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Oh Candida

Tuesday, April 26, 2011

emoticon ...our home and native land. emoticon

Unfortunately, this native land is my gut. When I had my Genova food allergy testing last year, it suggested that I had low candida symptoms. Naturopathic MD said to disregard, that everyone does (? I think she inferred as much?). But you know me, I kept it in the back of my mind.

You know you have an addiction to a food if you don't want to give it up. I have not wanted to give up fruit for a couple of years now. I am desperate to move on, and will now try. After my next meal - LOL. I love mangos. *sigh* - HIGH sugar fruit! I love bananas. I love berries. I don't love apples. You can have 'em. I love watermelon.
emoticon emoticon emoticon emoticon emoticon

emoticon emoticon DH is in town, so we're going out tonight for our emoticon. I got my nails done which makes me feel good; the new shellac nail paint that lasts up to 3 wks (it's likey toxic - boo). The nail technician has fibro, too, and psoriatic arthritis. When I asked her what she was doing, she went on about how grateful she was for Lyrica. She can stand again. She asked me what I'm doing, and she got an earful of diet recommendations and gut/bacteria talk. By the end of the appt. she pretty much said she wasn't gonna be told what to eat, that she LOVES her diet Dr. Pepper. She's a "trained" nurse. In essense, she didn't believe me! It always fascinates me, people and their unhealthy skepticism. Drugs affect your gut terrain/bacteria balance. But, I'm not wrapped up in her life. I can't sway my own family, sooo.... oh well. Maybe when the Lyrica stops working she'll remember something about diet. I left her with the 7 Foods to Avoid for Fibro link.

emoticonAnd now I must face my own addiction to fruit sugar. I don't want to give them up. I think if I look at it as a temporary situation, it'll be easier (cause it WILL be temporary darn it). I have to also forego balsamic vinegar (LOVE LOVE it), and vinegars in general (maybe not apple cider vinegar I've read). No fermented foods on candida diets. I'll post more about it when I actually start. I don't want to change my diet until after testing.

I am in the process of getting Cyrex Labs' Intestinal Permeability Test kit to compare to my previous Genova urine lactulose-mannitol tests, and looking into getting a Metametrix stool test kit for candida ( bit.ly/metametrixstool ).

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Articles to ponder re: candida (I do not advocate for any Rx on these sites if there are some. I haven't tried anything yet, so cannot do so):

candida and celiac: nyti.ms/afD5Hb
celiac disease fibromyalgia candida hashimoto's: bit.ly/fcJxwV
Denver Naturopathic: bit.ly/igMY2S
candida fibromyalgia: bit.ly/e3HqE5
good candida article: bit.ly/eJOWyv
healing naturally by bee: bit.ly/fRaJDU (oh look, gluten-free is on the candida diet - it wasn't when I started gf diet and used to share this link!)
bee's yahoo group: health.groups.yahoo.com/group
/candidasupport/

article re: failsafe diet (on my SP page), or anti-chemical diet instead of anti-candida: autoimmunethyroid.wordpress.c
om/tag/candida/


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emoticonMy thyroid has had me in the dumpidty dumps, so I've not been very communicative. I am slowly coming out of it. I joggled the other day a heart-pounding 12 min mile for I don't know how long, about 15 mins. on the treadmill. I remember when I was felt so proud of bettering my time from an 18 min mile to a 17. I can joggle a bit at a 13-14 min mile on the road. The treadmill is easier.

emoticonI also started some upper body weight lifting. I felt great for two days, then bam, the soreness set in from both the run and weights. It seems to linger longer because of the fibro, but it didn't hit as soon this time. I'm unsure that's progress at this point, just making note of it.

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emoticonI must go kiss on my man while I have him to kiss. Don't take your loved ones for granted.
emoticonKisses to you all, too, because I don't take you for granted, either.

  
  Member Comments About This Blog Post:

2CATS2LOVE1 5/7/2011 3:17PM

    I read an article once on candida that I found at a health food store. Many foods cause it; like pizza, ice cream, sugar, etc. as you have mentioned. Dr Atkins in his book "New Diet Revolution" devotes an entire chapter on yeast infections. It's amazing. I think I will reread it today. I think age has a lot to do w/ this because when younger I could eat ANYTHING and not feel gut-wretched. Lol. Now, almost anything upsets my gut too. I eat fruits in moderation. I don't touch orange juice or ANY juice for that matter or my tummy starts gurgling. I feel best doing low carb but I don't always do what is best. Great going on the exercise.

P.S. "HAPPY 30th ANNIVERSARY!!
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Comment edited on: 5/7/2011 3:20:12 PM

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BECCABOO127 5/2/2011 3:25AM

    I like your blog. You provide us with some really good links. I am going to a doc to try to figure out all this pain and fatigue I have so I am sure the links will help me, too. Thanks for sharing!

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GIRLINBRAZIL 4/29/2011 12:07PM

    emoticon

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MORTICIAADDAMS 4/27/2011 7:36PM

    Oh Candida!!! OMG!!! ROFLMBO!! Poor Canada. You have certainly perverted the place with one nasty ailment.

I'm not sure that there is any fruit I don't like. I gave up fruit for 2 weeks once when I went on South Beach. Life was dismal. I thought I was going to lose my mind or die shortly, like any self-respecting, extremely depressed fruit fly. Left with little but meat and low glycemic veggies to eat I quickly ran out of much reason to eat because I completely lost my appetite. Toward the end I just sat around waiting in a coma-like vegetative state for the 2 weeks to end.

At this point I'm envisioning you looking like a skeletal remains, sitting at a table in front of a plate with a single dry certified organic lettuce leaf on it. What are you going to eat, GF?

I lived with a friend once who went on some diet that gave you a business card that listed everything you were allowed to eat on it on one side. There was ample room left on it for blood, sweat, and tears too. I put plenty on it. You couldn't even have a radish. I'm mean Jeezus H. Christ. A radish has practically no calories. You could have weird crap like rabbit. Like everyone has one of those laying around their condo. Lunch and supper was the same every friggin day - a dry chicken breast and lettuce with onions and lemon juice. 3/4s of the stuff was junk a person would never eat or couldn't afford to eat like lobster. Lobster is another thing not plentiful in condos in the Midwest area. And you were forced to eat an apple every day. I got in trouble as my apples were piling up. After about a week I found her in the closet eating a pound bag of M&Ms while I had lost 20 pounds. My mom showed up with spaghetti and meatballs to tell her to shove her friggin diet. She barely made it in time.

Have a great anniversary. I imagine you and hubby will not be eating so I guess that leaves the horizontal bunny hop. Have fun and don't break anything.

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GRAMMACATHY 4/27/2011 3:14PM

    Your blog was wonderful to read. Full of love and insight.

I don't know much about candida, but I do know I feel a hundred times better if I eat all natural foods, eliminate the refined sugar and wheat and do eat a little fresh fruit every day.

I am gardening and getting chickens again this year so I know what is put in and on my food.

Healing your body naturally will certainly make a big difference in the long run. My parents kept adjusting their diets and they lived into their 90s. Glad you did not listen to your nail technician.

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OUTOFIDEAS 4/27/2011 1:54PM

    I'm looking forward to checking out some of these links together with my sister. She has begun to experience Fibro and CFIDS symptoms along with her Hashimoto's Thyroid condition...Since we live together, we now have each other to do mutual research and support. Thanks for your contributions once again, my friend!

Comment edited on: 4/27/2011 1:56:03 PM

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ANALAA 4/27/2011 12:07PM

    emoticon Happy Anniversary!!

Fruit is hard, love balsamic too :(
I believe one thing about Candida is that once you do get it under control (balance restored), you can start slowly adding some of the foods back in?

Great treadmill time!

I understand fully the medication issue, I think the doctor thinks I like inflicting pain upon myself by my refusal to take the meds.
Same doctor 'mentality' that had me do extra testing (and painful procedures) because I "didn't want Celiacs... diet is too hard to follow... there is no (pill) to help" {{sigh}} No there is not pill thankfully, just a healthy whole food diet. Think I will stick with that choice.

Weight lifting is painful at first - but the long term benefit is great (at least that is what I am trying to convince myself of ) emoticon

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CHRISTINEM777 4/27/2011 11:45AM

    Hi Dot,
I've been following your blog as my friend sounds just like you, she just had a food allergy test and came back neg for everything. I told her it doesn't mean anything, she could just be sensitive...
anyway, was wonder if you've ever tried taking digestive enzymes? there's a couple of very informative sites out there for more info (not my sites, just really good stuff).
enzymedica.com/faq.php & enzymestuff.com

take care!
Christine

Comment edited on: 4/27/2011 11:47:24 AM

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1CRAZYDOG 4/27/2011 10:04AM

    *****SIGH****** I feel your pain with the fruit. I have to be careful of it, too.

As for your nail tech . . . it's the text book scenario of the "You can lead a horse to water but you can't make it drink." I am a nurse, too, and her attitude appals me! Who wants to live feeling lousey when there is at least that outside chance that dietary adjustment(s) will help? UGH!

Wow, I don't know what it is with the weather and my thyroid as well, but you're not the only one who has been in the dumps! I think my system in general just gets "out of whack" with major changes in schedule and that has CERTAINLY been the case in the last 2 weeks in this house. But now it's more "normal" and I feel better.

Thanks for your info and best of luck on adjusting the fruit intake. It's hard.

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SPARKLIT 4/27/2011 3:00AM

  A very very happy anniversary to you.

I love fruit too but now restrict it to 1-2 servings a week.

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CRAZYDOGLADYBO 4/26/2011 11:58PM

    I too have started my upper body exercises!

emoticon

I don't think I would be able to give up my fruits. Psst, I can take your apples!

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CINDYTW 4/26/2011 11:52PM

  I can't give up fruit for long either...I wonder if it means something? I also have tried to lead a few friends with fibro and arthritis to the light with no success. People just want to eat what they eat and that is it! We can only try and hope the best for them...Happy emoticon!

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USMAWIFE 4/26/2011 9:24PM

    i have suffered with this and my helper was yogurt. it helped me so much

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BOBF15 4/26/2011 6:39PM

    I so get your blogs. It has taken a number of years and a lot of hard experience, but 40 years ago, you would just be a complaining woman. Now, no, it is best understood as a runner pulling a sled of weights over a muddy course. I wonder how fast a time a runner would make under those conditions.

In golf they handicap a golfer and in a sense, you should have a handicap on your treadmill.... extra points or minutes for what you have to 'pull' as you have a heavy load.

Shame is, that unless a person is facing health challenges, they won't 'get' this blog.

So, glad to hear from you and your heroic journey to health, Dot. emoticon

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GOANNA2 4/26/2011 6:12PM

    Have a wonderful Anniversary dinner and just
be careful of what you eat. I loved reading your
blog and I can just imagine the nail technician... emoticon emoticon

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Enter: The 50s... Dun Dun DUUUN!

Friday, April 01, 2011


April Fool ... ha!

Thank you family, for calling and sending cards (where's the money?!) hahaha

emoticonIt was a glorious and sunny day. My friend took me to some yard sales, and I picked up sheet music and a metronome for my daughter, a pants press for the hubby, a unique coffee table photography book for daughter's friend, and some black silk palazzo pants for me ($2!). We just laughed and laughed. I'll share some pics from a random yard so you can enjoy a little of what I did today.





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Yawn. emoticonNo wonder I've been so tired. My Armour thyroid is not doing the trick. TSH is UP from 7.something to 9.42. Dose has been upped from .45 to .60 mg 2x/day.
I haven't had a chance to catch up w/Sparking, but hope to soon. I've been slipping. Sorry. Love, and sunshine.


  
  Member Comments About This Blog Post:

LINDYPAINTS 4/26/2011 6:43PM

    The tulips are just gorgeous! I so envy you being able to have them grow in your garden. It's way too hot here, they never even get out of the ground! LOL
Lovely Blog !

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2CATS2LOVE1 4/12/2011 3:26PM

    Now that you are in your 50's you have FUN things to look forward to...like a colonoscopy!!
DUN, DUN, DUNNNNNN!!!

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GIRLINBRAZIL 4/6/2011 8:24PM

    Congratulations, Lady! Loved the random yard photos!

Michele

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WEEZYB7881 4/4/2011 11:21PM

    happy birthday - enjoy every momeit's greatnt of this decade.

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GRAMMACATHY 4/4/2011 9:01PM

    Your tulips are lovely and so are you. Happy Birthday!

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BAILEYS7OF9 4/4/2011 1:36PM

    emoticon emoticon
Happy b-day! Love your flowers! We are just starting to get 2" green spikes emerging from the ground.

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BLONDIE410 4/4/2011 12:09AM

    You're still a youngin, I am 64. Beautiful flowers, we are still waiting for ours to appear, hech I just go for some teperatures over 45 degrees. Happy Birthday! emoticon emoticon

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MORTICIAADDAMS 4/3/2011 11:32PM

    Happy Birthday. You look Marvelous!!

I'm jealous! I love yard sales and should have been with you.

The yard is beautiful!!!!!

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LORIAPO 4/3/2011 10:37PM

    Happy Birthday!
Beautiful pictures... and I loved reading about the 'bargains' you found.
Hopefully your medicine will do the trick for your Thyroid now.
Have a wonderful week!
emoticon

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2CATS2LOVE1 4/3/2011 10:15PM

    50? Well, hey, you are still a spring emoticon
I am 57 as of March...but never had a silly hat like THAT! You look happy and wish you were my neighbor! I think we would have fun times and laughter if you were. Great photos of the tulips too! Remember my tulip limmerick:
There are tulips in the garden~
There are tulips in the park~
But the tulips that Dots like~
Are the "two lips" in the dark!!
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CINDYTW 4/3/2011 10:10PM

  emoticon Happy Birthday!! Hope you get the thyroid stuff figured out. I am still working on mine as well! emoticon

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ANALAA 4/2/2011 4:20PM

    emoticon emoticon emoticon Happy Birthday! emoticon emoticon emoticon

What wonderful flowers and weather you have to celebrate in!
Hope your day, and the rest of the year is amazing!

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NUTMEG1125 4/2/2011 3:18PM

    Happy Birthday!!

Hopefully the increased dose helps. I bet the extra energy will help you feel more like sparking!

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GROKGRANNY 4/2/2011 2:22PM

    Happy Birthday you sweet "spring chicken!!" Don't feel so bad. I have 8 years on you, sister!

Loved the pics, especially your sweet and beautiful face. LOVED the yard!! We won't get tulips for another month.

Party hearty, my friend emoticon emoticon

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CRAZYDOGLADYBO 4/2/2011 11:35AM

    Awesome photos!

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ALISHAB3 4/2/2011 10:55AM

    Don't forget, coconut is supportive of thyroid! I hope you feel better. Happy Birthday!!!!

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THISYEARSMODEL 4/2/2011 9:37AM

    I love that photo! Just look at those sparkling eyes! Glowing is the first word that came to my mind as well. Congrats! emoticon emoticon emoticon

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1CRAZYDOG 4/2/2011 7:59AM

    Happy 50th!!!!! Keep a glowing!

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GOANNA2 4/2/2011 12:44AM

    You look wonderfully young and mischievious in the photo.
I am so glad you enjoyed your day. The tulips look amazing.
Many happy returns of the day. emoticon emoticon

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OUTOFIDEAS 4/2/2011 12:08AM

    You sparkle in that photo...good match for all the lovely tulips, my friend. Hope the thyroid gets straightened out...want you to feel as good as you look!

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-SHAWN- 4/1/2011 11:34PM

  So pretty....

I was diagnosed with hypothyroidism today....

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BOBF15 4/1/2011 11:25PM

    Glowing, beaming and radiating warmth and sunshine.

Man, if that is what 50 is we need more 50 + power.

emoticon emoticon emoticon emoticon

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DEBTOLOSE 4/1/2011 11:14PM

    Happy 50 your photos make me believe in spring thanks for sharing

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Lou Gehrig's Disease and Gluten

Monday, March 28, 2011

The Doctors Part I:

After I was diagnosed with celiac I thought a lot about how many doctors I'd seen for my seemingly unrelated symptoms.

As a child I saw doctors for recurring sore throats which ended with my tonsils being removed. Mom thought I had the sore throats because I sucked my thumb from baby til the age of about 12. But the thumb sucking and trichotillomania were symptoms of anxiety and imbalanced neurotransmitters.

I saw numerous dentists for my amalgam fillings, root canals, and crowns. Current dentist says keep doing what I'm doing as the hygienist barely scrapes anything off my teeth. I have retained baby teeth and I'm all about holding on to those baby roots for dear life! I cannot afford new teeth/implants which are at least $2-3k each.

Even though I had recurrent laryngitis and bronchitis as a tween, teen and adult, I just rolled through it, except for one particularly bad bout w/walking pneumonia/antibiotics. I coughed for about 8 months after ... otherwise, no docs.

Before I got married I had to see a gyno for the first time so I could get the pill (I was scared to death!). He told me I was obese (at 180 lbs) and told me about patients who had lost 100 lbs., that I could do it. Find bread w/more fiber he said. I don't even remember his name, or I'd send him quite a letter. :P I went to Amer. Weight Loss Systems, ate 500 cals a day, and lost 40 lbs before the wedding. (Speaking of 500 cals a day: what crock the HcG diet is, right? I mean, my current nutritionist, for whom I had high regard, recommended it to me - said I wouldn't be hungry. He went down a few notches in my book. I could very easily eat 500 calories a day and not be hungry, no problem, but my experience tells me that starvation is not healthy - duh! Been there, done that, yada. You only gain the weight back.)

I spent a lifetime crying about my weight and body image. (Another tangent: Funny story: I had reached my last straw and decided to write Richard Simmons when we moved to LA. He and Oprah were my tv friends. LOL Change is hard for me and I was very, very depressed; desperate for understanding. I wrote out pages of my life w/pictures and an S.O.S. for my life. I waited with baited breath ... I thought he'd take pity on me, take me up in his sweet loving arms and hug me better: encourage and motivate me. I held my breath for a ray of sunshine, some hope!

... a week later I got the package returned from the P.O. for insufficient postage.

wah-waah. I was devastated. LOL. Since my diagnosis I know now the source of my depression, but can't help but think of all the wasted time in my life crying and being off the correct health pathway!)

Okay, back to the story: fast forward to having been married eight years, we've moved, bought our first home, our first dogs (Bert and Ernie, the apricot poodles - such joy), and now getting pregnant. I have to find another gyno. He's a good lookin' guy, married and has at least 7 kids I hear. All the neighbors go to him. But why do I have to take 2 hr naps in the middle of the day to get through the day, doc? He checked me for diabetes, and nope, that was the end of it. C-section on Apr 7, 1989. I just lay there, my body not getting into childbirth, much like my numb skull. When the nurse put her before my head, I didn't know what to think except, um, Hairy! Much more hair than I expected. Oh? Kiss her! That's what the nurse was saying. I was choked up and shed some tears at how cool it was to make a human being. Life is A-mazing.

Bones and muscles were hurting, head's numb/foggy, craved ice-cream, got my first and only yeast infection, moved like a SLOTH (undiagnosed thyroid!), HIGH anxiety, miserable, sleepless and tired. Baby is hungry every two hours, colicky and vomits when she cries too much, much to my chagrin in the middle of the night. Clean baby, bedding, dog cleans carpet before I can too many times. Ernie also liked used diapers and could fenagle them out of the trickiest trash can. (Bert'd died, but that's another blog I'll never get to.)

I was on a path of ill health, but pregnancy, childbirth, and subsequent lack of sleep really got the ball rolling.

There are a lot more doctors between childbirth in 1989 to 2006, but I'll save that for another blog entry.

So after my CD diagnosis in 2006, I wanted to write all my doctors to create awareness about CD. I was too tired, so I called them and left messages. Not as lasting - oh well. I am more friends with a Friend of the 2nd OB, but am friendly with doc's wife. I told Friend how it was a tragic missed opportunity my CD wasn't caught earlier with doc since I rarely went to docs; how my life might have been better, sooner. This OB went on to make a lot of money and live very well for his hard work, but like any of us, he only knows what he knows. I'm sure my info wouldn't have been received as seriously as I intended. Friend doesn't understand is my guess.

At some point I asked Friend about how their family was doing, and come to find out he was diagnosed with ALS or Lou Gehrig's disease. It's a death sentence. You know me :), I googled, and sure enough there was a guy out there with an obscure, personal website who thought gluten-free diet was helping his ALS. I hurried this info to Friend to send to doc's wife, because I know sometimes brain lesions are caused by gluten (mentioning MS patients). Doc/wife were in Germany seeking alternative treatments at that time. I kept asking her to send it on, but I don't know that she ever did. People are skeptical, I understand, but argh ... trust me!

There is more research coming out NOW, but it's too late as he's dead. It's a shame to the community and his family. He was a good father and man. Usually it's the mom who is the center of the family, but in this family it was him. Doc's wife is still devasted and broken. My last visit back to that town, I ran into his brother and held my breath not talking, as I usually do.

More info from The Celiac Nurse: bit.ly/hJZ1B7 , and of course, you can google more references. They're out there. A ketogenic diet often used for epilepsy is supposed to help also. No gluten, no sugars. Bits and Pieces:
bit.ly/qxkX8B
bit.ly/o4YJXn


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I remember when I was excited about almost reaching 200! I am almost to 180-ville!!!!
emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon

  
  Member Comments About This Blog Post:

PEACEFULONE 4/10/2011 2:41PM

    Keep telling your story Dots, so many need to hear it.
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JUST-AMY 4/6/2011 6:35PM

    Interesting stuff. I am just beginning to learn about what wheat and grains are doing to my health/have done to my health. I will check out the .url. Thank you!
Amy

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CLIMBNRUN 3/30/2011 11:12PM

  DOTS! Miss you!!!

It's too bad people aren't as informed about cutting-edge treatment options. Keep on giving woman! You're a wealth of information, it's unbelievable. It's disheartening to think how many people might miss out on greater well-being or disease-slowing by not at the very least listening to the wisdom of DOTSwoman!

My best friend is dealing with a family member with ALS who has just been put on morphine and hospice. It's obviously too late for him to try anything else, but I really hope the research progresses. I am eating pretty gluten-free these days and I appreciate your knowledge in this area, guiding me along in this area.

It has sure been a while since I've been on SP and I just noticed you're down 8 more pounds. A-mazing chica! I'm so so so proud of you. Keep up the amazing work, you are just rocking this!

love ya!
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ONEARTSYCHICK 3/30/2011 8:36PM

    Wow, ALS disease and Gluten.

I had an uncle who had ALS, it was a horrible thing to see a person like that. He is gone now too, I wonder if this would have helped.

Once when I was in my 20s the doctors thought I might have ALS, I remember the fear and the intense tests. They never did find out what was causing my symptoms.

years later I was diagnosed with a wheat allergy, and gave up all gluten. My newer doctor believes I have CD, but I won't start eating gluten again just to find out.

I lost a ton of weight, and then last year I gained 40 pounds in 2 months. Come to find out I have fructose intolerance too. Finally, it got so bad my body decided it needed to store as much as possible because I wasn't absorbing anything.

Now I'm on the road to recovery for this too.

Thanks for sharing.
wendy

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MORTICIAADDAMS 3/29/2011 12:16PM

    Very funny and interesting. It's nice to see you doing so great now that you are on the right path. Of course you would have never gotten there had it not been for your own persistence and research. I have seen that happen on too many occasions. Patients having to tell their doctor what is wrong with them. LOL. Not a good thing. That's why we need more female physicians because women have intuition and men don't. My last boss hated that I had intuition and he didn't. God knows he would have purchased it had it been for sale or developed it if there were some method to gain it. But he mainly grumbled and said things like, "How do you know these things??!!!!" ALS is horrible. I would think that someone with it would try anything that might help.

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ECLECTIC_ME 3/29/2011 12:12PM

    That is eye-opening! My mother passed away from Lou Gehrig's Disease a couple years back. She even lost her ability to speak. I am so sorry for your friend. Horrible, devastating, cruel disease. I am thankful for the doctors and scientists who work tirelessly to try and find not just a cure, but the cause.
Thanks for sharing.

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BOBF15 3/29/2011 12:49AM

    Dot, this was an absolutely amazing blog. I felt such pain as I read it. You have been through so much and now you just shine. A trophy indeed emoticon

I particularly appreciate your transparency, it will be such a help to others. Seeing some one else come through the storm only serves to help any one else navigate rough waters.

We know oh, so little about health, medicine and the human body. Again, a new connection. This is all the more reason I choose to follow God's pathway for health. I truly believe we know so little that instead of our feeble human attempts we just need to follow what was originally designed for our benefit.

I love the quote form Sir Isaac Newton, for it so aptly describes where we stand even today in the field of health, nutrition, and medicine.

He said, "I feel as a child standing on the shore and finding an interesting shell here or a curious stone there, when all before us lays the great ocean of truth yet undiscovered."

What humility, and what a sad thing so many M.D.'s lack this humility. emoticon

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RHALES199 3/28/2011 7:16PM

    Hey girl--- way to go on almost getting to 108- ville!!

I *hopefully* get to finally go to PF's Changs next weekend... we are going to a convention in downtown Boise, and will be staying downtown (yes, we live in Boise, but when it comes to convention, it's much easier to stay at the hotel!)
I looked up their gf menu online a few weeks ago (and already got my Warrior card in the mail! lol).... nice selection.... yummy... but pricey...
Anywho, I'm looking forward to hopefully finally being able to go there!!!!!

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-SHAWN- 3/28/2011 7:10PM

  Many hospitalized with schizophrenia , were found to need iodine! The things we don't know outweigh the things we do know by an amount that's just too high to even count to!...

Dot I always love reading your blog... So according to my doctor my sprue antibodies or whatever they are called were normal... he said I had no celiac or gluten sensitivity, I told him I hadn't had a grain in a month, and he said that would NOT change the negative test results.

How does a person have baby teeth... I don't understand that, the adult teeth are in there place??????





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ALISHAB3 3/28/2011 5:52PM

    The thing that always blows my mind is that often people with schizophrenia respond very well to a gluten free diet and the voices that they were hearing just go away. Just think of all those people institutionalized when something as simple as a gluten free diet would have worked.

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THISYEARSMODEL 3/28/2011 5:51PM

    It's so frustrating, isn't it? Diet should be the first thing doctors look to in treating disease, but it's usually the last. Kudos to you for your success!

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GOANNA2 3/28/2011 4:19PM

    emoticon emoticon
I just loved your blog. Too bad friend
didn't take your advice. You tried.
Live your life to the fullest.

Hey about the baby teeth - my son is 23
and has never had a filling and still has
baby teeth too! My mum's sister is 84
and she still has one as well. So good
genes maybe. Hang on to them. emoticon

Do you know anything about amalgam
being bad for one's health? I asked a
dentist to start changing them but he
said no... Let me know if you know.

HAve a great week and can't wait to
read more of your insightful blogs. emoticon

Comment edited on: 3/28/2011 4:19:59 PM

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How's your GPS treating you?

Monday, March 21, 2011

Just finished 12 hrs of spring yard clean up. emoticon emoticonThe tulips are coming, the tulips are coming! Too bad I can't spread out my fitness minutes - LOL. My fibro hamstrings are yelling at me (bajillion bends).
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I was so tired and hungry in the end, but neighbor's dog ... she's a spazz lab a couple of years old, and sweet. I tried walking her home, but: empty house (they're in the middle of moving, and live somewhere else. I expect them to return, but who knows when). I was too tired to walk, but the dogs don't care. Walk we did.

I have a friend who LOVES Will Ferrell. She plasters his cut out pictures on her closet door so when she dresses she starts her day with a laugh and a giggle. He makes me laugh, too, even though many of his movies are very so-so (he's so bizzare in a good way).


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Along those lines, I share with you something I think is humorous. Do you agree/disagree? bit.ly/egpVHJ

My internal GPS steered me well today because I was busy busy. :)
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Just a short entry for a surprise - LOL. emoticon.
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  Member Comments About This Blog Post:

MORTICIAADDAMS 3/23/2011 1:18PM

    12 hours of yard cleanup????? Gosh, you must have had a really nasty yard. LOL. My attention span is not that long.

Well, hopefully the neighbors intend to come back and get their dog. Around here people move and just leave their dogs and cats - a custom I'm not too fond of.

Will Ferrel is very strange. Kinky weird. I tend to think I would have Johnny Depp on my closet door is my hubby would let me and he would not.

I don't have a GPS. Now I know why. LOL.

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OUTOFIDEAS 3/22/2011 5:43PM

    Love the All State "Mayhem" commercials...most of them are funny.

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GIRLINBRAZIL 3/22/2011 9:08AM

    Sounds like a great day! Show pics when the tulips come in!

Michele

p.s. Loved the commercial!

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2CATS2LOVE1 3/21/2011 5:01PM

    Funny video! And, I do have ALLSTATE!! emoticon

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LJCANNON 3/21/2011 12:58AM

    I sometimes break up my Fitness minutes too. After all Fitness~~in my opinion~~is what you do all week, not just one day. You did all the Gardening this week, so does it really matter if you put all the minutes on today, or split them over 2-3 days?

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BOBF15 3/21/2011 12:37AM

    Too funny, I finished working today in the yard as well.

Hey, instead of a garden gnome, why not put a Will Ferrill, elf in instead. emoticon emoticon

Hey, I break up my exercise minutes all the time. I just post it as "Gardening" So far the Spark Nazis have not caught onto me yet. What's the diff if it is in small denominations. emoticonVISA, Mastercard... all gladly accepted. emoticon

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-SHAWN- 3/21/2011 12:26AM

  emoticon Like it!

current favorite:
www.youtube.com/watch?
v=XQcVllWpwGs

Comment edited on: 3/21/2011 12:31:17 AM

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Mind Farts aka Personal Updates

Friday, March 18, 2011

I like to write about stuff I learn (as if you didn't know). I don't even write a tenth of what I've read; and I don't remember the other eight-tenths - lol. I share my blog with my family for the most part, so when I get to see them, they have an idea why I eat so "freaky" (I tell them to look in the mirror).
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Being around me now, though, they, and I notice with friends, too, are self-conscious about their own choices around me. I don't want to be the person you're afraid to eat around - aack! How un-fun is THAT?!
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OTOH, I have friends with ADD kids and other obvious-to-me food allergy symptoms (runny noses, bright red ears, black eyes, fatigue, pimples, bed-wetting), who bring it up, but ultimately don't want to change. This is SO hard for me, and it's something I have to learn to let go. It's up and down, and I try, really. I think it's my ego, because I so want to make a difference SOMEWHERE. I need to find an outlet, LOL.
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For years before my diagnosis I slowly stopped being as social as I once was when I was healthier -scratch that, make that YOUNGER and healthier. When you're tired/sore you slowly chink away the "normal" life and, before you know it, the changes change YOU. You're okay being alone as it's less complicated, takes less energy. I never liked getting worked up in personal drama anyway (as I have a history of such w/family drama). I either never went through their BS, or have, and need to move on because it sucks up what little energy I have. Don't get me wrong, I care about my friends and family, sometimes too much. I'm likely co-dependent and that's likely because I felt like a little adult as a kid, having to grow up quickly. I'm a problem-solver-type. Not everyone wants you to solve their problem, they want you to listen. But I listen, I secretly problem-solve and it drains me!
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I sure missed feeling connected with the universe via friendships. Because I moved a lot as a kid and then again as an adult, I learned to keep some distance, too. I've made some wonderful friends through my moves, but it's never the same of course. I miss having a girlfriend to do stuff with at the drop of a hat. I miss running over to her house to help her clean or rearrange something, make something, chat over tea and crumpets so-to-speak: Gab. I miss the time spent w/hobbies (I know: SP's my hobby now!). I took the long walk on the Green Mile to Upstairs (wooo-oooo - Dd does NOT like me in her universe, and I do not like her universe, so I usually oblige). I went up to visit the spare room and ignored her universe. I dusted off my old rubber stamps and papers, and it felt good to be there. I associate it w/stress relief. I felt some creative juices stirring up which brought back good memories w/lots of gabbing women and drama.
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I'd recently moved to my current home and was, BAM, dx w/celiac. No family, no friends and though more encouraging than a cancer dx, I had the energy of someone on chemo. You know who became my friends? SparkPEOPLE! OMG, to find people who understood the transition of going gluten-free was truly comforting. I went to celiac.com and thought they were way over my head ... all those signature lines about their food allergies and diagnoses - ack! I could not relate (I was pretty fuzzy-headed back then, too). Now I get them, and I are one of those people. LOL.
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Dd used to tell me to get off the computer, I was becoming an "obese shut-in" ...we still laugh that I am. But it's not funny any more. While the online world is at my fingertips whenever I need a virtual hug or encouragement, I need more connection with the outside world. I feel as though my life's been on hold for 3+ years since DH left for work in another state. The emotional ups and downs of retirement job hunting is getting old while we wait to move on. Most of my focus during this time has been on getting well. I think the stress of moving again would have really stunted my healing. What a luxury to do this, I know. I am so grateful!
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I need to but am scared to go back to work. Scared of the energy output - can I handle 8+ hrs? I know people w/fibro work, but many are on drugs to help them cope, and at what health expense? Can I even find a job?! My resume is OLD! I'm outta date, but I can type :). I'm reliable :). So many thoughts on that front.
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**********
The "nose skin cancer" mystery has been solved (Blue, this ia link to that blog - lol bit.ly/dXYXGe ): The PEELING skin from an underactive thyroid! It was a "tell" that my thyroid was going under, but I didn't realize it at the time. As often as I've gone through dips in thyroid function, you'd think I recognize it (PEELING skin is a new symptom, dry skin is not).
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**********

A friend invited me to the annual Dillards dinner. I ate a very good sirloin, and had to share the steamed asparagus and carrots. LOL. They served family style which was scarey cause people were passing their crumbly dry rolls to each other over my plate so I had to speak up to those sitting on either side about cross-contamination of gluten falling onto my dry salad (cause apparently the lemon wedge & olive oil I ordered was too much to ask. No special orders says the banquet nazi - LOL - there I am being freaky again). Anyway, I had to pick out only three spears of each veg when I wanted to take the whole plate (I needed the calories). LOL. I asked for asparagus seconds and took 1/2 the plate - people were staring at me. I thought to myself, "Go ahead. Eat your scalloped potatoes, cheesy rice pilaf, chocolate cake or cheesecake, wine or mixed drink/soda calories/nutrition..." and leave me with my asparagus calories/nutrition. I'm great with that.
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Another guest worked for a steakhouse restaurant, and ordered a special vegetarian meal (I was the only one in 200 guests with a gluten-free meal/steak. I thought to myself knowing at LEAST 1 in 100 have CD - let alone stats for gluten sensitivity, esp after age 50 -, that there was an undiagnosed person amongst us, and I wanted to find him/her! LOL). Anyway, his plate was plum pitiful: a few zuchinni topped with tomato, maybe some peppers and melted cheese or sauce? He needed more calories for sure. Wait. Oh good. He had some cake and shared his wife's cheesecake. :P (Not that I was keeping tabs of HIS calories, right? ar ar, but I am so curious - and Tam, I did not pry!!)
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I lost a pound that night. Thanks Dillards (they owed me). LOL. Oh, and I wore a sparkly black skirt and felt feminine. It was fun to get out and get dressed up.
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**********
Went to the cardiologist for a recheck on the ticker. We're monitoring how the new thyroid meds work, and I'll go back in a couple of months. I'll get cholesterol checked then. Thyroid so affects cholesterol. I asked for a VAP to see if I'm making some good, fluffy LDL.
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**********
DH started more Paleo eating, or so he says, as I'm not there. He got his cholesterol levels back and they're worse than he'd like or worse than last time. TC: 215, HDL 42 down from 50 something, LDL 142? Can't remember. He was devastated and ticked! I asked him what was he eating, as he's notorious for easily sliding off plan for small reasons (according to me). All those "Just this once" add up. Well, for one thing, I bet he's in transition mode in his mind. Probably the week or two before his blood draw he did VERY well/was conscientious and therefore thought he deserved a better cholesterol reward. I've been "kinda, mostly" paleo or transitioning outta dairy for about four years, so I feel his pain. You always think your changes should have significant or more impact than they do, and pronto! Change IS hard, and there's a learning curve. I told him to not panic and continue changing it up for the better.
emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon

Doctors always tell him to exercise, which is hysterical cause I've never known him not to. He rolls his eyes at the doc. He probably exercises too much, which raises cortisol. He already has a stressful job ... Anyway, I say, let's revisit diet then, okay? ;0) He has been eating Premier bars with soy, whey, peanuts (not paleo) ( bit.ly/guA8He ). I say, what about jerky, an apple, a banana? He's not a big fruit eater. He's going to try to do "different", so we'll see.
emoticonhoney! You're amazing! *love*
**********

My Jenny's paw has an infection from unknown origin. I've been weeks going back and forth to the vet for different treatments including antibiotics, wraps, silver. It's very concerning as he's mentioned taking off her toe. :( It seems to be spreading, and I'm hoping to get it cultured next visit.

Musti's arthritis seems to be worsening as he lays down on the way to the water bowl. For both of them I have slowed down and shortened our walks. He needs to move, too, though. His liver is fine, so I have conceded to some new fangled arthritis medication. At his age, 12, it's about palliative care. I pick it up next week when I take in Jen again.
emoticonwoof.
**********
emoticonI finally hit the 80 lbs lost mark yesterday!

It seems I do well juicing w/protein powders a few of my meals now and then (like when groceries get too low and you want to see how long you can purge the fridge/pantry). I prefer real protein, but ... this must be easier to digest, as it certainly is not caloric. I had a few weeks of "intense for me" exercise in that I joggled a coupla 5Ks "in a row" (HUGE) and then 1.5 miles, etc. My fibro legs were pretty good actually! I do not have the striated muscle pain at all, only a 'slight' what I call wet balloon tight feeling - so best ever feeling esp after joggling! YaY! I tried explaining my fibro legs to the cardiologist; about how I had pain so bad my CK (creatinine kinase) was raised. He said "everyone's" goes high. I don't believe this. I'll run one day, and it'll be without pain! I will show him in the end.
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I did not lose weight at all from joggling, only seemed to fatigue me in the long run, so I've learned to keep it on the down-low as it were. I don't want to spazz out and overly fatigue my bad self. :)

I bought a groupon for a cross-fit gym (have I mentioned that before?). The coupon doesn't expire til June or July. I don't think I'm ready, so I'm thinking of finding a Curves to ease my muscles into some sort of different action. Where's THAT groupon when I need it?! lol I'll ask if they have complimentary sessions to see how I do. I really need to work on my muscle strength, being more active - and I'll be around women so I can gab :).
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Much love to those who stop by to share this journey. That's all she wrote!
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  Member Comments About This Blog Post:

1CRAZYDOG 3/22/2011 10:29AM

    Interesting share! Thanks. Keep on doing what you're doing . . . you look fabulous!

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2CATS2LOVE1 3/20/2011 10:17PM

    YAY DOTS!! You look emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon

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GROKGRANNY 3/19/2011 11:28PM

    I LOVE YOU DOTS! You are beautiful inside and out. I loved seeing your picture. You are gorgeous DAHLING!! I am so proud of you for losing 80 lbs. That is a major milestone!!!

I hope you celebrate (w/o food! ha ha). All of us here celebrate YOU, that's for sure.

Hey, what protein powder do you use? I need to find a new one that tastes decent. Mostly for the summer time :)

Many hugs, girl...

Carole

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WEEZYB7881 3/19/2011 8:40AM

    thanks for an interesting read. I had been gluten intolerant for a long time but to find I had fullblown Celiac's disease was a shocker...(and as i pouted and ate reice bread I gained 40 pounds). yikes!!!

my last major flare up with dh was last summer. i'm almost all healed now. the doc finally found the right (but very expensive combination of probiotics to help my gut heal. yay!!!. i no longer have ugly sores/wounds/fever blisters all over both forearms. and the dark red scarring is also healing and fading. yay.

I often wonder about young teens who all of a sudden develop that horrid painful acne - the full blown deep zits - the kind that scar. Seems to me that happens at a time when they start 'controling' their own food intake and eating a lot of wheat (it's in everything junky). i wonder if they're not agitating a gluten intolerance.

my son WAS ADHD. I did a version of the Feingold food plan. tons of work. oh my god, I even made home made ketchup. but he's over it now. yep - he had some tests a while back and he is not ADHD. now the docs tell me that's impossible but I know when he was diagnosed. I know what a different kid he was when I changed his food plan (as opposed to drugs) and I know today he isn't ADHD. but it took years of right eating to get him there. at that time, it made such a difference that my kid from about 8 on, managed his own diet and didn't eat junk etc. he knew how it made hhim feel.

anyway, my comment is turning into a book. congrats on the 80 pounds. wonderful.

be well
louise

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OUTOFIDEAS 3/18/2011 10:42PM

    80 lbs...wow! Impressive. And I agree that you could sooooo do some sort of nutritional counseling. There's got to be some sort of "job" for you out there. I'm considering something of the same dilemma...starving writer and artist w/outdated resume! Ha! God will get me through it...He always does. Meanwhile, we learn bunches from you every time you write.

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SISTERDOE 3/18/2011 8:58PM

    I really admire your discipline and agree with AINTSKEERED that you should look into that nutritional counselling or similar field. My Fibro & low thyroid have me so screwed up that I can't imagine ever working again. I can't even carry a thought through most of the time. As I read your blog I thought of something to write during each paragraph and into the next paragraph it was completely gone. Losing my mental capabilities is THE most frustrating symptom of all, even tops the pain factor.

Again, I admire you and what you've accomplished for yourself with the help of SP.

Gentle hugs,
Dotti
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CINDYTW 3/18/2011 8:50PM

  Wow! So much here I hardly know how to comment! As always I enjoyed reading your blog!

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DOTSLADY 3/18/2011 6:00PM

    Blue - bed wetting can absolutely be physical/genetic - but you should TRY an elimination diet for food allergies also. Biggies of course: dairy, gluten, soy, corn, because we eat so much of it, but also even high oxolate foods (link: http://bit.ly/hxVsHG), food coloring, etc. Everyone has different triggers. You "could" do food allergy testing, but they are not 100% accurate. You also have to take into consideration DELAYED response as it can take up to 3-4 days (maybe longer) for the symptom to show up. Anyone interested in food allergies should read Dr. Doris Rapp's book, Is This Your Child. I have a link to a full episode of her on the Donahue show on my SP page.) So, no, you don't have to have CD! Maybe "leaky gut" yes ...

As for your CD test being normal after a month gluten-free, all I can say is you can't test what's not there (I'm unsure how long, and wonder how he knows). I cannot tell you how many times this happens: people going gf and THEN getting tested. However, even if it IS negative, then go ahead, eat gluten for months or longer and get retested if you want gluten. Do the test CORRECTLY.

However again! While it's good to take the test you did, there are new tests (see my blog named as such) which test for different protein fractions in gluten grains which is what may account for 'gluten sensitivity' (hence the negative celiac panel). The test you had IS newer and considered more sensitive (I'm not familiar with it), but these new Cyrex tests are different again and stepping it up a notch.

However again again! If one were NOT going to do the Cyrex tests (which they should do while eating gluten!), then I would eliminate it based on symptoms. You'd said you had to run to the bathroom after having a roll. Have you had subsequent reactions since having the test? Did you jump into having gluten again? How're you doing?

Fungi-toe? I'd strongly think about a candida diet if you haven't. There's a yahoo group, headed by Bee ... I will find the link for you. (Guess wheat? hee hee Freudian typo! I mean, guess what? It's gluten-free! lolololol! and so much more.) Candida contributes to leaky gut, too. It's hard, but not forever. I find I feel better when I eat greens and meat (very candida diet) - argh! My allergy tests said I had "lowest" candida and ND said to disregard. Not so sure that was the best advice. emoticonGrrr on the wasted time figuring it out. (I love FRUIT - my last addiction?! argh!)

Will talk to you on your SP page about the other stuff.
emoticonThat's my 2 cents!

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AINTSKEERD 3/18/2011 5:10PM

    It must have been hard to restrain yourself. emoticonPoor fella just doesn't have any idea!

I hope your Jenny's paw is healed soon. I hate to see one of my babies hurting.
And howEVER do you keep up with all those details? Maybe you should reinvent yourself as a nutrition consultant at a health-food store or farmer's market or something like that.
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-SHAWN- 3/18/2011 4:10PM

  Wetting the bed is also generic (well I always believed so)... Or do you believe all bed wetters have CD?

I think you should do curves, you'll meet people, maybe someone who wants to chat it up, help clean your kitchen, so you both can get to making that new and unique dish one of you heard of...

My doctor said my celiac blood test was normal and the fact that I hadn't had any grains for a month would not alter the test... Any replies?

The left kidney mass is larger (I guess that's why I have this discomfort!) He says to just have it looked at again in 6 months...I called my grandsons Neph nurse, gave her the whole long story, she said to have him give me a referral to a Neph... I know he won't.

Now that ya have some free time, you should look into: 'Calcium Bentonite Powder' aka 'Healing Clay' aka 'Aztec Clay'. It's being used to pull toxins out of people and especially autistic children, the Military in Afghanistan has started using it on wounds and death of wounded soldiers have decreased by 50%... You can eat it, use it as a facial... I'm plastering it on my big right funny-fungi-toe... I'm dying to see if after a few months it will draw out the fungi that's been there since I was in the 5th grade and had lost the nail when my toe was smashed.
Been chattin' about the clay with MzzChief...

Now she's got me all interested in that Vitamin C handheld Shower Water Filter...

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MORTICIAADDAMS 3/18/2011 3:48PM

    You should have to dine with a Trauma/Cornonary/Dialysis nurse. People who eat with me are afraid to even have water. LOL. Of course my friends who work in the same field order the worst thing on the menu and state something like, "I hate it that you are sitting there eating your friggin healthy salad while I'm having fried Twinkies, biscuits, and gravy. "

Good grief if you were in my area and people knew you would come over and help clean you would be the most popular woman in the region. Seriously , you would be #1 on everyone's speed dial.

It's nice to know that we took the place of your "chemo buddy". LOL. Although when I scanned your blog and saw the black hairy picture I thought is was you for a minute and I said, "Oh my Gawd!! She look like $#&&!! Is that a mustache?? Some kind of freakish hirsuteness. What happened?" LOL. I was relieved to see if was your dog. You look great though!!

I love betadine "gel", not the liquid, mixed with sugar for skin conditions. It's a mess but it works.

Comment edited on: 3/18/2011 3:49:38 PM

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BOBF15 3/18/2011 1:54PM

    Wow, a lot to 'digest' here.

You are so heroic, so self disciplined. I admire that.

What is impressive is progress, yes, you are making progress.

As far as other people go, sadly mankind is a mess.

I am an optimist at heart, and always have been. Yet, I find the Bible has the best answers to life's BIG questions, one thing very clear in Scripture is the picture it paints of the human condition... and it is not pretty. Oh, I am as said, optimistic, upbeat, but as far as the true conditon of man he is fallen and it so explains much of human behavior.

Philosophers have argued this question for centuries, and that is fine, but I agree with Scripture for some pretty simple reasons everything it says, works and is true.

I love the book of Proverbs a lot of wisdom, but for every bit of wisdom it also has the counterpoint of the "fool" and so much of human behavior is just plain that. Foolhardy.

Anyhow, I do hurt as you do so often as there is a better way, and most reject it. This rejection is spriitual, emotional, and physical.



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