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Weekly Weigh-in and Other Updates

Wednesday, April 09, 2008

Our Living With RA team started a new challenge last week and I lost 1.4 pounds in the first week. Woohoo! I hope I can keep up.

I also have recently discovered that wheat causes inflammation so I've been trying to cut it out of my diet and I feel so much better. It's actually kind of cool that something works that's not another drug to take.

And, speaking of other drugs to take, I'm going to be starting Orencia on May 7th. Orencia is taken through IV so I have to go to the doctor's office once a month for this and apparently, it takes six months to a year for it to start working, which I sincerely hope it does since none of the other meds seem to be doing that much yet.

Other than that, I'm really tired these days. I'm not entirely sure why other than the fact that I wake up to go to the bathroom about 2:30 a.m. every day and then have an extremely hard time falling back asleep. This is a new thing for me. Before, I always slept well. Don't know if it's related to the RA or if it's related to menopause.

I'm off work for the next couple of days so I can play bridge. I'm playing tonight, tomorrow night, Friday afternoon and Saturday afternoon. And, then next week (M-W), I'm attending a conference for Administrative Professionals in Niagara Falls, Ontario.

And, spring is springing and I'm so glad because I really hate the cold and it's so nice seeing my flowers coming up and being able to sit on my deck and read my book.

And, that's it. My life is up-to-date.

  Member Comments About This Blog Post:

SIDNEYGIRL 4/16/2008 1:51PM

    Hi Joanna ~ I don't know if I'll get this in before my stupid computer messes up again (grrrrr) but wanted to stop in and say hi! I was thinking of you ~ isn't your weigh in day Wednesday? then I checked back here and see that you're in a conference....hope it's going well. Something like that would throw my diet for a loop. Congrats on the 1.4 pounds in your first week of your challenge!

How are you doing on the wheat free eating? I SO admire you if you can stick to that ~ that would just kill me. I don't think I could live without gluten ~ tho, I imagine if it makes you sick it can be done.

Okay I'm starting to get hung up again ~ tell me, do you like the Mac computer? we can't get a new puter right now, but I think I've heard good things about Macs ~ anyway, hope it's nice and sunny and warm up north where you are. We are sunny here, but still yards are wet from all the rains. Supposed to rain tomorrow, but not like the flooding rains we've had the last couple weeks.

take care Joanna!

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WILLOE 4/14/2008 2:57PM

    I hope the wheat free and gluten free diet works well for you. It is a lifesaver for me, and I've been doing it for a while. I have tons of recipes and alternatives, so please let me know if you are needing any ideas or recipes.

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    Thanks for the update ! I can't believe it can take 6 - 12 months for Orencia to work. I'm hoping it's the 6 for you.

I hope cutting wheat out of your diet works wonders. My neice has fibromyalgia and she has cut wheat and other things out of her diet and feels much better. Hopefully, you can find a local grocery store that carries lots of wheat and gluten free foods.

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24 Years Ago on the 24th of March

Monday, March 24, 2008

I got married. And, oh my, I'm a different person now than I was then and I'm so glad.

That day, I was a nervous wreck. My parents even let me smoke in the house because I was so nervous.

I got married in my parents' livingroom with only immediate family, aunts and uncles (no cousins) and grandparents and still, I felt like there were too many people. There were only about 30. When my husband to be tried to put the ring on my finger, my fingers were so sweaty, he had a hard time doing it. But, he did and we got married.

I was so insecure at that point in my life. I cried at the drop of a hat or at an annoyed look from my hubby. He hated it. But, the older I got, the more confident I got and I learned to stand up for myself and now he and I 24 years later are solid and content.

  Member Comments About This Blog Post:

HOYTGAL 3/24/2008 11:16AM

    Happy Anniversary to you and your hubby !!!!

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MOLLIEMAC 3/24/2008 9:40AM

    Happy Anniversary!...MJ

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I can't remember the last time...

Sunday, March 23, 2008

I cried while reading a novel. But, it was so sad...

When he came back and settled in beside her, she reached up slowly, traced the outline of his lips with the tip of her finger. "You first ravished me on the floor in front of a fire, remember?"

He smiled, like a blind woman, she felt his lips curve with the sensitive pad of her finger. "If I remember correctly, you were doing the ravishing."

"And what if I wanted to ravish you now?"

He looked so scared that she wanted to laugh, but it wasn't funny. "Can we?"

He took her in his arms. She knew they were both thinking that she'd lost so much weight there was almost nothing left of her.

Nothing left of her.

She closed her eyes and tightened her hold around his neck.

The bed seemed so big suddenly, like a sea of soft white cotton compared to the bed downstairs that had become hers.

Slowly, Kate took off her robe and peeled out of her nightgown, trying not to notice how white and sticklike her legs were. Even worse was the battlefield that had been her breasts. She looked ruined, like a little boy, only there were the scars.

Johnny stripped out of his clothes, kicked them aside, and climbed back into bed beside her, drawing the covers up to their hips.

Her heart was thumping hard as she looked at him.

"You're so beautiful," he said, and leaned forward to kiss her scars.

Relief and love cracked her open inside. She kissed him, her breath coming hard and ragged already. In their twenty years of marriage, they'd made love thousands of times, and it was always great, but this was different, they had to be gentle. She knew he was terrified of breaking her bones. She hardly remembered later how it had all happened, how she'd come to be on top of him; all she knew was that she needed every part of him, and everything that she was, that she'd ever been was irrevocably tied up with this man. When he finally entered her, slow and easy, filling her, she came down to meet him, and in that glorious second, she was whole again. She bent down and kissed him, tasting his tears.


Finally, smiling, feeling young again, she snuggled up against him. He put an arm around her and pulled her close. They lay there a long time, half sitting against the mound of pillows, watching the firelight, saying nothing.

Then, quietly, Kate said what had been on her mind for a long time. "I can't stand to think of you alone."

"I won't ever be alone. We've got three kids."

"You know what I mean. I'd understand if you and T---"

"Don't." He looked at her finally, and in the eyes she knew as well as her own she saw a pain so deep she wanted to weep.

"It was always you. Just you, Katie. T---- was a one-night stand, a long time ago. I didn't love her then and I never have. Not for a second. You're my heart and soul. My world. How can you not know that?"

She saw the truth in his face, heard it in the tremble in his voice, and she was ashamed of herself. She should have known this all along. "I do know that. I'm just so worried about you and the kids. I hate to think..."

This conversation was like swimming through acid; it burned through flesh and bone. "I know, baby," he said finally. "I know."


Dr Appt Update

Thursday, March 20, 2008

Well, I had a bad 3 day flare last week and I've had two bad days this week (yesterday and today). Since, March 7th, I've been keeping a pain diary and I printed it up nicely and took it my doctor's appointment with me.

He's agreed that I can stop taking the Humira but he wants me to try Orencia. I'll have to do some research on it. All I know about it is that I have to go to the doctor's office for it because I get through an IV, which I've never done before.

It would be nice if THIS ONE works. It will be the third biologic that I've tried...

I also had my very first energy drink today because I had a lousy sleep last night because of the pain and I was really tired all day today and then I was supposed to play bridge tonight and I wasn't going to get home until 11:30 and Diet Coke wasn't doing a thing so I thought I'd try an energy drink. I drank it before bridge and then wouldn't you know it but bridge was cancelled. The drink woke me up but I'm not feeling REALLY alert but I'm not feeling really sleepy anymore either so I guess it did what it was supposed to. It just doesn't feel like it gave me all that much energy!


This Week's Weigh-in

Saturday, March 15, 2008

I'm down a whole point 2 pounds (.2)! WooHoo!

But, I should be grateful it's not a gain since I haven't exercised or kept track of my food since Monday.

I've had a terrible week, pain-wise. I've been suffering from a flare in my rib cage. Apparently, it's called costochondritis (ribcage pain from swollen cartilage). But, whatever it's called, I just want it to go away. I'm wondering if it's being caused by the Humira I'm taking since this is the second episode like this that I've had since I started taking Humira in December. I thought it was bad when my knees were sore and it is but I really don't like this either.

I've spent the past week with heating pads, hot water bottles and ice packs on my chest and back. And, I missed 3 days of work and 3 meetings that I'm instrumental in because of it. So far today, I'm feeling a little better (touch wood) and I'm supposed to go and visit my sister and her kids this morning so perhaps I will. It's been pretty mild here this week (between 30 and 40).

Anyway, I hope I'm better by Monday because there's work that needs to get done at work and only I can do it.

  Member Comments About This Blog Post:

MOLLIEMAC 3/15/2008 9:36AM

    Hang in there...MJ

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