Saturday, June 26, 2010
The short list:
1. Aspartame and other fake sugars (never have, gross)
2. Food additives including MSG and nitrates (no MSG check, nitrates - no prob)
3. Sugar, fructose, and simple carbohydrates (check, poo! fruit? still having some, check)
4. Caffeine, incl coffee, tea, colas, chocolate (check, check, check, poo!/check - I've cheated) teeccino.com/about/43/Gluten-
free-.html for coffee substitute-gf herbal tea. may not be safe for a celiac, but if you're not, it's an option to look at.
5. Yeast and gluten (check and check - you KNOW what gf diet did for my pain! yay!)
6. Dairy (poo) :( I love plain yogurt (I thought taking out sugar was good, but it's not enough - there are opioids in dairy, well, and gluten: bit.ly/foodopioids )
7. Nightshade Plants: Tomatoes, chili and bell peppers, potatoes, and eggplant (booo!) (more info here: bit.ly/akM5DJ , bit.ly/dcTF2g - she uses dairy in some of her recipes which is a no-go for this fibro diet)
8. my add: ALCOHOL (WRECKS your stomach lining and prevents absorption of very important B vitamins)
The long WebMD article/list w/explanations: bit.ly/dkGvfr
I can imagine there are fibro people out there reading the list and crying with me. I have been sugar-free, but not fructose free. Man, that's rough. Fructose, too? I believe it's a blood sugar balancing act. And my body wants it low. I feel best when my bg is about 80-90. Guess when that is? When me belly is empty!
Anti-inflammatory protocols I've read about, but do your own homework:
1. Get a leaky gut test!! It's worth it to know if you could be sending large inflammatory proteins into your bloodstream/body. (Make sure you don't have celiac: www.bit.ly/cdsymptoms ). Leaky gut info from Genova Diagnostics (phone doc to order a test kit) bit.ly/9EfNmR . bit.ly/b7ToFh
2. Elimination diet to find food responses. bit.ly/townsendfibro
3. Eat anti-inflammatory foods (grain fed saturated fats are inflammatory and have aracadonic acid. Try lean meats like grass-fed bison, wild game & seafood, organic-if-you-can meat, & eggs. Yolks are great so have a few depending on your inflammation level, but if you need more protein, have extra whites, but w/the yolks. Eggs have a great, if not perfect amino acid profile but only when yolk & white are together, I've read; also, they're easier to digest.) bit.ly/9pgu8S
Keep your liver clean (veggies, lemon water, garlic, onions, water, greens, sulphur veggies, milk thistle...) I'm thinking clean gut/liver = less pain. Watch pain and other medications, esp NSAIDS because they can damage your gut lining and liver. If your liver's busy detoxing chemicals, meds, food allergens or unhealthy fats, it can't work it. It's a slug, and so are you.
4. Take fish oil. Lots of it. I'm currently taking 3500 - 5175 grams a day depending on my diet. As you know, we can't make our own EFAs (essential fatty acids). I had a heart attack cause I ate too much AA, not any EFA. My liver could not keep up with repairs needed with exertion, along with low serotonin and other hormones (ie no energy in my mitochondria).
5. Consider pancreatic enzymes. I'll report in another blog my experience. Help your woeful sweet gut do its job. As we age, a lot of us have less stomach acid to digest our food, and that's why you hear people say they have a tough time digesting red meat - they have low stomach acid. Read here for info on low HCL: (I may have shared this before): bit.ly/TUMSGott
Anti-inflammatory other stuff:
Curcumin (Dr. Blaylock likes this, as does the doc who wrote Anti-Cancer).
Chondroitin, glucosamine, and/or MSM. DH swears by it for his arthritis. I'm going to try next.
Things on my list to tackle next:
1. Bacon and deli without nitrites/nitrates (I think Target has Hormel). I don't like to make it, so it won't be often. Scratch this. Thinking of all the aracadonic acid. I doubt the bacon is free-range(?)/'wild' or has not eaten corn. I watched a Dirty Jobs show about a pig farmer in Vegas. The pigs ate the most disgusting leftovers from casinos - can you imagine how the heat cooks it all? (not saying I'd eat Vegas pigs, but ew).
2. Phase out flavored tuna packets: "natural flavors"
3. Continue w/no dairy. Still a daily angst. Persevere. Write about it when you want some, just don't give!
4. Big tomato fan! Love peppers! Need new recipes for salsa, Greek salads and ceviche. I will embark on nightshades after my green peppers are gone and I'm a full week dairy free. One thing at at time, right? :P
What a food quadmire!
I have reduced the excess lactid acid in my hams and quads by dissing dairy, which is but part of my quest.
I now realize my residual stiffness is not part of my muscle pain, so I wonder if I have osteoarthritis. Don't give me flack for my neuroticism! lol The initial link/article brought up a good point and is probably why some doctors don't believe in fibro: the pain is secondary to a primary dis-ease, syndrome, problem. For me that would be celiac (my route to a leaky gut), which is gut and other organ inflammation; and arthritis is a cousin, which is joint inflammation. My pointing finger knuckles are larger. I don't know if but I could have it elsewhere ie hips? This is not something I've ever looked into. Would that show on a DEXA scan? (holistic doc said probably not). Both osteo and rheumatoid arthritis run on my paternal side, and osteo on maternal.
I haven't mentioned it, but in May I DID finally get in to see a dermatologist after 6 weeks for a 5 min appt: my "toe" blister is called a 'myxoid cyst' and is related to osteoarthritis (go figure). He said to leave it alone, that it might even disappear on its own. It actually seems to have worsened from when I saw him. From online, NOT the doc(?), I surmise I could try to pin pop it. Doc said surgery would be painful, to put it off. No problem. :) Anyway, it'll be interesting if it goes away with the new changes in my diet. please oh please oh please. pics here: bit.ly/cystpics
If you are alarmed at the list and think you possibly could never give up your favorite foods, really, consider that you're addicted. I was/am. I know. There are casomorphins in dairy ( bit.ly/fjHZK1 ) and opioids gluten grains wheat, rye, barley and cross-contaminated oats (have shared links in other blog entries). Caffeine (coffee and chocolate) is addicting, right? Sugar's hard to give up, right? Nightshades can and are (tobacco is in the nightshade family): bit.ly/bMvvMf addicting - I LOVE tomatoes and eat them almost daily. MSG and additives are often excitotoxins which are addicting. Alcohol is addicting (see Dr. O'Bryan blog entry - what not to eat for a healthy gut). Try to ask people to give up their wine, and they whine, right? It's the first thing that pops out of people's mouths when I tell them I don't eat grains: "What? I could NEVER give up bread or pasta!" (said that one myself! lol) "What? I could never give up cheese and wine!" I know, I know. But I'm doing it.
I can't help but think I come by my addictions honestly. My father is addicted to grains, milk and alcohol, and I swear his gut is the root of his Alzheimer's. It made our lives miserable. My mother's side has drug addiction, tobacco addiction, and diabetes, so food addiction.
Our culture revolves around our addictions:
-Burger joints (gluten, nightshades: potatoes & ketchup, caffeine, MILKshakes, beef - not sure that's an addiction :P),
-Pizza joints (gluten and dairy, nightshades, caffeine, alcohol),
-Donut joints (gluten, yeast, sugar, caffeine w/dairy),
-iHop or Waffle House (gluten, dairy, caffeine, sugar, even their eggs have gluten :( ).
-Starbucks (caffeine, dairy, pastry - gluten, yeast, sugar),
-Mrs. Fields (gluten, choc caffeine, and sugar),
-Sandwich shops (gluten, caffeine),
-Bars and nightclubs (alcohol and tobacco), or wine-tastings (dairy and alcohol)
-School lunches (gluten and dairy), but don't get me started on subsidies ...
Have you been to the mall lately? Candy stores, cotton candy, pretzel shops ... phew. How about a gas station or 7-11-type store? It's loaded with a veritable mixture of all addictions. And maybe some bananas or apples by the register (yeah!).
A new salad restaurant opened in town. I hope it catches on. It's worth every penny to get real nutrient-dense food. I'm choosing my battles I guess. It's hard, and I'm not perfect but it's SO helping. :)
For those fibro sufferers linking here from About.com: EDITED: JULY 15, 2013: THIS IS AN INCOMPLETE LIST but it got me started. The original article it was taken from has been changed to not include the exact foods (last time I checked) anymore (don't they want you to get well, hmm?). Please don't take my advice regarding supplements and such - I've since learned how individual we are and what may help me might not help you. HOWEVER, the idea is right on the money - anti-inflammatory diet is key for fibro sufferers. I hope to come back with links here for more info. My page has been down the past year and I've noticed how many people are being directed here from my bit.ly stats: I am opening it up again for YOU! I have figured it out and would so like it if someone else could try this way of eating and corroborate my experience. I know of some fibro sufferers who simply go gluten-free/paleo and are better! Unfortunately, that wasn't my row to hoe. I had to hoe a lot more rows - lol. Please check back again for more current blog entries which might help. I'm in the middle of moving my daughter out, putting up my house for sale and moving and don't have a lot of time to be present here. My best wishes to you on your journey. Thank you for reading. I hope something clicks and helps you. :) LOW-HISTAMINE DIET is what has helped me in addition to the above. It's complicated. I'm on FB, so look for Dot SLady there. (What's up w/facebook not allowing one-named persons!?) I have a lot of references and links in my feed - keep scrolling and read, read, read! If it helps, please comment because other people need to catch on!
Friday, June 25, 2010
and I hope it continues :).
Sometimes I need a in the head (I've tried quitting dairy several times now). My hospital stay showed me some light. Nah, not the heart attack , but the menu ! I ate REAL paleo , not my usual "kinda-sorta" paleo with dairy cheats in . I lost 2 pounds. I must be a stubborn mule because I want what I want sometimes: well, since my dx. You give up A LOT when you go gf. Didn't want to give up my yogurt or half & half in coffee (gave up coffee, and NOW decaf, too). I never had lactose intolerance so I didn't think dairy bothered me. Sooo, since I had neuros tested, knowing I have even the smallest of a leaky gut, AND how I feel now only four days into dairy-free? I'm feeling awesomer than ever!
Leaky gut allows proteins into the blood which shouldn't be there. The opioids in dairy cross the blood brain barrier. This promotes inflammation and can cause depression.
I have to be honest, at this point anyway, I'm a wantin for food that is "satisfying" - "satisfying" : whole fat Greek yogurt, esp Greek Gods' pomegranate. French fries and/or mashed potatoes w/gravy. And my fave, potato chips. *sigh* I gotta do what my body tells me, and what I have to hope for is that once I'm unleaky or repaired that once in a while I can "cheat" ??? I'll hang on to that for now until I can work it out of my system. I sound like an addict, don't I?
I have more energy. When the wants to go out to get some , I usually don't want to get out of my office chair, so I roll over to the door. Now I zoom up and out of the chair no problem :). I'm still stiff a bit after sitting too long, but this is an encouraging development. Just had to share.
I'm also not eating as much because of it. I need and am trying to eat what I have before another Sam's Club purchase.
My fasting blood glucose last week was 92. Today it's 80. Eating green, protein, coconut oil, fish oil, veggies mostly. I'm outta fruit except for frozen which I've used in my smoothies. only about 2-3 miles and just a bit. Relaxing! in the . Trying to be generous with myself and being okay with it. Sometimes I'm hungry in the middle of the night.
Still working on the . TravaCor is helping a bit. Progesterone cream is helping a bit. But last night? Probably needed some carbs before sleep. It was rough. And I missed the roofer this morning. Or he forgot. bah.
No light in the bedroom (need to tape off the smoke alarm light-it's green/yellow but drives me nuts): no , no phone. The in the next room is off, not blinking in sleep mode. The night light in the bathroom is red rather than white to block blue light which helps promote melatonin production. All window shades and doors are closed. Earplugs and eyeshades on. Cool temp. Cute . Trying to reset circadian rhythm to retire by 11p - so far so good - but goal is to start retiring by 9p and bed by 10p. I started bad rhythm walking after dark in the summer when it was cooler - not so helpful.
I'm trying to talk neighborhood into not installing street lamps (dues have jumped from $400 to $1000/year already - no thanks!) cause it disrupts nature's circadian rhythm, too. I don't want it blaring in my bedroom windows. Some neighbors leave their lights on all night. Light pollution - blech. Let's get back to nature. Or help me get back to MY nature. lol. They think I'm nuts. lol I don't care! I know I'm right. One neighbor wants 'em so she can see snakes in the road walking over to another neighbor's. I said, 'Get a flashlight!" (It's cheaper.)
I want to tell the neurologist about giving up dairy, not supplements ! Since taking out dairy I have more energy to exercise MODERATELY to try to build up my serotonin more slow-ly than pushing in a 5K for some stupid time that doesn't matter a hill o'beans. I can find competitiveness later. Dr. Murphree, fibro whiz doc says to drink grape juice with your 5-HTP (for me, the TravaCor) before bed, so the insulin can transport your dinner protein (l-tryptophan) into your brain. I'm gonna try sweet potato before I go to a juice because I'm concerned about blood glucose skyrocketing.
Here's a great Ron Hoggan (author, Dangerous Grains) article about depression and food allergies: bit.ly/cXd6lE
And, I don't consider this an "allergy" per se, but a delayed food intolerance/sensitivity. Here's another's experience w/dairy allergy, as she puts it: bit.ly/984T0L
And yes SP friends, still planning on looking into chiropactor, acupuncture, and also Myer's Cocktails. :)
Friday, June 18, 2010
The neurologist concluded I have a 90% chance of no mitochondrial disease. If I want to find out if that by chance in that 10% I 'do' have one, then I'd have to get put under for a muscle biopsy. He doesn't think it's worth it. He said there wouldn't be a treatment probably anyway. He put patches and stuck needles into my left calve and quad in several places , then zapped my nerves (they work fine-ouch) and read a machine. He said I'm normal. He said my CK enzymes and heart enzymes are not correlated.
I asked if it could be on some sort of "rhabdo" spectrum.
"No. Your CK enzymes are nothing to worry about."
I said, "They're a symptom."
He said, "No, they are not a symptom. Your pain is a symptom, but they may not be correlated." (btw, I can't see how they are NOT correlated. I took the CK test when not in pain in Jan., and had normal test. I took CK test after 5K and in leg pain, and it was elevated. My GP said I could get the test next time I had leg pain, so will take advantage of his offer when the time comes.)
I don't understand. I told him I read online people's stories about rhabdo - how their numbers were in the thousands, I understood I did not have "typical" rhabdo. Why does my CK elevate when I have pain? He said people live with my numbers all the time. (I feel for them.)
Well, I'm tired of living with them sir. Have been living with them for over 10 years, it was way worse before gf diet. He has no answers - wants to retain his integrity. He knows nothing about fibromyalgia, nor serotonin - not sure fibro is even real. I should just live with it.
I told him how I couldn't move for three days after training session last year. He said he felt that way, too, after working out after not having worked out. No, I explain. It was worse. I couldn't move. I ask him, how long til your pain subsided? He said 3-4 days same as me. I tell him, okay, then why wouldn't my pain go away (ever) the year before when I was working out daily for six months? "I don't have the answer to that. I have to retain my integrity."
He then suggested I try not taking all my supplements to see if the pain goes away. He had a patient who did this and his pain vanished. I told him I never took supplements til after getting celiac diagnosis 4 yrs ago, and my pain was way worse before gf diet. I told him how the TravaCor made the pain go away in two days, but headaches were a side effect (including pain in legs). He does not know. To tell the truth, I'd love to not take the supps. I've waned before and paid the price (didn't take vit D, my calcium also went down which got me a parathyroid scan, remember? Is it coincidence I wasn't taking fish oil and I had a heart attack?), so I'm kinda scared to do it. He suggests I go back to holistic doc. Oh, he also suggests lowering cholesterol to prevent heart attacks. (Um, my arteries are clean ...). I wanted to ask his cholesterol: he was heavy. :X
So I'm gonna chill about all my conjecturing. I'm glad he doesn't think I have any muscle "dis-ease", however, am bummed I'm back to square one. I don't want to accept the pain and live this way without answers.
Back to "sisu."
Wednesday, June 16, 2010
Hints of heart attack to come from "Got the T-shirt" blog entry:
8. Legs are feeling like Oprah's. Puff. What do I mean? I remember she said her legs felt like tree trunks when she runs sometimes ... no energy. See #2 above. I ate a lot yesterday preparing for today? I should read more about this ... lol. Actually, I think it's because I lack serotonin. If you are depressed and don't have energy, where's "it" supposed to come from? Ex-er-cise helps!
*Docs and nurses kept asking me if I was diabetic when I was hospitalized. No. However, something absolutely might be up with my pancreas nonetheless.
I know food affects your hormones and neurotransmitters. I try to eat balanced meals, but I'm craving carbs lately and again cause of low serotonin (potato chips is my crave of choice always. I didn't eat them before the race ). BUT, the day before the race, I will admit I overate: I had double my usual carbs, so, 302 grams! I didn't do "carb loading" homework, what can I say? The last meal I had was popcorn, butter and salt. Then I didn't eat race morning cause I wasn't hungry (I'm sure my liver wasn't done processing all the food from the day before). I ate a banana, blueberries, strawberries, sausage, a Glutino muffin top w/turkey, whole fat yogurt, decaf & cream, Amy's cheese enchiladas for lunch, popcorn. TOO MUCH! And my body, esp if I have reactive hypoglycemia like I think(?), couldn't handle dip in blood sugar during the race. This actually dovetails into #18 below.
15. Water. Could use some. Look how far away it is. Got one dixie cup. Need more on return. Stop at table for two more. Not enough. Feeling the heat.
*Dehydration can cause a heart attack. bit.ly/c3Majb I thought this was like no big deal. I had a glass of water before and four right after. Will still bring up some sort of "rhabdo" spectrum with neurologist on Friday. baggas.tripod.com/rhabdo.html
18. Feeling blood sugar go down. Can tell my face is red. I hate when that happens. Why does that happen to some people? Rosacea?
*I think poor autonomic body functions can cause overheating and red face - maybe my blood pressure was way up? Will talk to neurologist at Friday's appt about "dysautonomia" ( bit.ly/9Gds1B , body temp: bit.ly/9aHfju , fibro connection: bit.ly/dBmzkx ). The feeling blood sugar thing is not good: I feel that sometimes when I eat a meal.*
From the fibro connection link:
"One other approach our group has studied is to utilize neurotransmitter precursors to augment neurotransmitter dysfunction. These precursors are classified and regulated as medical foods by the FDA. Medical foods are regulated by the FDA for patients with specific disease states and are not dietary supplements. The medical foods we have utilized are amino acid-based formulations that use combinations in specific proportions that result in significant reduction of the dose of amino acids necessary to produce the requisite neurotransmitters. The systems provide serotonin, acetylcholine, glutamate, nitric oxide, and cortisol. The preparations are given as a bedtime dose to induce sleep, and in the morning to reduce daytime fatigue and improve cognitive function. In addition, there is a preparation which may reduce pain and point tenderness."
22. Running through running buses on both sides of the street - gag me - their exhaust is putrid. Cover face w/shirt and try to not gag. Honest. I read somewhere that people w/low serotonin gag easier and it explained so much. My old orthodontist boss told me he thought gaggers had control issues ... I'm gonna have to email him!
Insight into hormones, neurotramitters and diet (for men, but likely for women, too, I'd think?): bit.ly/hormonehealth It even mentions gag reflex:
"...Decreased (gags easily) = Strong (sympathetic dominant) Increased (doesn’t gag easy) = Weak (parasympathetic dominant)." I have to reread this article, I don't get it all...
*I have always been a gagger. Seeing someone do something gross, I'll gag. Friend used to not clean her fridge, and I'd do it for her (hey, I didn't have a kid at the time). We'd laugh and laugh as I took things out all hairy and moldy - gagging the whole time. We'd take pictures, put face stickers on them and name them - lol. Anyway, you get that I have an easy gag reflex.*
Symptoms for reactive hypoglycemia also include, hello, palpitations and depression. I will discuss with neurologist. Seems the Rx is to eat smaller meals, more often and to cut the crap. I've already cut the crap, but hoping I can still eat fruit; I've been getting careless and sometimes'll eat fruit alone. Not anymore. I was able to listen to cassette tapes on my boom box during one of my old jobs (this was before MP3s obviously, lol). One was about diet and the author suggested eating your dessert, in my case fruit, in the middle of the meal.
I am also lonely for my Dh. We've been 2.5 years living separately. I've put my life on hold til he can get a retirement job. This is getting to me because it's time to move on. Will someone please give the memo to the Economy?
I like to think I have what the Finns call, "Sisu": unusual perseverance in the face of adversity. It's how we jump into freezing water after a sauna - ha ha. Which is another blog entry, another day. :) I'm not so sure I'm up to THAT just yet.
Notes for me: bit.ly/9NoFWa
"...prevent blood sugar levels from falling dramatically which would decrease the threat of serious effects such as fainting, illness, and even heart attack." (did not take supplements day of race - fyi)
Wiki article "reactive hypoglycemia" bit.ly/bJzVOm
React. Hypo: bit.ly/awgTc0
"...there’s much more to hypoglycemia symptoms and hypoglycemia treatments than just stabilizing blood sugar. The ADRENAL* stress hormones, adrenalin and cortisol, are critically involved. In fact, most hypoglycemia symptoms are caused not by low blood sugar per se, but by an over-reaction of adrenalin and cortisol discharge–part of the body’s defense against blood sugar falling too low."
Amer. Journal of Clinical Nutrition article: bit.ly/AJCNbnoTxI
*my note: food intolerance can contribute to adrenal fatigue.
Oral glucose tolerance tests not advised ...
I wish I'd taken bg day of race and after, etc. I wish I'd taken blood pressure, too. Today fasting bg was 92 (I know, "high" shh). I ate about 3/4c of plain 0%fat Oikos yogurt and 1 strawberry as I cut strawberries. I SParked a bit. I don't know time lapse, but about an hour? I started feeling anxiety: checked bg and it was 80. Is this hypoglycemia? Need to research more ...
I also found some info re: what I think are Myer's (type) Cocktails, but this ND uses it for celiac patients. He explains that the nutrition is delivered quicker than processing through the liver: bit.ly/cwyP2r .
He also uses a therapy with which I'm unfamiliar: "Prolotherapy involves the injection of dextrose, a local anaesthetic, and sometimes a fish oil derivative designed to stimulate the body's own healing mechanisms." I'm not sure I'm ready for that, but wanted to keep it for reference: bit.ly/9oJNQC
Saturday, June 12, 2010
It was the Perfect Storm.
And I’m ready to write about it. Remember the t-shirt I ‘had’ to trophy last month? It cost more than it was worth. Let me set up the story some.
In January: First, I have a wonderful friend. I housesat (didn't sleep there tho) for her in January when she was basking in the sun in a different hemisphere. When it got below freezing I was to turn on upstairs faucets to prevent freezing pipes. I turned on the shower head, too, because I'm an over-achiever. Long story, short, I flooded (‘splashes’ of water or a leaky shower pan? did this) the upstairs a lil bit, which flowed downstairs a lot a bit. She didn’t want me calling plumber, she called another friend, a realtor w/connections, who ended up calling the old plumber I gave friend (another story)– the one we don’t call anymore cause it turns out he has drug addiction and felonies. How was Realtor to know? Oy. All in all, this poor friend o’mine had to repaint the ceiling & some trim, restain some cupboards and pay said felon plumber. You can imagine how mortified I was to have had this happen.
More January: Scheduled tri-annual visit w/hematologist. I ask him for ‘creatine kinase’ or CK test as I’ve read it’s associated with rhabdo – or rhabdomyolosis. Doctors associate rhabdo with say firefighters in heavy gear getting dehydrated during fire fighting, or athletes working outside in hot weather. Your muscles seize. I’m sure this is what happened last year after working out w/that trainer– it’s all I can find online. I’m sure I whined about it in a blog entry somewhere. I had a hunch about these muscle enzymes being elevated – but only when I’m in big pain after working out. The hematologist humored/tested me, but I knew they’d not be elevated because I hadn’t worked my muscles to fatigue. Sure enough, they're not elevated. Okay, base lab established.
In April: Let me follow up on some test results. You know I love tests. The good news per a new DEXA scan, is that I increased my bone density 8.7% since my CD diagnosis (Feb ‘06). It’s recommended you get a bone density scan after dx, I did it, and I was considered osteopenic. Doc recommended Posture-D supplement (and vit D for low D), but I was crumby at taking it because I had to time it away from Synthroid (calcium blocks absorption), iron and greens, yada. I barely took a half-full bottle. I surmise the increase can mostly be attributed to walking. I also ate more greens, ate a lot of plain yogurt, got some sun, took magnesium (which helps vit D absorb, which in turn helps other bone-building minerals absorb). I increased my ability to absorb by going gluten-free, too, of course. :) Grains and legumes have phytic acid/phytates which can block mineral absorption. Did you know you need minerals so your vitamins’ll absorb or vice-versa? bit.ly/mineralsbogNtO I self-started taking liquid minerals since my heart attack. I’m getting to it, with me.
Also in April: I also got my ALCAT food sensitivity test results. I reacted severely to safflower oil (which I don’t eat, so no prob there). The holistic MD said I should stop eating Severe foods (6 wks) and Moderate intolerant foods (3 wks), then reintroduce and watch for symptoms/reactions.
Early May: go to my GP for thyroid and other labs. I ask him for an updated hsCRP – it’s down to 3! I’ve always been 6 or 11/12 when you want UNDER 3! hsCRP – “high sensitivity” C-reactive protein is more sensitive than a regular CRP. Supposedly also it's for heart inflammation, but I've also read it's for BODY inflammation in general. It's my lowest ever lab. Woo hoo! Maybe cause I gave up a lot of dairy (still ate butter, cheese)? Not sure why. My TSH is on hyper side at .7 I think it was. We're looking for reasons for heart palpitations - again.
My moderate foods: Apple (eat them all the time), apricot, cantaloupe, cayenne pepper, kidney bean (shown up on all 3 of my food tests), kiwi, lamb, nutmeg, olive, onion, sardine, thyme. I eat kidney beans when I have a Wendy’s gf chili when I’m “oot and aboot” and need sustenance. It also has onion. I had one the day of the test. I wish I hadn’t done that. I do eat nutmeg on my sweet potatoes. I use sardines by way of my omega-3 oil daily, and have about daily since my CD dx. I was also working on investigating taste test differences of sardine companies. Guess that can wait. Regardless, it's not supposed to matter when I ate the food in regard to the test. I didn’t find it difficult to stop these foods. I talked to holistic doc about taking krill oil instead of sardine-based Nordic Naturals omega-3 oil. She said she didn’t like unsustainability of them, but would be fine. I never got around to getting them cause I'm kinda feeling subpar. The test also said I had mild reaction to Candida Albicans, to avoid baker’s yeast, beet sugar, brewer’s yeast, cane sugar, fructose, honey, and mushroom. I usually do, except the fructose from fruit sugar. I have that daily. Doc said to disregard. She said to also disregard “Mild Intolerances” column (long list). I’ve heard the less foods you react to, the healthier your gut terrain. I have no reaction to gluten/gliadin, nor casein/whey.
Okay, what I remember I wanted to set up for the heart attack story. Are you still awake/there? lol
After I was done w/my "First 5K ever" race, I was exhausted. I pretty much laid it out with my previous post. MANY clues are there when I look back on it, and I’ll point them out in my next blog entry. I don’t remember what I did shortly after the race, but I went home and tried to rest for sure. I remember taking a hot, long magnesium bath and going to bed early. Drained. Painfully drained. More drained than I remember being before CD dx and having low ferritin, when I felt like I was melting from fatigue. Heavy drained. Remember the ‘tree trunk’ legs I was carrying (prev. blog entry)? Now it was my body feeling that way. NO ENERGY. It was like it was sucked outta me. I just wanted to sleep. I hit the pillow and fell deep into my cushiony nasa-approved cushion top (really helped my fibro soreness). Ahhh. I have a heavy chest like when you gulp a pocket of air, but it’s bigger and won’t go away. My sleep isn’t restful. I awaken around 4am, like usual, and pee. I can’t go back to sleep, so I decide to get up around 5:15am. I'm pretty sure because I just couldn't get comfortable. Around 9:30am I’m fixing breakfast (sweet potato, raspberries, chia/hemp/flaxmeal, flax oil – cause I’m not having omega-3s remember?) … but am not hungry. Want to eat, but am feeling flummoxed and put fork to mouth a couple of times but don’t really want it. My body is whiney and feeling schlumpdety-dump (read: anxiety). My left arm is hurting – just a bit, like when a bp cuff is inflating but not maxxed (that hurts more, specially when it doesn’t stop and needs to restart for some reason).
A band of pain in left arm – chest pressure – flummoxed/anxiety. Hmm, alert: heart attack symptoms! I google to make sure. I call nice friend referenced above. She’s not answering. I call DH who is riding his bike in the Everglades - glad he didn't get nabbed by a gator when he stopped! “Um, DH, I think I’m having a heart attack, but I’m not sure.” He doesn’t quibble – take an aspirin and go to ER! Um, I’m flummoxed. I don’t wake up Dd cause she’s a grouch and will make me feel bad having to convince her I’m not well. She thinks I’m a hypochondriac as it is. THIS makes HER feel WORSE when I tell her that. I find an Equate expired in 2007 baby aspirin (not being one for having OTC meds, I’m lucky to have found it at all). No gluten info on the bottle– see box for details. UGH! I drive myself to nearest Instacare. This is the Bible Belt. It’s Sunday, before noon and they’re closed. I should be in Vegas right now.
DH calls me: “Are you there? How do you feel?”
Me: “I’m waiting for them to open. I think the aspirin is working as arm band pressure has lessened.”
Him: “That’s not good! GET to nearest ER!”
Me: “It’s only 20 mins more, but okay…”
This is my classic under-reaction, par for the course for someone w/a lack of serotonin, epinephrine and norepinephrine. I remember up the street is small hospital w/ER. I stand in line waiting to talk to admitting agent. She gets up to do something, and a nurse sits down at next station to do phone business. I wait for her to finish and ask her questions about, gosh, could I be having heart attack? We discuss and better safe than sorry. She wooshes me in. I’m hooked up, blood’s taken, oxygen given. Indeed! Heart attack! What?! Really?! They checked CK (muscle breakdown enzyme), CK-MB (heart enzyme specifically) and troponin (another heart enzyme). All elevated. See, I’m no fool about the CK! I just know something’s up w/my muscles.
First, the nurse is trying to give me aspirin. Wait! Is there gluten in it? “Seriously. Are you worried about a little gut pain vs heart attack.” “Um, yes. I don’t want to feel weak for a week if I don’t have to … Oh, really? YOU have IBS? Let’s talk about what you may not understand about gluten, celiac, IBS…” lol.
She wants to give me sublingual nitro spray. Wait! Is there gluten in it? “Seriously?” nurse says. Seriously. I give them www.glutenfreedrugs.com site as it’s all I can remember. She is able to look online right there in my ER room, and says the aspirin is gf. (I do some aspirin homework when I get home:. I have to call ER for name of product. It's made by Zenith-Goldline Pharmaceuticals – trying to find info online about Zenith-Goldline is a joke. It's orange, 325mg, blister-pack. AND, when I called ER to verify name (after-the-fact) for gf status, person told me to get discharge papers. I go get discharge papers and name of product isn’t even listed; just says “aspirin.” So much work just for gf aspirin! When I look back at gfdrugs.com, the manufacturer is NOT listed as she said. GRR! However, no reaction. GOOD.)
I gve my medical history in a heart beat. :) Except I forget I’m heterozygous for Factor V Leiden – a clotting disorder. Kind of important in this case. They test TSH, T3, T4. TSH is 2.something. Couple of weeks ago .7 and a bit hyper. I’m transported to the Heart Hospital for further care.
Gurney Journey –
No lights or sirens, but speedily I get transported ia ambulance. Attending EMT is talking w/driver about beating the storm. Please! Watch this hail storm and know that as it’s happening it’s beating against my hospital window with such ferocity that all attending nurses hooked me up, gathered my guests, and ran into the hallway for safety in case the window broke, and a tornado was attached to it. “YooHOO. I’m okay” as I lay alone in the room , lol bit.ly/hailstormmay16 - what a wild ride!
This is what happens when you’re a jogger caught in that hailstorm: bit.ly/bgvTao
(DH had Nice Friend take Dd to pick up car at first hospital, then they visit me for support at Heart Hosp. It’s nice to have an adult there. She brings with her a visiting physician from Vietman. The Vietnamese doctor tells us of heart patients 3 beds to a room, 2 to a bed. :( Um, and the storm beat up our cars. Nice Friend now has over $7500 in damage. Her back windshield is blown out. What are the odds? My car has $8700 damage. Nice Friend has adrenal fatigue, too, like she needs me? She is gracious. I am grateful.)
Tall, dark cardiologist wants to cath me. Trying to explain my celiac, Hashimoto’s, fibro … what about low serotonin? Forget again to mention to him about Factor V Leiden, but tell nurse. (DH’s cardiologist wants to cath HIM, and he won’t do it. He’s had stress test, echos, CT scan and he will not do this invasive procedure.) I figure when else to do this but now? It’s the Cadillac of heart tests. I agree. But omg, if I have to have a stent and take Plavix the rest of my life I’ll just hate it. THIS mortifies me.
A Catholic priest from Africa visits me and his voice booms in a heavy, rich accent, much like my father's (who is Finnish, but you get what I mean). He tells me over and over what a good person I am, and I start balling. It felt good to hear good things whilst under duress (please no Plavix, please), and it felt good to get it out and off my chest as it were. We discuss how we like OK because people are real, and nice.
No eating or drinking 8 or so hrs prior (forget exact #). Ate a great breakfast of two servings of fish, broccoli, sweet potatoes, asparagus, scrambled eggs! The hospital uses Promise butter. I’m not a fan. Ask for fish to be heated in olive oil in low temp, but really, have no control, so give it up! The menu is full of grain carbs, dessert, the pot roast is supposed to be good. I don’t like pot roast. :P
Another meal I ordered meatloaf w/broccoli, sweet potatoes and asparagus. The meat loaf arrived w/gravy and the veggies were touching it. I ask for another meatloaf as indeed, oops, the gravy is gluten-filled (I would have been amazed had it been gf). It comes up plain, good, but no veggies attached. :( Have to ask for new veggies due to cross-contamination. Kitchen people are kind and darned quick - they heated my veggies under Saran wrap :(. Decide to be happy the meatloaf is gf! I love meatloaf. Dd eats the wrong order. There’s one complimentary meal per day for a family member. Thank you so much. The hospital dietician comes in and I tell her the menu is carby and unworthy – the veggies are great and such a small part of the menu. :P So opinionated am I in the bed all fat and almost cathed. Cute thing smiles at me. I lose two pounds while I'm there, btw. Paleo baby.
My Nice Friend shall remain anonymous. :)
BP is 150/82 - whoa! BG is 118. They understand that it's high because of current stress. But really, I've been testing and it's over 100 a lot lately, so I'm surprised A1C is 5.5 (avg bg of 111 I think). I have not had energy to do much exercise.
First ER nurse put my IV needle in at my left inner elbow vein. It prevented good sleep as I couldn’t bend my arm, or when I did, it hurt. When the Heart Hosp nurse removed it and put it on top of my other arm, the needle was bent - at first I thought, wow! But that's when I learned they are plastic now. lol That nurse at the Heart Hospital was a scream. She has IBS, too. I told her if I get the cath, she has to read Living GF for Dummies – lol. I will check up on her later. She was calling me “Tiny Barrett” cause of my tiny barrett, and giving me tude, and I was calling her to come entertain me w/her small town, blue-collar humor. She told me stories about her dad dying, and what a good man he was. How she’ll listen to her mom about Activia now. I didn’t go into what I think of Activia (see old blog entry again - lol - I got opinions: too much sugar.). Poor thang had to shave me before the procedure. Never a pedi, now a Brazilian? lol I found it humiliating. :/P I was glad I had on clean, unstained underwears. :P I had to get nekked for the cath lab – man, it’s FREEZING in there. It was like being in a space station. Please cover my neck/thyroid with a lead collar during the procedure to prevent radiation. They did. Then they shot me in the stomach with something, put something in my IV and I was out – though, I thought I’d be awake. I have a DVD copy of my scan, but I don’t think I can copy it. It was clean, so no stent, no Plavix. YaY! Cardiologist referred me to my GP. That was that. No love lost there. No money in healthy arteries I guess?
Total: 206 (less than 200 desirable)
Tri’s: 74 (under 150 desirable)
HDL: 49 (women want 50 or higher)
LDL: 142 (under 100 desirable)
(My TC/HDL ratio should be under 3, but it's 4.2. Tri's are good.)
I gave GP a rundown of the weekend, and off was he. I said, “Wait! What about my fibro-leg pains? WHAT CAN WE DO???? I can’t help but think my muscle problem affected my heart.” He said, “Myer’s Cocktails. See so-and-so.” Oh for heaven’s sake. Why wasn’t this ever offered at any of our other appts! ARGH! ( en.wikipedia.org/wiki/Myers'_
cocktail , www.fmnetnews.com/resources-a
lert-product8.php and have to do more homework about this.)
I'm to take it easy for 6 weeks, which is up in another week. Like I want to go running right now?
I have thoughts about why this happened, and I'll try to wrap/tie it up in a bow next time. Yeah, I've been googling! :D The dog is nagging me for her walk. Shall follow up later. This is enough, yes? Phew.
Get An Email Alert Each Time DOTSLADY Posts