ENUFF81020   223,356
SparkPoints
200,000-249,999 SparkPoints
 
 
ENUFF81020's Recent Blog Entries

Wednesday, 3/23 My health and fitness

Wednesday, March 23, 2011

emoticon emoticon emoticon emoticon emoticon emoticon emoticon
Hi all,

After a pretty awful night for back pain, something happened and I slept in--I slept until 9AM. Oh my, what an odd night. The down side is that I was incoherent as my kids got ready for school and didn't get to check to make sure Micah had his homework and was not wearing the hoodie that he loves so much (He likes it because he can be "invisible" at school--but the school staff consider it wrong and disrespectful. I sure wish some people would lament the fact that he has a need to be invisible at school as much as I do.) I also missed exactly how late Marissa will be tonight. Wednesday is her usual late, late night with Jazz band and madrigals after the musical rehearsal. Oh my, she can always call. emoticon emoticon
emoticon emoticon emoticon emoticon emoticon emoticon emoticon
Yesterday at physical therapy, my therapist was pretty sure that we can close this part of my rehab. She checked my shoulder in every possible way and believes that the current soreness is due to my over exercising. (oops) She wants me to cut back the size of the weights from 4 and 2 pounds to 2 and 1 pound. She gave me some additional range of motion work that will help me with the higher positions. Anyway, I have an appointment tomorrow and she will give me a few other new things and then I am taking a week off from seeing her. She will see me the following week and if I am maintaining or improving, that will end this work. emoticon emoticonI am good with this because it opens the door for what I believe I need next.
emoticon emoticon emoticon emoticon emoticon emoticon emoticon
On Friday, I am seeing my regular back doc. neurosurgeon for a report on my bone scan. I am not expecting anything from this guy because that is what he has been all about for a while. However, that will open the door for me to get another doc to start me on physical therapy for my back. As much as I love the pool and am faithful to it, I think I need to do some work on land without the soothing support of the water. I have faithfully exercised my body and my back in the water daily for over a year with very few misses--and those have all been for big life issues like when Megan was in the hospital. I need more and I need an expert to help me to determine what it is. emoticonI want to walk unassisted and to do that, I need to strengthen my back and straighten my posture.
emoticon emoticon emoticon emoticon emoticon emoticon emoticon
I have added bike riding to my workout each day. I am not great at it or fast--my right knee doesn't bend completely or straighten completely after my two rounds with RSD around two replacement surgeries. Geesh, come to think of it, I have come a long way, lol.
emoticon emoticon emoticon emoticon emoticon emoticon emoticon
I have about 4-5 days of my trial of Savella to determine if it is going to help my fibromyalgia. I am not sure yet, but my rheumy told me that I would know by the end of the two weeks. I think it helps me to sleep longer which is a real plus. anyone who doesn't have a problem getting uninterrupted sleep doesn't know what a real gift that is. I sleep in weird little chunks, but I always have some fatigue going on. It was nice to have this day off of work to catch up on the sleep I couldn't get during the night. emoticon
emoticon emoticon emoticon emoticon emoticon emoticon emoticon
I am trying to stir the pot and take care of me in the midst of all of the other pots I am stirring. Being the mother of 8 with a job like teaching sure uses my time in interesting ways. Like I often tell my kids, I use my time for the thing which needs me the most at that particular time. My spring break has been about Micah and my health. I have a couple days left to tie up the loose ends and to work on my National Boards renewal. I did a tiny bit of that today since I slept through my scheduled work time.
emoticon emoticon emoticon emoticon emoticon emoticon emoticon
Anyway, I'm thinking spring and that's a good thing. (I did hear we are supposed to get snow this weekend, but I believe they are wrong as usual, lol!!)
Gentle hugs,
Sylvia
emoticon emoticon emoticon emoticon emoticon emoticon emoticon

  
  Member Comments About This Blog Post:

JHADZHIA 3/24/2011 1:23AM

    Hope that medicine does something for the fibro and that easing your weights and the new therapy exercises helps with the pain..
I can't imagine uninterrupted sleep -good luck with getting more..
{{{gentle hugs}}}
Linda

Report Inappropriate Comment
MORTICIAADDAMS 3/23/2011 10:21PM

    I hope you get some relief from the pain soon.

Report Inappropriate Comment


Monday, 3/21 The big school meeting

Tuesday, March 22, 2011

Hi Everyone,

I have been so stressed over the situation at Micah's school and all of the problems. They hadn't shared the fact that he had several referrals for behavior last week. Micah had told me about one of them, but they are now sending him to the office if he doesn't get started on his work when he is told. He doesn't even have a chance to be successful anymore. I had a couple of less than pleasant emails from the teacher who has been doing the most of these at the end of last week when Micah talked to me about the situation.

I tried to be proactive with this. I apologized to the principal for pouring out my heart and laying blame on the school, not because I believed I was wrong but because I knew that I couldn't resolve the problem if we had a hostile relationship. I dropped off a bunch of good information on what Aspergers is, ways to work with kids with Aspergers, the hidden curriculum that is a problem for kids, middle school aged adolescents and Aspergers, and so on. I left them a clean set and a set that I highlighted key ideas in, so they would be sure to see the parts that were important. I also bit the bullet and let them postpone this very important meeting so that they could get people there. I even agreed to them inviting a representative from our local special education district (and I didn't fuss when they had her observing my son without my permission.)

I started the meeting by letting them know that I didn't want to spend time talking about what has happened in the past, but I wanted to focus on what my son needs in order to have a successful education in a caring and nurturing environment. I added that I needed to know that he wasn't being disciplined for his disability because that is inappropriate in every way. My husband took time of of work to be there to support me in this because, like I said, I have been a nervous wreck about this. One of the most interesting things that happened is that the lady from the special education agency was on the same page as me, and she ended up being the advocate I have been trying to get for my son.

For those of you who are educators and for those of you who have any concept of right and wrong, I think you might be surprised at what I fought to get for my son, but I am feeling like things are going to be better. First of all, the staff is going to be given some training on what Aspergers is and they are going to learn that they need to pay attention to Micah and give him praise for the things he is doing right. When he has a problem in class, the teachers are to talk with him to find out what the problem might be and if he cannot verbalize what he needs, they are to allow him the opportunity to write it down. If he cannot do this, he is to be given a change of environment, like a walk to the library and back and then a chance to try again. If that doesn't work, he is going to spend time with the counselor and if that doesn't resolve the problem, he will call his father and talk to him.

The teachers are going to chart if he has had a good class period and maintained control over his verbalizations and personal space. We will reward him for his good days. They are going to explain his condition to his classmates and request their help with not laughing and encouraging him to make noises in class. If he is successful with their help, we are going to give a class pizza party or whatever to reward all of them.

The counselor is going to work with him on learning how to talk to the adults when he needs help--like when the kid was calling him names and he was so frustrated he couldn't do his work and he got into trouble. She is also going to work with him on social stories to discuss how to handle situations that come up in school. Finally, the teachers are going to sit down with him the last 5 minutes of his day and make sure that the has his planner and homework in his bookbag to bring home so I can make sure he doesn't get behind.

We were there for almost 2 hours and as we walked out, Micah came out of the nurse's office. He was clutching at his stomach and he described a headache and feeling all jumbled up on his insides. It sure sounded like an anxiety attack to me. We brought him home and I had him call his psychologist. He talked to her and she talked to me and told me that she thought it was anxiety. She reminded him of breathing exercises she has taught him and asked him to either write about what was on his mind or draw some pictures of it. She suggested that I let him know all of the ways we were going to resolve the problems and to give him positives. I did my best with all of that and we discussed his condition.

It sure is a lot for a 13 year old to deal with and I will stay angry at the school, but Micah wants to stay at the school he knows and with the friends he trusts. I think these things will work if they play nice and I think I did a good job of not letting them steer things off track and be dishonest by omission or perseverance of their own.

It isn't easy having a child with special needs in the first place. The rest of the world can make it easier or harder, depending on their attitude. I sure hope I have this situation under control. I have requested that it all be in place by the first day they come back after break which is April 4. They owe him that much.

The rest of my break is for my writing and my medical appointments. I had a good weight loss this week and I have added in some cycling to my exercise routine. I am doing the best I can for myself as well.

Happy spring everyone,
Sylvia

  
  Member Comments About This Blog Post:

KITTY_WHO 3/24/2011 10:19AM

    Oh I hope the school really do cooperate. They really need to educate themselves. Good for you for helping them do that, your son has a right to an education the same as any other child. My boy has been in a similar situation regarding discipline for his disability and so I know how it feels to know that is going on. Best of luck. KW

Report Inappropriate Comment
GREENMAMA10 3/23/2011 5:16PM

    So glad things are starting to look up! Hoping everything works out! :o) emoticon

Report Inappropriate Comment
MTNGRL 3/23/2011 4:17PM

    What a blessing you are to Micah and all your children. I know this has been a real struggle for you and am so proud of your pro active stance for the good of your child. Plus I am thrilled that your DH was by your side during the meeting.

Comment edited on: 3/23/2011 4:23:42 PM

Report Inappropriate Comment
MORTICIAADDAMS 3/23/2011 1:59PM

    I'm sure that due to your being proactive things will change for the better for Micah. He is fortunate to have you as his advocate.

Report Inappropriate Comment
LESLIES537 3/22/2011 3:51PM

    Your son is lucky to have you to advocate for him. It's surprising that you had to educate the educators on asperger's. I commend you for doing so and for sticking up for your son and for what is right! I have the utmost respect for you! Thank you for sharing your story and inspiring others along the way. emoticon

Report Inappropriate Comment
DARBOYMOM 3/22/2011 1:54PM

    Sylvia, I read your blog after you posted on the Dealing with Asperger's team. What a wonderful job you are doing in teaching the school about your son's challenges -- but it's really a shame that you need to do that. Do you have an IEP for him? It sure sounds like what you are doing would be a great start to a formal IEP plan. We have one for my son, and I'm very happy with it. I'm not sure how the laws are from state to state, but I think there are legal protections in most states our kids.

Good luck with your plans and your son's school. I certainly hope they follow through as promised!

Report Inappropriate Comment
JHADZHIA 3/22/2011 1:44PM

    I am so glad you are opening that school's eyes and that you now have an advocate for him. I hope now that Micah will get the education and tolerance he deserves. Its nice to see you will now have other people who are dealing with this same problem to talk to.
Now that this anxiety is over and done to your satisfaction, do relax and enjoy your day and take extra time at the pool for yourself and let the stress pore out of you.
{{{gentle hugs}}}
Linda

Report Inappropriate Comment
JRSWHIMSY 3/22/2011 1:30PM

    I know I've been out of the loop. Micah is so fortunate to have a good family on his side. I wish you all the best!

Report Inappropriate Comment
BLESSED2BEME 3/22/2011 8:48AM

    I see lots of hope now and that is so good. Being a child's advocate is so important but can also drain the life out of the adult. Please take good care of yourself! I will continue to pray for this situation and your son but I see the Lord working already and prayers being answered. I'm sure the road will still be bumpy but with time, patience and learning on the school's part, I bet you are headed in a very good direction!



Report Inappropriate Comment
EMRANA 3/22/2011 8:43AM

  Wow, you may have been nervous about the meeting, but I don't think you could have made it better than you did! You were prepared, well spoken, and strong on behalf of Micah. I'm glad there is a lot of positive coming out of it, and that the school is better aware of what he needs. Good for you!

Report Inappropriate Comment
MARTHAWILL 3/22/2011 7:41AM

    Wow Sylvia. Good for you for standing up for your son and his best interests. It is obvious from your writing that you have a good handle on your son's needs and are able to articulate them very well. The school obviously is lacking in sufficient education and knowledge in this area. I'm sure you will make a difference for others who may follow.

Report Inappropriate Comment
JENQUEENOFCHAOS 3/22/2011 2:01AM

    No wonder you have been a nervous wreck!
It can be so hard dealing with schools and our children's special needs - but it sounds like you did a great job advocating for your son.

Report Inappropriate Comment
MKPRINCESS007 3/22/2011 12:30AM

    Hey there......just added you as a sparkfriend, and came back to comment on your blog. Let me begin by saying I have an 11 year old son with Aspergers, and I so I know first hand of the challenges you have been facing.

You are a wonderful advocate for him! It sounds like you are doing so much, but of course, it is concerning that you have to teach the school what Aspergers is, and the best interventions to ensure success. I would love to talk with you further! Please friend me, and we can keep in touch. There are two teams that you might be interested in too, check out my page and you will see them.....one on Aspergers and one on ASD.

Talk soon!

Report Inappropriate Comment


Sunday, 3/20 The rest of spring break

Monday, March 21, 2011

Hi all,

As you all know, I love Sundays. This was an awesome one with our temperatures getting up to 70 for the second time now. We had an awesome church service with the theme being "journeys." We are all on a journey and we take so many throughout our lives--it gave me a lot to consider about myself, my walk with God, my family, being a teacher, and what I value in life. After we got home and had lunch, we zipped off to the fitness center because my daughter had a job interview for the local waterpark for the summer there. I added in some bike riding to my daily routine before I did my workout in the pool. I have made a thoughtful new friend who is quite a talker. Part of my exercises are stationary and having someone to chat with is okay. He suggested that I take my back issues to Mayo in Rochester and that stays a possibility on my mind. He thought that I had polio because of my walker, but no, my walker is just to support me because of the problems of my back. I am up to about 16 steps before the pain makes me need support these days, far too few for someone as active as I am.

Monday is the big meeting with my son's school. My husband is taking off work to go with me and that will at least make me feel a bit less alone. My son had trouble with a teacher again on Thursday that resulted in another office referral. She didn't bother to find out that another kid had been bullying him and tried to deny it happened because that kid's para didn't hear it. Micah told me that that person wasn't there when it started. The name calling (fat, dumb, stinky) upset Micah so much that he couldn't get started on his work and she didn't bother to find out why. She gave him one chance and he told me he was trying but she told him he had to go to the office--he didn't do that fast enough to suit her, so she wrote that off as more noncompliance. Micah is a slow moving guy and his condition makes things like schedule changes and disruptions (like the name calling) upset his functioning. It may seem a bit silly to some, but it is typical of kids with Aspergers and autism. She has to do better and I have to insist or find help to make it happen.

The rest of the week is for my writing and my medical appointments. This culminates with the appointment with my pain doc on Friday. Unless this guy behaves himself in a lot different way, it will be the last time I ever see him. I cannot take his nonchalant manner and the way he zooms out of the room after making me wait over an hour to see him. I need a non-surgical intervention for my back and he doesn't seem interested in helping me. I think there is some solution for me and I intend to find it and do the work I need to be better and to live my life the way it is intended--maybe even without my walker.

I hope that spring is good to all of you--I'm looking forward to seeing green buds on trees show up after all of the snow of the season. Have a great week!!

Gentle hugs,
Sylvia

  
  Member Comments About This Blog Post:

MORTICIAADDAMS 3/23/2011 2:11PM

    I like schools who have a zero tolerance on bullying. It's a big problem.

Report Inappropriate Comment
JHADZHIA 3/21/2011 1:22AM

    So sorry about your son's continued problem with insensitive teachers :((. I hope you can get it clarified for this school yet again.. It sounds like you need a new pain Dr. to me. Maybe its high time you go see the best in the Mayo clinic. You are not getting answers or solutions locally..
Glad your weather is so nice. Hope it continues.
Have a good week!
{{{gentle hugs}}}
Linda

Report Inappropriate Comment


Saturday, 3/19 Quiet day

Saturday, March 19, 2011

Hi everyone,

It has been a quieter day than most for me. I had a bout of rather unpleasant nausea again today and I am convinced that this is a result of my new medication. (The package lists nausea as a side effect for one. I have had it 3 times in the morning since I started taking it and the only other possible cause could be a "sweet" breakfast. I had a slim fast shake two of the days and today I had a cup of milk, 1/2 banana, and a Luna bar. Today's breakfast is one that I have enjoyed many days though, so I don't think it was the sweet content of what I ate that made me feel so bad.) I will have to hold out and see what happens this coming week as I get used to the medication. I also need to see if this medication is helpful in reducing my fibromyalgia discomfort.

That beings another thing to mind for today. I ran a few errands and went to Micah's bowling banquet. I was too sick to partake in any food and left Micah and Miles to enjoy that while I went to lie down in the car. I came home and did a few chores before we went to the fitness center. It took a bit for me to "get into" my workout at the pool. I continue to be sore in my shoulder and I was also sore in my arm and wrist when I left. This arthritis business can be disconcerting when I feel pain that I didn't have earlier. I continue to deal with extra pain in my back and am looking forward to getting somebody else to help me to help myself to be better.

I took a nap again today after we got home. That's two in a week for me and I appreciate getting a few extra moments of sleep in. I am constantly tired because of the limited hours of connected sleep I get. I wake up during the night most nights and I often cannot get back to sleep due to pain in something. Any extra sleep that I can get is a gift as far as I am concerned.

I've been super busy this first week of break, but it has been a welcome change of pace for me. This coming week is all about my doctor appointments, the appointment at our youngest son's school on Monday and my writing project for National Boards. I also have a birthday party to plan for Saturday--it's hard to believe that Matthew, our oldest, will be 29. It has been a while since he has had more than a family gathering for his birthday and I am thinking this is a special day for him.

It has been a quiet day for me and I am giving thanks for this. I hope that you all are having a fun and quiet weekend as well.

Gentle hugs,
Sylvia

  
  Member Comments About This Blog Post:

MORTICIAADDAMS 3/20/2011 10:40PM

    I hope you feel better soon, Sylvia!!

Report Inappropriate Comment
LOULOUBELLE2 3/20/2011 2:49PM

    So glad you got a little extra emoticon But am not happy about the nausea.....keep track of that in case it is the meds. Let your Doc know if you prove it is.
Your sleep patterns are like mine, tough to feel rested with just a couple hours at a time for sleep. Take those naps whenever you can.
emoticonand emoticonto you from me.
Lou

Report Inappropriate Comment
JHADZHIA 3/20/2011 12:58AM

    So sorry to hear you are in extra pain and sleep is so horrible. I will always take the time for a nap when I am tired and have the time, but its not easy here where I have no place to myself..Its also too bright, even on cloudy days. I need it dark, quiet and cool to sleep. That is not possible with my Mom's TV always on. She used to read, but since I have been here it has been TV constantly in the room that was supposed to be mine.
Its nice to hear you had a more quiet day..
I sure hope your new Dr.'s can do something for your back..
Have a restful Sunday..
{{{gentle hugs}}}
Linda

Report Inappropriate Comment


Friday, 3/18 Compliments!!

Saturday, March 19, 2011

Hi everybody,

It has been quite a week. I have seen two of my doctors for regular 6 month check ups, another for the first time in two months and a fourth who I see fairly frequently. All of them mentioned my weight loss this week and that was pretty moving. My rheumy, on Monday, added up my weight loss over the past year and asked me "Are you doing this on purpose or is something else going on." When I told him that it was very intentional, he told me that it was very good for me and that it was an important thing for my health.

On Tuesday, my ortho commented that I was "looking very good" and that he was "so happy for me and my weight loss." He told me that every time he sees me, I just "look better and better." He told me that he was proud of my success. On Wednesday, I saw my psychologist and he asked me "How are things going for you with all of the weight loss?" We talked about the ways it has changed my life--and not surprisingly, all of those things have been positive!

Today, I saw my pain management doc for my regular 6 month check up. He told me that I had "really done a lot of good for myself with all of the weight that I had lost." He said that it was "better for me than anything any of the doctors could do" and that he was "proud of me."

It really means a lot to hear those things. When I first lost weight, I heard a lot of compliments, but those have tapered off considerably. Compliments are motivating and really push me to another level. These compliments meant more than some because they all came from people who are helping me to feel better. They all recognized that I put some work into the changes I have gone through and that I am all the better for what I have accomplished. I wasn't expecting this from all of my appointments on the first week of spring break, but I am sure glad that I received the compliments.

I am even more glad that I deserved them.

Gentle hugs,
Sylvia

  
  Member Comments About This Blog Post:

JHADZHIA 3/20/2011 1:03AM

    You sure do deserve them!! You have worked so very hard for them, and coming from health professionals who know what you have to suffer through, that is very high praise..
I really and truly don't know how you do it with your full time job and a large family. You are simply amazing!!
emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon

Report Inappropriate Comment
MORTICIAADDAMS 3/19/2011 11:39PM

    You do look amazing, Sylvia. You are an amazing woman on every level now.

Report Inappropriate Comment
EMRANA 3/19/2011 4:44PM

  You definitely deserve all the compliments! I'm always in awe of your continued success in the midst of your very busy life.


Report Inappropriate Comment
FERRETLOVER1 3/19/2011 7:36AM

    You deserve every single compliment you get - always remember you are a great person and you do NOT need others to validate that!!

That being said - emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon

Report Inappropriate Comment


First Page  1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 61 62 63 64 65 66 67 68 69 70 71 72 73 74 75 76 77 78 79 80 81 82 83 84 85 86 87 88 89 90 91 92 93 94 95 96 97 98 99 100 101 102 103 104 105 106 107 108 109 110 111 112 113 114 115 116 117 118 119 120 121 Last Page