat and almost no fiber. It is difficult to have anything like bread, cereal, crackers. etc, unless I have something to dip them in like broth. Ah well. This too shall pass. But I don't know how long I'll be able to swallow enough to eat. I got my meds down today over 30 minutes, but I got them down.

Did you and your hubby ever disagree about TV shows/movies, etc? I so wanted to watch Cool Hand Luke. For some reason it is one of my favorites, but I don't have a copy. Welllllllllll, since about 8AM. all hubby has had on is James Bond. Don't get me wrong, I like Jimmy but all dang day????? He is in the living room continuing to watch and I'm in the computer room with the TV off. Sometimes it is nice just to have quiet. But I'm getting sore and think I need to rest. But I keep putting it off because I want no more James Bond!!!!

The neatest thing happened this morning. I was checking out my hometown paper and I saw a community story title that caught my attention. It was about a man who had started in the sports department and went on to become editor. I decided to read it and here he lives about 50 miles away from me!!! Where I am on the river, he is closer to the ocean. He has autographed books of his for sale. I think I want to get one as the premises seems really good. I normally don't like a lot of sci-fi but this seems different and something I have never read before. It is called Wolf's Lair. There is a group of wolves who live in a lush forest in Wisconsin. They can take the form of standing upright and be a man. But the only way they can stay this way is by doing good deeds.
Here is the link to his site if you would like to check it out.

storiesbyguy.com/Home.html

Since he is so close, I left him a comment asking if he would be having any signings close by. He answered, and the rest as they say - is history. We had a few emails where I sent him the one bookstore name from my county. Isn't that sad? One book store for an entire county!! I also sent the names and locations of all our libraries. The entire thing ended by friending each other in Facebook!

I'm sorry I can't do anymore right now. Bob has been so good in trying to keep up with everything on SP for me. He tries new recipes and types remarks I give him after he has read some blogs, pages, etc. He's even huddled for me in my teams. Other than his love of watching Jimmy over and over and over, etc., he's the greatest guy and my best friend.

My wish is for all my friends to have a lovely day and week. I'm sure Bob will be checking if I can't.

Love. peace, and faith,
Ev

emoticon emoticon emoticon

  
  Member Comments About This Blog Post:

TBID227 7/26/2011 1:21PM

    Glad to see that you have some energy today and that you are following SP still! I love the spark you have in you! That is super awesome about the author and the book signing and your new friend! I am checking out the book and will look forward to comparing notes with you on it! *hugs* and happy thoughts!

Report Inappropriate Comment
PANSYLADY2 7/25/2011 11:54AM

    Ev, I am SOOOO glad to see your post today and hear you feel a little stronger. The most important thing you need to do now is rest in the strong arms of the Father and let His healing permeate your body. There will be time enough to think about losing that "last pound"! I know what you mean about husbands and their TV habits. When my husband was alive, the TV went on at 5am, and there was a news channel on ALL of the time. After he passed away, it was almost three years before I watched a news program, and still only watch the news, maybe once a week. I figure if there's something happening I should know about, someone will tell me about it!! Have a wonderful day, my friend, and rest in the Lord.

Report Inappropriate Comment
1BEACHWALKER 7/25/2011 2:47AM

    That Bob of yours sounds as special as my Bob! So happy you are doing better today Ev! My thoughts are with you always. I love James Bond, but like you said- all dang day!? emoticonNo. Take care emoticon

Report Inappropriate Comment
GATOR12 7/24/2011 8:33PM

    As the others have said, it is humbling to see you do what you do but as I remember back my radiation and chemo, you just do what you have to. I sure can understand about having differences in what you think is interesting on TV or movie or something. All day marathon's of one "brand" is pretty boring. Even if you do kinda tolerate it. I get really tired of "cowboy" shows or military. But they are decent and don't have the cursing and nudity of modern movies. Even the comedys are so risque!! Just keep getting through this time, doing what you can even those 5-10 minutes; eating best what sounds like it will go down and stay and as you say, it is temporary--won't last forever. Gentle hugs, Brenda

Report Inappropriate Comment
SHARON6612 7/24/2011 7:54PM

    Your strength and courage are truly inspirational. Thank you for sharing your story.
Keeping you in my thoughts and prayers - Sharon

Report Inappropriate Comment
JKURJACK1944 7/24/2011 7:01PM

    emoticon You are doing great today. God bless you and Bob.

Report Inappropriate Comment
BD3269PM 7/24/2011 5:10PM

    It was great to read your blog and to know you were able to get on the computer and write it yourself. You are in my thougjts and prayers. Keep on Sparking! emoticon

Report Inappropriate Comment
CELLOPLAYER1 7/24/2011 3:45PM

    Ev it is so good to read your blog. Do what you can to keep yourself active but allow yourself the time you need to recover from for treatments. You are doing great!


Report Inappropriate Comment
MOM2ACAT 7/24/2011 3:18PM

    Ev, it is so good to see you posting today!
Don't worry about not doing "enough" for Spark, I think you are doing great! I've been through both radiation and chemo, and I know how much energy that zaps. emoticon

Report Inappropriate Comment


Ev's Condition

Wednesday, July 20, 2011

Ev asked me to post to let you know this has been a very difficult day for her. She has told me most of what I am going to tell you. She doesn't want any sympathy or pity or anything that comes close.

We saw her chemo doctor with what we thought were excellent results. When the doctor shows you a chart and says you are doing so well it doesn't even look like they have touched you, wouldn't you think so, too?


She had her radiation treatment and afterwards was very red like a burn collar around her neck and shoulders and that was very itchy. She had 2 hours of chemo to do. She was tired and a little confused, but her oncology nurse told her she would have to draw some more blood for us to take to the lab at the hospital to be analyzed because her red cells are lower and they need to see if she is in the parameters to have a "hot" shot each week to help to force her bone marrow to make more cells. She wouldn't tell the doctor about having bad headaches that come on suddenly and her liquid pain medicine is all that helps - if she can keep it down. This morning we were going over the bridge into town and she was startled. When I asked her what happened, she said she lost all of her sight for just a few moments. I had to tell the doctor when she didn't. It seems that one or two of the meds, even this situation itself can cause migraines and he is sure this is what is happening.

Now you can add 2 new problems for her. She said to be sure to let you ladies know this is Dr. Eyecandy you all like and if you haven't seen him, you need to check him on her Spark Page photos!!

She hasn't said anything to me, but I'm sure she is thinking about it, a 1st cousin she was close to and lived with when her ex left her with nothing, died from leukemia when he was in his 60's. I think he had it for several years before he died which would have meant she is the same age. He died just before they approved a drug that would have lengthened his chances of survival at least 5 years and help manage his pain greatly. So she isn't feeling good physically, mentally, and emotionally. Honestly, I am very afraid she is going to lose her spirit and will.

She did manage to eat most of a slider sized hamburger and an individual peach yogurt since we came home from treatments. But things have not been well since.
She got her water down and had some bananas before we left. She has been on the tube for most part. Exercise was out of the question today.

She insists she doesn't want sympathy. She has lots of Sparkers, family, friends, ME who love her and want her back the way we got her and none of us would feel sympathy. She won't listen when I tell her that. All you Sparkers may not know this, but she can be very stubborn when she wants!!!

So now you are caught up with the news. Thank you for listening.

Thank you all for caring so much about her!!

Bob aka Cruzer42 on Spark People



emoticon

  
  Member Comments About This Blog Post:

1BEACHWALKER 7/23/2011 11:24PM

    emoticon emoticon

Report Inappropriate Comment
PMCFARM 7/22/2011 11:26PM

  Bob, thanks for the update on Ev. You are both in our prayers.. please hug her and tell her that her little bit of "stubborn" will in the end help her fight this! emoticon MarilynC.

Report Inappropriate Comment
CELLOPLAYER1 7/22/2011 7:27PM

    Thanks for the update. I will keep you both in my prayers.

Report Inappropriate Comment
HOPE2BE 7/22/2011 10:40AM

    Thanks for the update. I will continue to keep her in prayer and pray she gets the drugs she so desperately needs. Hoping the best for her and knowing she is in God's hands. Hope

Report Inappropriate Comment
IDLETYME 7/22/2011 8:28AM

    Thank you for keeping us up to date. Don't let yourself get run down.
You are both in our prayers every day!
emoticon emoticon emoticon

Report Inappropriate Comment
LINDAJ0621 7/22/2011 8:02AM

    Keeping you in my prayers.
emoticon

Report Inappropriate Comment
MOMMYBYCHOICE 7/22/2011 8:01AM

    emoticon

Report Inappropriate Comment
PMFISH 7/22/2011 12:15AM

    Thanks for the update. Prayers and positive energy heading your way for both of you.

Report Inappropriate Comment
MOM2ACAT 7/21/2011 6:21PM

    Please let her know she is my prayers, and thank you so much for keeping us updated.

Report Inappropriate Comment
COACHPENNY 7/21/2011 2:36PM

    Ev and Bob,

You inspire all of us.....and there ain't no pity party here! FIGHT LIKE HELL!

emoticon

Report Inappropriate Comment
JANNERUN 7/21/2011 1:02PM

    Thank you for updating us. Please let her know she is in my thoughts and prayers. Stay strong--both of you!!!

Report Inappropriate Comment
TBID227 7/21/2011 11:29AM

    Thanks for the update! Just keep smiling! *hugs* thoughts and prayers!

Report Inappropriate Comment
PANSYLADY2 7/21/2011 10:31AM

    Ev (and Bob). No sympathy here either! You know we love you and all of us, if distance would allow, would be dropping in to just sit and hold your hand and encourage you.

Father, hold both Ev and Bob in your loving arms today. Allow them to rest in You. Bring them peace that passes understanding that is available only in You, and the joy that Holy Spirit brings as He ministers to us. Send angels to provide for them and to guard them no matter where they have to go. Let Ev feel the prayers that are being prayed on her behalf. Show her Your power, Lord. In Jesus' Name, Amen.

Report Inappropriate Comment
PUDLECRAZY 7/21/2011 8:59AM

    Thank you, Bob, for the update. Not sending sympathy, sending Ev thoughts and prayers of strength and healing. This is such a tough thing Ev is going through and it is good for her to know that she has lots of people pulling for her and wishing her well.

Report Inappropriate Comment
JKURJACK1944 7/21/2011 8:05AM

    Thanks Bob for the update. Ev is always in my thoughts and prayers.

Report Inappropriate Comment
WENDYSPARKS 7/21/2011 7:00AM

    I am thinking of her and she is in my prayers.


Wendy

Report Inappropriate Comment
SHARON6612 7/21/2011 5:09AM

    Thank you, Bob, for your update on our friend, Ev. Her courage and fortitude are admirable and inspiring., and it is my privilege to know her. I am keeping you both in my thoughts and prayers.



Report Inappropriate Comment
JET150 7/21/2011 3:55AM

    I too am keeping you both in my good thoughts.

Report Inappropriate Comment
EMMABE1 7/21/2011 2:07AM

    Thank you for the update
Please tell her my thoughts are with her - and I hope she sleeps well tonight!!
emoticon

Comment edited on: 7/21/2011 2:08:18 AM

Report Inappropriate Comment
PUFFPASTRY 7/21/2011 1:08AM

    Aw, thanks for posting, Bob. And Ev, those of us who get to hear your story feel LOTS of other things besides sympathy -- we feel honored to be allowed to share this journey with you and understand more about illness and disease and all the ways that someone copes and heals and gets well; we feel comfort in knowing we're not the only ones who go through pain (physical or emotional); we feel compassion at what humans somehow manage to endure; we feel gratitude for the health we have and the strength and resilience of our bodies and spirits, and for community and loved ones and the medical profession....you are doing so much just by sharing what you're going through. You're being a teacher, and a mentor, and a friend. THANK YOU for that. It's a huge thing to do, to open up like this, especially since you do it with such humor and spirit. Hugs hugs hugs.

Report Inappropriate Comment
TERJEGOLD 7/21/2011 12:10AM

    Bob, I think those who love a person living with cancer have the tougher road to walk and my prayers do out to you as you help Ev live gracefully with cancer. It's definitely a difficult lifestyle.

Thank you so much for your update. I look daily for news of Ev, knowing as we do that one day can be great and the next really tough and also knowing that prayer support and healing thoughts can make a difference.

Please let Ev know she is in my thoughts and prayers. Please know you are as well. Give her a gentle hug from me tonight and wish her a comfortable sleep tonight.

Report Inappropriate Comment


First Page  1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 Last Page