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Early Onset Alzheimer's ~ Please Share Your Story



 
 
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LILYSMOM08
Posts: 1,142
10/8/12 3:51 P

I will be joining a local support group that meets at the end of the month.........I know it will help as do the kind words from fellow Sparkers.......Thanks for your prayers and advice.......
emoticon



JANIEWWJD
SparkPoints: (207,350)
Fitness Minutes: (187,960)
Posts: 6,554
10/7/12 9:33 P

I am truly sorry to hear that your only brother is sick. I will keep him and your family in my prayers daily!!!!



FITMOM1969
SparkPoints: (2,206)
Fitness Minutes: (717)
Posts: 309
10/7/12 9:29 P

I'm so sorry to hear of your brothers diagnosis, I know you have support but a group meeting for caregivers and family who are dealing with Alzheimer's in the family may help you even more communicating with those who are going through the very same thing. I worked in the medical field for 20 years and I only came across one person who I worked directly with one on one who was diagnosed at 59 he was a very successful person in every way family, work and friends and this diagnosis was very hard for him and his family. His disease progressed fast and that is why I was brought in as a private duty caregiver in home, he was taking a medication that was supposed to slow the progression of Alzheimer's but I don't believe it worked. When I could no longer work for him because he actually became violent even though he was prior a very sweet man even when I had started working for him one year earlier. The family replaced me with another caregiver for a short time and when they realized that wasn't working because he wandered from the home and became violent with that caregiver also. He was placed in a home for alzheimer patients, he had two adult children and was divorced and most of the responsibility was left on one adult child because the other one he just couldn't deal with the situation he would deal with the money, me and or house responsibilities but it was beyond him to deal with his dad.

From my personal stand point I've dealt with Alzheimer's only briefly as a young person when my great great grandmothers was still living she was 104 yrs when she died, so I wouldn't count that as young for Alzheimer's. I believe she dealt with the disease for about 16 years before she died, but given she was in a very advance age I won't contribute just Alzheimer's to her death. My grandmother kept her at home and cared for her, it was a different situation because she was bed bound and wasn't able to wander. She didn't remember any of us except for my grandmother and maybe every now and again she would remember my mom and my uncle but that was rare and just a few of our family members. She would sing church songs all night keeping my grandmother woke lots of the nights and she would sleep most of the day. But she seemed happy until the end of her days, she didn't cry, get mad or angry that we could tell or fight us like I've seen other alzheimer patients do. This disease is so confusing and vastly different from person to person it's hard to tell how things will go or what to do.

The best thing to do is have a support team to really rely on, best of care to your brother, you and the rest of your family. emoticon emoticon emoticon

Edited by: FITMOM1969 at: 10/7/2012 (21:34)


LILYSMOM08
Posts: 1,142
10/7/12 6:37 P

Thanks for your support.........Really appreciate it



EOWYN2424
SparkPoints: (114,925)
Fitness Minutes: (18,095)
Posts: 5,551
10/7/12 9:00 A

I'm so sorry to hear that! I will say a prayer for you tonight!



LILYSMOM08
Posts: 1,142
10/7/12 8:40 A

My brother was diagnosed with early onset Alzheimer's about two and a half years ago when he was only 57. The disease has progressed so quickly that we're now in the midst of looking for a long-term facility for him to live in..........Just hearing someone else's story might help me as I now find myself in the position of Power of Attourney for him........He's my only sibling (we're only 20 months apart) and this is just such a heartbreaker..........I am thankful for Spark as my regimen of cooking healthy meals and exercising regularly has helped to keep me grounded. My loving and supportive husband is my rock and my dear friends are there as well, but at times it is still overwhelming............



 
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