Hang in there hun, I know its hard sometimes. The weather certainly zaps all that you have. Remember sometimes when you feel really bad the best thing you can do is 10 minutes of very gentle exercise. Put your headphones and bob away (even gently) for 10 minutes or some activity you enjoy. Its gets the lympathic system going a little so that you can get rid of some of the neurotoxins that build up when we go through these episodes. Also the deeper breathing makes your diaphragm move and massage the internal organs which also assists in them functioning better a little quicker. The last thing you feel like is moving.....believe me I really get this one.....however this is when even just 5 minutes twice during the day will help the slump move a little faster so that you can get on with your life and do the things you enjoy. Take good care. XNicky 2256 days ago
I found a new team for us rather than starting our own. Its called the Fatigue support team and they have some good forums. One of the ladies has a free link on the forum that actually tracks your bio-rhythms. It would be an interesting exercise to see if it corresponds to the ups and downs of CFS. Their comments seem quite similar to yours and mine. As you said it is really nice to have support around and feel less isolated. Keep well. XX Nicky P.S. well done with the weight loss. 2268 days ago
Hi there, nice to hear from someone who understands CFS and its awful energy slumps.
I am really impressed that you understand how important it is to stay well when you live with such a debilitating condition. Well done. Its inspiring.
I am seeing the specialist shortly so if he has any new ideas or stragegies I promise to pass them on. I still push too hard probably more than I should because I am pretty outdoorsey and love nothing more than surfing, diving, skiing, fishing, riding, playing with the kids and all our animals - particularly our two beautiful dogs) etc. Life's too short I figure to let it slip by (when/if I can help it). The slumps, well when moving through the slumpand coming out the other side it gives me time to read and re-group. I have also met some really amazing and inspiring people that I would not have met if it weren't for being unwell. These people have inspired me so much that I now have my own natural therapies practice.
Keep in touch. Kindest regards - Nicky 2272 days ago