1STATEOFDENIAL   124,281
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This pose brought to you by Ehlers Danlos. No, it doesn't hurt.





It's a kitten *facepalm* for Ehlers Danlos awareness! Credit: www.facebook.com/YouKnowYouHaveEdsWhen





Gastroparesis and digestive tract paralysis is not a rare condition. Educate yourself!



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Hi, I'm Sheri. I'm more complicated than you realize.

Imagine being sick and in pain nearly every time you eat. Imagine feeling like you have the flu every day for years. Imagine having a migraine every day for as many as 20 years. Imagine waiting most of your life for doctors to figure out some diagnoses, then having most treatments fail. Now imagine how important it is for me to live the best life I can through all of this.

My medical conditions include:
Gastroparesis, Ehlers Danlos, Orthostatic Intolerance, Complex & Atypical ...
Imagine being sick and in pain nearly every time you eat. Imagine feeling like you have the flu every day for years. Imagine having a migraine every day for as many as 20 years. Imagine waiting most of your life for doctors to figure out some diagnoses, then having most treatments fail. Now imagine how important it is for me to live the best life I can through all of this.

My medical conditions include:
Gastroparesis, Ehlers Danlos, Orthostatic Intolerance, Complex & Atypical Migraine, Status Migranosus, Fibromyalgia, Mitochondrial Disorder, Chilblains, Reactive Hypoglycemia, GERD, and Eosinophilic Esophagitis.

If you want to know about my conditions or how they affect my life, PLEASE ASK. I have no problem spreading awareness and doing my best to help others learn to live with these conditions as best they can. The symptoms cause severe disruptions to my life, so I've had to learn to think outside of the box to do what I must do whenever I can. I enjoy supporting others on their journeys. I've never been overweight, but I definitely understand great challenges and overwhelming odds so I do my best to give others ideas about how to make the changes they need to make to reach their goals.

If I can help you on your journey, especially if you have a medical condition I have, please let me know. Supporting others helps me feel productive and relevant.
Read More About 1STATEOFDENIAL (Updated August 5)


Current Status:
1STATEOFDENIAL is cursed. Was woken up this morning to a busted water heater flooding my apt. They replaced it but don't want to clean up the water. So I'm left to do it. I hate this place!!!!!!!!!!
set 16 hours ago


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Member Since: 10/9/2010

SparkPoints: 124,281

Fitness Minutes: 6,120

My Goals:
* I want to live my life as best I can, circumventing challenges and proving that I am still able to do some things.

* I will continue to work alongside my doctors to figure out ways to minimize symptoms and complications of my conditions.

* In early 2013 I want to self-publish a fundraiser book. At some point I want to finish a novel I've been working on for years and have it published nationally.

* By April 2013 I want to take a trip to Covington, GA - to take a Vampire Diaries set tour. Any other TVD fans out there?

My Program:
* I am continuing to find information about my conditions and doing what I can to make things better.

* I am working on being positive, even when surrounded by negatives.

* I am supporting others whenever I can to help me feel worthwhile.

Personal Information:
* Hello, my name is Sheri.

* I'm young enough to be trouble, but old enough to know better. (early 30s)

* I grew up in small town WI, but now live in the Twin Cities metro of MN.

* I'm disabled and unable to work, as dealing with my conditions, treatments, and doctor appointments has become like a full time job.

* I have a cat named Tane (short for Albertane). He's my family.

Other Information:
* I love music, but what I like is not predictable - I have a wide range, but I won't listen to just anything. Most of the music I like is from bands and musicians I know personally, or have met through someone I know.

* I enjoy several tv shows, including: Vampire Diaries, Supernatural, Arrow, Criminal Minds, NCIS:LA, and the Ellen DeGeneres Show.

* I didn't like hockey until I moved to MN - now I love watching the Wild.

* I enjoy reading books, though it's become harder to concentrate enough. Still, I spend a lot of time in waiting rooms so I do read to exercise my brain.

* My SN comes from the following lyric: "what was it you said, you'd keep me in one piece, one state of denial, what you didn't get inside me was one thing, one place in my mind, mine" - Circles in the Ground ~ Skywynd

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Member Comments:
MOM2ACAT
5/7/2014 9:17:59 AM

I understand what you mean about the high iron affecting the pain. Even though I have pain in all my joints, the chronic pain I always have in my left hip is the worst, and I had a lot of inflammation there before all this started.

I'm glad I can get both the "oscopopies" done on the same day too, and I feel better knowing that everything is going to be checked out.



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RISINGBLUESTAR
2/5/2014 10:13:08 AM

I Am not being non compliant. I talk about a lot of things and don't hold back too much. If I am willing to share as much as I do in a public setting, of course I would share more in a private setting. I talk about things that possibly lead to the way I think/feel. Lots of them but there are also comments she made that she didn't have to make. I don't just talk about my fears and worries but other stuff too. How I was treated, comments that could have triggered the way I think, etc. I have been very willing to try different things.



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RISINGBLUESTAR
1/5/2014 3:59:36 AM

Thanks for the advice on my blog. emoticon



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IUHRYTR
1/1/2014 7:07:01 PM

You're taking the word "ad" too literally. Look at the comment two below my other reply and see the words underlined. Those lead to ads. That's what i meant. -- Lou



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IUHRYTR
1/1/2014 6:29:39 AM

emoticon for the advice about ads. What happened in my post is what happened in the reply here two down from mine. It's getting to be too much. -- Lou



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