Wednesday, January 05, 2011
Here it is, two weeks after my injection and I'm still having problems. Instead of helping me the injection created issues for me. Pain and more pain created by the shot plus now I have to limit how much I use my left arm. My migraines came back with a vengeance and many of the therapies that I spent two weeks in November learning, I can't do because of the limited motion due to the electrical shocks that I'm experiencing daily. On a positive note, the severe muscles spasms that I was having 24/7 in my right arm (after the shot) suddenly slowed down yesterday. That was a welcome relief! I couldn't feel any pain from them, they just made my arm and hand shake. They were more annoying than anything.
Tomorrow is the day that I have my appointment with the doctor who gave me the injection. I need for him to understand just what this injection has done to me. He needs to understand the amount of pain I've had to endure because of the injection and just what effect it has had on my body. I need to know if any of what I'm still experiencing is permanent. I need an MRI and an expert who can guide me. The whole way I was treated by the surgical center staff and by this doctor's staff has destroyed my trust in him. I don't think this doctor is the person who is the expert I want to guide me, yet I'm going to have to rely on him to give me a referral for an MRI.
When I go tomorrow, I will not verbally attack the doctor. I will try to work with him. I want to find out why all of this happened. If I am antagonistic, I will shut down the lines of communication and I'll never find out what went wrong. My focus must be on gathering information in order to get better, not on pointing a finger and making accusations. I need medical attention, that much is obvious. I need an MRI and if I have to be nice to the doctor to get one, I'm going to be nice.
Thursday, December 30, 2010
As many of you know, I've had reaction to the cervical shot that I had on December 21. I contacted the doctor's office and they in turn contacted the doctor ( who is on vacation) and who told me that I should feel better in about 4-5 days. Supposedly I should have felt a great deal better by Sunday and should have been able to resume my normal activities. I waited but I've never felt better, so I decided to try to go to water aerobics on Tuesday. I was going to just walk around in the water, maybe do a few water weights and then come home. I reigned myself in and didn't do anything strenuous. In fact, I used a floatation belt in an effort to minimize any impact and kept all of my motions slow and easy. I attempted to use the water weights but after several bicep curls I suddenly started to feel pain in my head and neck. I stopped using the weights immediately.
The pain started before I pulled the car out of the parking lot. By the time I arrived home I felt horrible. I headed straight for the telephone and called the doctor's office again. I asked to speak to my doctor or any doctor who might be in the office. Imagine my surprise when I was told that all of the doctors were on vacation and would be out of the office until January 3. I reminded the woman who I was, what my past problem was and then told her that I had never gotten much better and how going to water aerobics made me much worse again. Her answer to that was that she would send my doctor an email and let him know and she could call me back when he answers. That was when something inside me snapped!
The next thought that ran through my head was, "What's going on here?" I explained that once again I was in terrible pain instead of getting better and that the doctor said I'd be better by now. All his office could tell me is that they'd let him know. They kept asking if I want to cancel my injection for January 4. Last time I wanted to discuss it with the doctor. He still wanted to proceed with the injection but then again he is the same guy who is still unavailable to talk to. This time when they asked, I said yes cancel it. I want an MRI. They informed me that in order to get an order for an MRI I have to come in for an office visit with the doctor to get him to write the order. I made and appointment for January 6. I am going to dig my heels in and insist on having an MRI before any other treatment. It has been well over a week and I'm still having problems from the shot. This tells me that something else is going on that bears looking into. I've already decided that if he won't write me an order for an MRI, I will go to my primary care physician, explain the whole situation and get her to write the order. I think I need some answers before any doctor proceeds with anything further.
Thursday, December 23, 2010
I had major problems with Tuesday's procedure. As some of you may know, I agreed to the procedure as a compromise with my doctor. I agreed to do two procedures and if they weren't successful, he would do an MRI. To his credit, he has credentials a mile long and has worked in a level I trauma center for 10 years so he knows (I think) what he is doing. He has taught cutting edge information at well known medical schools recently and has a wonderful reputation. That being said, the staff at the surgery center let me go home even after I told them that I was in crushing pain on my left side. The left side pain was a issue when I came to him and I voiced a concern because it was increasing over time. Fast forward to Tuesday. It was so bad when I left the out patient facility that I couldn't stand up straight. This should have been a red flag to the nurses at the facility and they shouldn't have let me leave without being seen again by my doctor. Instead they told me to take some Tylenol and go to bed when I got home. I asked permission to take a pain medication that I had left from an accident a year and a half a ago and they checked and said that would be fine. So I went home at around noon.
It took me almost until midnight to get the pain under control. Yesterday I was still in pain but it was tolerable without the medication. I still had electric shocks and muscle spasms going down my left arm into my hand and back and muscle spasms going down my right arm and hand. I had difficulty using my left arm/hand yesterday and my head and neck were throbbing. I had had enough so I decided to call the doctor's office to let them know everything that had transpired. Much to my surprise, the doctor had gone on vacation for the Christmas holidays. I was furious and told the person who answered the phone that I needed to talk to somebody. She said that if I would tell her in detail what had happened, she would call him and tell him everything and call me back. She asked me if I wanted to cancel my next injection appointment and I said I wanted to see what the doctor said first. I made this phone call at 9:30a.m.
At 2p.m. in the afternoon, the doctor's office called me back. The woman I spoke to in the morning was the same person who called me back. Suddenly the doctor's office was very apologetic about my experience on Tuesday. The doctor still wants to move forward with the second shot but he wants to assure me that I will not leave the facility without the pain under control and a pain management plan in place. The woman told me that pain after this procedure is common but my reaction was very rare and that they will watch it and me very carefully in the future. She said the down side of a reaction like mine is that my arms, back, shoulder, neck and head may be sore for up to five days after the shot and I have to rest according to my pain level. That did not make me happy because this is Christmas week.
Today I woke up and although still very sore, I am better. The electric shocks and the severe muscle spasms have subsided quite a bit. My head, neck, back and arm still ache but I'm able to use my arm and hand again. My husband is furious at the whole situation and I don't blame him. I know he felt helpless as he watched me suffer and he was even more angry when he found out that the doctor went on vacation. I was secretly happy to have interrupted his vacation with my phone call after all the pain and suffering I had gone through. I also filled out the survey (in detail) that the surgery center put in my hand as I was leaving on Tuesday. I signed it and put my phone number. My guess is that they will never call me after they read it. It wasn't all bad. I was fair and there were some positives that occurred before my procedure. It will be interesting to see what their response will be if they have one.
Wednesday, November 10, 2010
This week I've been doing week one of my pain management study at USF at Tampa General. The topic for me is migraines. I won't be doing any great amount of typing because I have a needle IV port sticking in my right arm (it was put in this morning) until Friday as part of my therapy. I can't let my arm hang in typing position for too long or it throbs. So please bear with me until I get it out. Sleeping and taking a shower will be a challenge but I will prevail.
I am making good inroads and working on pacing my activities which is a major thing for me. I tend to over schedule myself so that I'm always over tired. One of my therapists is also a SP team leader so that she knows first hand how wonderful SP is!!!
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