Sunday, August 07, 2011
My little 3 day break from treatment has really done me a lot of good. Just as a rest from running daily can help bring your body back to continuing without injury, this break is helping me. On Thursday when I ended my radiation treatments for the week and chemo would be a thing I needn't think about for a week, I wasn't sure I'd make that week. Friday was a sort of I can't be heard, so why talk? I can barely swallow, why eat? No one cares, why try to leave the house? What a pity party I was having with an audience of one - me.
By Friday evening I was starting to do a lot better. I had relaxed and did what I could for the best of my time. By yesterday, I actually wanted to leave the house and ate more than the entire week before. Today is promising to be a fairly good day so I must be cautious not to over-do and undo all the good. In an all together different way, I have learned some good lessons of why our physical, mental, and lifestyles all work together to bring us better health.
A lot of this weekend I have spent some time reading and re-reading articles with wealths of information not even realizing how much I was retraining about a variety of subjects. Our bodies, our minds, our souls all need to reach out when necessary, to give back when able, and do our best for the moment, even if that isn't a lot.
Today I noticed the radiation necklace is getting much small especially around the area that has broken down the most. I have been able to do 10 minutes each of stretching and leg lifts. The sores in my mouth are healing and with the morphine I am taking, I am able to eat more of my daily meals rather than have them through the tube. My hair is my hair and will do as it pleases whenever it wishes. Maybe that is where my tad of stubbornness that Bob talks about comes from, I don't know for sure, but I think so. My bruising is still there, but even they seem to be fading. And I am maintaining the weight they want for me.
This next week is a long one, but I'm seeing hope for life - and a good one at that - at the end of the treatment. I have had so many appointments to track that get changed sometimes hour to hour. during this treatment. I needed some positive goals to set to have to look forward to when it all ends. Now I am setting some small ones around the time I finish.
Monday the 8th: Be at clinic for 8:15AM appointment for new Xrays to shrink the area to be radiated and new program starts. Last day unless something radical happens? 23 August 2011!! YEAH!!!
Tuesday the 9th: Blood stick for tests on those pesky red cells, etc.
Wednesday the 10th: 4-6 hour blood infusion. May never have to have another this round.
Thursday the 11th: Chemo. This may be the last or at least next to last.
Friday the 12: Our 11th anniversary!!!!! I can see us having many more ahead.
Saturday the 13th: Only 7 more treatment days left. During these last days, I can plan adding a solid here or a solid there. Finding a way to increase by 5 more minutes leg lifts, and stretching. I can look at a scale without fear of not keeping weight on to beat the pants off THIS particular cancer.
It will most likely take a month or better to get back to where I need to be, but I know I can do it. My friends and family praying and sending good thoughts and helping me be lifted when I haven't been able to on my own helped teach me this. Setting those little goals and rewards Spark reminds us of so often will be such a pleasure once more. And all the absorbing I have been doing is a miracle for me.
How can you be so sure you are actually absorbing the good and knowing the bad by look? Aha!! I CAN answer that. I took a quiz on Type 11 diabetes that Bob has under control with medicine, diet, and exercise. I haven't been much good for him on that front since the beginning of 2011 and guess what? - I scored really, really high. In fact if I hadn't misread one, I would have had them all correct!! It all has to do with the little goals - read 1-2 articles on Spark a day.
All of this excites me, because instead of just planning, once I'm through with all of this, a few who have shown interest can start the true planning stages for the OH/FL reunion we have dreamed of having. My class efforts can start once more to be assured I can reach my life goal of ministering to others who have or may be suffering.
I've been down so low this round, I wasn't sure I'd make it to the wellness side, but I know now I'm going to do just that. Heck, I AM doing it!! And to think, it all started once upon a time I was able to quit smoking, but traded that addiction with one of surfing the net. The I saw a little "spark" that let me know if I gave an effort, I could help myself lead a lot better lifestyle and trade a sedate style of the easy way out and reward myself instead with giving myself truly good options that are healthy. The wonder I never knew I was missing until I clicked "Join for free".
Albert the Gatormobile
Thursday, August 04, 2011
I have a few minutes of lucidity that seems to be relatively pain free. My chemo session was about 1/2 hour longer today as some potassium and magnesium are low once more. *sigh* That wasn't too bad, but I missed the call for the nurse who will be assisting Bob about the antibiotic. We did smarten a tad and took the pain medicine with us and Bob was able to administer to us right in the chemo room. Barring no more problems, there is only one and possibly 2 more chemo treatments.
This week they have shorten the distance for the shrinking area of radiation. We keep the area moist, but it is still breaking down and peeling.The burned tissue is coming off like black dandruff., leaving the new skin white. Talk about funny looking, red, white, with black dots!! I'm lounging around the house in a black running bra and long white sport pants. I do believe I'm making a new fashion statement. And add how I've been loosing my hair in a pattern, I can barely stop laughing hardly laughing!!! I hope that makes sense, as I wasn't repeating!!
Now isn't this cute? To me it looks like a designer took a shaver and made an original design!!
This week our Olds died. We had a small service and then Bob went car shopping. We found a dark blue Avalanche. The dealer threw in some orange pin striping and we now have a 2006 Gatormobile. To me it is the best of having a car and a truck. Bob took some pictures today and I'm sure you'll be seeing it soon. It has under 50K miles, and the payments are only slightly more than the Olds had been.
Now for the ugly. Along with the morphine, things are being set up for at least one blood transfusion because of low red cell counts. The supplements don't seem to be doing the trick.
And now I'm leaving. I think perhaps I have over done once again.
Really good news - my temp has been going up and down for the past week, but never under 99.6 Today it went down to 99.1 YEA!!!!!!!!!!!
Love, peace, and faith.
Thursday, July 28, 2011
Ev had to be taken to the hospital Tuesday via ambulance. Several things were found wrong.
#1 she lost her sight again for a minute this time.
#2 her temp was 101 and radiation doctor dr said get her there ASAP
#4 she has an infection of some sort and had to have antibiotics via IV
#5 her potassium was at 2.4 and the er doctor told me if I hadn't taken her in and attempted her schedule for Wednesday, by Chemo, she may not have had enough to live. Result, Potassium via IV
6. her magnesium was borderline - again she received it IV
7. Her iron is low, but as of today it is borderline enough she still doesn't meet the parameters for the shots. The chemo doctor was her to have supplements as this is falling each week and since she has so few treatments of chemo left (I think he said 4) he'd like to get her past this.
When she saw the chemo doc today, he still feels the loss of sight and ear problems are tied to migraines caused from the anti nausea drug of the chemo treatment itself. They are changing her to a new drug and cutting the dose in half. It will still be in the same family as the other, and she might still get the migraines, just not so bad nor as long.
Our family doctor would only agree to have her released if she had the antibiotics. So he is arranging to have a home health nurse in to help us. Her radiation doctor insisted she not miss any treatments and convinced me to sign her out and get her to radiation ASAP. Thank goodness they are across the street from the hospital. I was so torn listening to both of the doctors and not knowing what I should do. Ev had such a bad experience in the ER and not getting to her room for 12 hours, having nothing to eat, not even her tube food from 9AM Tues to 3AM Weds. and all she got then was a Yoplay fat free yogurt. She was in pain most of the time before she got to the floor. She had no rinse for the sores in her mouth so now they are worse than ever. She had no cream for her skin for over 24 hours and it is now breaking down. They have told us she is becoming allergic to the adhesive on paper tape now, too. One place around her feeding tube started to bleed. What did they do? covered it with more tape. She finally got some food in her tube when I brought it along with her pump from home and feed her myself. Then on of the CNA tried to change the settings and I had to stop him. Then I moved my chair in front of our machine so no one else could get to it, but me.
Our family doctor came to see her and we explained her horrible night in the ER after I left to come home around 9:30PM. He is the chief of staff and he is going to be checking on it. I'll have to let Ev tell you about it when she is up to it. They only got her to a room when she asked her own ER nurse to take the IV stuff out of her port and help her call me. The nurse told her something like, "I really want you to stay because you'll only end up back here. I was proud when Ev told her, "No I won't. I'll be at Shands or Flagler, even Jacksonville, but I'll never be back to this hospital ever again." She had arrived there sometime between 2:30 PM and 3:00 PM and was to the point she gave them her maiden name and her address where she grew up in Ohio. She told them when her mother got there she could help. When I got there she first thought I was her brother, then she knew me but insisted we lived in OH and we were visiting her mother here in FL. I told her that her mother was in OH, and we were here in FL. As most of you know, her mother died in 1998. Because of all this our family doctor isn't so sure it wasn't a stroke. He had a sonogram done on her carotid arteries, but we don't have those results, yet. She was so sore and weak, they had to administer her daily meds by mashing them small enough to fit into her feeding tube.
Several good things did come from all of this. The chemo doctor was able to adjust her chemicals to help her, one of the nurses ended up becoming a friend, and they gave her an entire tube of the cream she needs to help with her "radiation necklace". The charge nurse on her floor felt to bad about her situation she gave her a yellow carnation vase.
I believe I have caught you up to where she is now - being feed while napping.
If Ev isn't able to post and has some more changes, I'll post again to let you know.
Thank you again to all those who love her and keep her in faith.
Sunday, July 24, 2011
Well, I'm feeling a little better today. I seem to have a little more energy so thought I'd check in.
It amazes me how I can still manage to follow a lot of SP plan even doing radiation and chemo. Although it is difficult to swallow, I manage to get a lot of water down and some yogurt and some fruit with it. At least every other day I seem to be able to get some exercise if only 10 - 20 minutes. I'm even happy with 5 minutes, as long as I'm moving. The thing is, the center wants me to gain if I can. And I so want to reach my first goal or at the very least lose the one last pound to 200!!!! Oh well. The food I get to "eat" has over abundance of fat and almost no fiber. It is difficult to have anything like bread, cereal, crackers. etc, unless I have something to dip them in like broth. Ah well. This too shall pass. But I don't know how long I'll be able to swallow enough to eat. I got my meds down today over 30 minutes, but I got them down.
Did you and your hubby ever disagree about TV shows/movies, etc? I so wanted to watch Cool Hand Luke. For some reason it is one of my favorites, but I don't have a copy. Welllllllllll, since about 8AM. all hubby has had on is James Bond. Don't get me wrong, I like Jimmy but all dang day????? He is in the living room continuing to watch and I'm in the computer room with the TV off. Sometimes it is nice just to have quiet. But I'm getting sore and think I need to rest. But I keep putting it off because I want no more James Bond!!!!
The neatest thing happened this morning. I was checking out my hometown paper and I saw a community story title that caught my attention. It was about a man who had started in the sports department and went on to become editor. I decided to read it and here he lives about 50 miles away from me!!! Where I am on the river, he is closer to the ocean. He has autographed books of his for sale. I think I want to get one as the premises seems really good. I normally don't like a lot of sci-fi but this seems different and something I have never read before. It is called Wolf's Lair. There is a group of wolves who live in a lush forest in Wisconsin. They can take the form of standing upright and be a man. But the only way they can stay this way is by doing good deeds.
Here is the link to his site if you would like to check it out.
Since he is so close, I left him a comment asking if he would be having any signings close by. He answered, and the rest as they say - is history. We had a few emails where I sent him the one bookstore name from my county. Isn't that sad? One book store for an entire county!! I also sent the names and locations of all our libraries. The entire thing ended by friending each other in Facebook!
I'm sorry I can't do anymore right now. Bob has been so good in trying to keep up with everything on SP for me. He tries new recipes and types remarks I give him after he has read some blogs, pages, etc. He's even huddled for me in my teams. Other than his love of watching Jimmy over and over and over, etc., he's the greatest guy and my best friend.
My wish is for all my friends to have a lovely day and week. I'm sure Bob will be checking if I can't.
Love. peace, and faith,
Wednesday, July 20, 2011
Ev asked me to post to let you know this has been a very difficult day for her. She has told me most of what I am going to tell you. She doesn't want any sympathy or pity or anything that comes close.
We saw her chemo doctor with what we thought were excellent results. When the doctor shows you a chart and says you are doing so well it doesn't even look like they have touched you, wouldn't you think so, too?
She had her radiation treatment and afterwards was very red like a burn collar around her neck and shoulders and that was very itchy. She had 2 hours of chemo to do. She was tired and a little confused, but her oncology nurse told her she would have to draw some more blood for us to take to the lab at the hospital to be analyzed because her red cells are lower and they need to see if she is in the parameters to have a "hot" shot each week to help to force her bone marrow to make more cells. She wouldn't tell the doctor about having bad headaches that come on suddenly and her liquid pain medicine is all that helps - if she can keep it down. This morning we were going over the bridge into town and she was startled. When I asked her what happened, she said she lost all of her sight for just a few moments. I had to tell the doctor when she didn't. It seems that one or two of the meds, even this situation itself can cause migraines and he is sure this is what is happening.
Now you can add 2 new problems for her. She said to be sure to let you ladies know this is Dr. Eyecandy you all like and if you haven't seen him, you need to check him on her Spark Page photos!!
She hasn't said anything to me, but I'm sure she is thinking about it, a 1st cousin she was close to and lived with when her ex left her with nothing, died from leukemia when he was in his 60's. I think he had it for several years before he died which would have meant she is the same age. He died just before they approved a drug that would have lengthened his chances of survival at least 5 years and help manage his pain greatly. So she isn't feeling good physically, mentally, and emotionally. Honestly, I am very afraid she is going to lose her spirit and will.
She did manage to eat most of a slider sized hamburger and an individual peach yogurt since we came home from treatments. But things have not been well since.
She got her water down and had some bananas before we left. She has been on the tube for most part. Exercise was out of the question today.
She insists she doesn't want sympathy. She has lots of Sparkers, family, friends, ME who love her and want her back the way we got her and none of us would feel sympathy. She won't listen when I tell her that. All you Sparkers may not know this, but she can be very stubborn when she wants!!!
So now you are caught up with the news. Thank you for listening.
Thank you all for caring so much about her!!
Bob aka Cruzer42 on Spark People
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