How lovely hearing from you! It has been a while...
on the new house. Whenever you can, please add some pictures. It's so exciting.
Never mind about the eating, etc. It's understandable. I was unable to exercise and eat what I wanted when I was visiting in Canada. Such is life. Now that the children will be in school again, I am sure you will go on the straight path again. Hey, you win some, you lose some.
Well my dear, I will leave you now and I do look forward to communicating a bit more with you. 2408 days ago
Hi - I have had the best luck working with a physiatrist -- a.k.a. physical medicine and rehabilitation specialist. That's where I first got the appropriate diagnosis. Her plans really helped me, because she really understood the nature of the disorder's effect on one's body AND mind, and approached everything from a "how can I help you make your life be what you want it to be" approach rather than "you are a diseased person who needs treatment" approach.
My primary care doc originally wanted to send me to a rheumatologist, but the only ones in my area are focused almost entirely on rheumatoid arthritis and lupus, and not on collagen disorders. For me, the physiatrist (a referral from the neurosurgeon who treated my spinal imjuries) was really the key to figuring out how to handle EDS.