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AZULVIOLETA6 SparkPoints: (65,040)
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Posts: 3,183
10/8/13 11:48 A

Something to ask about in terms of supplements is Omega 3 Oils--Fish and Flax.

I find that those help a lot with the dry skin and hair.

-THENA- SparkPoints: (19,564)
Fitness Minutes: (28,196)
Posts: 360
10/8/13 10:22 A

My experience has been almost identical to Coach Tanya's without the partial thyroidectomy. It's extremely important to find a doctor that will listen and treat your symptoms and not just your labs. It's also important to know that the normal lab range can sometimes cause issues for some people. Yes, a TSH of 3 is considered normal on paper, but I can't function if my levels go that high. My levels need to be kept between 1 and 2, preferably below 1.5. Lower TSH levels (as well as free T3 and T4) in combination with switching to desiccated thyroid medication is what finally got me back to feeling like myself.

Be your own strongest advocate. Give your body time to adjust to your surgery. Changing your dosages may be all that you need, but if it isn't enough, even with good labs, don't be afraid to demand the care you need.

Good luck. :)

TONKA14 Posts: 4,947
10/8/13 9:34 A

I'm happy to share my experience. I had a partial thyroidectomy in 2002 due to Hashimoto's disease and was started on levoxyl several months later. I was being seen by a leading Endocrinologist in the city and quickly reached "perfect" levels of TSH and T4 for several years. Each time I would visit I would inform him of my steady weight gain while training and running half marathons and eating on point. I would tell of continued hair loss, fatigue and feeling depressed and my concern with that because it had never been something I had experienced even after having my children. He would tell me my labs were fine, (although my blood pressure was rising a bit each visit) and that I must not know what I am doing as a dietitian if I am continuing to gain weight. After four years of this and continuing to feel horrible I started doing research online to see what other options might be available. When I kept reading about people switching to dessicated thyroid and doing better I decided to talk with my doctor about it. He gave me a hard time and lectured me about reading stuff on the internet and trying to self diagnose. I told him I was trying to be informed and came to him to talk about treatment alternatives. His response was that my labs were perfect and I was fine and I needed to stop reading stuff on the internet. That was my last visit with that highly recommended professional.

I found a doctor that was open to trying desiccated options and quickly switched. She has been fantastic and switched me over to give it a try. Within a year my weight stabilized (didn't lose and get back to where I started but did stop the steady climb), my depression was gone, my hair stopped falling out, my blood pressure was on the way back toward normal and my labs were STILL PERFECT. I have been on dessicated ever since.

The thyroid teams here on Spark are fantastic and offer support and information from many well researched individuals. You can gather information and take it to your medical provider. If they are willing to work with you to find the best care for ALL your symptoms while also maintaining great labs, you are in business. If not, don't be afraid to seek out someone else that will be. It has totally been worth it for me.

Coach Tanya

SLIMMERKIWI SparkPoints: (137,682)
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10/8/13 4:41 A

Just out of curiosity, have you had any bloods to check your Thyroid levels done since your Thyroidectomy? (fatigue) Another thing you may need to discuss with your Dr is if you aren't on supplements, especially as your winter is approaching. Certain supplements can sometimes help, but your Dr is the best source of advise, there.

Kris

M2MAMI SparkPoints: (15)
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10/8/13 4:14 A

Thank you to everyone!!!. I do have an appointment tomorrow with my doctor. I wasnt looking for medical responses but for anyone just willing to share their experiences. I am in the beginning stages of researching what it is that is going on with my body. I have found when speaking with others you feel "not alone" and shared experiences gives you a different perceptive. Speaking with others breaks down this confusing time. I am learning a lot by just reading the post. Understanding more about T3 and T4...etc., different meds... so thank you all, I really appreciate it!!!

M2MAMI SparkPoints: (15)
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10/8/13 4:08 A

Thank you so much for responding and sharing your experience(s)!!!

M2MAMI SparkPoints: (15)
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Posts: 5
10/8/13 4:07 A

thank you!!

M2MAMI SparkPoints: (15)
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10/8/13 4:06 A

Thank you so much for your response!!!! I have an app. this week and I just found an Endo Doc and a Holistic Doc on line tonight that I plan to go see. I usually do HITT exercises and also alternate days for isolation exercises (i.e. legs on one day, arms, etc)...I want to do HIIT together with a targeted muscle group, but I'm just to sluggish to even complete a 12 minute exercise routine. I get my HIIT exercises from 12minuteathlete.com or the "12 minute athlete" iphone app. Some say you burn more calories from a HIIT routine then an hour of steady exercises. I cant spend an hour exercising :-/

-THENA- SparkPoints: (19,564)
Fitness Minutes: (28,196)
Posts: 360
10/8/13 12:09 A

I agree with the others. You absolutely need to see your doctor and discuss your issues and treatment options, as none of us are qualified to help you.

I still have my thyroid as well, but I also have Hashimoto's Disease and have been on medication for a long time. I know it can take a while for medication to help and it often needs to be adjusted a few times before we find a dosage that works well. I also know that not everyone does as well on the same medication. I took Synthroid for years, but no matter how good my labs looked I continued to be symptomatic--tired, brittle hair, dry skin, weight gain, etc. I finally ended up leaving my old doctor and going to a different endocrinologist who first added Cytomel tithe Synthroid and later took me off both and put me on Armour.

I needed the extra T3 in addition to the T4, and my body just doesn't do as well on the synthetics (which do bork fine for most people). Now I feel like I did before my body began destroying my thyroid. I have normal energy levels, my skin and hair is fine, I'm losing weight, and I'm far less moody and foggy-headed/forgetful.

Get in to see your doctor so you can get to feeling better!

SLIMMERKIWI SparkPoints: (137,682)
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10/7/13 11:48 P

This is a medical issue which needs the input of your Dr - not from an on-line site where we aren't qualified or have no access to your medical information.

Apart from that, ensure that you are eating quality food with a good balance of nutrients, and try to get enough sleep.

Good luck,
Kris



Edited by: SLIMMERKIWI at: 10/8/2013 (00:12)
AZULVIOLETA6 SparkPoints: (65,040)
Fitness Minutes: (73,268)
Posts: 3,183
10/7/13 11:38 P

You should certainly go to the doctor ASAP and have your dosage adjusted. I know someone who had a thyroidectomy about 3 years ago and she is doing well, but it can take a while to get things adjusted correctly and things can change over time.

I still have my thyroid, but it is just sitting in there being lazy. I have primary hypothyroidism as well as Hashimoto's Disease. I take Levo too--it is a very good drug that has been around for a long time.

Just out of curiosity, what kind of exercise do you do? I am at my most sluggish when I get sidetracked from my regular exercise routine.

M2MAMI SparkPoints: (15)
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10/7/13 9:42 P

Hello All,

I am new to this site and hoping to gain some knowledge on my post thyroidectomy. I got it done in Dec. 2012. I am 36 yrs. old and have two children (7 and 8). I have become so slugglish and exhausted, I just dont know what to do other then go to the Dr. and up my dosage. I go in this week. If anyone can share their opinions and experiences on differents medications, it would be greatly appreciated!!!! I am cuurently taking levothyroxine 150MCG

Thank you,


Praying to be able to workout and clean my house!!!

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