DEBBIEANNE1124   100,382
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DEBBIEANNE1124's Recent Blog Entries

Myasthenia Gravis...

Wednesday, January 04, 2012

I don't like the name of this disease. But I'm going to fight it. I met or I should say she found me a nice woman in the Chicago area and she ahs bettled this dreadful disease for 40 years. She can still walk. Her disease is managed and well controlled by the right medications. I'm blessed to ahve her as a friend. the first ever person I ahve met even online who can actually give me answers..

I saw 2 Dr.'s yesterday. First Dr. my general practice Dr. discussed my blood sugar as it is mu7ch better. My neck is weakening has been for about 5 years. But who ever thought it was this dreadful disease??? So... I'll be starting Physical Therapy for that. Evaluation and treatment.

Afternoon appt. was with my Neurologist. We discussed how I ahve been since starting on the MG pills called Pyridostigmine. (he's also going to call rite aid pharmacy that i deal with and give them heck for not having my meds ready for me when they said they would hence me missing 2 days of meds and my symptoms getting very bad just before Christmas)

It seems the pills I'm taking ahve actually worstened symptoms. My vision si so bad now. Neck is weaker. At the dinner table I actually ahve to support my chin to keep it from falling. He did evaluation and my wrists, breathing, swallowing, legs are fine but upper arms are weaker too. I could not push against his strength. I ahve a good Dr..

So good that i ahve his General email now. So that if I ahve any questions or needs or emergency I can email and he willg et right back to me.

He's advancing me to another medication. I ahve no idea what it is but it has 4 initials. He claims that everything should be better for me on this medication. It's a matter of having my insurance authorize it. they are known for making me only take Generic meds.

And so... It's a matter of having the right medication to treat my symptoms. Once I ahve that I should be on my way to recovery.

I ahd a moment of tears and negativity. "Why me"? I'm the healthy one in the family. Why this now? But I am a fighter. I've been doing so well. I don't give up. I will go on. No more tears.

We're waiting for him to call about the prescription.

I'll take down the Christmas Tree today and put everything away.

  
  Member Comments About This Blog Post:

JDUFORD 1/5/2012 8:46AM

    emoticon I hope the fight with the insurance company is a short one.

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ONLYTEMPORARY 1/4/2012 9:58PM

    emoticon

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MEADSBAY 1/4/2012 9:12PM

    You really have had more than your fair share of health issues in your life, my dear friend. I am so sorry about that.
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DGRAY1641 1/4/2012 8:52PM

    May God be with you and give you His strength and may His healing touch be upon you Debbie. Bless you, Debbie
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TEXASLYNN 1/4/2012 8:44PM

    I work in the prison system and am currently working on a case involving an inmate with long term MG. He maintains fairly well with only Prednisone although he has slight vision impairment and walks with a cane. Your weight loss is one of the best things you can do to help with mobility. Thoughts and prayers that you hit a maintenance solution quickly!

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BETRME100 1/4/2012 7:27PM

    I'm so hoping the new medication will help you. It really does sound like you have an excellent doctor...my guess is he would even fight the insurance company on your behalf..I did mention that my step dad has this disease, didn't I? He's had it, along with diabetes, for about 20 years. And he's really doing remarkably well for a guy in his 70s...keep fighting, my dear friend. emoticon

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BRATS4 1/4/2012 7:10PM

    thanks for letting us know what is going on.may god bless you.i wish i was half the person you are.i would not be handleing everthing as will as you do.just know my prayers are with you every day.love mary

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SCOOTER4263 1/4/2012 3:49PM

    When you told us about your drooping eyelids, I was afraid of this diagnosis. The good news is that you're not alone. If you haven't already done so, I urge you to contact

http://www.myastheni
a.org/

They have all sorts of information and contact links and numbers - a good bunch of folks.

This will be a challenge for you, but you *can* have a good, full, happy life - and your SP buddies are always here for you!

Karen

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CHUBRUB3 1/4/2012 2:40PM

    Thank you Debbie for the update on your health.
I love you my friend and wish this was not happening to you. BUT I know you are a strong, courageous woman who will deal with this bravely and with God's help beat it.
I am here for you as is your other spark friends.
Love and hugs,
Angela

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TEDDYBEARGIRL 1/4/2012 2:16PM

    You are a strong woman!

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PICKIE98 1/4/2012 1:07PM

    Keep that chin up whether it sags or not,, we know you are researching and moving to each step to learn and manjavascript:%20void(0);age this. Challenges are not always fun!

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BENTONHEALTHY 1/4/2012 11:56AM

    On my Debbie my heart reaches out to you. I know that you are a strong person who already has come such a long way on taking control of your health. I also know that you are a joyful person that embraces life with your rowing and love of nature, animals and people. All these things and more will help you get through this. I believe you will come out of this on the positive end. Best to you or the New Year.

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L*I*T*A* 1/4/2012 11:35AM

    once the right combo is found you will be feeling so much better...
all the best......blessings and hugs...lita

emoticon emoticon emoticon

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MARICAK 1/4/2012 11:33AM

  Keep going Debbie - Chicago is routing for you!!! A new year - a new you - a new med - a new friend. we're in this together whether we like it or not. emoticon

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NEELIXNKES 1/4/2012 11:11AM

    emoticon I hope that the new medication is the key! Keep pushing forward!

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TWEETYKC00 1/4/2012 10:51AM

    Fight this, you're no quitter Debbie! You will get through this.

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170.2

Tuesday, January 03, 2012

Oh my goodness I am shrinking.

If I keep shrinking like this I'll be able to hop on top of Leone and ride her. That sounds familiar, huh?

I bought 2 pairs of leggings yesterday and OMG I'm not in the Fat Chick sizes anymore. Regular womens sizes but eventually I should be PETITE.

The 160's look so very good to me. Bring it on!

I see my Regular Dr. real soon this morning and My Neurologist this fternoon. My life si so exciting these days.

On January 14th we start practicing for Dragon Boat season. My love and joy and passion. I am so hoping my body is strong enough to do this.

Have a great day.

  
  Member Comments About This Blog Post:

TEDDYBEARGIRL 1/4/2012 1:12AM

    I am so excited for you!!!!!!!

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BELLA9999 1/3/2012 8:58PM

    Wonderful! What a feeling to go into a whole other category of sizes! emoticon

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BRATS4 1/3/2012 7:52PM

    super SUPER.

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TWEETYKC00 1/3/2012 4:04PM

    Yippee good for you!

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CHUBRUB3 1/3/2012 1:26PM

    emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon
AWESOME DEBBIE!!!
I AM SO PROUD OF YOU!!
HUGS,
ANGELA

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JDUFORD 1/3/2012 1:06PM

    WAY TO GO DEBBIE!!!!! emoticon

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MEADSBAY 1/3/2012 11:02AM

    emoticon
The incredible shrinking woman!
Yes, be sure to work on your strength as you are getting smaller.
You can be petite AND strong.

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BOOK0WL 1/3/2012 10:53AM

    WOW - how wonderful! Keep up the great work Debbieanne!!

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Comment edited on: 1/3/2012 10:53:13 AM

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L*I*T*A* 1/3/2012 10:43AM

    emoticon emoticon emoticon

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Happy new year!!!

Saturday, December 31, 2011



May 2012 be a damn shade better than the last year.

  
  Member Comments About This Blog Post:

SOFT_VAL67 1/2/2012 10:01AM

    i have heard that from alot of people, actually, i had my share of problems last year, but it was a pretty good one too, my son realized he was developing a problem with drugs and he nipped it in the bud and started going to NA meetings and has been clean and sober for around 6 months now and that made my year so great....i lost no family members, and no really close friends...so, while i wish everyone a wonderful 2012, im not going to curse the last year....have a great day and a great year. emoticon

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TEDDYBEARGIRL 1/2/2012 1:33AM

    It will be a great year!

It is so good to see your eyes open too!!!!!!

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MARTY19 1/1/2012 7:05PM

    Wow, do you look thinner. I am blown away.

Marty

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MDGARDENGIRL 1/1/2012 6:10PM

    Amen sister!!!
Just hearing from you makes the day better Deb..... emoticon Marg

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BBAMMOM 1/1/2012 4:11PM

    It can only get better! Wishing you a year filled with health and happiness!!

~Phyllis

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CHUBRUB3 1/1/2012 1:51PM

    Hugs Debbie!
All the best in 2012.
Love you.
Angela


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JDUFORD 1/1/2012 12:07PM

    I hope your health improves in 2012!!!

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PICKIE98 1/1/2012 10:57AM

    regrets take us away from possibilities..

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ONLYTEMPORARY 1/1/2012 1:09AM

    emoticon

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MEADSBAY 1/1/2012 12:51AM

    Nowhere to go but up, my friend!
xoxo

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LINDA! 12/31/2011 9:31PM

    emoticonHave a wonderful New Year!!!

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TWEETYKC00 12/31/2011 9:25PM

    Amen to that!
emoticon emoticon emoticon
Here's to 2012!

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WILLOW49 12/31/2011 8:49PM

    Amen! Happy New Year, Debbie!
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L*I*T*A* 12/31/2011 8:44PM

    that is for sure....
all the best to you in 2012...
blessings and hugs........lita

emoticon emoticon emoticon

Comment edited on: 12/31/2011 8:44:48 PM

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DEBALDERMAN 12/31/2011 8:34PM

    Ditto that! :-}

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Goodbye 2011

Friday, December 30, 2011

You rocked with my weight loss, 2011!
70 lbs gone since starting my pre-op diet for Gastric Lap band.
80 lbs. gone since starting SP.
I am proud of my accomplishment and would be doing even better if i EXERCISED.

Having support from my Spark Friends made it most helpful for me and I love you all for helping me there.


About 18 more pounds and I'll be at goal. If i can keep my weight off for 2 years I will most likely be ahving cosmetic surgery to remove my apron. LOL Maybe even a boob job.

I have to tell you this monitor I am using has a round base that how the power button and setting buttons. Everytime i lean close to look at something on the screen my boobs hit the power button and off goes the computer. they are so talented.

May your 2012 be a healthy one

  
  Member Comments About This Blog Post:

BELLA9999 12/31/2011 1:24PM

    LOL!
Happy New Year's and thanks so much for your words of wisdom! emoticon

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LINDA! 12/31/2011 1:17PM

    Onward and upward! Have a happy and healthy New Year! emoticon

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CAROLIAN 12/31/2011 7:09AM

    HUGS Debbie
you have done so well this year.
I have a friend who has boob problems hers 12yr ago before she moved out was 72ggg the dr estimated there was at least 5st between them but couldn't get reduction due to health problems she is in a wheelchair now with Ms and she says she feels like a blob with a head on top. Wishing you Health and Happiness for the Nwe Year
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BRATS4 12/30/2011 7:59PM

    can i have your extra boobs.i go topless and everyone thinks i'm one of the guys.i can not wait for 2011 to be over.maybe next year will be better

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SCOOTER4263 12/30/2011 6:26PM

    I keep turning my phone off with my chin, but I think I'd rather have your problem! Anyway, you done good, there, kid. Keep it up. And best wishes for the new year.

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ONLYTEMPORARY 12/30/2011 5:35PM

    Way to go girl!

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SASIKHASI1 12/30/2011 5:21PM

    Train those boobs to do housework and you will have it made lol.

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TWEETYKC00 12/30/2011 4:23PM

    You are so rocking everything you have done, I'm so proud of you Debbie!

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TEDDYBEARGIRL 12/30/2011 3:53PM

    Congrats on your success!

Big boobs are NOT a blessing....I know as i have them LOL

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TRAVELNISTA 12/30/2011 3:21PM

    You have done so emoticon this year!

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MEADSBAY 12/30/2011 2:16PM

    hahahahahaha!
First of all- congrats on your huge accomplishment-
and yes-
I guess it may be time for a boob job!

emoticon

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BESTMEPOSSIBLE 12/30/2011 12:03PM

    LOl - great imagry to start my day. Congrats on your awesome accomplishments for the year and the best of luck with your goals for 2012.

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CHUBRUB3 12/30/2011 11:38AM

    Love it Debbie!
Good for you!
I also would love a boob and tummy tuck.
Hugs,
Angela


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L*I*T*A* 12/30/2011 11:16AM

    emoticon emoticon emoticon emoticon emoticon

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Christmas and other things...

Wednesday, December 28, 2011

Christmas was nice, quiet and a good meal was ahd by our families. It was 6 of us. Robert and his son and daughter and me and my daughter, Ashley. He made a Healthy lasagna using whole wheat pasta. the filling and topping was a mixture of mozerella cheese, cottage cheese, eggs and pepper he made his own sauce which was filled with garlic. I made a salad and there was garlic bread. Everyone enjoyed it. Oh and his 84 yr old mother was with us. She lives in assisted living apartments in Hillsboro, Oreon.

My meds strength are wearing off and my eyelids and closing again. I see my neurologist on tuesday next week and will be discussing this. Also that spot they found on my lung my regular dr. is going a step further and rather than wait 6 months she ahs ordered more ct scans. We are worried because of the number of x rays and ct scans I've been having. Radiation is not safe. Other than arthritis neck pain and my eyes not wanting to open i feel alright but mentally i'm in shock from the two revellations that are finally hiting me. It's not easy not seeing but my beloved yellow lab leone is helping me around.

I am looking to my god more for guidance here and praising him daily.

If i get quiet please understand. I am not posting as much on my teams not because i don't want to but because my eyes don't want me to. It's ahrd to type and literally hold my eyelids open.

blessings to you all and Happy New year!

  
  Member Comments About This Blog Post:

GRAMMACATHY 12/30/2011 1:10PM

    Praying
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DGRAY1641 12/29/2011 7:41PM

    May God be with you and may His healing touch be upon you Debbie.
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CHUBRUB3 12/29/2011 7:03PM

    Hugs Debbie.
Have a blessed Happy New Year. I pray that you regain your health and that these 2 medical issues are cleared away.
Do what you can and don't strain yourself.
Love and hugs,
Angela

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TEXASLYNN 12/29/2011 6:54PM

    Sorry you're going through some downers at the moment. I hope things turn the corner for you soon. I always love your posts and your great sense of humor. You are an inspiration.

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BRATS4 12/29/2011 10:43AM

    deb i pray for you and robert every day.

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L*I*T*A* 12/29/2011 9:24AM

    prayers continue.......
wishing your and yours all the blessing for 2012....
blessings and hugs......lita

emoticon emoticon emoticon

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NORASPAT 12/29/2011 8:29AM

    DEBS, many years ago I was a Radiographer. We walked around with Xray Docimeters pinned to our uniforms so they could test for how much radiation was affecting our bodies. We wore lead aprons if we had to hold a patient and that often happened in those days. If we ever had more than a minimal exposure we would be off Xray for 6 weeks paid time. No-one ever had the 6 weeks off while I was there.
I know its not good for you but these investigations are not invasive and they can give practitioners fast and valuable information. Talk to the technicians and tell them you want as much protection as possible. Techs tend to only protect if you request it or if women are pregnant. My dentist has a special apron that protects up to the thyroid in the neck, they can do a lot of protection but sometimes they easily discount us older folks. Just speak up about it, explain your concerns. HUGS Pat in Maine. emoticon emoticon emoticon emoticon

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TEDDYBEARGIRL 12/29/2011 12:31AM

    Maybe you should invest into a computer program called Dragon voice recognition as it will type exactally what you say word for word and this might help.

Here is a link to their website.

http://nuance.softw
are.net/store/swnet/ContentThem
e/pbPage.nuanceus-ms_dragon-nat
urally-speaking-11-home/ThemeID
.16645600?utm_medium=ps&utm_sou
rce=Bing&utm_campaign=Dragon&ut
m_term=dragon&resid=Tvv6egoBAlU
AAEeqVLIAAAA5&rests=1325136506969

If the link does not work then thier address is nuance.software.net

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TWEETYKC00 12/29/2011 12:19AM

    You are always in our thoughts and prayers Debbie. WE will be looking for you whenever you can get back to your sparking.

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JDUFORD 12/28/2011 11:59PM

    emoticon Do what you need to do to take care of you. The rest will fall into place.

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LINDA! 12/28/2011 11:46PM

    Happy New Year! I pray for healing for you. emoticon

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SUNSHINE99999 12/28/2011 11:41PM

  Thanks for sharing. Happy New Year to you.

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