Saturday, April 21, 2012
I'm currently in the process of fundraising for this year's Arthritis Walk. I did the Walk last year and raised almost $2100 and decided to try to raise near that again this year but didn't know if I could do it again. Well, as of this morning, I've raised $1875 and then this afternoon, I received the following email from my location's organizer:
I have been watching your phenomenal fund raising efforts. When last we emailed you thought perhaps you would not be able to rival last year's performance but wow you are moments away from $2000.00
Joanna -- an additional part of my role beyond planning the Walk details is to create awareness about the Walk and its people and purpose.
Would you please consider taking part in a newspaper article with me in your community?
Next steps would be with your approval I would use the story from your Walk webpage to create a news release. I would send the release to you for approval. From there I would send it to the appropriate editor to ask for support and coverage. The reporter may cut and paste the release as is or may follow up with you for further details and ideally a photo opportunity.
As you can see below my signature I have done this a few times and found great success.
Ideally I would like the article to run early May so the article has a spin of "a month from now" or "next month" Joanna will be .......
Thank you again for your efforts, I hope this is an opportunity that interests you.
Special Events Coordinator - Burlington Office
The Walk to Fight Arthritis - June 10th, 2012
And, here's what my page says for my arthritis story (thanks to TMANNY for some assistance on writing my story):
On Sunday, June 10th, I am participating in the Walk to Fight Arthritis. I am walking and raising donations to support nearly 4.5 million Canadians who live with the pain and disability caused by arthritis. Please consider donating to me and supporting this important cause.
In September 2004, I was diagnosed with the autoimmune disease, Rheumatoid Arthritis (RA). When you tell people about it they say 'oh ya, my granddad has thatí or `I have that, too. Itís in my knees'. All they hear is the "arthritis" part. Unfortunately RA isnít that simple. Basically your body decides that your joints and organs are its enemy and goes to warÖitís more of a chemical war than a hand to hand combat, so itís like having acid poured on your joints and organs. Now imagine what that does to your body. Not only is there pain, but fatigue, fever and flu-like symptoms. The pain you learn to live with and can push through it to do your day-to-day stuff but the fatigue is the one that can really knock you down. This is a fatigue like none you have ever felt. Personally, I need at least 9 hours of sleep a night and 10 is even better.
The medications that are available do help a lot of people but there are many more they donít work for or they work for a while and then just quit. It took my doctor almost 5 years to find a medication regimen that works for me. This is where the Arthritis Society comes in as they help fund the research needed to create new and better medications. The main medicine Iím on now is whatís known as a biologic. I get it by IV four times a year. It takes about 5 hours to receive. It has lots of scary side effects like progressive multifocal leukoencephalopathy, a rare brain infection, plus heart problems, serious infections, low blood cell counts and there are infusion reactions, too like hives, swelling, dizziness, blurred vision, drowsiness, headache, cough, wheezing, or having trouble breathing while receiving or after receiving it.
The other problem with a lot of meds especially biologics is the price. Theyíre very, very expensive. So you look at the medication choices and you think well maybe the meds are worse than the disease but then I think about the loss of mobility, the possible joint destruction, the possibility of becoming crippled, oh and the chance of deathÖ yes unfortunately RA can kill you. Now picture all of this in a child because kids can get RA too. Now decide do you want to help fight for a cure? Please help me in the fight of my life the fight to find a cure for RA and other autoimmune diseases.
So, should I or shouldn't I?
P.S. This is not a solicitation for donations.