Monday, August 22, 2011
For people living with chronic and live-threatening conditions, it is important to understand your condition and what you can do to make your life a little easier. It's also important to have doctors who understand your condition. With gastroparesis, many doctors haven't heard of or understand it, so it is even more important for the patient to take in the knowledge needed to help her/himself live a healthier and longer life.
G-PACT (the non-profit supporting people with DTP (digestive tract paralysis) - which includes gastroparesis (GP - paralyzed stomach) and chronic intestinal pseudo-obstruction (CIP - paralyzed intestines) - is putting on a webinar about the anatomy and physiology of the digestive tract TOMORROW, Tuesday, August 23rd, at 8pm EST. This gives anyone who has a form of DTP (GP/CIP) a chance to learn more about the digestive tract, how it works, and probably will give some information specific to GP and CIP.
Facebook event to sign up: https://www.facebook.com/GPACT#!/eve
Knowledge is power - be powerful in your own life by continuing to learn new things about yourself, your body, and your life.
Sunday, August 21, 2011
Digestive Tract Paralysis (DTP) is a scary, confusing, and life-long condition. It can happen to anyone, at any time, from numerous causes. Once you have symptoms, it is already too late. No cure has been found and the treatments can only mask the symptoms - often causing as many problems as the condition itself. Millions of Americans have the condition - about 1 in 25 people - yet many doctors don't know about the condition let alone understand it, which means diagnosis can take weeks, months, or years.
Without awareness many more people will be forced to live a life of pain and mistreatment by others who refuse to believe the condition exists. Without awareness people will continue be STARVED daily while food is right in front of them. Without awareness you could someday find yourself with this condition and nowhere to turn for help.
I have DTP - both gastroparesis (paralyzed stomach) and CIP (chronic intestinal pseudo-obstruction - paralyzed intestines), though I still have the ability to eat some foods within a specific diet. This changes every day depending on my stress level, how much sleep I get, and if I've been too active during the day (I can't exercise). Many others can't ingest any food and must be fed through feeding tubes. Imagine how hard it is to be in social settings and unable to eat any food. Imagine never being able to taste your favorite foods or even drink water. Not a fun thought, huh?
To learn more and help spread the knowledge that could save your life or the lives of people you care about, check out www.g-pact.org or www.facebook.com/GPACT
Thursday, August 18, 2011
Here's an article for all of us who live with an invisible chronic illness. Accepting a condition doesn't mean liking it or thinking it is okay - it means understanding you can't control the condition but you can control how you deal with it.
When I mention gastroparesis or digestive tract paralysis to people then say I have it, they look at me and say I look great. "You don't look like you're sick." What I want to say is "Well you didn't look stupid until you opened your mouth." The truth is many conditions can't be seen with the eyes, only felt within the body or within the emotions of knowing a loved one is suffering.
I have received 7 medical diagnoses within the past year, none of which can be seen by looking at me. This is why I talk about it - no one would know if I didn't talk about it. Knowledge is my key and power - I hope others would want a little knowlege as well.
Monday, August 15, 2011
Once again, this is all in fun. Don't blame me if you lose, but I appreciate tips if you win!
So in follow up, share a few secrets with others and play modestly. Today I turned in the $5 ticket I won with on Friday, took $2 and got another $3 ticket; it sat waiting for me to scratch it for several hours until after I showered and got in my pjs. I took over 10 minutes to play this one and I finished with another $5 win. I like it! haha
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