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AQUAGIRL08's Recent Blog Entries

Starting To Get Ready For Mayo Clinic

Sunday, March 06, 2011

All of my paper work is complete. In fact, the Mayo Clinic called and said that I can skip the first hour of "pre registration" because I went to so much trouble to get all of my records to them in advance and they've processed all of it already. I just hope that nothing goes wrong with it - I did it in advance to give myself the gift of reduced stress.

I've been having nightmares about what they may find once all of the tests are in and reviewed. I know that this is because I've had entirely too much time to think about it. Five weeks is a long time to worry about what they will find after you've already been examined by a string of other doctors. As far as I know, the Mayo Clinic will only give me a list of additional tests this time or possibly a list of treatment options. They won't actually do any actual treatment. However, they may be able to tell me when and how I can get treated and that gives me hope.

The forecast says that the weather will be 70-ish while I am there so I will need pants and some long sleeves. I'm glad that I took the time to look that up. Perhaps I'll also need a jacket/sweatshirt for the evenings.

I got hubby a book that he has been wanting to read for a surprise. Hopefully it will give him something to do while I'm being poked and prodded. He is a king among men to cart me around like this when he has a business to run. I know he is torn between wanting to run his business and wanting to be involved in my care. You can all see where I rank. At the top of his list baby! I am one lucky gal! We are both a bit on the scared side and are trying to look at this as another adventure that we are sharing together.

  
  Member Comments About This Blog Post:

FITCOFFEEMOM357 3/10/2011 9:51PM

    I will be thinking of you and yes, you are a very lucky girl to be on the top of dh lists.

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HEALTHYWAY101 3/8/2011 2:25PM

    Many blessings, and some answers. You are strong, and your hubby will be with you all the way. Stay positive.

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DONNABRIGHT 3/7/2011 1:05PM

    I am trusting that this will be successful for you - you deserve it!
emoticon

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PEGGYANNSCH 3/7/2011 7:03AM

    Good luck and safe travel.

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L*I*T*A* 3/6/2011 11:25PM

    all the best with your trip..........
wishing you the best outcome possible....
praying and sending positive thoughts your way....
blessings and hugs.............lita

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SLENDERELLA61 3/6/2011 8:52PM

    I think it is absolutely beautiful that you appreciate your husband and recognize his dilemna, choices and priorities. You are a lucky woman, and wise to recognize it.

Best wishes for a wonderful healing trip to Mayo. Relax and sleep. (Easier said than done, perhaps.) I have a very good feeling about this trip for you.

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HEALTHY4ME 3/6/2011 5:02PM

    I will be thinking of you, and hoping for good results and a prognosis that they can help you with. HUGS and safe travels.

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A Different Kind Of Reward

Friday, February 25, 2011

I was early for a doctor's appointment the other day, so I decided to stop at a near by store, just to kill a little time. I had a gift card that I was given for Christmas and I decided to use it. So I walked around a little and tried on a couple of things. I ended up buying a pair of shoes and two tops. As many of you know, I've been fairly confined for the last three months with cervical spine issues and have trouble using my arms. So when I passed an isle that has this wonderful gadget for cleaning the inside of my windshield as well as the bathroom mirrors, I decided that I'd treat myself to something special and I bought that as well. I left the store thinking that I'd really made good use of my gift card and I had rewarded myself too. I headed to the doctor's office and didn't think about it again until I got home.

When I got home, I modelled my purchases for hubby. He was dually impressed with all of my bargains. Then he asked me what else was in the bag. I showed him what I had bought just for me. He was glad that I found a gadget to help me with the windshield so I wouldn't hurt myself. As I was putting it away, it hit me. I am starting to naturally reward myself with non food rewards. This is a big step for me! My mother always used food rewards and it has been really hard to break that habit. Maybe I'm making some progress!!!

  
  Member Comments About This Blog Post:

PEGGYANNSCH 2/28/2011 12:31PM

    emoticon

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SLENDERELLA61 2/27/2011 4:52AM

    You are definitely making progress! Non-food rewards can be so motivating. Go, Cyndi!!

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HEALTHY4ME 2/25/2011 5:48PM

    emoticon emoticon old habits are hard to break, sometimes we don't even know we are doing it. Good for you!!!!

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ELISADENK 2/25/2011 4:27PM

    emoticon

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DONNABRIGHT 2/25/2011 3:53PM

    You also rewarded yourself with the time to shop at your leisure - way to go, girl!

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LNSYLVSDOGS 2/25/2011 2:15PM

    Bargains are so much fun!! Looks like you did good!!

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L*I*T*A* 2/25/2011 1:59PM

    emoticon emoticon emoticon

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I Have A Date For A Mayo Clinic Appointment

Saturday, February 05, 2011

The Mayo Clinic called this week with a date for my first appointment. They are going to screen me first outside of the neurosurgery department to see if I need further tests first. The date is March 8 at 3p.m. They will mail me information including lodging accommodations. They seemed to think that I would need to do further testing and see other doctors in the days following my initial appointment. I can also get into the neurosurgery department faster this way when I'm ready for surgery.

My husband is not happy about the time commitment because he is self employed. Consequently, I'm looking into flights between my area and Jacksonville. Perhaps an alternative would be for me to fly up there and back so he won't have to miss any business opportunities at home. I'm sure that it will all work out just fine. This is all such great news and a big relief!

  
  Member Comments About This Blog Post:

AQUAGIRL08 2/6/2011 3:33PM

    I got my information packet already and have filled it out. I've made copies of what I filled in and am ready to mail it back to Mayo. They do have two medium level expensive motels on campus where we can stay. One has an office center and both have trams that go to the different buildings on campus. There are also economy motels within 10 miles that will give us special rates if we tell them we are at the Mayo. I still have to sit down with hubby and go over all of this information. It's a lot to absorb in one sitting!

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DMBEECHAM 2/5/2011 10:14PM

    This is emoticon news. I'm so happy you have an appointment. I'm sure you'll work out transportation arrangements.

emoticon

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L*I*T*A* 2/5/2011 9:54PM

    sounds like things are falling into place.....
all the best....
blessings and hugs......lita

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HEALTHY4ME 2/5/2011 6:01PM

    So glad you have some news and they seem so ready to accomodate you. I hope you can get things organized so hubby can go with you or is there someone else that can go too. HUIGS and glad things are getting finalized a bit.

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RUTHIEBEAR 2/5/2011 3:35PM

    SO happy things are going well for you to schedule this needed surgery. Keep us posted. Love your positive attitude. emoticon

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SLENDERELLA61 2/5/2011 3:30PM

    Oh, I'm really glad you've got your appointment. Wish I could volunteer to go with you, but I don't have a day without either work or kids. I just made an appointment with Social Security for March 3rd. I'm going to apply for my SS check effective July, which I believe will come in April. So, I'll be retired, barring employment offer I can't refuse. I'll still have a lot of commitments keeping kids, but I will be less hectic for sure.

So hoping you get answers and results. You deserve an active, pain-free existence. We missed you at the walk this morning, but of course we understand. Just wish you could.

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DONNABRIGHT 2/5/2011 3:30PM

    Try Allegiant Air - they have some good rates but they do limited airports - you may have to land outside the city and then drive 30 minutes or so or maybe take a shuttle service.

I sure hope this works out for you.

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The Mayo Says YES!

Friday, January 28, 2011

I've been anxiously waiting to hear what the Mayo Clinic had to say about my Radiologist report (from my MRI) and whether or not they would consider treating me. They said I would hear from them this week. For those of you who read my last blog, you know that I couldn't wait and I found a number that I could call and check to see how things were going. It was a blessing that I did call on Wednesday, because the fax that I sent last Friday didn't register into their system even though I have a receipt that says it went through. When I found out, I quickly went to the UPS store and had them send the fax twice. Then I went home and called to verify that they received it. (You have to wait 20 minutes after sending the fax in order to verify the receipt) They said that they were short staffed on doctors to review the reports so I wouldn't be contacted until Friday or Monday with any kind of answer. I felt okay with that information because at least I knew what was going on and had a little bit of a time line.

This afternoon I started to get restless and wondered if they had an answer yet but just weren't calling me for some reason. My intuition again was right on target. I was told that YES! I was approved to come to the Mayo Clinic for treatment. I asked about appointment dates and was told that the next appointment date would be in April. I wanted to make an appointment immediately but the woman said that April appointments weren't opened yet. Apparently, the neurosurgery department only schedules appointments sixty days out and the April dates won't open until the first of February. I assume everything that isn't scheduled must be emergency, research or school related. It appears to be very a selective and organized department. I hope that works in my favor as far as treatment is concerned. I can't tell you how relieved my husband and I feel.

  
  Member Comments About This Blog Post:

EILEENV3 2/3/2011 12:58PM

    emoticon emoticon

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SLENDERELLA61 1/29/2011 8:22PM

    That's great! Sure hope they do as good for you as Shands did for me back in 1998-99 when I just couldn't function. Wishing you health and happiness! Take care, Marsha

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DONNABRIGHT 1/29/2011 8:46AM

    emoticon

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WILD4STARS 1/29/2011 5:33AM

    emoticonGood news.

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FITCOFFEEMOM357 1/28/2011 9:58PM

    I love it when people take action for themselves instead for waiting. What a Blessing!!!

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TBRANCH2 1/28/2011 7:47PM

    emoticon emoticon emoticon

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L*I*T*A* 1/28/2011 6:47PM

    wonderful news!!!
blessings and hugs..........lita

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HEALTHY4ME 1/28/2011 5:38PM

    Good for you maybe they will find a cancellation adn get you in eariler but at least you know whats going on and that you will be seen. I hope you get an answer and a solution.
HUGS

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Anxiously Awaiting Mayo Verdict

Wednesday, January 26, 2011

By my calculations, either today or tomorrow, I should hear something from the Mayo Clinic regarding whether or not they will see me for surgery. Perhaps they won't see it as urgently as I do and will take their time calling me back, I don't know. I will only give them until this afternoon/tomorow morning and then I'll call them and ask. I've got to be proactive and my own advocate. There is a fine line between being a pain in the neck and being an advocate for yourself. I'm even willing to be seen as a royal pain in the neck at this point. My condition, pain and anxiety allows me this luxury.

  
  Member Comments About This Blog Post:

SLENDERELLA61 1/26/2011 10:32PM

    Good for you for taking that action!! It is so sad that it takes so much effort to get what you need. Our medical system is so frustrating. With your determination, you are bound to succeed! Keep up the good work and good attitude!!

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AQUAGIRL08 1/26/2011 1:21PM

    I am so glad that I called them! They didn't get the fax that I sent on Friday night even though I have a sheet that says that it went through. I quickly went to the UPS store and sent it twice more. Then and went home and checked to see if they had gotten it this time. They had gotten it. I will know something either on Friday or Monday for sure. If I hadn't taken the bull by the horns and gotten a number to check on my status, I could have sat forever. Yea me!

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L*I*T*A* 1/26/2011 11:38AM

    emoticon you can make it happen........

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GARDENCHRIS 1/26/2011 7:24AM

    hope everything works out well for you, must be very frustrating to not have answers

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CAM2438 1/26/2011 7:16AM

    Good for you. We have to be the ones in control of our bodies. I hope things go well for you.
God Bless!

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BIGDOG18 1/26/2011 7:15AM

  Best to be proactive!!

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