Tuesday, June 28, 2011
Two of my diganoses are pretty much unknown to most doctors. Only about 50% of doctors have heard of gastroparesis, and only 50% of those (25% of total) know significant information about it. Very few have heard of eosinophilic esophagitis, and hardly any know what it is (which is ridiculous as any doctor should be able to figure it out just from the name!). Well, in talking to someone today at work, I found out he has EE also. Though he only did the treatment halfway for a couple days then gave up because he didn't think it did anything - you have to do the treatment 2x/day consistently for 6-8 weeks for it to do what it needs to do. He said he doesn't like to do what doctors tell him to do, but he doesn't like the fact that when he eats something it can get stuck in his esophagus. I tried to explain what it really is (since the doctors didn't do this for me, I doubt they did it for him), what the treatment really is and what it does, and give him a brief explanation of how bad it can get without treatment. I hope he takes it to heart and considers going back to the doctor.
First, it is weird that when most doctors can't figure out what it is let alone have any idea what to do about it - which makes me think that it is pretty rare - that I came across someone at work who has it. Second, how sad is it that the doctors don't tell us what we need to know, so he thought it wasn't important to correct the problem. Third, this is one of the main reasons why I want to learn about my diagnoses - I can attempt to inform others and help them, while also helping myself much more than most doctors have.
So anyone out there who has a medical diagnosis they don't really understand, do yourself a favor and research it, learn about it, and be prepared to explain it to other people and doctors when needed. It could mean making your life easier and possibly helping someone else as well.
Wednesday, June 22, 2011
I asked my endocrinologist to send me the full test results for all the blood work he's done. I was looking through them and found something interesting he didn't see (or didn't mention if he did notice it). I looked up some things, did some deducing from things I already knew and came up with some ideas. I won't run through the whole thought process here (as it is somewhat confusing), but I think it tells me a few things I've been wondering about. For one, it gives a possible reason (added to others that I already know of) why I'm always so tired. I never feel fully awake. Another thing it answers is why - for years - I will be sitting somewhere quietly and realize I haven't taken a breath in about a minute to minute and a half - my carbon dioxide levels are a little low; makes perfect sense that my brain wouldn't tell my lungs to breathe in to circulate more carbon dioxide through my blood. (FYI: when you hyperventilate, you're very low on carbon dioxide in your blood, which is why breathing into a bag helps.)
The full train of thought I used to come up with my conclusions is long, but I think sound. Now I need to figure out if I should run it past my endo or my primary. My endo actually listens, but since he missed these things on the tests is it something he would know about, so maybe I should take it to my primary, but she thinks I'm an idiot and probably won't listen. Something for me to decide later.
In other news, the job opportunity I posted about the other day is no longer an option. I asked my boss's boss about it and found out it isn't really a position (she couldn't really explain why it's posted when there isn't an opening), but part of what is in the posting she was thinking about giving to me anyways. That worries me a little as I already feel like I'm pushing a little too hard to get things done, but whatever. At least she knows that I'm doing what I can and to at least consider me for positions, even if it eventually will go to someone else who has been there longer. I also had a little email conversation with the brand new controller that touched on my schooling (9 classes away from my bachelor's in Accounting, but it will take awhile because I take correspondence classes) and at the end he said 'well I'm glad I asked so I know to watch out for you.' He's quite higher up in the food chain than would normally do me much good for promotions, but getting on his good side definitely won't hurt! Especially since the boss's boss mentioned that there might be some people moving positions soon.
Tuesday, June 21, 2011
Every time you think you've failed, remind yourself that you've just succeeded in ruling out something that didn't work to get you to your goal. Try another way, then another, then another, until you've gotten what you want. If you're not willing to try another way, maybe you didn't really want that goal after all.
Monday, June 20, 2011
One thing I hate about pedometers are the flimsy little clips used to hold them onto your pants. After just a couple months it is stretched out and doesn't hold it well at all. Thus, when I go to the bathroom it often falls off and hits the floor. I figured one day it would end up in the toilet. Well, that day was Saturday night, not long before I was going to head to bed. But here's the thing...
It fell in, I grabbed it out right away and it was still working. I dipped it under the faucet and it stopped working. Crap. Well, if it isn't going to work, then taking it apart to see if I can fix it won't do any harm. Instead of going to bed, there I was sitting on the floor in the living room taking it apart, all the little screws being set aside to try not to lose them or any other little pieces. Then I used cotton swabs to get as much water out of it as I could. After I cleaned it out I put it back together again. I figured if nothing else, the battery was fried. Well, I put the battery in place and it worked - kinda. The digital display was only half working. So I took the battery back out, left the back off, and set everything out on a few pieces of paper (which is drying - my hands know this from doing paperwork all day!) near my patio door. Today I put it back together, put the battery in, and everything - including the display - is working perfectly!
Most people would throw a $30 pedometer away (especially since I have a $5 one that I got when I couldn't find the right battery to put in the other one) instead of trying to fix it. I have no training in electronics - yet I fixed it. As some people have described me, I often "just get it". So kudos to me. Now if only I could remold the plastic so it doesn't keep falling off (and in the toilet)! haha
Saturday, June 18, 2011
There are changes going on at work. One of my coworkers was going to be given a new job, but after someone else was fired, she will be going to that job instead and the job she was going to be put in is out for others to try for. Well, apparently most of the women in my area want that job. The woman they were going to give it to said I should go for the job because I would probably get it over the others - I have the skills they need. (Her and I are a lot alike.) But I'm not sure if I should. If I apply, no one finds out, and I don't get the job - then it doesn't matter. If I apply, everyone finds out, and I don't get it, they will probably hold it against me. If I apply and get it, I'm sure I'm going to get crapped on by a few people. I've only been there 6 months, so if I get it over people who have been there for years, they will be ticked. Or I can just not apply and not rock the boat. I don't know what to do. A few of the women just want to be witchy and are enjoying taking it out on me. It would be nice to get a little further away from them, but it could cause more tension for me that I don't want. It just feels like I'm in middle school - not even high school!
Any advice or suggestions would be appreciated!
Today I met up with my family about a half hour drive from my house as they passed through the area on their bikes. www.benthub.com Where we ate there was no nutritional information available, so I was glad I packed a 'just in case' sandwich. I made sure it was okay with them before I brought it in, but were they really going to deny me when I said 'if I don't have nutritional info to know what I can eat and thus eat wrong, I could be sick and have to stop eating for days - besides my family will be ordering a lot of food." I spent probably a little over an hour with them. I also brought along mini cupcakes because tomorrow is father's day - it was a huge hit because even though the place was empty it took awhile to get their food and they were extremely hungry. (25 miles of biking in the morning through rain will do that). After that I followed them across a tiny bridge (bridge construction) to keep traffic away from them, then drove a little ways ahead so I could wave bye to them one more time before turning around and heading home. I have no idea how they bike an average of ~50 miles a day and will continue to do that for 2 months, but they are having so much fun and enjoying everything... even laughing about the setbacks more than I would. The young'uns really seemed to appreciate the Clif and Luna bars I gave them to help them save money on food. I have a bunch, can't eat them often or they mess up my stomach, so why not donate it to them?
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