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DTP Awareness week - help save your own life

Sunday, August 21, 2011

Digestive Tract Paralysis (DTP) is a scary, confusing, and life-long condition. It can happen to anyone, at any time, from numerous causes. Once you have symptoms, it is already too late. No cure has been found and the treatments can only mask the symptoms - often causing as many problems as the condition itself. Millions of Americans have the condition - about 1 in 25 people - yet many doctors don't know about the condition let alone understand it, which means diagnosis can take weeks, months, or years.

Without awareness many more people will be forced to live a life of pain and mistreatment by others who refuse to believe the condition exists. Without awareness people will continue be STARVED daily while food is right in front of them. Without awareness you could someday find yourself with this condition and nowhere to turn for help.

I have DTP - both gastroparesis (paralyzed stomach) and CIP (chronic intestinal pseudo-obstruction - paralyzed intestines), though I still have the ability to eat some foods within a specific diet. This changes every day depending on my stress level, how much sleep I get, and if I've been too active during the day (I can't exercise). Many others can't ingest any food and must be fed through feeding tubes. Imagine how hard it is to be in social settings and unable to eat any food. Imagine never being able to taste your favorite foods or even drink water. Not a fun thought, huh?

To learn more and help spread the knowledge that could save your life or the lives of people you care about, check out www.g-pact.org or www.facebook.com/GPACT


You can't see my condition, but I feel it every day

Thursday, August 18, 2011


Here's an article for all of us who live with an invisible chronic illness. Accepting a condition doesn't mean liking it or thinking it is okay - it means understanding you can't control the condition but you can control how you deal with it.

When I mention gastroparesis or digestive tract paralysis to people then say I have it, they look at me and say I look great. "You don't look like you're sick." What I want to say is "Well you didn't look stupid until you opened your mouth." The truth is many conditions can't be seen with the eyes, only felt within the body or within the emotions of knowing a loved one is suffering.

I have received 7 medical diagnoses within the past year, none of which can be seen by looking at me. This is why I talk about it - no one would know if I didn't talk about it. Knowledge is my key and power - I hope others would want a little knowlege as well.

  Member Comments About This Blog Post:

ANDREWS_MOM 8/23/2011 5:43PM

    I get the same exact thing....you look so healthy how could you possibly be that sick?
I've even had a few people suggest it was an eating disorder because "they never heard of such a thing".....
Knowledge is power
emoticon to you my friend!

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KKSTEIGERWALD 8/23/2011 5:32PM

    I understand completely! Living with GP, fibromyalgia and insane migraines everyone always thinks that I'm feeling great if I don't have a migraine. They can't see GP or fibro, and don't understand that they impact my life just as intensely. I spend lots of time researching and studying so that I understand what's happening within my body, and I'm glad that I do. If I didn't, I probably still would not have a GP diagnosis. It really is up to us to take care of ourselves, arm ourselves with knowledge, and share it with others.

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CTUPTON 8/20/2011 8:38PM

    It is the opposite of being fat--everyone tells a cure for that! No privacy at all!

I feel bad you have such a difficult health problem. I probably say inappropriate things to people who look perfectly healthy. I think of thin (average weight) people as "perfect" with no problems. Of course that is idiotic. And, I am always amazed when they tell me about their efforts to stay slim. In my mind they have it easy and it just happens.

I heard a new term on tv today: oblivious idiot. I had never heard that before! Actually it made me laugh when I heard it.

Please take care and I hope life gets easier for you. Chris

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MOM2ACAT 8/19/2011 4:22PM

    emoticon I can totally relate to that!

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TURBOFIRE 8/18/2011 11:16PM


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Tubie duckie!

Wednesday, August 17, 2011

(Sorry the picture is a bit blurry, but you get the idea - it's a duck with a piece of a small straw implanted in its belly.)

So the stars of my favorite tv show, Supernatural, and their bodyguard have started Duck Nation.


I realized Friday starts DTP (digestive tract paralysis) Awareness Week and Duck Nation is going on - why not combine them? So I made a 'tubie duckie', giving a little yellow rubber duckie a feeding tube. (A tubie is a nickname for kids with feeding tubes.) I want to send it in for Duck Nation with a note about why it has a feeding tube and about DTP Awareness Week, in hopes that they will post it and spread the word.

So I know my tubie duckie isn't incredible (I don't have a lot of time to make it perfect if I'm going to get it up there any time soon) but I think it's kinda cute. And the big thing is it's about awareness, not about perfection. I'd like to know what you think about this idea! This one was mainly a test (and I put it in the wrong side - oops), but I'm not sure what I could to do make it better - so ideas are appreciated!

  Member Comments About This Blog Post:

ANDREWS_MOM 8/18/2011 7:43PM

    clever idea! good luck getting it on :)

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MOM2ACAT 8/18/2011 4:27PM

    I think your Tubie Duckie is very cute!

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How to win with a lottery scratcher part 2

Monday, August 15, 2011

Once again, this is all in fun. Don't blame me if you lose, but I appreciate tips if you win!

So in follow up, share a few secrets with others and play modestly. Today I turned in the $5 ticket I won with on Friday, took $2 and got another $3 ticket; it sat waiting for me to scratch it for several hours until after I showered and got in my pjs. I took over 10 minutes to play this one and I finished with another $5 win. I like it! haha


How to win with a lottery scratcher

Saturday, August 13, 2011

This is my attempt at a funny blog. This is not a guarantee for a win, so don't blame me if it doesn't work for you.

I never used to play lottery scratchers. My father doesn't like them - he says they're just a waste of money and that he gets a share of everyone's money when his taxes are lower - so I just tended to stay away. Then at my last job you could win scratchers for different things, so I kinda got into playing them. After losing around $100 on scratchers over a few months, I hit 2 wins at once to even out. After that I stopped playing other than rare times. If I come across a few dollars I didn't expect to get (ex: go to a car dealership to play a game to win a car and lose and get $2) I'll sometimes buy a scratcher. What I win goes back into more tickets unless it is over $10, then I buy 1 or 2 more and pocket the rest. So after all this playing, what have I learned?

If you splurge on a scratcher, keep it cheap - no more than $5. Do not scratch it there - take it home and let it sit for a few hours. When you have absolutely no intention of going back out for the rest of the day, or preferably for a few days, then sit down and scratch it slowly, playing the game. Choosing a scratcher that allows you to play a game that lasts for 5 or more minutes (bingo, slingo, crossword, etc) will allow you to have FUN! Play for the fun, not for the chance to win. Go into it assuming you won't win and that the fun is the prize. If a coin doesn't produce a winner, change to a different one - I find using a state quarter from where you live can be lucky (I've had a MN quarter that has won me like $30-40 over the past few months, and has won on about 2/3rds of the cards I've played with it). If you think you've won, don't look at the list of how much you won until you've finished! Doing so kills the good luck. When you win, if you're going to cash out take it to where you bought it (good karma, as they get a tiny percentage for selling winners), but if you're going to trade then take it somewhere else.

So there are my tips. Obviously, it doesn't always work. I'm just trying to be lighthearted and have fun (but I accept tips if you win! haha) so don't blame me if it doesn't work.

On Fri I gassed up and when I was inside paying with a coupon that saved me $1.10, some random feeling kept me from leaving. I looked at the scratchers, saw a new $3 Slingo game, and got one. I brought it home, changed out of my work clothes, had dinner, and started relaxing. I remembered the scratcher and since I knew I wasn't leaving the house until Sun or Mon, I started playing. I took my time - at least 5 minutes - and totally resisted looking at how much I won when the first win appeared, and then the second line showed up and I still had a few numbers left. I won only $5 on a $3 ticket, but that's a $2 profit and I had FUN. Next week sometime I'll drive down the road to a different gas station and turn it in for another $3 scratcher and pocket the $2. I probably won't win again, but it is all in the name of fun. That's my strategy and I'm sticking to it! It helped me win $100 a few years ago, so why not?

  Member Comments About This Blog Post:

GIRANIMAL 8/19/2011 5:42PM

    I used to work at a grocery store that sold lottery tickets, and lots of people would buy tons of scratch-offs at a time and then only scratch the numeric codes that the retailer uses to verify the winnings -- they never even played the games, even the quick ones. I always thought that was so sad! There is positively no enjoyment in that! emoticon

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FULLOFFAITH 8/13/2011 11:22PM

    Great Tips
I agree with waiting before scratching when ever I scratch right away it is a loser every time.



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