DCAPDEVI   3,928
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March 4th 2015





September 22nd 2013 - down 25 pounds!



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Looking For That Thing Called "Life"

Hi! I'm Donna.
I'm 36 years old.
I'm a single mom of a fantastic daughter.
I moved to Gastonia, NC summer of 2014 to help care for my mother after she became ill with CHF and COPD. Always fun when you come for a visit and meet the local EMS and ICU staff. She's doing much better now.
I am also officially "Disabled." I suffer from chronic severe pain from a degenerative spine. By the age of 29 I had 8 herniated discs, stenosis, and nerve damage in my neck and lower ...
Hi! I'm Donna.
I'm 36 years old.
I'm a single mom of a fantastic daughter.
I moved to Gastonia, NC summer of 2014 to help care for my mother after she became ill with CHF and COPD. Always fun when you come for a visit and meet the local EMS and ICU staff. She's doing much better now.
I am also officially "Disabled." I suffer from chronic severe pain from a degenerative spine. By the age of 29 I had 8 herniated discs, stenosis, and nerve damage in my neck and lower back. Now I have knee issues as well, the doc thinks it's patellofemoral syndrome, also known as "Runner's knee". And new Summer 2013 - Lyme's Disease! YAY! Ugh!
I was an RN before my back gave out.
This is one of my attempts to "Find Life Again" after this back injury has taken so much of who I used to be away from me. I go through phases on Spark People. Sometimes I'll have a run of being on here everyday, then I'll have a break of a few months, then I'll be back.
Hope you all have a great day!
Read More About DCAPDEVI (Updated March 28)




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Member Since: 4/27/2011

SparkPoints: 3,928

Fitness Minutes: 5,172

My Goals:
#1) REDUCE PAIN!!! Actually make and go to doctor's appointments, don't wuss out. -DONE! New doc Dec 2014, getting somewhere!!!

#2) Be able to perform activities of daily living without crying.

#3) Forget looking better in a swimsuit, I'd just like to look better in anything!

#4) Improve my lipid profile - lower total and LDL cholesterol, increase HDL's, and lower triglycerides

#5) Improve glucose tolerance and lower blood sugar - DONE! A1c was 5!

My Program:
Baby Steps:
#1) T-Tapp More bootcamp and every other day schedule

#2) Try to eat smaller meals and snacks more often. As weird as it sounds, I often "forget" to eat.

#3) Remember my daily Vitamins and supplements

#4) Increase activities that count as "Cardio" - bought Julianne Hough's Cardio Ballroom, interest in dancing re-Sparked!
Considering Beachbody programs.

#5) Improve my mental health by not isolating! Socialize more. Find some quality of life and not feel alone! Joined Meetup.com.

#6) Be mindful of diet and what nutrients what I eat provides, and how much junk things add. Decrease GMO's and avoid artificial sweetners

#7) Continue working with doctor's to find adequate pain management that will let me move more. DONE!

#8) Reconnect with spirituality.

Personal Information:
Coming to you from Gastonia, NC!

Looking for local friends so if anyone is in the area and wants to get together, lemme know!

Other Information:
I LOVE to read!
I am so glad the library is free. Barnes & Noble gets me into so much trouble!

I LOVE dance and music. So wish I had the pain control to dance again.

I also enjoy needlepoint, scrapbooking, and many other artsy craftsy things.

My cats are Aslyn and her two babies - Belle, and Ruari.



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Member Comments:
ONBEACHSIDE
3/8/2015 9:54:58 PM

Donna,

Hi! emoticon I was glad to hear from you. It sounds as if you have gotten some relief. Did you have interventional shots, epidural steroid injections? I am glad you didn't get any severe reactions, just as I am glad my mother didn't.

I had one when I was in my initial pain, getting worse every day, but I walked in for an ESI and ended up crawling out and unable to move my legs within two hours and unable to pee within two days. That didn't improve for over a year when I had surgery relieving the pressure on the crushing spinal cord.

I can't take anti-inflammatories as I have had two gastric ulcers and I suffer from GERD and stomach pains.. My official diagnosis was centralized pain secondary to adhesive arachnoiditis with bowel and bladder dysfunction. I only survive on 810 mg morphine equivalent pain meds. That doesn't keep me pain free and there are still moments every day I wish I was dead, just not to feel the pain. But I just putter along walking 0.20 miles per day in 25 minutes. The rest of the day is spent laying down 23 + hours a day.

It's not that I don't believe in God, it is that the questions are too big to answer. There may be a God, there may not be- who am I too say? If you want to pray for me, I just will say, thank you.

My family life is just getting awful. My father was diagnosed in January with a very rare, very aggressive cancer, only 30 or so cases reported in literature. He figures he has seen his last Christmas. I am both mad and very sad about him. It is not that I think he has to have chemo, I wouldn't, it is just that he is already assuming that he can't live more than 3-4 more good months. I just read do not tell patients to think positive as they will no longer want to communicate how they truly feel for fear of disappointing. He told me today that every time we say somehthing about being positive that he feels he has to have chemo. None of us really want him to go through cancer.

My poor Mom spent the last two months taking care of two of us gimps. Dad bought us a condo and now I have to sell the house of which I have no idea how much he is going to help. He is dumping all the work on Mom and me now. He says it is so we learn how to do it while he is alive. Yet I don't know where to stop in terms of how much money to put into the house. We didn't even get the house finished before Dad got sick. It is hard knowing right now after realtor fees, we already will likely lose money as we built this at the heigt of the market

Well that is enough of my crappy life for now. I am glad you have a doctor you feel good with. I have my PCP giving me my opioids because PM places are just not there to help you but to doubt and question and try to force interventional treatments on a disease they don't even know. I wish it wasn't that way. I wish you keep getting the support.

Thanks for dropping a line.

Hugs! emoticon

Kimberly



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ONBEACHSIDE
11/11/2014 5:08:38 PM

donna, just a short note 4 Arachnoiditits. I'll write more when up to it. AA changes the flow of CSF within the menengies of the spine, a form of menegitis. spidering of scar tissue usually in dura. Incurable, pain of cancer with no immenent relief.



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ONBEACHSIDE
6/19/2014 2:01:03 PM

Donna,

I am sorry for taking so long in writing back. I am fighting fatigue all the time. I have not been feeling well. In addition to the Adhesive Arachnoiditis and likely connected, I have had a UTI for over a year now, I have a constant low grade fever and worst of all is the stomach pain. I have to give myself a shot every other day which makes me feel horrible ( sweaty, mid to lower intestinal pains) and for about 8 months now I have been having very sharp pains which get mostly covered by the morphine but pain reaching 8-9 has been occurring up to my shoulder. It fits pancreatitis but there were no stones only the duct that drains the bile is super slow. They are treating it as slow gastric motility and I feel that it may not be. I told my folks I will not be able to live in this way and I mean it. I am going to get a referral to either Shands or Mayo. Mayo is closer in Jacksonville but when I first went there when I stopped being able to void or walk, their so called working together in all dynamics was just a case of neurology trying to get me into drug rehab rather than searching for the problem , which was the Adhesive Arachnoiditis and the need for a pedicle Subtraction Osteotomy. But Shands is 4-5 hours away and Mayo is 1.5 hours away. Any thoughts since you were a nurse?

Are you better still since the GYN surgery. How is Sparks going? I am about the same. I gained back 15 lbs and stay there now. How is your back doing now? Better,worse? Any prospects for improvement? I saw you were going to an Interventional Pain doctor, does she/he help? I saw an Intractable pain doctor as you saw in my page and the liquid morphine has been the biggest help. Also the genetic testing for pain meds helped. I learned most pain meds my body processes 70%-200% faster than the norm and that most antidepressants are just the opposite but slower?

Kimberly Comfort




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SETAGOAL1
4/13/2013 11:48:50 PM

This is for you!!

BEAUTIFUL WOMAN AWARD"

Hi! Just a shout out to congratulate you!

You are the recipient of the Beautiful Woman Award!!

"Once you've been given this award, you have to paste it on the page of 8 women who deserve it. If you receive more than 3, you know you're really beautiful! If you break the chain, nothing will happen, but it's always good to know someone thinks you're beautiful inside and out!"

Again, Congratulations Beautiful!

Thanks for spreading a little beauty, love, friendship, and support into my life!

Janet



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STEPHANIE302013
3/26/2013 11:43:29 AM

Hey! haven't seen you around in a little bit and just wanted to check in and see how you're doing? Keep up all the good work!! emoticon emoticon emoticon



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