Thursday, February 18, 2010
And I say that because I had a "day" with Dd. Took her to the functional doc who told her the positive gluten, casein, soy antibody Enterolab stool test she had in 2006 was more sensitive than blood celiac test. Poor Dd's in the River of de Nile. I can relate, it's hard. So we had some displaced anger in the car ride home. I love her, so cried instead of eating my young. She's taken some psych classes and she's using it on me. LOL. With all the lab orders, she says she feels like a lab rat. Sorry hon. And my dog doesn't make me cry.
I needed a smile today, so Daddy Alzheimers spams me daily, and this was one I happened to not delete:
FOR THOSE OF YOU WHO HAVE PETS, THIS IS A TRUE STORY. FOR THOSE THAT DON'T, IT IS A TRUE STORY.
The following was found posted very low on a refrigerator door.
Dear Dogs and Cats: The dishes with the paw prints are yours and contain your food. The other dishes are mine and contain my food. Placing a paw print in the middle of my plate and food does not stake a claim for it becoming your food and dish, nor do I find that aesthetically pleasing in the slightest.
The stairway was not designed by NASCAR and is not a racetrack. Racing me to the bottom is not the object. Tripping me doesn't help because I fall faster than you can run.
I cannot buy anything bigger than a king sized bed. I am very sorry about this. Do not think I will continue sleeping on the couch to ensure your comfort, however. Dogs and cats can actually curl up in a ball when they sleep It is not necessary to sleep perpendicular to each other, stretched out to the fullest extent possible. I also know that sticking tails straight out and having tongues hanging out on the other end to maximize space is nothing but sarcasm.
For the last time, there is no secret exit from the bathroom! If, by some miracle, I beat you there and manage to get the door shut, it is not necessary to claw, whine, meow, try to turn the knob or get your paw under the edge in an attempt to open the door. I must exit through the same door I entered. Also, I have been using the bathroom for years - canine/feline attendance is not required.
The proper order for kissing is: Kiss me first, then go smell the other dog or cat's butt. I cannot stress this enough.
Finally, in fairness, dear pets, I have posted the following message on the front door:
TO ALL NON-PET OWNERS WHO VISIT AND LIKE TO COMPLAIN ABOUT OUR PETS:
(1) They live here. You don't.
(2) If you don't want their hair on your clothes, stay off the furniture. That's why they call it 'fur'-niture.
(3) I like my pets a lot better than I like most people.
(4) To you, they are animals. To me, they are adopted sons/daughters who are short, hairy, walk on all fours and don't speak clearly.
Remember, dogs and cats are better than kids because they:
(1) eat less,
(2) don't ask for money all the time,
(3) are easier to train,
(4) normally come when called,
(5) never ask to drive the car,
(6) don't smoke or drink,
(7) don't want to wear your clothes,
(8) don't have to buy the latest fashions,
(9) don't need a gazillion dollars for college and
(10) if they get pregnant, you can sell their children ..
On the neuro-front, I've upped my TravaCor dose to 1/5th a capsule, sleep deeper, no a.m. headaches, but leg pain continues. Walked about 3.5 miles today, did some good stretching. Glad I did it. Then ate popcorn and butter. :) Glad I did it. Ate sardines. Not so sure with that one. LOL.
Tuesday, February 16, 2010
I've known and talked about it for years. Now it's my turn to walk the walk: do "I" have a leaky gut or "intestinal imperiability" even after four years gluten-free?* Today I'm doing it via Genova Diagnostics' test kit.
1. Day before: don't eat or drink at least 8 hrs prior to the test. It has been at least 12 hrs for me.
2. Don't eat or drink in the morning.
3. Collect morning urine sample in cup, transfer into white lidded tube using a "pipette", and refrigerate in the biohazard bag. Don't eat or drink yet.
4. Fill lactulose/mannitol container w/water and drink. The drink concentrate is 5 grams Lactulose, 1 gram Mannitol, 8 millileters Glycerin, water, then I added water to "fill line."
I can eat and drink after hour two. HOWEVER, do NOT eat esp. fructose (fruit sugars) and:
a. any sugars (fruit, fruit juices, jams, jellies, etc)
b. soft drinks and foods with high fructose corn syrup (HFCS)
c. any dairy products
d. dietetic chocolate
f. mushrooms, beans (legumes, including peanuts), celery
g. chewing gum
Rats, forgot to check fasting blood glucose (not to be over 105 as this would impede results).
FBG 4mins after taking lactulose/mannitol solution: 78.
1/2hr later: bg 75
1 hr later: bg 89 (I can feel this change in my head)
2 hrs later: bg 100 (starting to get hungry at 11:45am)
Don't eat or drink for two hours, then drink at least a cup of water and eat.
Drink at least 1 cup water on the hour for another four hours. Collect all urine for the next four hours in little cup and transfer to big blue jug so end of test Total Urine Measurement can be taken. (Genova measures sugars/Total Urine Measurement).
Shake container and use "pipette" to transfer final "sugared" "AFTER" urine sample from big blue jug to the purple lidded tube. Place that with the "BEFORE" control urine sample in the biohazard bag, refrigerate til ready to ship. Put the biohazard bag into the "flexfoil" pack w/the frozen gel pack, seal, put back in the kit box and ship.
Advice: plan meals ahead of time to not include sugars/fruit.
*My last tTG test was very negative for antibodies to gluten. This is helpful to know in case my test shows leakiness, I won't think it's because of accidental gluten ingestion.
Make sure medications, such as aspirin and anti-inflammatory drugs are NOT taken because it alters results. No sorbitol and/or mannitol. Check supplements, too. I brushed w/toothpaste which had stevia. Didn't swallow, but hope this doesn't alter results. Edit: I called Genova to ask. The Genova rep didn't know if stevia has fructose (my quick googling couldn't find anything), so I'm to write a note w/my kit and tell my doc. It'll depend on my test results if this is important. The rep said likely if it's not on the instructions, that it should be all good.
The point of this is to see how much sugar from the test kit concentrate I dispel/how much I retain. The more I dispel, the less likely I have leaky gut.
I didn't take my Synthroid, sustained release T3, or supplements this morning. Dinner last night I had chili (w/legumes) on top of spinach, and an apple. I only mention cause I had legumes in close proximity to this test, but I still followed directions. I don't even usually have legumes, but decided to bulk up my chili cause it was looking weak.
I'll take my thyroid meds after the test, this afternoon. I've not taken them for up to 21 days (prep for parathyroid scan) and felt okay, so this wait won't be a big deal. I'm submitting this to insurance, but my out-of-pocket is $73. I haven't reached my deductible this year. Results take approx 7 days + shipping. I think it's important to do this before I take an ALCAT test.
We shall see *drum roll please* ...
Wednesday, February 10, 2010
I've shared my back porch view before. Here's a gray snowy version.
I've been taking my TravaCor supplement in very limited doses because of headache reactions. I've been wetting my finger and dabbing it in the powder. Next time I should razor out even doses so I can better estimate my dose.
The first day I had a dull headache which went away within a half hour. My legs ached in the morning. I thought maybe cause I'd walked later in the evening, but I did that last night with no ill effects. The second day I took less, had less of a headache the next morning. The third day I double-dabbed my wet finger, and I had a heavier sleep and less of a headache. Last night, double-dabbed again, no headache this morning. Legs still are stiff, however. I'm still working on upping the dose per doc's instructions. Slow and steady.
I swear, when I have more serotonin I'm not hungry either. My 'being' seems more at ease in the gut. Satisfied would be a good word; a general sense of "ahhh." This is not something I'm much acquainted with. I'm having to make myself eat sometimes because I'm not getting enough calories. My blood sugar goes down, obviously cause I'm not eating as much.
The other day I went off course, had myself a goodly portion of Tostitos and cheese, guac dip, etc. I gained a pound. Yesterday I ate okay, today I lost two, and I'm wondering if it isn't the better sleep I got because of the supplement (did not sleep longer than usual). The weight seems to fall off when I'm serotonin steady or happy (seems premature to say that, but I am).
I've been reading about fibromyalgia and can see more puzzle pieces fit together regarding how nutritional/hormonal and neuro deficiencies play a role. It's complicated stuff for this layperson who has limited serotonin - lol. It's a chicken/egg thing at some level, too. Some say that early childhood depression can manifest as fibro later in life. I can say that I was a stressed kid living with an alcoholic. Maybe the stress was a trigger for the celiac and fibro? I dunno though, as a baby I had trichotillomania. A baby. I say I was born with celiac. Or I was a stressed baby/infant? Chicken/egg. I would like to find a fibro person who had an idealic life tell me why they think they have fibro. I'd hate to think it's cause I make myself depressed. I've been working so hard to do otherwise. I can say that the economy was a big disappointment, so was mom's cancer diagnosis, and dad's Alzheimer's is no picnic ... you'd think that'd make a lot of people depressed, but honestly I think I've worked through it (I have no control over that!).
If you remember (why would you), I have high glutamate neurotransmitter levels ( www.neurorelief.com test). Doc said to not have MSG, autolyzed/hydrolyzed yeast, and I don't, so I went online hunting. What ELSE causes high glutamate? It concerns me because high levels are assoc. w/ALS or Lou Gehrig's and Parkinsons. Then I caught a few articles from Dogtor J, celiac vet. Been reading his stuff since I was diagnosed but didn't pay attention to high glutamate cause I didn't know I had it. Bottom line: dairy, legumes, nuts, sunflower and pumpkin seeds, meat. I eat a lot of nuts/seeds. Dairy keeps knocking on my door, huh? I will try to really lower my addiction, I mean servings, then work on seeds, nuts, meat if I have to. This gives more reason to do an ALCAT allergy test (it'll be interesting to compare it to my Genova allergy test).
bit.ly/drjgard , bit.ly/drjpainpaingoaway (he has lists of glutamate foods, and links to whfoods.com, a fave site, which lists ratios of glutamate/food).
bit.ly/msgfibro and from Margie100%Pure: bit.ly/murphreevids (his book's in my amazon cart). ;)
I know it's MUCH easier to DO and not think so much when I have the serotonin in my braineo. It's much easier to live, life's not such a chore.
Interesting info re: serotonin levels and high blood pressure, heart health:
"...plays an important role in the regulation of mood, appetite and blood pressure."
bit.ly/serotoninheart It makes one think about women, depression and heart disease risk, doesn't it? I mean, if I've been depressed my whole life and didn't realize I was "that" depressed, how many other women have low serotonin and don't know? How many are treating their depression which might be caused by food or a lack of nutrition, with antidepressants which have additional side effects and worsen their heart disease risk?
I'll let you all know if my bp goes down, too. I just took it and it was 124/74, pulse 59. As mentioned in prev. entries, it has been higher, in the 130s, 140s even.
I collect heart rocks and a few lil hearty things from special peeps for my porch. Thank you so much Redoonagh, your gift is under there.
Saturday, February 06, 2010
From MorticiaAdams: If you've are reading this, you have the honor of copying all these goofy questions and writing your own responses! Paste these instructions in the body of your blog.
1. What time did you get up this morning? 8:30a
2. How do you like your steak? I don't like red meat, but DH can cook it just right: medium.
3. What was the last film you saw at the cinema? Julie and Julia
4. What is your favorite TV show? New one: Modern Family, & The Office. Growing up: Gilligan's Island, Brady Bunch, Partridge Family, I Dream of Jeannie, Andy Griffith ;0)
5. If you could live anywhere in the world where would it be? Bora Bora (never been, MorticiaAdams, but a neighbor showed me her pics: I like those glass-bottomed huts) - I need the vitamin D. ;0)
6. What did you have for breakfast? Plain yogurt, probiotic, blueberries, 3 Brazil nuts, lemon water.
7. What is your favorite cuisine? Mexican (can drink salsa by the cup)
8. What foods do you dislike? Fatty cut meats (all that fat slithering - ew - and I hear it'd raise that HDL I want ... dang).
9. Favorite Place to Eat? Anyplace the chef'd make me a great salad. Had one in Miami area - I'll never forget the color; & the thoughtfulness of the chef to make sure it was gf. Otherwise, I'm grateful for PFChang's gf menu.
10. Favorite dressing? Italian
11.What kind of vehicle do you drive? Had a Mercury Mountaineer for 10 yrs and last year got a zippy Nissan, can't remember model . Cars are too low nowadays; the front bumper hits the curb when I park. Ridiculous! They couldn't raise it an inch? (I don't do it often, but geez).
12. What are your favorite clothes? You'd think I was a gym-rat cause I live in my workout clothes as I usually walk the dog in the a.m. and p.m., so why change?
13. Where would you visit if you had the chance? Bora-Bora, France.
14. Cup 1/2 empty or 1/2 full? Mind's half full, body's half empty. :P
15. Where would you want to retire? Alaska summers, anywhere warm in winter, preferably near water.
16. Favorite time of day? Getting up very early, making breakfast.
17. Where were you born? Ontario
18. What is your favorite sport to watch? Growing up: hockey. Now, football and gymnastics
19. How many siblings? Younger sis
20. Favorite pastime/hobby? Used to be rubber stamping and scrapbooking, I want to try it again. Otherwise, it's getting healthy by hook or crook, or constant reading.
21. Who are you most curious about their responses to this? Everybody
22. Bird watcher? I enjoy them outside my window. We have a few bird houses. The cardinals really brighten a winter's day.
23. Are you a morning person or a night person? Morning
24. Do you have any pets? A black lab
25. Any new and exciting news you'd like to share? New, but not exciting: the fridge needs repair or I need a new one (just now it went out - bah!)...
26. What did you want to be when you were little? A dancer on the Carol Burnett Show or a teacher (I'd be tough).
27. What is your best childhood memory? Playing with kids in the nearby woods & caves, throwing slugs at boys, building/digging cave forts in the gully (and sometimes making out in them!). lol
28. Are you a cat or dog person? I LOVE dawgs. I like cats if I get to know them. I DO NOT like cleaning litter boxes (I have a too keen a sense of smell).
29. Are you married? To the same teddy bear for 28 yrs.
30. Always wear your seat belt? Can't believe we haven't always. It's such a habit.
31. Been in a car accident? Knock wood, no.
32. Any pet peeves? Please clean up after yourselves, manners.
33. Favorite Pizza Toppings? Sausage, pepperoni, olives, tomato, feta. But haven't had pizza in four years as I haven't found a gf crust that reminds me enough of extra thin that I used to like. I might make a pizza outta a big bella mushroom sometime (it has been on my mind).
34. Favorite Flower? Sunflowers, gerbera daisies, daisies
35. Favorite ice cream? As a kid, sherbet. Used to be butter brickle, now it's Hagen Daz Strawberry.
36. Favorite fast food restaurant? Don't have one, but in a pinch when out, I'll grab a Wendy's lg. chili (like yesterday shopping ... at Dillards).
37. How many times did you fail your driver's test? Never. I even found an error in their questions/book.
38. From whom did you get your last email? DH
39. Which store would you choose to max out your credit card? Dillards
40. Do anything spontaneous lately? Maxxed out my card at Dillards - lol.
41. Like your job? I think I'd like a temp job to help me pay my Dillard's.
42. Broccoli? Confused about it. It's not supposed to be good for thyroid, so I don't usually eat it, but feel like I'm missing on some good stuff. Just had some for bfast (what the hey), and I only ate it cause it's good for me. I don't love it.
43. What was your favorite vacation? Disneyland when Dd was 4yrs old. I was exhausted the whole time, but Dd was such a DELIGHT to watch. (She doesn't remember much - thank goodness we took pics.)
44. Last person you went out to dinner with? My neighbor.
45. What are you listening to right now? The dog snoring.
46. What is your favorite color? Growing up: blue. More current: pink, black, and; I have an eye for cream and gray things.
47. How many tattoos do you have? None
48. How many people will fill this out? Carnack says 2
49. Coffee Drinker? Just gave it up. I'm on week 2 I think. I dunno, I can't think without my coffee. :P
50. What time did you finish this quiz? 10:42 pm on 2/6/10
Friday, February 05, 2010
I have been remiss in blogging again. I've been in the dumps (cloudy weather doesn't help). My brain is slow; and when I think about it, it always has been. Once I "get" something, I'm okay, but it's a P-R-O-C-E-S-S.
The other blogs I've wanted to write are about underwear, OCD, probiotics and gut health, and more. It takes me so long to process and condense the info that I start and quit. I wish I'd done it because the info is inter-related. Except the underwear - lol.
I'm blogging today to remind myself of my latest test results from Spectracell labs for Micronutrient status. The functional MD I see was thinking I had to take too much vitamin D (8,000iu) for the lab result I'd gotten (47 was it?), that I might still have malabsorption. I knew I didn't cause I'd had the UC-Irvine tTG test and it was good, as explained in an earlier blog entry. I upped my vitamin D on my own based on my weight, to 10,000iu daily.
What's unique about Spectracell micronutrient testing is that it's not a serum test which shows your levels at that MOMENT based on previous days food intake. It's a lymphocyte test, which measures micronutrients on a cellular level. As she was trying to explain it to me, I was likening it to an A1C test vs one blood glucose reading with a meter test kit.
With that said, she was pleasantly surprised how well I'm doing :). I told her I wanted some good news. :) But, I was deficient in some areas:
1. Oleic Acid (need to eat more olive oil, and this is true, so I'll incorporate a teas. - tablespoon a day). I already take omega-3 oils; just need to be consistent as sometimes I'm not, esp when I'm in a funk.
2. Vitamin D - they recommended 1,000iu and I had to laugh. They tested D2, ERGOcalciferol, which I'm unclear about as I know the kidney is involved in conversion of D3, and I don't take D2, which is synthetic or manmade. Doc's going to call Spectracell to ask my question.
3. Zinc - haven't been taking my multi on regular basis as the multi I had is a liquid and in the fridge, so that extra step is too much for me when I'm funkin'. Suggest I take 25mg daily.
4. Total Antioxidant Function:
*I need to take Glutathione: 600mg NAC (N-acetylcysteine)
*Cysteine: the daily dose of NAC listed for glutathione is usually sufficient for glutathione and/or cysteine repletion.
*Vitamin E: 200iu daily of mixed tocopherols. (already taking 400iu, she said leave it at that).
*Selenium deficient: 200mcg daily. (already doing that, leave it at that).
*Coenzyme Q10: 30mg daily with a meal. (I'm already taking 200mg, leave it at that).
*Lipoic Acid: 50mg daily (already taking 100mg, she liked that, keep it up).
*Vitamin C deficient: 250mg 3x/day (750mg daily) take w/meal. Had been in the past taking 2,000mg, but dropped it to 500 - wrong decision apparently.
It takes 4-6 mos. to effect repletion of a functional deficiency in lymphocytes.
*B vitamins (1-6, 12, folate and biotin),
*Amino Acids (serine, glutamine, asparagine),
*Metabolites (choline, inositol, carnitine),
*Fatty Acids (oleic acid),
*Other Vitamins: D (ergocalciferol), Vitamin A (retinol), Vitamin K2,
*Minerals (calcium, zinc, copper, magnesium),
*Carbohydrate metabolism (glucose-insulin interaction, fructose sensitivity, chromium)
*Antioxidants: Glutathione, Cysteine, CoQ10, Selenium, Vit E (A-tocopherol), ALA, Vit C
*"Spectrox" Total Antioxidant Function, which I'm unsure if this is a compilation of the others or what, but it was deficient with a score of 44% when you want over 65%. I have to look into it.
Per Doc: Summary of treatment: Increase Vit D to 10,000iu (she agreed w/"my" protocol :) ), increase vitamin C to 1000-1500mg/day, add up all sources of zinc to 10-15mg/day, be consistent with other nutrients, including selenium 200mcg/day, take in some extra olive oil more consistently. She asked if I cook with olive oil or what oil I cook with. I told her organic ex. virgin coconut oil and/or butter, I never heat olive oil and use it on salads occasionally. I try to eat salads daily with oil, but sometimes use my omega-3 supplement. She agreed it's not as healthy to heat the olive oil. She said food sources are not enough, to be sure to supplement (told her I'd eat more Brazil nuts for selenium ...).
You know how I changed from a non-flush niacin to a "flush" one? Here's a hurried and bad pic of me flushing (taken after my shower)- it's pretty intense! I'm not vain, what can I say?
One HOT chick! ;0)
On the sleep and fibro-front, I'm going to try again taking the TravaCor pill, only cutting into fourths this time, and taking it with a meal. I started last night. Doc said my brain wasn't used to so much "action", that we'll try to slow down input. I can't help but think I haven't had "action" in my brain for so long; what did I have to give to my daughter when I was pregnant?
Previous to this I remembered to take my progesterone cream (one teeny notch on the syringe, not 1mm if that makes sense) on the Rx'ed days 15-25 of my cycle. It "does" help me sleep I have to say, however, I'm not 100% by any means. With that said, and taking into consideration the TravaCor pill last night: I didn't go to bed until 1am or a bit later (bad - I found info online to help a friend and couldn't stop reading). I was really feeling sleepy and finally went to bed (whereas w/o the pill, I'd be bleary eyed and zombie-ish but still energetic enough to keep reading) before hitting the sheets.
I'd say this is consistent with the last try taking 1 full TravaCor, that I fell into a deeper sleep, though still wakeful on some level. On 1 full TravaCor, usually by morning I have a blasting headache, esp in back of my head. THIS morning on the 1/4th pill, my legs ached something AWFUL (was I groaning? I felt like it - ouch), like my legs had a migraine?! and my head ached in the back, near my neck. It went away within minutes this time, as opposed to last time with a whole pill, it'd take an hour or more to go away. My body felt very heavy in the bed - like a lead balloon.
I wonder why it goes away when I get up? I feel better and more energetic today (I'm blogging!, but I have much to do). It's also a sunny day, which helps. My legs still hurt, so they're not better ... yet.
Doc said she has other options without herbs, and some kind of spray if this doesn't work. I'm to try 1/4 pill for a week, then 1/2 pill the next week and so on (ever try cutting a capsule w/a razor blade? I feel like an addict or something). I'm taking the powder sublingually.
You know what I thought about? The recent study suggesting babies who die from SIDS have low serotonin, right? The serotonin is in the back of their neck (I saw a piece on the Today program)-- where I get my headaches. Interesting.
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