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I Got Answers Finally!

Sunday, August 28, 2011

Finally, I got the answers for which I've been waiting 3-4 years. I will be needing several surgeries as I suspected but couldn't get anyone to listen to me up until now. This neurosurgeon actually took the time to study my most recent MRI in his office before he saw me, took some notes and then went over it with me. Together we reviewed his findings, he asked me questions, I asked him questions and he examined me. He could see exactly what I saw and he listened to me. Thank you God! I have a pretty serious problem that I've been walking around with but the good news is that a good part of it can be fixed. Not all of it but a large part can be fixed. I am so relieved. He can give me back the use of my left arm and my balance. He may also be able to reduce my migraines just a little. Even a little - I'll take it! :) He also didn't poo poo the tremendous amount of pain I've been in - he understood that right away just by looking at the MRI. Other doctors blew me off as a whiner and a baby. I was stunned. Wow! He wanted to do surgery right away this coming week due to the serious nature of it but I couldn't. I rearranged everything so that I can do it after the first of September. His office was very pleased. So that's my big news of the week!

  Member Comments About This Blog Post:

DONNABRIGHT 8/29/2011 7:48AM

    I am so happy for you. Prayers will continue for you and your family.

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L*I*T*A* 8/28/2011 12:41PM

    awesome...prayers answered!!!
blessings and hugs........lita

emoticon emoticon emoticon emoticon

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SLENDERELLA61 8/28/2011 12:39PM

    FINALLY!! Thank heavens, Cyndi! Your persistence and patience are really paying off. Can't wait to see you more mobile and pain-free. Hoping the pay off on the migraines is even more than expected. Take care. Know I'm thinking of you! -Marsha

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IMMORTALTESSA 8/28/2011 12:27PM

    I am so happy that you finally found a doctor that took the time needed to hear you and figured out what could be done to help you. So many doctors are just about a pay check now-a-days and forget that their patients are real humans with real emotions. I am so sorry that it took you so long to find someone that would hear you out and give you the respect and time that you deserved all along. I pray that this surgery does so much more for you that expected. You are such an amazing woman, so loving and caring to those around you, you deserve the best things out of life and to be pain free. I pray for your complete and speedy recovery. emoticon

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WILD4STARS 8/28/2011 10:19AM


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Getting Organized For My Appointment Wednesday

Friday, August 19, 2011

I took the time this morning to go through my drawer of x-rays and MRIs. I pulled out all of the relevant ones to take with me for my neurosurgeon appointment this coming Wednesday. I was even able to call the place where I had one done in 2007 (before they were able to put them on disks) and have it put on a disk. It is amazing that an imaging place can do it now when they were unable to do it then! I have a collection of MRIs going back to 2002. That MRI was done up north and I doubt that I can get it on a disk. It is a fairly clear film so if the doctor wishes to read it, there shouldn't be a problem. You never know, even with all of these MRIs, he made decide not to look as anything other than the most recent MRI, but I will have all of them just in case. Being prepared makes me feel like I'm more in control of my life because my life has been so out of control for such a long time. Every little bit helps me feel better.

  Member Comments About This Blog Post:

WILD4STARS 8/20/2011 8:38PM

    Sometimes our health care can be a full time job. Hope you get some answers.

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SLENDERELLA61 8/20/2011 7:59PM

    Super job, Cyndi! So good of you to get organized and have all your ducks in a row when you see the doctor. Best wishes for the treatment you need. -Marsha

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HSMOM2FOUR 8/20/2011 10:15AM

    A calcified disc can cause a LOT of problems. I had one and it was nicking my spinal cord every time I moved. Up until surgery, the doctors couldn't explain the severity of my symptoms based on my MRIs, but my neurosurgeon suggested 'exploratory' surgery to investigate. He said that as soon as he got in, he fully understood and everything made complete sense.

That was almost 7 yrs ago, and I can not even begin to tell you how wonderfully better I am now!

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DONNABRIGHT 8/20/2011 7:59AM

    It's a good idea to bring as much info as you can. Are you also bringing a list of questions so you can get all the answers you want and need?

I do hope you get some positive feedback from this appointment.

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L*I*T*A* 8/19/2011 10:43PM

    hope all goes well with your appointment...
praying you will have some answers soon.......
have a restful weekend...
blessings and hugs............lita

emoticon emoticon emoticon

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FITCOFFEEMOM357 8/19/2011 10:16PM

    you are so right Cyndi get some rest and enjoy your weekend as much as possible.

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Saturday, August 13, 2011

I now have a neurosurgeon appointment on August 24. The doctor's office wants me to bring all of the disks of MRIs of my cervical spine with me. I will also bring those done before disk technology was as available such as before 2009. Apparently he can see growth pattern or something.

I'm still spending much of my day in bed resting both neck and arm. On a positive note, my motion is much better on the right side but the pain on the left is bad. I was able to carefully put on my floatation belt, keep my arms to my chest and kick my feet around in the pool on three days this week. The exercise helped my circulation and I think was instrumental in helping my right side move better. I do tire quite a bit so I come home and spend the rest of the day resting. It isn't much of a life right now but it beats the alternative. I look at it as being temporary until I can be fixed.
I have lost another pound. Yea me!

I am having a real problem dealing with stress. I gave up eating through it long ago and turned to exercise. Exercising (and over exercising) has caused me to have many injuries over the years. Right now most exercise is also out of the question. After talking to one of my doctors and my family, I've decided to keep a feelings diary as an outlet for anger, frustration and fear. I was also advised to have myself good old fashioned cry about once a week. I'm not a crier my nature - at least not for myself. I cry at sad movies and at the pain of others but almost never for myself. Plus crying gives me a headache and makes my eyes puffy. That brings up the question, why am I so empathetic to others and seemingly lacking in empathy for myself? I think that ranks right up there with putting myself at the bottom of the list. I'm going to make a note of this and chew on it for a while.

  Member Comments About This Blog Post:

DONNABRIGHT 8/14/2011 9:19AM

    So glad you have this appointment coming up. Maybe, finally, you will get some help so you can get on with your life the way you want to live it!

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TBRANCH2 8/13/2011 11:07PM

    You CAN overcome this just like you have overcome so much more in your life! You know that we are here for you just as you are here for us....Why don't you take this time for "rest and relaxation" and think about what you want to do when you get better....
Theresa emoticon

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L*I*T*A* 8/13/2011 7:36PM

    Cyndi........wish i had a magic wand...
here is hoping your appointment will bring you some answers....
prayers continue......
blessings and hugs......lita

emoticon emoticon emoticon

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WILD4STARS 8/13/2011 5:46PM

    Hope you're feeling better soon. I know right now that seems like an impossibility, but you're doing all the right things to head in that direction. I'm praying that you find a doctor that finds some answers and SOLUTIONS to all that you are experiencing. I can't imagine how helpless you must feel, and yet you keep moving forward, keep persevering! You are an inspiration.

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RUTHIEBEAR 8/13/2011 4:23PM

    I do the same thing with using exercise as stress relief. This past year I have way over exercised as the stress level has been off the chart. I admire you for continuing to try and exercise (at the pool) while experiencing such pain. I live with back pain so I know how hard it can be. I will be praying for your appointment on the 24th. In the meantime, take good care of YOU! emoticon

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IMMORTALTESSA 8/13/2011 3:28PM

    Cyndi, I am so sorry to hear that you are struggling with pain and emotions. I think that all mother's have a problem putting themselves first. I know I do it all the time. My kids, friends, family, and even strangers needs are all ahead of mine. I am so proud of you for finding a way to stay active even with the limitations. I seriously hope and pray that you find some relief and fast. Thinking of you. Tess emoticon

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SLENDERELLA61 8/13/2011 2:10PM

    Hope. Oh, I have so much hope that you will find answers and get back to having the real life you deserve, Cyndi. Your determination to get exercise despite the pain and limitations is admirable. The journaling is a great idea. Have you ever thought about life writing? I know WildforStars is doing it right now. There is a wonderful teacher here in Lakeland and the groups tend to get close and supportive. Take care, Marsha

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Flat and In Bed

Sunday, August 07, 2011

For two days now I've been in bed due to severe pain and the inability to move my neck and left arm. All I did was grab a beach cover up and pull it over my head to take the dogs outside. Voila! Instant pain and I'm flat. On a positive note, I've been hurting too much to do any extra eating so I've stayed with my plan.

The neurosurgeon at Tampa General is supposed to review my records tomorrow and decide if I get an appointment. I sure hope so.

  Member Comments About This Blog Post:

IMJETTA8 8/15/2011 7:59PM


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FITCOFFEEMOM357 8/10/2011 11:35AM

    Cyndi ~ I hope you get the appt.

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DONNABRIGHT 8/9/2011 8:20AM

    Oh, no! Your beautiful attitude shines through no matter what you are going through. I hope relief is just around the corner for you.

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SLENDERELLA61 8/8/2011 7:23PM

    Oh, Cyndi. So sorry you are going through all the pain. We'll just hope and hope for that Tampa appointment -- or a miracle. Take care. Know your whole team cares. We missed you at the walk. Hope you can re-join us soon, feeling 100%

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L*I*T*A* 8/8/2011 12:10PM

    so sorry to hear about your pain....
hoping and praying you will have some resolution soon .....
blessings and hugs............lita

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WILD4STARS 8/8/2011 5:37AM

    emoticonHope someone is able to help you soon.

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My Symptoms Match C-5 C-6 Problems The Doctor Says

Wednesday, August 03, 2011

The doctors told me yesterday that my symptoms match problems with the C-5 C-6 area but the issue on my MRI looks like it is an old issue because the disc is calcified even if it is sitting on a nerve root. I tried to explain that as it gets larger my symptoms worsen but they don't seem to understand what I'm trying to say. I think they are looking for something else that is new not something old that is growing.

The doctors were surprised that Mayo only did a nerve test on one arm. Apparently a doctor almost always does it on both for comparison purposes. In my case, they didn't do it on both they just tested my little finger instead of testing my whole arm. When I had it done years ago they did it on both arms too. Now I'm beginning to feel uneasy about the data that I got back from Mayo because I think it was incomplete. Drawing conclusions or making assumptions from incomplete data is a risky thing to do - at least from my perspective as the patient. My Tampa doctor has to order a new test because the left arm was never done and it is the arm that I'm slowly losing use of. I have that test scheduled for the first full week in September. My doctors have also given me a referral to see a neurosurgeon for a consultation to see if the calcified disk at C-5 C-6 can be removed to give me some relief and possibly give me back the use of my left arm.

This has given me some very slight hope although my trust in doctors in general is fading fast. I know that there are some wonderful doctors out there - I have been to a few of them. I guess I've become disillusioned with people in general when they don't do the right thing. The reason my doctor asked me to come in yesterday was because she said there is a difference between a test result and a patient. Test results are just pictures, patients have feelings and can communicate their pain and symptoms to a doctor. Doctors must have both to be a good doctor.

  Member Comments About This Blog Post:

L*I*T*A* 8/3/2011 10:25PM

    hoping you and your dr's will be able to fit the pieces
of the puzzle together soon....
praying all works out for the best...
blessings and hugs.........lita

emoticon emoticon emoticon

Comment edited on: 8/3/2011 10:26:03 PM

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SLENDERELLA61 8/3/2011 5:08PM

    Nuture that "slight hope"! This has gone on and on. So hope you get answers and effective treatment. Take care, Cyndi. I do admire your tenaciousness and persistence. Keep up the good work and good attitude.

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