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Baby It's Cold Outside

Wednesday, February 02, 2011

This is a common sentiment this time of year, I know. Only three or so days ago it was in the 70s! Will Rogers once said, "If you don't like the weather, just wait a minute!" So true here. Yesterday I walked the dogs with a -16* windchill. I was layered and warm, except my thumbs. I guess glove and mitten manufacturers don't fluff 'em up cause we need those opposable thumbs to maneuver whatever. Note to self: find some industrial strength thumbed mittens in the Everest dept.

We're in a State of Emergency and everything's closed down. I had an appt w/the MD today to go over my labs. After many calls all morning, i got through, and yes, I could go to my appt. I'm glad I weathered the roads because I was the only patient to go. I had a solid hour or more with him. He's usually so busy and backed up I barely get a word in (you know i have a lot to say, too). ;0) He's making me choose between him and my ND, which is the right thing to do, and I know it. I love my ND. But I chose him.

1. I don't have Wilson's Disease (copper toxicity). I knew I didn't. This site lists higher copper with lower progesterone ... doc says we'll focus on hormones now, not copper; to not worry about it.

2. I had a ZRT saliva hormone test via the ND, and a serum hormone test via the MD, both of which indicate I need more progesterone. He recommended oral pill vs the topical cream I've been using. He said it's more protective for the uterine lining ie for endometrial cancer. He mentioned my OB also agrees. We both like my OB. Take daily before bed. He said I'll lose weight easier when I'm more hormonally balanced. He said he'll ask me "questions" next visit to see if it's working. I said whose to say if it's the progesterone or the Armour? He said, wait for the questions. lol (Do I feel more amore?! I have to say I'm dead lately, which is okay since DH's not here - lol - so anything's got to be better.) I look online and see that low progesterone affects the thyroid ie memory and mental clarity, insomnia, dry skin, depression, more apt to gain weight. It all interrelates, doesn't it?

3. He talked me into trying Armour thyroid again vs Synthroid and T3 sustained release. I'd tried it about 4 yrs ago and didn't like it. I'd only taken it once a day, he wants me to try twice a day on empty stomach at least 30 mins before bfast and dinner. 3/4 grain/day I think. Retest in 6-8 wks.

4. He highly respects my nutritionist.

5. The doc mentioned he's reading a book about how fat has been villified, but it's really carbs ... um, written by a Harvard trained researcher ... "Gary Taubes' Why We Get Fat and What to Do About It" I say? YES, he says (he couldn't remember, he has a thyroid problem like me - lol)! He wrote, "Good Calories, Bad Calories?" YES, he says! Yeah, I read it. (Does this man KNOW me?) It's my own fault. I sat there when he'd tell me to "go Mediterranean" and said nothing (I'm tired of getting "the quizzical look" from friends and doctors. ... well, today I told him I'm paleo. He knows not what this is. He may be open if I give him Dr. Cordain's book ( ). What I failed to mention at the time was that the nutritionist likes paleo, too. He might appreciate that. ;)

6. Going to cardiologist appt anyway despite low thyroid. PA friend says I should see a woman cardiologist for second opinion, too. The PA works for a cardiologist and says sometimes men are men. (It's a reason I hate to let go of my ND.)

I lost two pounds eating two pounds of cherries last night. Carbs. I had a lot of them, and I lost weight (I shoveled snow). What's up with THAT Gary Taubes? What's my liver doing with all that fructose?! I do not get my body! LOL.

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  Member Comments About This Blog Post:

2CATS2LOVE1 2/6/2011 9:35PM

    Sending you some sunshine from sunny SoCalifornia!!
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GOANNA2 2/5/2011 4:59AM

    Glad that you made it to the doctor's and great that he
was able to talk and answer some questions emoticon

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EGRAMMY 2/4/2011 9:22PM

    Respecting your nutritionist is a big deal.

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    This winter we only 2 kinds of weather - bad and worse. LOL. I wear Thinsulate gloves and they work for me. It sounds like your M.D. is very progressive unlike a lot of them. Definitely a keeper.

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LADYVIDORA 2/4/2011 11:59AM

    I had a Dr appointment, too (Rheumatologist) and I just decided not to go. At this point most of what I am doing is maintenance. I do have a question, though, what are the different thyroid medications you are talking about? I've been on the same dose of synthroid for 20 years and only recently found out I'm supposed to have it on an empty stomach.

Stay warm!

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CINDYTW 2/3/2011 9:36AM

  emoticon Glad things are going in the right direction for you!

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GROKGRANNY 2/3/2011 9:12AM

    Dots, have you ever heard of Reverse T3? Let me know...if not I'll explain it to you. THAT was a big piece of my problem with rapid weight gain. I had a hysterectomy in June. I had to return to my integrative MD because conventional docs would not treat me with hormones and disagreed with using bios. The adrenal exhaustion was also a piece.

Without Paleo and ample exercise? I simply stop right in my tracks losing weight.

Do you follow Mary Shomon? SHE IS FABULOUS! She wrote a great book, "What Your Doctor Will Probably Never Tell You About Hypothyroidism." Her website: She is a well renowned patient advocate, herself affected by hypothyroidism. You can join her group if you are on FB. carries her newsletter.

Let me know if you have knowledge of that T3. I used to be on Armour before it got yanked off the market for months. Now I have it compounded.

I love that you are ALL OVER IT, as far as taking care of yourself and doing your detective work!!

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WALKSFAR 2/3/2011 9:06AM

    Great that you got to your doctor yesterday. Glad that he has a plan for getting you feeling better.

Best Wishes

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GIRLINBRAZIL 2/3/2011 3:51AM

    Great! Glad you "weathered" the storm and made it to your appointment. Maybe you should visit all your doctors in the snowiest times! He he!


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PEACEFULONE 2/2/2011 11:54PM

    So glad you are getting answers. It's amazing how much most Docs don't know about nutrition. Fortunately you have found a good one. Wishing you well!

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Copper Syndrome, Methylation and Epilepsy

Thursday, January 27, 2011

This is unfinished, but I'm going to post it because the computer needs repairs/updates and don't want to lose it. Relevant tidbits for me to remember:

Before I got my Element Profile, I asked the nutritionist if my daily avocado was too much. He didn't think it was worrisome. My avos are usually about 120-160g, about 5 oz, or about a cup cubed, and that supplies about 14% of your daily copper RDA according to Nutritiondata

Now that I have my Urine Element Profile results, he's thinking otherwise, and recommended I not have one daily. Kinda vague, but we were talking about a lot of things during my appt. But I know: rotate my foods. When I like something, I tend to stick to it, but that didn't work very well with gluten, did it? All this food change is hard. If you're tired of reading about it ad nauseum, think how I feel. I want to move on.

Copper and Zinc Balance

from: Dr. Kaslow:

Quote: "The human body has an elaborate system for managing and regulating the amount of key trace metals such as zinc, copper, iron, manganese, chromium, etc. circulating in blood and stored in cells. Nutrient metals from our diet are

(1) incorporated into blood if blood levels are depleted,
(2) transported into cells if cellular levels are inadequate, or
(3) excreted if blood and cell levels are sufficient or overloaded.

When this system fails to function properly, abnormal levels of trace metals can develop in the brain and other parts of the body. One of the most common trace-metal imbalances is elevated copper and depressed zinc (the optimal plasma or serum ratio is 0.70 - 1.00). The ratio of copper to zinc is clinically more important than the concentration of either of these trace metals.

Copper and zinc are regarded as neurotransmitters and are in high concentrations in brain hippocampus. As a result elevated copper and depressed zinc have been associated with hyperactivity, attention deficit disorders, behavior disorders, and depression. Also, many of those labeled with autism and paranoid schizophrenia have elevated blood copper levels in addition to other biochemical imbalances.

It has been reported (HRI-PTC) that 80% of hyperactive patients and 68% of behavior-disordered patients have elevated blood copper levels. Their families often report worsened hyperactivity/behavior after consuming vitamin supplements or cereals rich in copper. In many cases, symptoms may be provoked by consuming chocolate (rich in copper) or food dyes rich in hydrazines, which lower blood zinc levels.

Many high-copper patients (often labeled "depressives") experience severe PMS, are intolerant to estrogen [i don't know what 'intolerant' means, but my estrogen is high compared to progesterone], and may have a family history of postpartum depression [i had pp depression].

This group also has a high incidence of acne [as a teen i had acne, but not now], eczema [yes, i have a history which is worse when thyroid is off/hypo], sensitive skin [yes], sunburn [try not to], headaches [not since starting gf diet, staying hydrated and eating meals on time], poor immune function [by having a few autoimmune diseases, i'm prone to more. however, i've not been ill - knock wood - since having a 5-day cold last winter (when i found my zinc was low!), and white spots under their fingernails [i grew up counting them like they were prized possessions. i don't have them now].

Elevated copper/zinc ratios can be especially serious for persons with low blood histamine (over-methylation). This combination of imbalances has been associated with anxiety [yes, a bit - it makes me procrastinate i think], panic disorders [not me], paranoia [not me], and (in severe cases) hallucinations [not me].

Copper and zinc levels are regulated by metallothionein, a short linear protein composed of 61 amino acid units. When this protein fails to perform its necessary functions, abnormal levels of nutrient metals (such as copper, zinc, and manganese) and toxic metals (such as cadmium, mercury, and lead) can result. Nutrient treatment to eliminate these overloads must be cautious and gradual to avoid worsening of symptoms and kidney damage. From E.P. Heleniak and D.M. Frechen in their report, “Histamine methylation in Schizophrenia,” (Medical Hypothesis, 1989, 30:167-174), if the laboratory tests showed a high copper:low zinc ratio and low histamine levels, folate, vitamins C and B6, niacin, zinc, penicillamine (chelates copper), a high protein diet, and essential fatty acids as in evening primrose oil reportedly often improved these patients thinking." WOW.

Remember, I have kidney issues (idiopathic kidney infection. Though 70% are likely due to e coli bacteria, what's the other 30% from? I'd been swimming a lot, so I can't imagine being too "dirty" at the time, so maybe I was too clean from chorine? Also, it could have been I should have been peeing in the pool - ha ha. Really, holding your urine too long can cause a kidney infection). Interesting that it's my left side that's problematic, and I think I've even mentioned it was my weak side in prev. blog entries. Dr. John Symes, the celiac vet, wrote an article about how the left side is often the weak side for most. You'll have to share your experience. If you or someone you know has epilepsy, do them a favor and share that site. He's VERY interesting and has been so helpful in my making my diet choices. Anyway, sometimes my left kidney hurts, sometimes both hurt, but the left one always first. Sometimes my left ankle swells. And of course, can't help but wonder if it's related to my heart issues/palpitations. Taking dairy out eased the BULK of my palpitations, but I still have them sometimes more than other times; esp noticeable at night.

The nutritionist has a blood pressure cuff machine which doesn't measure blood pressure, but the elasticity of your vessels - this is a helpful indicator for heart disease (I told him my cath was clean in May). It's hooked into a computer which makes a heart rhythm chart similar to an EKG. My heart was palpitating too much for the $50 test to work. He strongly suggested I get another EKG by a doctor, and I told him I'd have my thyroid checked to boot. He showed me my EKG and it was very abby-normal every third beat and more - very hilly and up/down (more than usual, and I could feel it). He showed me his, and it was up/down, up/down. It's disconcerting.

So, zinc:COPPER imbalance: can we say arrhythmias, depression, thyroid imbalance?

I got some labs done (surprise? ha ha) from MD for hormones, Wilson's Disease (copper disease - very likely negative), and also asked for B5, B6, folate and homocysteine. MD is referring me to a cardiologist mid-Feb. I think my heartbeat irregularity is due to calcium/magnesium imbalance, but I doubt he'll help me with a nutritional approach. MD just told me my TSH is high, so that disrupts calcium balance.

ND just got results from a ZRT hormone test and I need a bit more progesterone.

Links for homework:

I've not been able to THINK lately, heart's been palpitating too much again. I tried some Oikos 0% fat organic yogurt cause the kid didn't like it: NO palpitations this time as in the past when I tried Jay Robb's whey protein(?)!

Am working on house organization, but cannot THINK. Argh. Weight is back to the same now, but has fluctuated 2-4 lbs for months. Difficult to not want gf white carby foods since Dec, so I've enjoyed some Udi's bagels and toasted bread & Kinnickinick hot dog buns since. What excites me most is that I don't gain just "looking" at white food. Trying to not be depressed despite obstacles in current physiology.

Am grateful we don't have snow and ice like so many of you out there. I can deal with cold.

Jenny-dog has a weird blood blister growing between her toes. Vet has opened, drained and flushed it twice thinking he'd find a thorn to no avail. Other dog loves the sofa when I'm not home. He's so arthritic I bought a specific dog blanket for the sofa. I'm a pushover.

That's all folks. I miss being more active, but can't muster the focus lately.
emoticonand looking for a emoticon

  Member Comments About This Blog Post:

PEACEFULONE 2/3/2011 12:23AM

    Dear Dot, You always have so much worthwhile information to share. Thank you for your blogs and best wishes on you journey to health. Peace always, Elaine

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1CRAZYDOG 1/29/2011 11:05AM

    Wow, lots of great information. Thanks! It really got me to thinking as my DS was diagnosed @ age 13 with depression, ADHD and mood disorder. HMMMM...he's 18 and chose to leave home, but I'm going to try to convince him to get labs done to check for copper:zinc.

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2CATS2LOVE1 1/28/2011 5:41PM

    I'll be honest...I didn't read it all emoticonbut I did like the avocado thing. Avos are very healthy for us. Good fat our bodies need. I tend towards more salads now and green veggies. Oh, and proteins ~and I feel GOOD.
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    Very interesting. I used to have palpitations really bad. I only drank one cup of decaffeinated coffee a day but my M.D was convinced I was sensitize to other compounds in coffee that cause coronary artery constriction. It sounded nutty but I finally decided to humor him and gave up the coffee and the palpitations went away. LOL.

Comment edited on: 1/27/2011 7:45:43 PM

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GROKGRANNY 1/27/2011 6:55PM

    Love all of your blogs, Dots. You sure do your homework and are an EXEMPLARY ADVOCATE for your own health. I salute you, girl!!

You are in my thoughts and prayers. You are a very special lady, Dots.

Hey, I don't know if you heard/read, but I had my Spark Page blown away and needed to start over. And, if THIS doesn't beat all, my Gmail account was hacked and ruined this past weekend. So frustrating. So, I've been picking away at re-connecting with my Spark Buddies. I am not sure if you have been returned to my buddy list, but you know I want you there!!

Hang in there, Dots. I hope you feel better soon and can get all the answers you need.

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CINDYTW 1/27/2011 5:30PM

  I hope you get some things sorted out and feel better soon! The heart palpitations can be scary I used to get them years ago. Mine cleared up with med changes and I can't remember what specifically.

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    That was very interesting - I am definitely going to have to read up on that.

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Avocados & Neuro and Urine Element Profile Lab Results

Thursday, January 13, 2011

emoticonAll my life's a circle, sunrise and sundown ... d'ya know that song by Harry Chapin? It's coming to mind as I read about my latest lab results. You know I love a good test! ;) Life is circular. Things happen for a reason. And it's coming together rather interestingly for me. It's late, I've been OCD reading about this and trying to understand, as it's complicated to me*.

I tried taking these tests within close proximity date-wise. The first one is my second/follow-up neurotransmitter update. It's a urine test via My results were a thorough mixed bag, not necessarily better. I was most interested to find out what taking out dairy would do: my glutamate level went into normal range! emoticon and I DID up my serotonin! emoticon emoticon HOW.EVER emoticon: my serotonin is STILL below normal range. *Hence my lack of clarity in the brain dept. Boo hiss.

1st Test Results 11-4-09/2nd Test 11-30-10/Daytime range

emoticon emoticonEpinephrine ... 6.4 Low/8.1 Normal (7-12)
emoticon emoticonNorepinephrine ... 30.4 Low/49.5 Elevated (30-45)
emoticon emoticon Dopamine ... 157.2 Normal/235.5 Elevated (115-175)
emoticonbut emoticon emoticon Serotonin ... 50.4 Low/118.5 Low (120-185)
emoticon emoticon Glycine ... 659.8 Normal/1682.5 Elevated (455-980)
emoticon emoticon emoticonGABA ... 4.7 Elevated/9.6 Elevated (4.7-7)
emoticon emoticon emoticonGlutamate ...50.8 Elevated/24.4 Normal (15-32)
emoticon emoticonPEA ... 40.0 Normal/22.2 Low (30-70)
emoticonHistamine ... 11.6 Normal/15.0 Normal (14-24)
emoticon emoticonCreatinine ... 115.2 Normal/89.9 Normal (28-259)

Interesting that my histamine was "normal" yet a bit higher a few weeks before I had that reaction (urticaria or itchy hives starting on my thighs and progressing to my face the more took during a few days) to Resveratrol on Thanksgiving. Cool to have that info, but need some more context.

I took the 2nd Intestinal Permeability test and as stated in another blog entry, I STILL have leakage at about the same level. I don't know how long dairy-free it'll take to help this. I have to come back to edit this with the actual results, because I think there was a difference in which sugar was leakier.

I did my 1st Genova Comprehensive Urine Element Profile on 12-20-10.

Toxic Elements elevated and Reference Range:
Lead 18.3 (=/Less than 1.4)
Mercury 15.23 (=/Less than 2.19)
Cadmium .56 (=/Less than .64) close enough to record but w/in ref. range
Cesium 8.4 (=/Less than 10.5) close enough to record but w/in ref. range
Platinum .1 (=/Less than .033) Way past range!
Rubidium 2.567 (=/Less than 2,263)
Thalium .519 (=/Less than .298)

Other elements within range include Aluminum, Antimony, Arsenic (good to know as our area has lots of it within the soil and we're on a well), Barium, Bismuth, Gadolinium, Gallium, Nickel, Niobium, Tin 1.06 (=/Less than 2.04)

Nutrient Eements Elevated/Ref. Range

Copper 119.9 (4.0-11.4)
Manganese 1.34 (.03-1.16)
Vanadium 4.0 (.1-3.2)

My calcium, magnesium, sulfur was normal. My potassium was high (4,990 w/a 759-4653 range), but nutritionist said to not worry about it. Urine creatinine was 25.05 (range 23-205mg/dL)

Numbers are boring unless you're into them, so yawn, that's over.

They're my puddin'. You need different textures to remain happy and I have one daily. Sometimes I need the calories, but I like their fiber, and they're full of the good fat.

I like to read Ann Louise Gittleman; she has a book about copper imbalance and fatigue. I quickly perused this book as I'm sure it was part of a larger Amazon order and I put other books ahead of it. I remember seeing avocados were kinda high in copper. This is why I've been bookmarking copper articles as I come across them. In fact, years ago when dad was diagnosed with Alzheimers I remember an article how copper toxicity was implicated. Dad was a miner of many things, and copper was one of them. Mom was in the middle of her lung cancer diagnosis/treatment and what would/could she do with that information anyway? What would a doctor do if you asked him to test copper levels? Heck, I can't get mom to have dad's B vitamins tested (she has misguided thoughts that the doc wouldn't do it) for Pete's sake. :P

When I asked the nutritionist to test my copper, he gave me that urine test. He told me about flushing my lines and using water filters on drinking water and shower heads. This I knew and have been doing since reading about it in 1998. However, this house we do not have an RO system like all my other homes. I am inconsistent with flushing lines in the master bath. I've never put a filter on my shower head. Copper and lead (who knows what else) from your water lines can settle overnight. It absorbs into your skin unless you flush it away (nutritionist reminded me that water is a renewable resource). In fact, funny story, I remember a door-to-door salesman of filtered shower heads when we lived in Vegas. We didn't end up buying it, and his parting, angry-ish words were, "Well, okay, bathe in cancer!" as he grumbled away. We use that line as a family joke now .. lol. Ahh, memories. I still got 'em.

I took a cellular-level nutrient test last year which indicated I was low in zinc. You need higher zinc to copper levels. I don't think copper was tested (duh, why not?) -- missed opportunity. Apparently taking zinc alone is not the answer, as I've been taking it fairly regularly since last year. I need to eat more MEAT, a good source of zinc. For the urine test, btw, you're to stop taking supplements for 2-3 days. I did so for about a week.

I've got to go to bed. More later. Just had to get that much off my mind. The circle's coming! I have a doc appt to check my thyroid levels (my hands are dry and it's a sign. Last time I didn't check it cause I attributed it to the dry air/heater.)

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  Member Comments About This Blog Post:

ARKANANGEL 1/25/2011 7:17PM

    Informative blog, as usual.. Didn't know about the copper/avocado connection, nor the connection to alzheimers. Hope I'm not bathing in cancer! LOL

Comment edited on: 1/25/2011 7:18:00 PM

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MSDESERTRODENT 1/15/2011 10:20AM

    Where do you obtain these test kits!? Sounds very interesting!!!!

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MORTICIAADDAMS 1/15/2011 12:05AM

    You are the ultimate test taker. Does anyone ever discuss the results of these tests with you?
I would want my MDs input but I'm not sure he would be smart enough to make sense of all the sum of all the parameters.

I have never been able to learn to like avocados.

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SWEETLIPS 1/14/2011 8:14AM

    I am going to look into that urine test. Thank you so much for this information. As a thrice cancer survivor, I have a lot of worj to clean up and clean out my body. It takes on a more higher appeal now beyond just losing weight - it is my life's health and my life's journey at stake.

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PNWTRILLIUM 1/13/2011 6:59PM

  These tests sound expensive. Is there a good place to find out what they really mean?

I recall the Zinc lozenges to take to ward off a colds but it also nukes your taste buds. Zicam is all about Zinc I think and they had issues with folks and law suits.

I recall going to this local Nutritionist two decades or more ago who was featured weekly on the noon news. I figured she knew what she was doing and had been featured for a long time in a decent metropolitan area. The testing was expensive at the time and basically she gave me this print out which said every thing was normal except my Zinc levels were lower than average. Not much. She patted me on my head and that was that. I felt a bit duped. I have also lost faith in dietitians and the food pyramid.

I also worked briefly for this company that made vitamin and mineral supplements and well known. I had only been working for them for about 3 months when on one Sunday I was watching 60 minutes. They did a piece on such companies and one of the three bad companies was the one I was working for! They hadn't even given their employees a heads up on this one so I was shocked to learn of this on tv first.

The problem was ingredient disclosure. I started to look for work elsewhere.

These companies have no oversight. There was no research for their claims of what the supplements did or didn't do. The FDA looks the other way on this. So many of our customers where large grocery stores and naturalpathic docs and it was so much hype and not much science. I watched how the second in commpany would down dropper fulls of Echincea and many years later they finally did a study on the stuff and it did nothing to help anything but a few pockets. Anyone can start them up really and the oversight is nil.

If they can't get the food pyramid right... haven't a clue really then why would they know what is normal? Since we are not eating the SAD way perhaps those levels that have been classified as normal based on folks on SAD way of eating is way off? I would be asking based on what science is this considered normal?

Dr. Cordain says you can cheat but you are indicating that your stomach has not healed even when removing dairy for 7 months? Tell us more about these tests of stomach permeability.

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BOBF15 1/13/2011 11:40AM

    Wow, I actually understand most of this all the time taking chemistry paid off. Plus majoring in public health didn't hurt either.

I keep wrestling with minerals, they are so hard to get into yourself properly. I think on a 'cellular' level. We have to. As what comes out of the intestines and then is in the blood available for the cells to absorb is ultimately where nutrition is at. It is not as simple as put it in your mouth and that's the end of the story. No, no, no....

Yes, we are a wonderfully designed machine. But there is a lot gone awry today.

I try as best as I can to grow my own vegetables and keep my soil mineral rich, but that is so hard to do.

I enjoyed reading this and understanding a bit more of the struggles you deal with. Any help I can be let me know. I have a few ideas, but it seems like you are in good hands with your nutritiionist. I far more trust a good nutritionist over 90% of M.D.'s who know about zilch unfortunately about true nutrition.

Hippocrates said, "Let food be your medicine, and your medicine be your food." emoticon

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GOHUSKERS2 1/13/2011 11:02AM

    Lots of information. Keep up the good work.

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MEGANSFAN 1/13/2011 3:29AM

    Very interesting blog.

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Monday, January 10, 2011

I've always had an affinity for trees. As a child I climbed them, I collected maple leaves and pressed them, and for years I've picked up books about them. I love the old books I grew up with where the art renderings of different species and such. You know, like Anne Taintor renderings. I love Shel Silverstein's The Giving Tree. They're classic, and it makes me nostalgic.

Recently I visited the Oklahoma City Memorial & Museum which honors the lives of the people taken during our first act of home-grown terrorism. The Memorial is a beautiful tribute to their lost lives, but it cannot substitute for the loss. Upon the grounds is a Survivor Tree.

From their website: "The Survivor Tree, an American Elm, bore witness to the violence of April 19, 1995, and withstood the full force of the attack. Years later, it continues to stand as a living symbol of resilience."

I have gratitude that I have survived and thrived despite my own auto-immune attacks. I'm not a mushy drama queen or anything, but sometimes I forget to stop and smell the emoticonbecause my nose is in a book, I'm exercising, I'm online researching, or I'm feeding my face (it takes more time to prepare, eat & clean up my food). When visitors come to our neck o'the woods (and there aren't as many as say when we lived in Vegas, or even in Alaska we had more visitors!), we take them to the Memorial. It's serene, esp at night. It makes me pause and be thankful for my LIFE. We know survivors and have met heroes. They have some incredible stories.

Here's dad. He looks like Mummu, doesn't he? He's a wild and crazy guy with a lot of stories himself. Not all good in my book, but it's a story :P. I'm grateful I still have my mind. I'm grateful for MUCH.

...he doesn't remember our visit. I am urging mom to feed him gluten-free, dairy free as a start, and she said she'll try. I'm not hopeful though.
Are you a Survivor Tree? emoticon

  Member Comments About This Blog Post:

CLIMBNRUN 2/3/2011 9:42PM

  Hey, sorry to hear about your Dad. Just catching up on about two months of blogs during travel and catch-up phase... I really hope you are okay. Stay positive, you are a beaming spirit and that's the best thing your Dad can receive, your love, time and attention. *hugs*

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PEACEFULONE 2/3/2011 12:07AM

    emoticon emoticon emoticon emoticon emoticon emoticon

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GIRLINBRAZIL 1/17/2011 6:22AM

    Great post! I love the photos and the Survivor Tree! I want to be a survivor, too!


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MORTICIAADDAMS 1/15/2011 10:53PM

    I love tree huggers as I am one myself as you well know. I surround myself with them and fret when one dies thought we have oodles.

It is so nice that you take people to the Memorial. i have seen pictures of it and glimpses of it on TV but I'm sure it is much better in person. Even here I sometimes think about the people who died there. They are not forgotten.

I'm saddened that your dad does not remember your visit but you do and that is what really matters. emoticon

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BOBF15 1/11/2011 7:27PM


Thank you for sharing a bit of your heart and life.

Reminded of a poem you likely know since you are well read.

"I don't think I shall ever see a poem as lovely as a tree..."

God bless and keep soaring, Bob emoticon

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LINDA! 1/11/2011 7:24PM

    What a wonderful blog!

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GOANNA2 1/11/2011 6:28PM

    Thank you for sharing this with us.
I am so sorry about your dad and I am
sure he knows the love is there.

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KARRYB1 1/11/2011 5:51PM

    This is a tough journey we share watching and not being able to do anything to prevent further memory loss. My Mom is at home with me in the last stages of dementia. Enjoy all those precious minuets of awareness, they fly by so fast.

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JULIE_MAY 1/10/2011 11:49PM

    Thanks for sharing this. I, too, love trees. I loved my dad, too, who passed away in 2009. I'm sorry about your dad. Girls and their dads share a special bond. I know it must be heartbreaking to watch his memory go, but I'm sure he can always feel your love.
P.S. I love the photos! You are a beautiful lady.

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CANOGAPARKGAL 1/10/2011 10:39PM

    Thanks for sharing. I didn't know about the tree. Sorry about your father. My husband has just been diagnosed, and I see we're on a long, hard journey. There are still lots of things to be grateful for.

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KAURAKITTEN 1/10/2011 10:20PM

    I'm sorry about your dad's memory. Things like that break my heart. My dad is just starting to forget things and it's a nightly thing for me to pray that he's not losing it all together. I haven't seen the memorial but I remember that day.

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MEXGAL1 1/10/2011 10:09PM

    Thanks for sharing.

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Vitiligo and the Big-G

Wednesday, January 05, 2011

A gluten eating horse?! lol (photo courtesy of wikipedia-appaloosa)

I quickly wanted to add a link with more information re: vitiligo and gluten intolerance since I brought it up last blog entry. How timely that I got gluten-free blogger Alison St. Sure's newsletter today. If you, or someone you know, has recently been diagnosed with vitiligo, this might be of great interest to you. I'd want to know that gluten-free diet MIGHT help reverse (sooner than later after symptoms appear), wouldn't you? If you read the wiki or other articles, notice the association between vitiligo with thyroid disorders, pernicious anemia (gut doesn't produce vitamin B12 cause of lack of intrinsic factor), and Addison's disease (adrenal dysfunction - could be caused or aggravated by food allergies) -- all also associated with the Big G(luten).

From wiki:
"With one patient, repigmentation occurred significantly when another autoimmune disease, celiac disease, was treated. Eliminating gluten from the diet, a celiac patient who had Vitiligo reported repigmentation starting within 6 months of treatment. With the elimination of gluten, repigmentation continued to increase for 3–5 years, though not totally. This occurred with a patient who had Vitiligo for 25 years prior to learning of their diagnosis and treatment for Celiac Disease.
A 1997 report[17] suggests that combining Vitamin B12 and folic acid supplements with sun exposure caused repigmentation in 52% of cases."

Alison St. Sure's personal experience/article:
Wiki on vitiligo:
Random article/discussion/experiences on topic: article:
Harvard Health via SParkpeople vitiligo article:
Random blog on the vitiligo gf experience:

I always seem so behind, esp when DH is home. Today I drove spouse to the airport and went for a quick shopping stop at Dillards :). I picked up a deal on new flatware (bought mine at Costco in a hurry about 16 yrs ago and have but a handful of spoons left): what would have cost me over $1200 cost me $250 (service for 16 + 3 serving sets). Killer, right? Made my holidays merry and bright. Merry Christmas me.
emoticon emoticon emoticon emoticon emoticon

I sent Auntie the NY Times article re: alopecia, and she wrote back that she thinks Mummu had celiac and RA. She didn't take medications that she knew of, but was addicted to Tylenol for years for the RA pain (which creates more leaky gut). Mummu, like me apparently (or the other way around), didn't like meat and only occasionally would eat hamburger. She loved her grain carbs.

Got my intestinal permeability test back: I'm STILL leaky. *sheesh* More on that later cause the dogs are giving me "the look" cause it's "that time." TIRED (again)!!!
emoticon emoticon

  Member Comments About This Blog Post:

MORTICIAADDAMS 1/15/2011 11:02PM

    Interesting on the vitiligo and gluten.

I wish we had a Dillards and Costco here.

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GIRLINBRAZIL 1/8/2011 3:40PM


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GOANNA2 1/6/2011 6:59PM

    Thank you for the links. I am going to try and get
myself on some sort of gluten free regime and the
links have given me invaluable information.


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RHALES199 1/6/2011 12:25AM

    Pretty apaloosa (even if the poor horse is stuck eating wheat! lol).
Sorry to hear you're still dealing w/ leaky gut.
I'm now dealing w/ dairy intolerance, and apparently fructose intolernace (still trying to figure that all out), along w/ the gluten intolerance.

Hey while I'm here... I almost went to PF Changs today. DH & i were near downtown Boise at the Elks' rehab center for evaluation for a new wheelchair, and got done w/ that- before lunch. But we decided not to go there, becuase it was too cold outside for DH to be out in it much, and i still really don't know where the restraunt is or where i can park. Plus DH would have either had to be getting in/ out of the car to go in w/ me, or waiting heaven knows how long in a cold car while i went & ordered it to go... just not something I was willing to do right now, unfortunately-- he's already having enough problems due to the cold as it is... don't need to make it worse. Maybe next time we in the area I'll be able to go-- especially if it's a warmer time of the year. Or if you ever come to Boise :) :) (the whole Pf' changs thing today made me think of you!) i ended up getting a salad at a grocery store, and Dh got something at the food court in the mall when we went there to get a book at Border's with some of his b-day/ christmas money.
anywho, i better stop jabberin'-- i'll talk to you later, girl! Have a good day!

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BOBF15 1/6/2011 12:12AM

    I liked your blog the first time I read any of your material.

I have a huge interest in health and wellness. Have been into this for about 40+ years now.

I will have to check out your posts more now. Thanx for the great information. emoticon

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