Tuesday, March 16, 2010
yesturday was at the lung specialist with the kids.the result was not good for both of them.
zakariya lung funtion has gone down again,she put him on atibiotics,doubled his dose of viani forte and also add acc with the pari boy.renewed the atem therapy.still has salbutomol and rectadelt for as and when needed.
ayman is also not good.given him more antibiotics,third lot in a row,stopped the pumicort but put him on budiair with the areo chamber ,2 times a day for the next three months.also put him on acc with pariboy 2 a day.salbutamol,atrovent and rectadelt as and when needed.also he also has to do atem/breathing therapy.but what concerns professer von meutius the most is the weight he has lost he has gone from being in the 90% area to being in the 25%area.also the fact that dispite all his treatments and antibiotics etc his lungs are still full of mucus.she now things it is something more than just the asthma and has tested him for muciverdousis/cysticfibrousis(i know the spelling is wrong)if we donīt hear from them by friday then he doesnīt have it and would have to start looking into other reasons for his heqlth deteriation,they only contact people if the test is positive.so as you can manage the waiting is effecting me as usual with my emotional eating but it is also making me exercise more just to keep busy so i hope they even themself out but i wouldnīt bet on it.anyway that is the stand as it is at the moment.keep fingers crossed that it is not muciverdousis/cystic fibrousis.thanks for listening to me but i just had to get it off my chest.to the people i am on challanges wuth,please bare with me i will try as soon as possible to get back on track.thanks.karen
Monday, March 08, 2010
ayman was really bad again yesturday and in the night(not that he has been really healthy for a long time)but he was a lot worse.so this morning was back to the dr and she has put him once again on what she calls the full programme.which means a lot of stress for me which usually means emotional eating.he is back on anti biotics,pulmicort,salbutamol and atrovent.(means 4-5 hours daily on the pariboy/nebuliser)which mean constant physical and emotional fights.even though ayman is only 15 months when he fights to stop me keeping the mask over his mouth and nose he is surprisingly strong,and the screaming that goes with it really gats to you.my husband canīt cope with it and tends to go out.either that or sayīs i have to stop the treatment which is also not really an option.i also have to start doing physio therapy with him again at least 4 times aday.,basically it is like hitting him on his back in a certain place with certain force and doing like a vibring massage on his chest at the front to help clear his lungs.when you think i have the other two children to deal with with there therapies as well and having the dr coming everyday to check on ayman you can imagine the stress.but it is better than ayman being in hospital i suppose though it still might come to that if his fever doesnīt come down.did i mention he had fever as well?and for the first time he has come in an all over rash,the dr sayīs it is through the fever.well the reason i am writting this blog when you think i have so little time is to explain why i wont be on the computer much in the next few dayīs,or responding to my friends feeds like i usually do or on the challange threads for awhile.hope someone who reads this will pass this on tho the challange threads as i donīt have ther time to go to them.also to try to make myself accountable and not to over eat or eat junk just to give me the feeling of having my much needed energy that i need.this time i am going to try my best not to over eat.i have just got below my 250lbs mark again and it took me so long last time after i over ate in this samer situation that i donīt want to go through that again.i have to try to be strong,to take care of what i eat.find the time to orginise and cook healthily,not just for me but for my whole family.some times the time to cook just isnīt there with all the medical needs.wish me luck that this time i can break my habbit of emotional eating which seems to go hand in hand with aymanīs full programme as the dr sayīs.thanks for taking the time to listen to my ramblings.
Saturday, March 06, 2010
when you read the title you would think i was doing good but when you think i hit this goal on my birthday last year(1st of may)i havenīt really come far or have i?i think yes in one sense i have ,i put weight back on but this time it hasnīt stayed around permantly it is off again and hopefully this time for good.i didnīt let the fact that i had put weight back on be the reason to keep on going and put even more weight on than before i am still down on my heaviest weight,i am still down on my start weight here at sp and i will be down to my goal weight.i donīt know when but i will get there.hopefully sooner than later but i will even take later as long as i get there.so hereīs to the next milestone and i know it wont be getting under the 250lbs mark again as this time i am not going back over that weight to get under it again.thanks for listening.
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