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DENRNAJ
SparkPoints: (66,219)
Fitness Minutes: (104,033)
Posts: 2,684
1/19/13 12:25 P

I have a friend that has ALS- he found a support group online. Please check out the resources there. Don't know where you live but in my area we can call "211" and access the council of community services. They don't always have the answers but they try. Best wishes to you and your family, it sounds like a very hard situation.



CECISMOMMY09
SparkPoints: (8,221)
Fitness Minutes: (4,295)
Posts: 344
1/18/13 4:53 P

Wow I do'nt have any adivce but good luck!



LOSINIT87
Posts: 203
1/18/13 2:43 P

The resources that the past responder gave seem great. But as far as helping your sister, there might not be much you can do. Other than being there for her emotionally, of course. What she is going through is a scary process, and it would be for anyone getting a life altering surgery. At her size, there are many health risks involved. It is perfectly natural for her to be terrified.

I really hope things go OK. And that you are coping, as well.



ARCHIMEDESII
SparkPoints: (138,985)
Fitness Minutes: (208,505)
Posts: 20,592
1/18/13 12:51 P

GILESDA1,

Have either you or your sister talked to her doctor ? Her doctor should be able to recommend local support groups who can help her cope. For now, you both might want to check out these websites.

www.lymphnet.org/patients/supportGroups.ht
m


www.dailystrength.org/c/Lymphedema/support
-group


www.lymphedemapeople.com/thesite/lymphedem
a_support_groups.htm


If you search on lymphadema, you might be able to find a support group in your area that you can contact.

Talk with her doctor. Her doctor should have resources for her she can use while she prepares for her surgery.

emoticon



GILESDA1
SparkPoints: (1,586)
Fitness Minutes: (624)
Posts: 52
1/18/13 12:43 P

My sister is facing a life saving surgery, but is having problems coping and I am worried more about the fact she is going into this surgery upset than the surgery. This is what is up:

My sister has had lymphedema for years, it wasn't until WE diagnosed it from watching the show about the Mexican man weighing nearly a ton that it was finally diagnosed. And we were right the tests have proven it. It has gotten really bad while she has been trying to get the surgery ok'ed. My sister weighs almost 500 pounds now and it is questionable how much is lymphedema any more, it is bigger than I thought and I worry it weighs more than the doctor thinks. I need to find her some support and fast! We can support her, but not having been through it ourselves she is constantly questioning what we say, and I know going into this upset is gonna make things harder.

Does anyone know a support group for this kind of situation? I really want to get her help!

Thank you all



 
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