Friday, October 18, 2013
I sent another stool sample Monday to Genova: The Comprehensive Gastrointestinal Profile #2100 ( bit.ly/1cD5Jl5 ). I understand they are changing the tests within this test and not including the parasitology starting Oct. 28th. I was in such a hurry to mail the test I sent it without the cover/box for protecting the vials! I sure hope they get it okay?! ew! The genetics counselor wanted a more recent test. I'm primarily checking dysbiosis/bacterial imbalance within the gut because I believe it and leaky gut (and low DAO enzyme) to be highly likely the culprit behind my fibromyalgia. I'll throw in that I don't methylate toxins well, ie my liver's Cytochrome P450 is off -I know this from my DNA SNPs results from 23andme - also likely due to gluten). Gluten made my gut leaky (I don't have parasites, didn't drink alcohol, nor take drugs - though I have a history of taking a bit of ibuprofen due to monthly headaches prior to my going gluten-free. Gluten-free stopped the headaches. Now I know that headaches can be a mast cell response to estrogen of which I have plenty because I'm overweight. Just "having" dysbiosis keeps it leaky (LPS or lipopolysaccharides, aka bacteria poo, increases zonulin, a protein which keeps open the tight junctions between your epethial cells). I'm still leaking after, gosh, 7 years trying to heal. I need to tighten the diet ship and work on relaxation/being happy happy happy. :) Anyway, I hope to learn more than that from the test, and expect results in about a month. My integrative GP ordered it and will suggest tx, but I also have a genetic counselor I started working with in May who'll make treatment suggestions. He said I also need to test fibrinogen and vitamin D (to also include the kidney portion or the 1,025 OHD ( bit.ly/ltovitd ) (Oy. My computer's needing a hard drive and is so slow right now. - ha! I've worn out my mac figuring out my health, so add that to my investment of money, time, energy, blood, sweat and tears!) The Genova test is $411 out of pocket. It's covered by a lot of insurances, but not "four" I was told - and mine was one of the four. Of course.
I'm doing better adhering to my low-histamine diet again. I've lost 7 lbs since last week: 215 to 207. I can always tell when I'm doing well and right for my body because there's a sense of relaxation that comes from it; I can bend with ease, there's a lack of stiffness and inner tautness, if that makes sense. I don't slog out of bed, I kinda jump w/pep and walk gingerly to the water closet. :) I think it's the greens. Greens have magnesium. I need them daily also for my Factor V Lieden gene polymorphism (I'm heterozygous, or I have one abnormal gene from one parent.) I also take 800-1000mg of magnesium as part of my supplement protocol from the genetic counselor. This is what was working for me prior to my appt with him anyway, so I did good there. :)
Yesterday I found that pomegranates are in season, and omg, I bought 4 for $2ea and ate 3! SOOOOO HAPPY! I ate that a .5 lbs of grass fed beef and 1 lb veal, and a cup of butternut squash w/chia seeds. I gained 2 lbs. It's likely because I didn't have enough pre/probiotic/good bacteria (that's how I look at food now: "Will this feed my good bacteria?") and/or fiber - soluble fiber, people - and too much sugar/carbs (nope, it couldn't be carbs as I got about 102g which is fair for me). I walked 2.5 miles and got good rest even without my CPAP which I took in for repair but it didn't need repair, so it still sits in my vehicle. I remember it when I'm getting into bed, and I'm not in love with it, so I say I'll get it tomorrow. *whistles Dixie* Anyway, incomplete and run-on sentences and I don't care. :P
My back's been sore and that's a new one on me. I've never ever had back problems. I've had sciatic in my upper honch for three weeks and I decided to seek out a massage to see if it'd help. This is iffy territory for someone with histamine (likely mast cell) disorder/fibromyalgia because pain and inflammation is already heightened. I tried it anyway. She used an almond/pecan oil I tolerated well (having multiple chemical sensitivity I was concerned of "lemon" or "lavendar" scented oils or something). I've never gotten naked in front of anyone like that before, but she gave me my dignity by having a towel over me and exposing only what she was working on. You can elect to work on areas over another and I chose to not work on my stomach or chest. She worked over my honch pretty good and it felt good. A couple of hours later it didn't feel so good at all. :( By the time I went to bed, it was okay. And I slept well and didn't wake up in pain or anything. $75 for an hour. The masseuse was wonderful, and also does acupuncture which I'm interested in. I don't know if I'd do a massage again ... I would like to take up yoga, but that'll be for after I move.
I've found I do well eating like a diabetic, ie many small meals a day, for low-histamine. It's easier for what little body DAO enzyme I have to process bits of histamine vs 3 meals a day. I kinda feel tethered to the kitchen, and sometimes I have to take the kitchen in my purse (green apple at least, and recently a previously steamed leftover artichoke while on an airplane -- who me? peanuts or pretzels? phtt!).
(That's an artichoke selfie, not a Dotslady selfie - lol)
Got new carpet installed upstairs and it's a new universe up there. It feels good. My closet's a tornado disaster and is next on my list of things to do.
Here's a funny 5-minute comic relief video re: diets/going gluten-free:
Everybody needs a laugh. :D
Friday, September 20, 2013
From Fun: Carry On
"If you're lost and alone
Or you're sinking like a stone
May your past be the sound
Of your feet upon the ground
It's marching music: bit.ly/FUNcarryon for a mellow march/walk. I misplaced my iTouch and I miss my walking tunes.
We got Dd moved into her new apt. and with luck and a prayer she will do fine. That's what I said the first day. Dh and I awakened the following morning to news that there was an apt. shooting her first night at about exactly the time she drove into the complex after work. She never heard or saw a thing! The idea was she could afford this apt. after we stopped floating the rent while she was in school (trying to get her to finish her last year). *sigh* I'm not going to comment further, other than she's outta there asap.
Monday, July 15, 2013
old pic, I've let my hair grow so I can pony-tail it for walking in the heat.
I've been a ghost, so sorry, but it was necessary for me to take a break this last year or so. I have maintained my 40 lb gain because I've not been eating low-histamine (more like potato chips, Starburst, and even ice-cream - I should share THOSE labs). The doc had me change thyroid dose from 150mcg to 50mcg and I'm still astounded at how awful I felt. In my heart I knew this was wrong and allowed it because he was the smart one. I guess he thought by doubling my Cytomel from 5mcg to 10mcg that it was alright, but it wasn't. It has taken 3 more months out of my life. I think my thyroid's been hard to manage because of my stress, well, and my freakingly awful DIE-T, right? What am I feeding the poor thing?! I'm back up to 100mcg Synthroid and 10mcg Cytomel and thyroid labs are okay now. I was so depressed. Anyway, that's just the last three months. If you know me, you know I've tested a few other things since I've been on hiatus.
I got my left kidney (CT) rescanned and the cyst looks stable (though it's unusual to feel a cyst. A lot of people have multiple cysts and don't know until they discover it during an unrelated ultrasound), which is good news.
I sent my bacterial stool sample to The American Gut Project, but won't get results for 6-7 mos. I think it only plots your bacterial content in relation to others on some type of bacterial colony-type map so I don't even think the results are going to be that interesting. What might be of interest is that I'd been eating shabbily, so comparing future tests (I have 3 more kits) with what my diet was MIGHT be interesting - or will it change much at all? I've read it's difficult to change what you're born with; then to be taking antibiotics, drink alcohol, sugar, hormoned meats and dairy, yada? Oy.
I will post separately about my histamine/DAO enzyme test, which I was lucky enough to find a lab in the good ole USA. I'd searched last year to no avail; most labs being in the EU or Australia. It confirmed my suspicion and experience that I am indeed low in the enzyme to break down histamine.
It has taken me a year to get carpet in the master and stairs. We kept Dd home to save money and it's time for her to move out, so we're looking for a place for her. Her car needs $4k in transmission repair - it's an old Acura and has 180k miles, but the thing will cost less to repair than to buy new/used, so repair it is! After she's out, we'll carpet upstairs. I got sheer curtains made for the master and front door windows. I boxed up a lot of my books and made new files in the office.
The house needed a new roof due to hail storm in April, and we just got that finished. Grateful to have paid extra so our homeowner's deductible was less. Need to find painter to repair/paint the exterior windows and shutters.
I tested the well water and we tested positive for choliform bacteria. Just what someone who's trying to fix their leaky gut doesn't want to hear. DH prepped the well w/Clorox and ran water into the pipes and let it stand to disinfect. Now I understand what the leetle teeny tiny bugs were in the powder bath drain were from; it's a clue - doy ... :P
I'm still in emotional turmoil and not exercising much. I'm in pain even with low-histamine diet right now because of stress. I have anxiety. I will make a future entry regarding my new supplement regime soon also. I just started. It doesn't help that this spring has been so wet and cloudy. Yuck. I sure appreciate the sun, always have.
My heart has palpitations today, anxietyish stuff. I think it's because I should be doing something else and I'm on the computer - lol. Really. Anyway, I decided to open up my blog once again because I'd left a link to an entry for fibro-sufferers and what they should/n't eat. They can't read it, and it's not easily found on the net anymore. I want to help.
I started a team for low-histamine/biogenic amines. I should post an entry for that, too. I don't know if I have the time to devote to leading though. I like to pop in here and catch up reading on my friends once in a while. You know who you are. xo
Friday, March 01, 2013
Jenny on left, Musti on right. Musti would never stay still for a picture, so this is a pretty good shot of the old man. :)
Our black lab, Musti, was put down yesterday. He was my other lab, Jenny's, puppy.
His hind legs could not sustain him any longer. He would whine and/or bark from his comfy pillows in my bedroom I think for company or to tell me what, I don't know. After 5 minutes or more he'd amble out on those legs which have traveled far and wide and served him well. He was always under my mom's feet in the kitchen, and she couldn't afford a spill, what with her having a club foot and replaced hip and knee; so I took him to ease her burden. We had him about four years. He was always under our feet, too. He liked to be where the action was. My nephew, who is a rock climber, would take him rock climbing - you should have seen him in his gear, LOL. JK. But really, Musti would be on the ground as my neph would climb higher and higher, and Musti'd be barking, like, "Get back down here it's dangerous up there!" LOL.
Sunday, February 24, 2013
After I followed the scan machine's instructions to hold my breath, then breathe, etc., the tech said over the intercom that I needed to lower my pants as she didn't know they had metal grommets which interferes with the end product. I do so and therefore have to be rescanned; ie, double radiation, which ticked me OFF! online.wsj.com/article/SB1260
As usual, I asked for copies of my medical results and guess which pics were on the disk? Yeah. The ones with my pants up, so there were metal grommet buttons in the pics. *sigh* BTW, I don't know how a radiologist reads those as they're French to me. I couldn't see my tumor at all.
CT Scan 2-14-13 results: 1.7cm area of fluid attentuation corresponding with anechoic cyst found on previous ultrasound that either represents dilated calyx or parapelvic cyst. Need to get followup ultrasound in a few months; though it's LIKELY NOT cancer! After doc told me I had solid mass tumor after first ultrasound, I simply wanted to get biopsy, to skip the CT scan. I'm glad there's medical protocol and I heeded it.
I have found the kidney to hurt one day or couple of days, then not another. I will try to find a correlation, but I can't help but think this is the beginning of something; though what, I don't know at this juncture.
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