Saturday, October 26, 2013
I seriously... have to be dreaming, because this can't be happening to our family, to my daughter.
About a month ago, my youngest daughter had an MRI because of her medical condition called "Sturge Weber Syndrome". I didn't expect to hear what I heard, when we saw the neurologist in Rochester, MN. She has something called arteriovenous malformation. And a possible small aneurysm in those tangled blood vessels.
I have been through so many rough times in my life that I feel like I should finally catch a break and start having good things happen to our family, and then THIS happens.
We have to back to Rochester to a hospital where she will have to be sedated, get an IV up her leg, and then get another anigogram to determine if it truly is an aneurysm, or if there are more. And to also get a better idea of the AVM's.
I am so afraid... so depressed....
I honestly just feel like I belong no where in this world.
Isabel about the last CT scan with contrast... She was so brave with the IV. The nurses made comments about how she handled it better than MOST adults. Was so proud.
Isabel resting during her testing for her EEG