Thursday, July 07, 2011
I am so glad that I called my neurologist/migraine specialist at the Mayo. He called me right back that afternoon and told me that I should have called my local neurologist right after the pool incident happened. What local neurologist? I'm saying that here- I didn't tell him that- but my local guy told me that there was nothing in Central Florida that could help me and handed me off to the Mayo. I did explain to my Mayo guy that I had an appointment with my Tampa Hospital neurologist/migraine specialist Tuesday, July 5 and that seemed to appease him somewhat. He made me promise that I would bring it up as soon as I got to the appointment on Tuesday. So, when my Tuesday appointment was cancelled (even though I was at the office) I insisted upon being able to leave a message on the nurse line so I could keep my promise. My Mayo doctor also told me to go ahead and schedule another MRI at the Hospital this time to see if we can get a better idea of what is going on with my cervical spine. (Especially since the rest of the Mayo team appears to have dropped the ball.) He was very surprised to hear that I had not received any further communication from the team and that the meeting with the neurosurgeon hadn't taken place. Interesting!
With that in mind, after my first botched attempt at an appointment with my Tampa neurologist on Tuesday, I decided to follow up once again with my team coordinator at Mayo. My team coordinator doctor never returned my call from June 22 (which is why I went around him and called the neurologist/migraine specialist). When I called this time I explained that I had left a message on June 22 and he had never called me back. I asked the woman in his office if he got my message. You won't believe the answer!!! She said, let me check the notes. "Oh, yes, he got the message. After getting your call, he scheduled a meeting with the neurosurgeon and the neurologist/migraine specialist." I asked when I'd be getting the notes. She replied, " The doctor is on vacation until July 13 so the meeting won't take place until July 18. After that time the doctor will send you a copy of their notes and recommendations."
After hearing all of this, a little light bulb went on in my head. I had an ah,ha moment! What they will come back and tell me is that I need an updated MRI. That's why their neurologist told me to go ahead and get a new one! So this is how the game is played.
At my re-scheduled appointment with my Tampa neurologist yesterday, I told her and the "fellow doctor" who was studying under her, that I need an updated MRI. I explained that my symptoms have worsened since my last one and she showed the doctor how to fill out a prescription for that so it will be covered by insurance. (It was pretty cool actually) He wanted to make sure for himself so he wouldn't be committing insurance fraud so he rotated my head this way and that and pressed on my neck. The end result was that he gave me a giant migraine and said, "Oh my, her symptoms really have gotten much worse haven't they." I wanted to hit him but couldn't fault him for wanting to make sure he told the truth on the prescription form. However, my doctor knows me and could have stepped in at any given time, but it is a teaching hospital.
My MRI is July 14. Sometimes you just have to take matters into your own hands. I wonder how long the coordinator at Mayo would have waited if I hadn't called. I am so glad that the neurologist at Mayo told me to get an updated MRI. Something tells me that the results of the July 18 meeting are going to be, get an updated MRI and I will already have it in hand.