Wednesday, July 14, 2010
Awesome info and all in one place. Brilliant. Can't believe this info is free for the taking. Will thank him (and have thanked him indirectly by buying MANY of his books), and pay it forward for others. And try to live it!
On another note, I have a confession. As I ungrumpify myself by not being in constant pain, I have to do some soul searching about my parenting through the years. I have been kinda short-tempered sometimes, other times I feel like Mother Theresa given the circumstances. I let A LOT of things roll without dealing with it because I did not have the energy to deal with her problems AND mine. I drew on my own experiences of how I felt when I was a child: I didn't want to be authoritative for sure (and I wasn't). However, I may have been a cross between permissive and helicopter (or hellycopter? So said a counselor to Dd once, and Dd has never let me forgot it- Grrr). Well, I can only say Dd didn't have all her chips (because of me), and I kinda nagged or gave too long of explanations for a kid w/ADD (can we say bo-ring? lol)
(I didn't know it was ADD/Asperger's!)
I'm not a professional mother, what can I say? I'm just sorry for some of the things I've said, so I've confided in daughter about my being human - which she knew, but hearing it again was good for her soul. I think it takes away some of the burdens she may put on herself because of my lofty expectations. Because of the stress in my life, I've had to be overly conscientious about details (my brainfog. SO glad it's gone). It's my thing: details. Hers? So NOT details. Is this my lesson in life? ;0)
Well, my goal is to be more loving, and give her more hugs; because I think even at 21 she needs them more than ever. When she brings up the parenting style of another parent, I remind her that their kids are not her (shuts her up) lol.
As I get better, I hope she gets better by watching me. It's easier to model when you're healthier, that's for sure.
Today I needed a day to regroup and organize home, so I didn't go to my IV glutathione appt. Will do so on Friday (they're closed Th). Time for bed (already?). I love when the time flies and I look forward to tomorrow. I'm learning to be productive again. Sweet!
"Parents: They lie to you, because you ruined their lives." LOL
I don't think that, but those hands look awfully familiar from my own childhood nightmares! I also had recurrent nightmares about Frankenstein chasing me (I hid in the back seat of a car - bwa ha ha); also, a floating-in-fog Fu manchu Buddha guy w/looong fingernails chasing me (I hid under the kitchen sink - ha again!)... funny memory.
Saturday, July 10, 2010
...with an alkaline and anti-flammatory diet. I am 90%+ better.
I've written about it before, and won't bore you with any more. I just have to tell you how VONDERFUL I feel. I have been a miserable person for a long time with pain that doesn't show. I "look" happy, and I try to be on the outside, but people in pain, YOU know, "it" gets to you and wears you down. You struggle to get back up emotionally, to get things done, to not be a burden to your family or a drain on society. You talk ad nauseum about it with people who understand, or not; you don't care, cause you need to dump or unload the weightiness of such a life. Or your squelch your pain; bottle it up, and try to say it doesn't exist. All this wears you out nonetheless. I know. I've been there, done that, bought the t-shirt, and now am throwing it away (wouldn't donate it cause I wish this on noBODY)!
As for what I'm eating; I'm not all organic, but would like to be. I just try my best to eat lots of veg and fruit, some protein and good fat at every meal. The nightshades I'll continue to avoid for at least three months, maybe six. We'll see. I'm still counting the DAYS at this point. Same with not having dairy. I find myself thinking, okay, maybe I can have fat-free dairy??? :) Maybe I can incorporate it once or twice a week? But I'm not gonna do it until I reach goal ... I hope. I'm human. I'll want potato chips. I've already had them and they aggravated my leg pain. Now I wonder if I'll always be this sensitive and never be able to change up my diet? I don't know at this point.
I went to a cupcake/coffee shop last night with a friend. I could have the 'water' and that was about it (they had tea but I didn't recognize the brand/didn't know gluten status). Everything was inflammatory (caffeine, dairy, sugar, gluten). It's a lonely job being fibro-free in a fibro-inflammatory-rich world. lol
I have lost 9 lbs since last blog entry- hello! The universe is talking!
Here's another guy's experience with curing his fibro (warning: he throws the "F" bomb once): bit.ly/fibroman It seems I'm not alone.
Here's his take on inflammation (he's a cusser and now talks w/his mouth full, what can I say: his msg is en pointe!): bit.ly/90Uzxv , and bit.ly/9kkrMY
or more on inflammation, beautifully said by Dr. Mark Hyman: bit.ly/HymanInflammation1 , and the plan he talks of here: bit.ly/Hyman7DayPlan (He refers to his book, The UltraSimple Diet, but you could also read UltraMetabolism or UltraMind ... most everything comes down to finding your hidden delayed food allergens, & detoxing from processed and inflammatory foods...)
His blog: bit.ly/cVflCj
UltraSimple Diet amazon: amzn.to/9imjDS
More links on fibro and diet:
bit.ly/cvSSqn and their site: bit.ly/painsaway (there's another link on this page, but you don't have to buy anything - the info's all here for free) :)
How to do an elimination diet for fibro: bit.ly/Townsendfibro
Or you could research yourself online how to do a green smoothie detox. First consider incorporating green smoothies into your normal menu, then work it so you do a three day cleanse (talk to your naturopathic doc, I don't know your health issues). The gut lining regenerates in three days, hence the three day idea. If you need some recipe ideas: bit.ly/bve9xB .
I have a friend whose Dd has GI issues (IBS-C, IBS-A). I've known she should be gf for five years (her teeth are mottled, it's a clue, + other stuff), but she's a young lady and I'm friends with mom, not her. I keep my mouth closed for the most part, but sometimes mention what I've heard or read, and to their credit she got a celiac test two years ago. Negative. They didn't believe in non-celiac gluten sensitivity (at that time). She went to doc who told her to take flaxmeal and Metamucil, and a medication for life for her IBS. THEN daughter brought up, "Should I try gf diet?" "Oh, yes!" doc says, "try it for six months then come back and I'll do an endoscopy." Um, doc, you should do the endoscopy NOW, not after she's repaired her villi w/gf diet! Daughter has been gf for 4 days and feels better. Hence my reasoning to do gf/smoothies for at least three days.
Here's one on glutathione deficiency: bit.ly/HymanGlutathione (check other links about it there also). Thank you, Al Gore, for inventing the internet. :P It's saving my quality of life.
I started 600mg IV glutathione therapy (IV is a more direct path vs supplements, though I've been taking glutathione supportive supplements for a long while already) on Wednesday, and go for weekly treatments until necessary (til my health bank balance is full or my real bank balance is empty). It's $75/session, so I hope I'm not a 'regular.' I don't know WHY my "natural" doc didn't talk to me about this; the treatment is AT his office(?!) by the nurse he told me to get the Myer's Cocktail from. grrr. As usual I figured it might help by researching online, asked my holistic MD, and she referred me to my naturally-bent doc. Bizarre. I will keep you posted.
Saturday, June 26, 2010
The short list:
1. Aspartame and other fake sugars (never have, gross)
2. Food additives including MSG and nitrates (no MSG check, nitrates - no prob)
3. Sugar, fructose, and simple carbohydrates (check, poo! fruit? still having some, check)
4. Caffeine, incl coffee, tea, colas, chocolate (check, check, check, poo!/check - I've cheated) teeccino.com/about/43/Gluten-
free-.html for coffee substitute-gf herbal tea. may not be safe for a celiac, but if you're not, it's an option to look at.
5. Yeast and gluten (check and check - you KNOW what gf diet did for my pain! yay!)
6. Dairy (poo) :( I love plain yogurt (I thought taking out sugar was good, but it's not enough - there are opioids in dairy, well, and gluten: bit.ly/foodopioids )
7. Nightshade Plants: Tomatoes, chili and bell peppers, potatoes, and eggplant (booo!) (more info here: bit.ly/akM5DJ , bit.ly/dcTF2g - she uses dairy in some of her recipes which is a no-go for this fibro diet)
8. my add: ALCOHOL (WRECKS your stomach lining and prevents absorption of very important B vitamins)
The long WebMD article/list w/explanations: bit.ly/dkGvfr
I can imagine there are fibro people out there reading the list and crying with me. I have been sugar-free, but not fructose free. Man, that's rough. Fructose, too? I believe it's a blood sugar balancing act. And my body wants it low. I feel best when my bg is about 80-90. Guess when that is? When me belly is empty!
Anti-inflammatory protocols I've read about, but do your own homework:
1. Get a leaky gut test!! It's worth it to know if you could be sending large inflammatory proteins into your bloodstream/body. (Make sure you don't have celiac: www.bit.ly/cdsymptoms ). Leaky gut info from Genova Diagnostics (phone doc to order a test kit) bit.ly/9EfNmR . bit.ly/b7ToFh
2. Elimination diet to find food responses. bit.ly/townsendfibro
3. Eat anti-inflammatory foods (grain fed saturated fats are inflammatory and have aracadonic acid. Try lean meats like grass-fed bison, wild game & seafood, organic-if-you-can meat, & eggs. Yolks are great so have a few depending on your inflammation level, but if you need more protein, have extra whites, but w/the yolks. Eggs have a great, if not perfect amino acid profile but only when yolk & white are together, I've read; also, they're easier to digest.) bit.ly/9pgu8S
Keep your liver clean (veggies, lemon water, garlic, onions, water, greens, sulphur veggies, milk thistle...) I'm thinking clean gut/liver = less pain. Watch pain and other medications, esp NSAIDS because they can damage your gut lining and liver. If your liver's busy detoxing chemicals, meds, food allergens or unhealthy fats, it can't work it. It's a slug, and so are you.
4. Take fish oil. Lots of it. I'm currently taking 3500 - 5175 grams a day depending on my diet. As you know, we can't make our own EFAs (essential fatty acids). I had a heart attack cause I ate too much AA, not any EFA. My liver could not keep up with repairs needed with exertion, along with low serotonin and other hormones (ie no energy in my mitochondria).
5. Consider pancreatic enzymes. I'll report in another blog my experience. Help your woeful sweet gut do its job. As we age, a lot of us have less stomach acid to digest our food, and that's why you hear people say they have a tough time digesting red meat - they have low stomach acid. Read here for info on low HCL: (I may have shared this before): bit.ly/TUMSGott
Anti-inflammatory other stuff:
Curcumin (Dr. Blaylock likes this, as does the doc who wrote Anti-Cancer).
Chondroitin, glucosamine, and/or MSM. DH swears by it for his arthritis. I'm going to try next.
Things on my list to tackle next:
1. Bacon and deli without nitrites/nitrates (I think Target has Hormel). I don't like to make it, so it won't be often. Scratch this. Thinking of all the aracadonic acid. I doubt the bacon is free-range(?)/'wild' or has not eaten corn. I watched a Dirty Jobs show about a pig farmer in Vegas. The pigs ate the most disgusting leftovers from casinos - can you imagine how the heat cooks it all? (not saying I'd eat Vegas pigs, but ew).
2. Phase out flavored tuna packets: "natural flavors"
3. Continue w/no dairy. Still a daily angst. Persevere. Write about it when you want some, just don't give!
4. Big tomato fan! Love peppers! Need new recipes for salsa, Greek salads and ceviche. I will embark on nightshades after my green peppers are gone and I'm a full week dairy free. One thing at at time, right? :P
What a food quadmire!
I have reduced the excess lactid acid in my hams and quads by dissing dairy, which is but part of my quest.
I now realize my residual stiffness is not part of my muscle pain, so I wonder if I have osteoarthritis. Don't give me flack for my neuroticism! lol The initial link/article brought up a good point and is probably why some doctors don't believe in fibro: the pain is secondary to a primary dis-ease, syndrome, problem. For me that would be celiac (my route to a leaky gut), which is gut and other organ inflammation; and arthritis is a cousin, which is joint inflammation. My pointing finger knuckles are larger. I don't know if but I could have it elsewhere ie hips? This is not something I've ever looked into. Would that show on a DEXA scan? (holistic doc said probably not). Both osteo and rheumatoid arthritis run on my paternal side, and osteo on maternal.
I haven't mentioned it, but in May I DID finally get in to see a dermatologist after 6 weeks for a 5 min appt: my "toe" blister is called a 'myxoid cyst' and is related to osteoarthritis (go figure). He said to leave it alone, that it might even disappear on its own. It actually seems to have worsened from when I saw him. From online, NOT the doc(?), I surmise I could try to pin pop it. Doc said surgery would be painful, to put it off. No problem. :) Anyway, it'll be interesting if it goes away with the new changes in my diet. please oh please oh please. pics here: bit.ly/cystpics
If you are alarmed at the list and think you possibly could never give up your favorite foods, really, consider that you're addicted. I was/am. I know. There are casomorphins in dairy ( bit.ly/fjHZK1 ) and opioids gluten grains wheat, rye, barley and cross-contaminated oats (have shared links in other blog entries). Caffeine (coffee and chocolate) is addicting, right? Sugar's hard to give up, right? Nightshades can and are (tobacco is in the nightshade family): bit.ly/bMvvMf addicting - I LOVE tomatoes and eat them almost daily. MSG and additives are often excitotoxins which are addicting. Alcohol is addicting (see Dr. O'Bryan blog entry - what not to eat for a healthy gut). Try to ask people to give up their wine, and they whine, right? It's the first thing that pops out of people's mouths when I tell them I don't eat grains: "What? I could NEVER give up bread or pasta!" (said that one myself! lol) "What? I could never give up cheese and wine!" I know, I know. But I'm doing it.
I can't help but think I come by my addictions honestly. My father is addicted to grains, milk and alcohol, and I swear his gut is the root of his Alzheimer's. It made our lives miserable. My mother's side has drug addiction, tobacco addiction, and diabetes, so food addiction.
Our culture revolves around our addictions:
-Burger joints (gluten, nightshades: potatoes & ketchup, caffeine, MILKshakes, beef - not sure that's an addiction :P),
-Pizza joints (gluten and dairy, nightshades, caffeine, alcohol),
-Donut joints (gluten, yeast, sugar, caffeine w/dairy),
-iHop or Waffle House (gluten, dairy, caffeine, sugar, even their eggs have gluten :( ).
-Starbucks (caffeine, dairy, pastry - gluten, yeast, sugar),
-Mrs. Fields (gluten, choc caffeine, and sugar),
-Sandwich shops (gluten, caffeine),
-Bars and nightclubs (alcohol and tobacco), or wine-tastings (dairy and alcohol)
-School lunches (gluten and dairy), but don't get me started on subsidies ...
Have you been to the mall lately? Candy stores, cotton candy, pretzel shops ... phew. How about a gas station or 7-11-type store? It's loaded with a veritable mixture of all addictions. And maybe some bananas or apples by the register (yeah!).
A new salad restaurant opened in town. I hope it catches on. It's worth every penny to get real nutrient-dense food. I'm choosing my battles I guess. It's hard, and I'm not perfect but it's SO helping. :)
For those fibro sufferers linking here from About.com: EDITED: JULY 15, 2013: THIS IS AN INCOMPLETE LIST but it got me started. The original article it was taken from has been changed to not include the exact foods (last time I checked) anymore (don't they want you to get well, hmm?). Please don't take my advice regarding supplements and such - I've since learned how individual we are and what may help me might not help you. HOWEVER, the idea is right on the money - anti-inflammatory diet is key for fibro sufferers. I hope to come back with links here for more info. My page has been down the past year and I've noticed how many people are being directed here from my bit.ly stats: I am opening it up again for YOU! I have figured it out and would so like it if someone else could try this way of eating and corroborate my experience. I know of some fibro sufferers who simply go gluten-free/paleo and are better! Unfortunately, that wasn't my row to hoe. I had to hoe a lot more rows - lol. Please check back again for more current blog entries which might help. I'm in the middle of moving my daughter out, putting up my house for sale and moving and don't have a lot of time to be present here. My best wishes to you on your journey. Thank you for reading. I hope something clicks and helps you. :) LOW-HISTAMINE DIET is what has helped me in addition to the above. It's complicated. I'm on FB, so look for Dot SLady there. (What's up w/facebook not allowing one-named persons!?) I have a lot of references and links in my feed - keep scrolling and read, read, read! If it helps, please comment because other people need to catch on!
Friday, June 25, 2010
and I hope it continues :).
Sometimes I need a in the head (I've tried quitting dairy several times now). My hospital stay showed me some light. Nah, not the heart attack , but the menu ! I ate REAL paleo , not my usual "kinda-sorta" paleo with dairy cheats in . I lost 2 pounds. I must be a stubborn mule because I want what I want sometimes: well, since my dx. You give up A LOT when you go gf. Didn't want to give up my yogurt or half & half in coffee (gave up coffee, and NOW decaf, too). I never had lactose intolerance so I didn't think dairy bothered me. Sooo, since I had neuros tested, knowing I have even the smallest of a leaky gut, AND how I feel now only four days into dairy-free? I'm feeling awesomer than ever!
Leaky gut allows proteins into the blood which shouldn't be there. The opioids in dairy cross the blood brain barrier. This promotes inflammation and can cause depression.
I have to be honest, at this point anyway, I'm a wantin for food that is "satisfying" - "satisfying" : whole fat Greek yogurt, esp Greek Gods' pomegranate. French fries and/or mashed potatoes w/gravy. And my fave, potato chips. *sigh* I gotta do what my body tells me, and what I have to hope for is that once I'm unleaky or repaired that once in a while I can "cheat" ??? I'll hang on to that for now until I can work it out of my system. I sound like an addict, don't I?
I have more energy. When the wants to go out to get some , I usually don't want to get out of my office chair, so I roll over to the door. Now I zoom up and out of the chair no problem :). I'm still stiff a bit after sitting too long, but this is an encouraging development. Just had to share.
I'm also not eating as much because of it. I need and am trying to eat what I have before another Sam's Club purchase.
My fasting blood glucose last week was 92. Today it's 80. Eating green, protein, coconut oil, fish oil, veggies mostly. I'm outta fruit except for frozen which I've used in my smoothies. only about 2-3 miles and just a bit. Relaxing! in the . Trying to be generous with myself and being okay with it. Sometimes I'm hungry in the middle of the night.
Still working on the . TravaCor is helping a bit. Progesterone cream is helping a bit. But last night? Probably needed some carbs before sleep. It was rough. And I missed the roofer this morning. Or he forgot. bah.
No light in the bedroom (need to tape off the smoke alarm light-it's green/yellow but drives me nuts): no , no phone. The in the next room is off, not blinking in sleep mode. The night light in the bathroom is red rather than white to block blue light which helps promote melatonin production. All window shades and doors are closed. Earplugs and eyeshades on. Cool temp. Cute . Trying to reset circadian rhythm to retire by 11p - so far so good - but goal is to start retiring by 9p and bed by 10p. I started bad rhythm walking after dark in the summer when it was cooler - not so helpful.
I'm trying to talk neighborhood into not installing street lamps (dues have jumped from $400 to $1000/year already - no thanks!) cause it disrupts nature's circadian rhythm, too. I don't want it blaring in my bedroom windows. Some neighbors leave their lights on all night. Light pollution - blech. Let's get back to nature. Or help me get back to MY nature. lol. They think I'm nuts. lol I don't care! I know I'm right. One neighbor wants 'em so she can see snakes in the road walking over to another neighbor's. I said, 'Get a flashlight!" (It's cheaper.)
I want to tell the neurologist about giving up dairy, not supplements ! Since taking out dairy I have more energy to exercise MODERATELY to try to build up my serotonin more slow-ly than pushing in a 5K for some stupid time that doesn't matter a hill o'beans. I can find competitiveness later. Dr. Murphree, fibro whiz doc says to drink grape juice with your 5-HTP (for me, the TravaCor) before bed, so the insulin can transport your dinner protein (l-tryptophan) into your brain. I'm gonna try sweet potato before I go to a juice because I'm concerned about blood glucose skyrocketing.
Here's a great Ron Hoggan (author, Dangerous Grains) article about depression and food allergies: bit.ly/cXd6lE
And, I don't consider this an "allergy" per se, but a delayed food intolerance/sensitivity. Here's another's experience w/dairy allergy, as she puts it: bit.ly/984T0L
And yes SP friends, still planning on looking into chiropactor, acupuncture, and also Myer's Cocktails. :)
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