Friday, September 20, 2013
From Fun: Carry On
"If you're lost and alone
Or you're sinking like a stone
May your past be the sound
Of your feet upon the ground
It's marching music: bit.ly/FUNcarryon for a mellow march/walk. I misplaced my iTouch and I miss my walking tunes.
We got Dd moved into her new apt. and with luck and a prayer she will do fine. That's what I said the first day. Dh and I awakened the following morning to news that there was an apt. shooting her first night at about exactly the time she drove into the complex after work. She never heard or saw a thing! The idea was she could afford this apt. after we stopped floating the rent while she was in school (trying to get her to finish her last year). *sigh* I'm not going to comment further, other than she's outta there asap.
Monday, July 15, 2013
old pic, I've let my hair grow so I can pony-tail it for walking in the heat.
I've been a ghost, so sorry, but it was necessary for me to take a break this last year or so. I have maintained my 40 lb gain because I've not been eating low-histamine (more like potato chips, Starburst, and even ice-cream - I should share THOSE labs). The doc had me change thyroid dose from 150mcg to 50mcg and I'm still astounded at how awful I felt. In my heart I knew this was wrong and allowed it because he was the smart one. I guess he thought by doubling my Cytomel from 5mcg to 10mcg that it was alright, but it wasn't. It has taken 3 more months out of my life. I think my thyroid's been hard to manage because of my stress, well, and my freakingly awful DIE-T, right? What am I feeding the poor thing?! I'm back up to 100mcg Synthroid and 10mcg Cytomel and thyroid labs are okay now. I was so depressed. Anyway, that's just the last three months. If you know me, you know I've tested a few other things since I've been on hiatus.
I got my left kidney (CT) rescanned and the cyst looks stable (though it's unusual to feel a cyst. A lot of people have multiple cysts and don't know until they discover it during an unrelated ultrasound), which is good news.
I sent my bacterial stool sample to The American Gut Project, but won't get results for 6-7 mos. I think it only plots your bacterial content in relation to others on some type of bacterial colony-type map so I don't even think the results are going to be that interesting. What might be of interest is that I'd been eating shabbily, so comparing future tests (I have 3 more kits) with what my diet was MIGHT be interesting - or will it change much at all? I've read it's difficult to change what you're born with; then to be taking antibiotics, drink alcohol, sugar, hormoned meats and dairy, yada? Oy.
I will post separately about my histamine/DAO enzyme test, which I was lucky enough to find a lab in the good ole USA. I'd searched last year to no avail; most labs being in the EU or Australia. It confirmed my suspicion and experience that I am indeed low in the enzyme to break down histamine.
It has taken me a year to get carpet in the master and stairs. We kept Dd home to save money and it's time for her to move out, so we're looking for a place for her. Her car needs $4k in transmission repair - it's an old Acura and has 180k miles, but the thing will cost less to repair than to buy new/used, so repair it is! After she's out, we'll carpet upstairs. I got sheer curtains made for the master and front door windows. I boxed up a lot of my books and made new files in the office.
The house needed a new roof due to hail storm in April, and we just got that finished. Grateful to have paid extra so our homeowner's deductible was less. Need to find painter to repair/paint the exterior windows and shutters.
I tested the well water and we tested positive for choliform bacteria. Just what someone who's trying to fix their leaky gut doesn't want to hear. DH prepped the well w/Clorox and ran water into the pipes and let it stand to disinfect. Now I understand what the leetle teeny tiny bugs were in the powder bath drain were from; it's a clue - doy ... :P
I'm still in emotional turmoil and not exercising much. I'm in pain even with low-histamine diet right now because of stress. I have anxiety. I will make a future entry regarding my new supplement regime soon also. I just started. It doesn't help that this spring has been so wet and cloudy. Yuck. I sure appreciate the sun, always have.
My heart has palpitations today, anxietyish stuff. I think it's because I should be doing something else and I'm on the computer - lol. Really. Anyway, I decided to open up my blog once again because I'd left a link to an entry for fibro-sufferers and what they should/n't eat. They can't read it, and it's not easily found on the net anymore. I want to help.
I started a team for low-histamine/biogenic amines. I should post an entry for that, too. I don't know if I have the time to devote to leading though. I like to pop in here and catch up reading on my friends once in a while. You know who you are. xo
Friday, March 01, 2013
Jenny on left, Musti on right. Musti would never stay still for a picture, so this is a pretty good shot of the old man. :)
Our black lab, Musti, was put down yesterday. He was my other lab, Jenny's, puppy.
His hind legs could not sustain him any longer. He would whine and/or bark from his comfy pillows in my bedroom I think for company or to tell me what, I don't know. After 5 minutes or more he'd amble out on those legs which have traveled far and wide and served him well. He was always under my mom's feet in the kitchen, and she couldn't afford a spill, what with her having a club foot and replaced hip and knee; so I took him to ease her burden. We had him about four years. He was always under our feet, too. He liked to be where the action was. My nephew, who is a rock climber, would take him rock climbing - you should have seen him in his gear, LOL. JK. But really, Musti would be on the ground as my neph would climb higher and higher, and Musti'd be barking, like, "Get back down here it's dangerous up there!" LOL.
Sunday, February 24, 2013
After I followed the scan machine's instructions to hold my breath, then breathe, etc., the tech said over the intercom that I needed to lower my pants as she didn't know they had metal grommets which interferes with the end product. I do so and therefore have to be rescanned; ie, double radiation, which ticked me OFF! online.wsj.com/article/SB1260
As usual, I asked for copies of my medical results and guess which pics were on the disk? Yeah. The ones with my pants up, so there were metal grommet buttons in the pics. *sigh* BTW, I don't know how a radiologist reads those as they're French to me. I couldn't see my tumor at all.
CT Scan 2-14-13 results: 1.7cm area of fluid attentuation corresponding with anechoic cyst found on previous ultrasound that either represents dilated calyx or parapelvic cyst. Need to get followup ultrasound in a few months; though it's LIKELY NOT cancer! After doc told me I had solid mass tumor after first ultrasound, I simply wanted to get biopsy, to skip the CT scan. I'm glad there's medical protocol and I heeded it.
I have found the kidney to hurt one day or couple of days, then not another. I will try to find a correlation, but I can't help but think this is the beginning of something; though what, I don't know at this juncture.
Thursday, February 14, 2013
I had the CT scan this morning after many phone calls regarding the dye. I got what I'm calling a "dry" scan with no dye. I'd reacted to the Ultravist contrast dye a couple of years ago when I was tested for lung cancer (um, turned out to be GERD) via CT scan. I had an itchy throat which was closing up, heart palpitations/racing, anxiety, dizziness (I've since come to learn that all this is due to histamine intolerance). I was given IV Benadryl (an anti-histamine) and not allowed to drive home by myself. Dh picked me up. It's now forever possible to have a bigger anaphylactic response, ie I could die. That would be a Royal Bummer. The tech said I was therefore likely allergic to iodine. I'm so fuzzy about understanding iodine and my Hashimoto's and being allergic to it.
I asked the tech if I needed to take off any metals (last time I had to take off my bra which was embarrassing) and she said no because she wasn't going to scan that high. I took off my necklace anyway. She scanned w/my pants on and it turns out my pants had metal grommets which interfered w/the picture: I had to rescan. If you know me, I try to minimize my exposure to radiation and this was UPSETTING. grr. (And you could see where I'd have worn the necklace.)
Results early next week.
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